Port-a-cath uncomfortable
Please help me. I hate this port so bad. I just had it installed 2 days ago and i can't stop feeling it in my body. I know it is a neccesary evil but i just hate it so much. Can anyone offer any advice on what i can do to get it out of my head. I'm not a cry baby but this make me cry. Please tell me how your doing, I feel like this is going to restricit so many of my activities, and my skin care regime. Is lotion even okay? I'm lost with this thing.
Comments
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Dot - so sorry you are having such discomfort with your port. Perhaps you can give it a few more days and it will be better. I had mine put in the day before my first chemo treatment (back in June) and I have to say that I don't really notice it at all. And I am extremely happy that I get chemo through the port rather than my puny veins. As long as the site seems to be healing OK, I think you'll get used to it. It doesn't restrict any of my activities at all. I did get a small one, though. I don't know if that makes a difference.
Hugs,
Michelle
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Dot, I'm so sorry to hear how uncomfortable you are.
You just had the port put in. Believe me, as it heals you'll feel it less & less until you really don't notice it.
I had mine put in last Oct and most days forget it's there.
Best of luck.
Leah
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alfie, I was in pain and miserable the first week that I had my port in. I've had it for 10 months and it does not bother me at all! I cannot feel it, it does not restrict my movements, I sleep on that side and am able to wear shirts, etc over it.
2 days is still pretty recent. I was hurting really bad at that time so I was there too. Hang in there.
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If I recall it took me at least a week or two before the soreness resolved and I was comfortable with my port. Then I never noticed it was present until used and was easy to sleep in. You need a little more time to heal yet.
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Dot,
Is it red or puffy? I don't think it should actually hurt around the port-a-cath, although if it's just 2 days I'm sure the incision is still tender. I just want you to be sure it's not infected or a big hematoma.
I am very thin and my port-a-cath stuck so far out of my chest. You could see the three dots. But I am so, so glad I had it. It handled my chemo and my unexpected complications of neutropenic fevers, lots of antibiotics, and reactions to antibiotics FAR better than my veins could have done. I'm all done with chemo and it's out now, and my veins are normal. I lost a big vein on my hand years ago from a drug damaging it, and it was both painful and permanent.
I swam, ran, bicycled, even played some basketball (although that made me a little nervous). My then 2 and 3 year old wacked it with their heads and elbows a gazillion times. I mostly worried that it would pop through my skin because I am so thin, but it was great. Yes it's another scar, but I'm no model.
Breast cancer sucks. It sucks to sacrifice so many things about your body and yourself. It sucks that even if treatment is successful and I never have a recurrence, I will never have myself as I was again. But when I ran into the things that I just hated (radiation) I tried to so hard to think of them as tools (harsh tools, but tools) that people were using to try really hard to save my life.
I hope this helps. -
Outfield, my 2 year old almost always accidentally elbows me there
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thank you so much everyone. I know I'll get thru this. It is soo good to have women to talk to that have been through it too. I too have puny viens that are hard to find and need this yucky thing. It just itches like crazy and i just keep feeling it. Maybe once i start chemo i'll be use to it. Heck, I'm a big girl, wipe off the tears and move on the next stop on my road. thank you so much, it nice to know sometimes that your are not just being a sissy nana. lol As you can see i live with all men.
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I totally understand how you are feeling about your port. I had mine put in May 27, 2011, and I hated it, . I was very aware of it,. It felt foreign, and I couldn't raise my arm very high without feeling like it was pulling under my skin, but it took a few weeks, then I didn't seem to notice much. Mine really sticks out,and you can see the three raised bumps, even feel part of the tube going up through my skin. It still creeps me out, but I am glad to recieve my chemo through the port . I teach zumba, and at first thought I might loosen it my dancing and lifting my arms alot, but it has been fine. Hang in there, it will get better
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MIne was sore for a long time. Had to sleep on my back. I can now sleep on my side. Mine sticks out also. You can see the 3 dots. My only complaint is I have to wear certain clothes so my port doesnt show. That eliminates a lot of my tank tops and such. Thank god winter is coming and I really wont have to deal with it.
