Please recommend a good BS in Boston

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BostonLex
BostonLex Member Posts: 28
I have received great advices and emotional suppot from this forum. Thank you for all the valuable insight I get here, certainly more than what I'd like to get from my BS.
The BS I'm seeing now is not accessible at all. All communications have to go through an assistant of hers and she communicates with her assistant through emails too. My BS is not willing to certify that I need time off from work, she thinks the surgical procedures (MRI guided core biopsy, excisional biopsy and partial mastectomy) I had are out-patient surgeries and I should be able to return to work the next day. Being diagnosed with Breast Cancer and getting through all treatments are already difficult to cope with. I'd like to know if anyone had/has good doctors in Boston to recommend.

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  • momand2kids
    momand2kids Member Posts: 1,508
    edited June 2010

    Hi

    some names for you--these are breast surgeons (I think that is what you asked for)

    Barbara Smith at MGH

    MaryJane Houlihan at Deaconness

    Peggy Duggan at Faulkner

    But if you are done with surgery, then you really need an oncologist- depending on your diagnosis--I have some names of some good ones.

    let me know

  • jeanl151
    jeanl151 Member Posts: 146
    edited June 2010

      I see Dr Michelle Spect at Mass General, a lovely caring doctor who is easy to talk to.  They work as a team there. I see Dr John Erban as my oncologist. I took some time off after each surgery (lumpectomies) and time after each chemo treatment

      Good luck

  • BostonLex
    BostonLex Member Posts: 28
    edited June 2010

    Thank you, momand2kids! appreciate it.

    I need additional surgery to get better margin, then I'll start to consult with Oncologists on options for further treatments. I'm struggling with whether it is a good idea to switch surgeon at this point, but I'm frustrated with the situation of not getting direct communication except for my appointments (hard to schedule) with the surgeon, not even once since March. I heard some doctors are not willing to accept you if you are being treated by their collegues. Not sure if it's true!

  • jeanl151
    jeanl151 Member Posts: 146
    edited June 2010

      I see Dr Michelle Spect at Mass General, a lovely caring doctor who is easy to talk to.  They work as a team there. I see Dr John Erban as my oncologist. I took some time off after each surgery (lumpectomies) and time after each chemo treatment

      Good luck

  • BostonLex
    BostonLex Member Posts: 28
    edited June 2010

    Thank you, jeanl151, I'll contact MGH.

  • mrsb45
    mrsb45 Member Posts: 122
    edited June 2010

    I  saw Dr. Michelle Gadd at MGH and she is so nice, compassionate and easy to talk to.  You have to wait quite awhile at visits but worth it. She even called me on Mother's day to give me some results so I wouldn't be worrying... Good Luck with your decision.I think this part sometimes was the worse... dealing with the "shock" of diagnosis and confusion of where to go and whom to choose...:)

  • BostonLex
    BostonLex Member Posts: 28
    edited June 2010

    Thank you, mrsb45! can't agree with you more, "dealing with the "shock" and getting the best medical care you can get takes lot out of you. It's not possible for me to return to work the next day after a surgery when I was still under the influence of general anathesia. I'm frustrated that my BS doesn't understand that.

  • momand2kids
    momand2kids Member Posts: 1,508
    edited June 2010

    Hi

    while I think it is nice to have a surgeon that is kind and compassionate--- at the same time, competence is critical as well.. Also, bear in mind that after your surgery, your surgeon may not be leading your care--if you need a med onc, that will be the person, not the surgeon.  I loved my surgeon, but I only saw her afterwards for a follow up and a 1 year check in-- my med onc is the quarterback for me.  So, if you have confidence in the surgical skills, you might want to just go forward..... 

    As for working and all that-- you make those decisions, not the surgeon--- and again, if you need letters, a med onc could write those as well... it is hard to go back to work after being under- you do need a couple of days to bounce back.....it seems unreasonable for the surgeon not to see that

    be well.....

  • BostonLex
    BostonLex Member Posts: 28
    edited June 2010

    Thank you, momand2kids!

    That's exactly my struggle. Sometimes, I tell myself to move forward with this BS because I have no reason to be unhappy with her technical skills, but sometimes, I have 2nd thoughts.

    There was a second mass showed up on my initial MRI, but was less clear when I had MRI guided biopsy. Therefore, all subsequent biopsy and partial mastectomy are to address the one mass that's more clear. I questioned whether there is a way to address the 2nd mass, but was told the 2nd mass might be related to my hormone cycles. Regardless of the 2nd mass, I need at least one more surgery to get clean margin.

    Dr. Lagios  recommeds to wait for 3 months for the partial mastectomy to heal and get another MRI before additional surgery. I'm more convinced by Dr. Lagios's approach.

    At this point, I feel communication with the BS is so critical, but I don't feel I'm getting what I need. My BS teaches classes and sees patients one day a week. The rest of time she stays contact with her assistant through emails. All my questions need to go through her assistant and wait for days to get answers. Sometimes, I don't get answers and have more questions about the answers. In addition to that, she is not willing to certify (my employer is fine with me taking time off from work to address my breast cancer concerns, but the approval requires treating doctor's certification) my time off from work, her assistant made mistake about my surgery location, didn't get my medical info faxed to my employer, all those made me wonder if it's time to switch. Will the next BS better? Should I just stay with her? I might not need a medical oncologist if I can get clean margin. I have had all surgeries with this current surgeon, is it wise to switch for the above reasons?

