2011 Running Thread

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  • kathyob
    kathyob Member Posts: 36
    edited October 2011

    Lewing,

    Thanks so much for your good luck wishes!! I have a stomach ache and am so very nervous today. The race is tomorrow, but I am in Columbus. I would love to do the Detroit one someday, that sounds great! Maybe we could do it together! 

    Love this thread...so great to read all your stories, and know we are so much more than our diagnosis!!

    I'll have you all with me tomorrow. 

  • amyK
    amyK Member Posts: 41
    edited October 2011

    Hi everyone,

    Glad to find this thread and looking forward to reading more. I thought I'd offer my story, in case it is reassuring or inspiring to anyone just starting out with treatment. 

    I was diagnosed Oct 15, 2010, three days after running my first half marathon. Since then I've had a year of treatment including mastectomy, chemo, radiation, and after all that, tamoxifen. There were many times, especially during the Adriamycin phase of chemo, where it was hard to imagine that I'd ever feel well again.

    On the first anniversary of my diagnosis (just a few days ago now) I ran the same half marathon again and improved my time by 12 minutes, and felt great doing it.

    I've been blogging and videoing my journey through all this, if you're curious, you can find out more here.

    Happy running everyone!

    Amy

  • goldlining
    goldlining Member Posts: 1,178
    edited October 2011

    Congratulations amyK! What a year!

    Looking forward to hearing how kathyob's run went. 

    Last week, I got the unwelcome news my DIEP was postponed yet another week, and is now just SIX weeks before the Tinker Bell Half. Husband says let's plan to go anyway. Worst case, it's a warm weekend out of miserable white north January. Surgeon agreed I was out of my mind at seven weeks, but mainly because my time would suck, but that I'm allowed to do it. I do look forward to looking back, a year from now!

  • CLC
    CLC Member Posts: 1,531
    edited October 2011

    Amy...thank you for sharing.  I have just had my surgical drains out today and been told not to run until I have full mobility in arm, which he predicts is about a month out.  That left me feeling a little defeated...until you gave me a whole lot of perspective....  Congrats on your run!!  

    Goldlining...I'm sorry for the postponement...  I hope you still get to go...

  • orangemat
    orangemat Member Posts: 645
    edited October 2011

    CLC, I was told I could run, as long and I didn't move my arms much.... wha??? Regardless, I went back to easy running about a week or so after both the UMX and the TE exchange procedures. No racing, no speedwork, just easy la-la-la runs, and I was so happy to be able to do that.

    Amy, congrats on your half marathon! What a wonderful comeback to yourself that you've had this year.

    Kathy, yes, I love that sentiment: we are so much more than our diagnoses. Hope you had a great race!

    goldlining, that's exactly the right attitude, looking forward to looking back fondly! I'm still undecided about the Disney World Marathon, as I had said, but since I have until Thanksgiving to officially defer, I'm not committing to anything.

    Me, I walked in the Avon Walk this weekend, managed to do 17.1 miles on Saturday and completed the 13.1 miles on Sunday. Somehow my metabolism got out of whack on Saturday and I had to quit before I had finished the entire 26.2. Crazy how I could run that far, but walking didn't agree with me. And the going was so SLOW, barely over 2 mph with all the potty stops (my wonderful team of 12 women would all wait for each other), lunch break, sidewalk traffic with other pedestrians, and waiting for the traffic lights to change when crossing streets. Definitely NOT a walk in the park! But it was a fabulous experience, as well as a good cause. I've already signed up for next year.

    Oh, and to make all things right, I ran a leisurely 9.3 miles this morning. So happy to be doing what my body loves best!

  • CLC
    CLC Member Posts: 1,531
    edited October 2011

    orangemat...  my bs really was concerned with the arm movement.  If I get really antsy, I will run with my arm pinned to my side...but I ill try to stick with walking as long as I can...  I am glad you got to run :)

  • orangemat
    orangemat Member Posts: 645
    edited October 2011

    CLC, did you have reconstruction with your UMX? I was mostly in the care of my PS after my first procedure, since I had a TE and was going to him for the weekly fills. My BS really didn't have much to say about my recovery once she had finished her part in the operating room.

  • CLC
    CLC Member Posts: 1,531
    edited October 2011

    No recon here...