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it has been a while since my post and the port is fine. Some times at night it still bothers me but during the day no worries. Funny story, i'm so use to it now that the other day i rub it by accident and almost died. I told my husband franitcally feel this is this another lump. OMG not the other breast i thought. My hubby God bless him, felt it and calmly kissed my head and reminded me that it was my port. Whew - What a relief. Sometimes I'm such a ditz.
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Alfie, now that's funny - another lump!
My teenage DD saw the port lump and said, "So I see you've had recon". Teenagers think they are so amusing.
All the best.
Leah
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Just got my port in yesterday... and its annoying the hell out of me. Still bandaged... but sticking way out under the bandages. The port location is a very sensitive spot on me... and my awareness of this in that spot is driving me crazy more than anything else. Its like being tickled in a very ticklish spot without being able to stop it. I hope this goes away! I have to force myself to think of other things!
I do have some soreness on that side of my throat and neck. Can't reach up today and found out that I can't bend over without major throbbing in the port area. I'm clearing my throat a lot more.
I hope this is all normal. (??)
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Have you gotten the RX for the lidocaine cream? That may help. My onc perscribed using it for an hour before chemo or whenever it is iritated from chemo. Its pretty easy, you actually put a dot on and then use glad press and seal to protect your clothes. I know its not the best answer, but it might get you through you uncomfortable days until it heals... Mine was tender, but not super noticable. I have to say I can also see the three dots in mine, but its GREAT for being able to give blood as well as get chemo!
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I"m thin, and you can see my port even under close-fitting shirts, but I don't mind. I figure it's a badge of honor: I'm a survivor. I am aware of it sometimes, but not often. After surgery before the site calmed down I was aware of it more, so perhaps give it some time? I barely think of mine any more, except when it's being used. The nurses use cold spray when I'm getting chemo and I don't feel the infusions at all. Although I have to say I feel a bit like a bulletin board getting a tack pushed in when they hook me up :>)
XO Claire
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My port ( Bard power port) was inserted mid October. I really noticed it at first and thought I wouldn't be able to bear it but it healed and now I rarely notice it. I love it for blood draws and infusions. My puny veins on my one good arm would have been miserable. Give it a bit more time.
Caryn -
I'm only entering the 48+ hour mark... but saw primary doc today and she saw I was having an allergic reaction to the latex tape and switched me to paper tape. MUCH more comfortable. Still sore -- but don't feel like crawling out of my skin anymore. Thanks for the feedback -- looking forward to not noticing it!
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Morning, ladies!! My port was installed 12/14, first chemo 12/19. Woke up instant, ready and raring to go. Second morning, had my first meltdown of this whole cancer business that started Veteran's Day. Poor hubby was in a quandary on whaat was up!! I am NOT a weeper. He went to work, talked it out with his office crew, checked in mid-morning and I was fine again. I hurt Like He--!. I have wicked BIG neck and shoulder muscles from years of outdoor farm, garden, contruction, sports stuff. My surgeon weighs 90lbs dripping wet. I think she used a block and tackle and crowbar to get it threaded in. Couldn't turn the neck, couldn't sit up from bed, and had visions of being like this for months. After three days, the tension released, thought something had popped, but we're good. Bandages off was a wonderful day. Steristrips pull my skin, too much. Went SNOWBOARDING, not shopping, yesterday 12/26, no problems. It was great for the first chemo treatment, cause I fidget and anything tube on my hand or arm feels just too EERRGG. Could read and eat and do netbook during treatment and it was away from my line of sight. Hang in there!! Now if someone could take out that one stitch that's catching my clothes and necklace, I'd be really happy!!! Enjoy the Season!
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I never did get used to my port. I hated it. It was painful only the first few days and whenever I turned my neck I could feel the tubing and it felt weird. When the pain finally went away the thing creeped me out all the time. Mine too stuck out a lot because I am bony on my chest area. I had mine in for one year and just got it out a month ago.
Having all those negative things to say about the port I will admit I was so happy I had it, it made chemo and herceptin infusions so much easier.
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I've had mine in for a week and I hate it.....it creeps me out. I feel it every time I move and I feel like I have some foreign alien thing in there.
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Char, that's how i felt. It did get better. hang in there!
and yes, it creeped me out.
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