  • scrapmom40
    scrapmom40 Member Posts: 165
    edited June 2010

    HI BostonLex - I loved my BS.  Her name is Dr. Suniti Nimbkar and she works out of Dana Farber and also South Shore Hospital.  She does her surgeries at either the Faulkner Hospital and South Shore Hospital.  She is the head of the South Shore Breast Care Center.  I had a mastectomy on my right breast in March 2008 and I also had my left breast removed in December 2009.  She did both of my surgeries and I cannot say enough about her.  She was great and did a great job.  As weird as it sounds, I get compliments on my mastectomy scar all the time and how good it looks.  I think that is a huge credit to her and how good her work is.

    Good Luck with finding BS that you like.

    Karen

  • lollyo
    lollyo Member Posts: 85
    edited June 2010

    I have had very good experiences with Peggy Duggan who works out of the Faulker and B&W.

    good luck.

  • Red_Bubbles
    Red_Bubbles Member Posts: 23
    edited September 2010

    Dr Michelle Gadd at MGH ; Dr Lawrence Geoghegan at Mount Aubrun Hospital

  • BostonK
    BostonK Member Posts: 5
    edited November 2011

    BostonLex....your breast surgeon was Barbara Smith wasn't it???  I can tell because I had the VERY same experiences.
    Diagnosis: 6/14/2011, IDC, 2cm, Stage IIa, Grade 3, 0/4 nodes, ER+/PR+, HER2-

  • BostonK
    BostonK Member Posts: 5
    edited November 2011

    Barbara Smith at Mass General was my surgeon.  She doesn't return phone calls and refused to order an Oncotype Dx test.  She even refused to answer my request for the test.  She simply ignored me.  When I finally asked her for the third time why she hadn't yet submitted the test as it's standard practice.  She simply stated that "she doesn't follow the same guidelines".  Well...if she had bothered to answer me the first time...I would have gone to a DIFFERENT doctor.   Thanks for wasting my time as my cancer GROWS!  My new docs were/are BAFFLED at what happened while in her care.  They couldn't believe that someone WOULDN'T want the Oncotype data and said that I should have started chemo 4 weeks earlier.  She even BLOCKED me from meeting my own oncologist!  I kept asking to meet my oncologist.  I really hope that people read this and be careful of this doctor.  Something is "off" with her.  There are creepy control issues going on.  It's like she gets pleasure out of delaying cancer patients treatment.  She actually mocked me when I told her I was concerned about the many scheduling mistakes, holding up of testing and blocking me from meeting my oncologist.  Why would a hospital continue to let her practice?  Every doctor that sees my diagnosis date and when I ACTUALLY started chemo is horrified.  Thank you Barbara Smith!  My tumor grew an additional FULL Centimeter because of your bizarre ego.  (Yep...I'm angry.  My life is precious.  Not a game.)

  • momand2kids
    momand2kids Member Posts: 1,508
    edited October 2011

    boston k

    I just wanted to cormment on your post. I was so surprised to read that you had such a bad experience with Dr. Smith.  That is so opposite the experience that I have had or the experience of everyone I have recommended to her.  But I realize that this bc thing is experienced differently by everyone and it sounds like you did have an awful experience.   

    My experience with Dr. Smith was that she was kind and compassionate and took alot of time to meet with me in the beginning---I am now followed by my MO, so I don't see her. But my best friend just had surgery with her and loved her.

    I am so sorry your experience was so bad.

  • BostonK
    BostonK Member Posts: 5
    edited November 2011

    thanks Momand2kids!

    Yeah..Dr. Barbara Smith was a nightmare.  I was sooooo impressed with her at our first meeting.  I'm sure she's an excellent surgeon, but her patient management is terrifyingly poor.  She delayed me getting treatment.  She told me that she has 50 patients at one time.  With just one assistant and her crazy busy schedule...she's just not able to give timely care and coordinate testing, etc.  Cancer can't wait for her to get her act together.  She may be good at surgery but she's delaying people's treatment.  She's not able to coordinate care efficiently.  I thought it was me at first...you know just panicking but then when I ran the scenarios and mistakes and scheduling delays by 2 other nationally known (if not world wide) onco and surgeon...they were baffled at the delay of my treatment and the tests that I had not yet received.  She's got a great rep but if you can't get timely treatment from her.....what good is it?  I just want people out there to be aware.  You have to reallllllly watch out!

  • BostonK
    BostonK Member Posts: 5
    edited November 2011

    I too had to ask Barbara Smith's assistant 3 times to fax my disability paper work in.  She had my bloodwork results for 3 and half weeks and then postponed my surgery because my liver enzymes were high (which could mean that cancer had metastisised).  So once again, another delay in getting treatment.  She had my bloodwork for 3 and a half weeks and never bothered to look at it.  Thank GOODNESS the CT scan showed that it didn't spread to the liver.  But this is just one of many examples of how her patient managment skills are soooo dangerous to us. 

  • groovygirls
    groovygirls Member Posts: 223
    edited October 2011

    I had the exact opposite experience with Dr. Smith. I could not have been happier or more pleased with the care I got from her.

  • Makratz
    Makratz Member Posts: 12,678
    edited October 2011

    I see Dr. Maryjane Houlihan from Beth Isreal in Boston.  I love her.  She is very compassionate.  Good luck with your decision.

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