  • orangemat
    orangemat Member Posts: 645
    edited October 2011

    Ah, I guess that's the difference in the post-op care and recommendations. I really only know from my own experience in this.

    Hang in there, you'll be running soon enough. Though walking's nothing to sneeze at either -- I totally wore myself out walking this past weekend!

  • CLC
    CLC Member Posts: 1,531
    edited October 2011

    Thanks, orangemat...  I am trying not to think about what I am losing...the muscle, the stamina... and remember that I got in great shape once, after spending most of my life in lousy shape...I can just do it again...this time from a much better startng point...

     And...walking aint so bad... Also, I do have the clear to do simple ab and leg workouts, so I will do that and try to stay strong...:)

  • groovygirls
    groovygirls Member Posts: 223
    edited October 2011

    First post in awhile- had the BMX with immediate recon on 9/12. Still don't have the okay to run but I have the Goofy Challenge planned for beginning of January. I am walking the training distances and feel pretty good and feel I can do the marathon and the half.....



    I have my oncology appointment thursday and will find out if I need chemo or radiation then. Have any of you been able to exercise and have chemo too?

  • goldlining
    goldlining Member Posts: 1,178
    edited October 2011

    Oh groovygirls, that's so encouraging!!

    What kind of recon, DIEP? Let's see, that's 5 weeks. At this point, how long can you walk (time) and what pace?

    Fingers crossed you'll have no chemo/rads but if you can do a Goofy, you're tough enough for whatever they throw at you!

  • groovygirls
    groovygirls Member Posts: 223
    edited October 2011

    I had immediate reconstruction with silicone implants. No TEs, no fills....all done. I walked 7 miles Tuesday at at 16 minute mile pace and did weights with my personal trainer for 1/2 hour. I can walk the required pace now but not sure if I can do it with chemo on board. Anyone else with experience? I am walking because I haven't been cleared to run yet

  • LMichele
    LMichele Member Posts: 165
    edited October 2011

    Groovy girls did they do the oncotype testing on your tumors? I also had 4 tumors, no nodes... Luckily I had a low onco score so chemo was not recommended. Phew. the waiting was a bitch though, trying to convince myself I could handle it. Best wishes!!!!!!

    I think if you can do 7 miles just 4 weeks after major surgery you can handle ALOT!!!

  • orangemat
    orangemat Member Posts: 645
    edited October 2011

    Good luck to you, groovygirls. Hopefully I'll be joining you for the marathon part of the Goofy Challenge... I have my first of three consults tomorrow regarding my revision. At this point, I'm thinking of putting the surgery off until after the race, after all. Talk about not being able to make up my mind!

    I had a great track workout last night with my running club. There's a bunch of women I've gotten to be friends with from the club. I'm of the slowest, but when we're doing intervals and walking the recoveries, everyone always starts and finishes together. These women have been my core support group all throughout my DX, surgeries and recovery.

  • groovygirls
    groovygirls Member Posts: 223
    edited October 2011

    Thanks for the input. I have my oncology appointment tomorrow (fingers and toes crossed)

  • orangemat
    orangemat Member Posts: 645
    edited October 2011

    Well it's Thursday, hope groovygirls is getting some good news on her appointment today!

    I ran 5.5 miles this morning, and got out early enough to be done and showered and dressed, hair blown and makeup on even, to be out the door by 10:30am. Good thing I don't have a day job!

    How's everyone else doing today?

  • marie11
    marie11 Member Posts: 75
    edited October 2011

    I am wondering how an exchange compares to the original surgery. I am over three months out and just barely feeling like myself again. Although I am looking foward to having the exchange and moving on with my life I am apprehensive about going through the whole process of getting better again.



    Sounds like most of the ps say to take a month off from running. I can't imagine doing that. I only managed to take off two and a half weeks after b/l mastectomy.



    Running a 5k with my son next weekend. Hope I can keep up with an 11 y/o.

  • orangemat
    orangemat Member Posts: 645
    edited October 2011
    Good luck next weekend, marie11! And I totally get that about not wanting to start from (almost) scratch again after another procedure. Looks like I'll be doing the same thing myself in about a month. Met with my PS this afternoon, and the soonest date that works for the revision is November 14. Oh goody, can't wait to have drains all over again!
  • Adey
    Adey Member Posts: 3,610
    edited October 2011

    Started Couch to 5K from Cool Running again this week.  Hope to do a 5K in the spring or summer.  Reconstruction 12/6. 

  • lewing
    lewing Member Posts: 1,288
    edited October 2011

    Welcome, Adey!  Groovygirls, hope you got good news - i.e., no chemo - at your onco appointment.  (If chemo *is* recommended, know that it's not fun, but it's doable . . . and you may very well find you can run right through it.)

    Went for a rainy evening run tonight while my car was getting new tires put on . . . six miles, felt great.

    L

  • orangemat
    orangemat Member Posts: 645
    edited October 2011

    Hey Adey, isn't that a great program? My husband did it three times before it "stuck" and now he's about to run his first marathon (NYC) in a couple weeks. Best of luck to you!

    lewing, I love running in a light rain. And that distance always seems to be optimal, not too long, not too short. Definitely worth one's shower!

    I went to sleep last night debating about my January marathon. I saw on the RunDisney page that I could switch to the marathon relay; my husband would be willing to do it, assuming (as he says) he ever wants to run again once he gets through NYC. But to travel to Florida, 8 weeks post-op, just for a half marathon? So now I'm kicking myself for having signed up for this race in the first place. I should've waited, but I was afraid it would close out. The only reason I picked it was because the rest of the fall was booked up with family and other obligations, and I was itching to run a real marathon race already, and so it was the first available date. I shouldn't have settled, I realize now, and just planned for something meaningful to do in the spring. But no one really told me that even though I might feel recovered enough, the risk of having further surgeries was out there. Live and learn, oh well.

    Quads are still sore from Tuesday night's track workout, as well as the couple yoga classes I did this week (just starting back there again as well), so I'm thinking a nice long and slow run will be on tap for me today. I haven't done hills in a while, so I'm sort of itching for that, but I think those will have to wait for next week. Happy Friday, all!

  • groovygirls
    groovygirls Member Posts: 223
    edited October 2011

    I have great news- my onco test was 9 which means no chemo!!!

    I am going to be so Goofy in January (half marathon on Saturday- full on Sunday: 39.3 miles in two days!)

    Orangemat- go for it! Perhaps we can meet up. I will be at the back of the pack and perhaps last but so what- I will have a smile on my face- I will be alive for another day :)

    I have not been given the okay to run but everything felt so good I snuck in a 1 minute mile (don't tell my PS)

  • goldlining
    goldlining Member Posts: 1,178
    edited October 2011

    Hey orangemat, I went from Canada to Florida for a half marathon 10 weeks post mx. Thank heavens!!I The trip isn't a chore, it's a gift! After sticking out the drain and infection and all the rest, I deserved it!! So do you! It wasn't a good pace (but I did finish ahead of a remarkable number of people). Upright and smiling, baby! I was having a crisis over the Tinker Bell just SIX weeks after DIEP, and my husband said, you know, worst case, you're in California for the weekend in January instead of the frozen north. Still planning to TRY it.

  • LMichele
    LMichele Member Posts: 165
    edited October 2011

    Yay groovy girls!!! I am so happy to hear the good news! Your score was even lower than mine. You must be so relieved!

    (in my case my relief was short-lived, at first... I still had to undergo the BMX)(which was so scary)

    Congrats also on that one minute mile!!!

    I am 10 days out from the silicone exchange, I did 5.5 the day before surgery, another 2 weeks or so till I can exercise again. It should be much easier than the 10 weeks off post BMX...
    I'm not a marathoner like some of you just a lifelong runner...

    Kelly Drive I miss ya!

  • groovygirls
    groovygirls Member Posts: 223
    edited October 2011

    Oops....it was a 10 minute mile- I am not that fast!

  • orangemat
    orangemat Member Posts: 645
    edited October 2011

    I was wondering about that.... maybe you only ran one minute??

    Doesn't look like we'll be going to Orlando at this point. My husband said that if I were training up properly for this race, of course we'd go, but just to wing it only because I don't want to "waste" the registration fee, it's really not worth it. As it is, we're planning a big vacation in February, so it's tough for him to be away from work for so long. So I think I'll be deferring to January of 2013. I still have until Thanksgiving to officially decide though. So we'll see.

  • marie11
    marie11 Member Posts: 75
    edited October 2011

    I was pretty ticked off that I couldnt run a half 2 months after surgery.  I have run it many times over the years.  But I know myself in a race I will run faster than I should if I am not properly trained and although I could have done it and somehow finished it just wasnt worth the risk of injury.  I will be annoyed all over again in Nov when the marathon I was also planning on running goes off without me.  But this is easier advice to give than take for myself, there are other races and there is next year.  So dont feel too bad about missing any one race.

    Love the couch to 5k program.  Have helped a number of people through it over the years.  It really does turn non runners into runners in a pretty short period of time. 

    Have a great day everyone. 

  • lewing
    lewing Member Posts: 1,288
    edited October 2011

    Beautiful day here today!  I did 10 super-slow miles this morning, the first 6-7 with music.  That's unusual for me . . . I have had very bad luck with clip-on MP3 players, mainly because I sweat so much that I destroy them in short order.  But it was cool enough today that I thought I'd be OK running with my iPhone in my gloved hand.  And it was, for a while . . . having a soundtrack was great and definitely made the miles pass more quickly . . . but the left earbud kept falling out and carrying the phone made my arm carriage really awkward and as the sun rose higher I started sweating more heavily and really wanted to ditch the glove but feared for the longevity of my phone were I to clutch it directly in my sweaty hand . . . so I finally stuffed it in the pocket of my running pants and finished the run much more comfortably.

    Kathyob, we'd love to hear your race report!  Is that Columbus as in Columbus, OH?  If so, that race is a favorite of some of my running buddies here.  I went down there with a few of them a few years back and bandited the first 15-16 miles of the marathon course as a training run for NYC.  I really liked the tour of Columbus.

    Orangemat, sorry that Orlando may be a no go.  But if you're not otherwise in the market for a Florida vacation that time of year, I think bowing out of the race is a smart decision.  And I was very interested to learn that your husband will be running NYC.  I plan to park myself on 4th Ave in Brooklyn, around 6th St. (between miles 6 and 7) to spectate . . . so when the time gets closer, if you want to tell me your husband's pace and how to spot him, I can guarantee he'll have a cheering section.  (Assuming he's in the blue or green starts . . . the orange start is on the opposite side of the street at that point.)

    L

  • orangemat
    orangemat Member Posts: 645
    edited October 2011

    Hi everyone! After a day off from running yesterday (had family commitments), I thought I'd do a nice long run today, just because. Ended up with 12.5 miles around noon, using my latest technique of stopping for a couple sips of water and two Chomps every three miles as I ran in the county park. I wonder how long the water fountains will be active as we move further into the fall and winter, but up until then, I can maneuver the loops to come across a water source like that for up to 18 miles in total without retracing my steps too much. Too bad I don't have a marathon to train for.... Tongue out

    Yeah, I'm totally fine about scrapping January now. It is what it is.

    Nice 10-er, lewing! I run with music whenever I run by myself, and have had no issues with my ipod regardless of the weather. Is it really that cold by you that you need gloves already? It was 60F and sunny throughout my run, and I had on a running skort, short-sleeved top and arm sleeves. The arm sleeves were primarily so I could have a pocket for my ipod, otherwise I would've worn long sleeves. And though I don't have LE, with all the referred arm pain I've been having, when I wear these sleeves it makes that area of my arm feel better. Massaged, almost. Also, my deconditioned triceps muscles didn't flop about as much as I ran, so I got to be more aerodynamic. Yeah, that's it, exactly.

    My husband's in the blue start, third wave. Here's a link to his blog, where he's been documenting his story of fundraising and training, since this is his first marathon.

    Has anyone here ever done a Ragnar Relay, or any other sort of relay? I did Ragnar New York in May and loved it, and can't wait to do another one. At the start of my team's training, we all went to see the one-time showing of the movie "Hood to Coast" last January. I knew no one on my team at the time, and had just answered an ad posted on my running club's newsletter that they were looking for a couple extra people to complete the roster. I was DX'd about two months later, and postponed my surgery until after the relay in May. Since it was low-grade DCIS, my BS was totally fine with that. So now with this upcoming marathon dilemma, I've got the same sort of situation again. But this time I don't want to postpone things anymore. It's a BTDT sort of thing, get it? Time to take care of ME first, and the running will come later.

    Sorry about being so wordy, but after two hours of running my brain goes on overdrive! Have a great rest of the weekend, all!

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