How was your BC found? By doctor or you?

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  • Ang7
    Ang7 Member Posts: 1,261
    edited October 2011

    Mammogram.  Had my first one ever that showed some calcifications.  "Keep an eye on them."

    Had 4 young children and skipped the next year's mammogram.

    Got one after that and then came mastectomy/chemo.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2011

    Well, my completely non-scientific poll so far shows roughly:

    32 found themselves

    25 found by doctor/mammogram

    Shows the importance of self checking (knowing what your "normal" breasts feel/look like) AND routine mammograms.  Neither one alone is a guarantee that everything is okay. 

    Thank you everyone for sharing and keep 'em coming.  

  • orangemat
    orangemat Member Posts: 645
    edited October 2011

    Regular annual mammogram found two spots of calcification in my right breast back in February of this year. Turns out the deeper of the two spots, almost on my breastbone, was DCIS; the other was ADH (atypical or pre-cancerous cells). My gyno said there's no way the DCIS could've been felt as a lump since it was so deep, so it would've been missed had I not had a mammogram. He did say he could feel the ADH spot; I'm ashamed to admit that when I tried to feel for it myself later, I couldn't find it.

    Needless to say, I was lucky because I was diligent with my appointments. I ended up having a UMX because I'm small, and after a lumpectomy and an excision biopsy (for the ADH), I wouldn't have had much breast left. I'm relatively pleased with the NSM, but revision surgery is still necessary. Sheesh, I really thought I was done....

  • cp418
    cp418 Member Posts: 7,079
    edited October 2011

    Mine was too deep against chest wall to be found on physical exam.  It was eventually found on mammogram when it spread to sentinode.  At the time, I did not know about breast density being a risk issue yet I was pulled aside into that special wait room when radiologist sees "something".  This occurred for my very first mammogram.  Later I was told all is fine and too leave but not allowed to speak to the radiologist when I asked.  I feel I learned a lesson the hard way.  I believe something was seen early on and a decision was made without my knowledge to "watch" certain areas.  Back then my mammograms were scheduled every 2 years.  Wish I had known and switched to yearly schedule.  No wonder I am such a PITA with these drs now!!  Embarassed

    Edited to add - no one ever mentioned doing a followup ultra sound either. So no one told me anything about my breast status. I simply got that form letter in the mail a few weeks later "You have a Normal Mammogram."  Duhhhh!!

    SusanG -- can you also update your count to include those tumors which did not show up on a scan - mammogram?  I think this is import information for many of us that the current mammogram "system" is not perfect!  I am always very disappointed when I see how it failed for so many women.  THanks!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2011

    Good idea cp418.  I think I'll edit my original post and put updated info at the bottom too. :)  I wish I could post all these responses on something like facebook.  I bet most of my friends would be surprised.

  • Booboo2
    Booboo2 Member Posts: 59
    edited October 2011

    Mine was found by a mammogram.  I had been having mammos every two years for the last decade or so, and a one cm invasive ductal carcinoma was found last June. It was treated with a lumpectomy and radiation, and I have been told that I am unlikely to have a recurrence.

    Unfortunately they can never give a 100% guarantee, so I still need to be checked regularly.  I'm now having mammos every 6 months.

  • CHmom
    CHmom Member Posts: 8
    edited October 2011

    I found the lump myself. I was 33 and had just finished breastfeeding my son 2 months earlier. I felt my left breast and there was a lump there. I then felt my right breast and there were no lumps so I started to worry. I saw my OB 2 days later and had a diagnostic mammogram and ultrasound the next day. They knew from the mammogram and ultrasound that it was most likely cancer with node involvement.

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited October 2011

    When I was referred to the breast surgeon following my diagnosis he reviewed my mammogram and said it was worthless because my breasts were so dense. Thankfully, I was receiving annual mammograms and ultrasounds because my breasts were so dense. The ob/gyn felt the lump and a diagnostic ultrasound confirmed it. I always tell women they should find out if they have dense breasts and if so, demand an ultrasound. I am telling all of you sisters that we deserve a better way of screening. With younger women who have dense breasts, mammograms are, as my breast surgeon stated, "worthless.". We have been hoodwinked into believing that annual mammograms are our best friends. Clearly for many of us, they're not!"

  • Terry71
    Terry71 Member Posts: 293
    edited October 2011

    I found my lump in my left breast ro the left of the nipple, only really bothered me when It was that time of the month so I and waited, and waited, 7 months to be exact, went to the dr on an unrelated issue and said umm hey I have this lump, he booked a mammo and us and came back suspicious calcifications in the left breast, the right one was normal....and clear.... had biopsy and then advised I had BC....... had lumpectomy and node dissection... Tumor was at 3 O'clock 2 cm's behind the nipple!!!!!! and 2.9 cm's   chemo now, rad afer this is done and after mast and reconstruction.... Am I scared YES, not that I HAD bc dr's and surgeon ar confident its Gone and they got it all, but scared to have the breast removed, being SAFE. Glad I have small breasts....

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2011

    Okay... put non-scientific results in original post.  Will update when/if more responses come in. Very interesting.

  • CLC
    CLC Member Posts: 1,531
    edited October 2011

    cool thread...this is very interesting.

    In my case, mammogram finding led to adh dx and increased screening.  One year later, lowest grade of unifocal dcis  found.  I think mammogram and then heightened scrutiny saved me from chemo, rads and a much more involved dx...

  • cp418
    cp418 Member Posts: 7,079
    edited October 2011

    Susan - Thanks for the count update!!  Honestly it is a bit scary knowing how many tumors were missed and found by other means.......

  • orangemat
    orangemat Member Posts: 645
    edited October 2011

    CLC, looks like you had the same experience I did, more or less. Glad you were vigilant and it was caught early.

  • GR4C1E
    GR4C1E Member Posts: 159
    edited October 2011

    I found mine in the shower.  I've always done self exams in the shower.  A bit of advice;  NEVER perform a breast self examination in the shower.  I almost passed out.  I actually had to take a knee for a moment.  I literally crawled out of the shower onto the bathmat in total shock.  After my biopsy the doc told me they don't make shower cards anymore for that very reason.  She said they teach young women these days to lie down before performing self exams.  Good advice.  If you find something, you're going to end up in that position anyway, so why not start from there!

  • maywin
    maywin Member Posts: 49
    edited October 2011

    April 2002-yearly gyn visit. He found "fibrocystic changes" at eleven o clock in my right breast. Mammogram two weeks later, all clear!!! February 2003- pain in right breast, felt lump the size  of an eyeball at eleven o clock in my right breast!!!! 2.5 cm DCIS and IDC!!!! I am an advocate of SBEs.

  • NatsFan
    NatsFan Member Posts: 3,745
    edited October 2011

    Six months after a clean mammogram, I had multifocal tumors (largest was 2.7 cm) and lymph node involvement.  So put me in that 30% who had lumps within a year of a clean mammo.

    I found the big lump myself - I'd done a heavy upper body workout that day, and as I was going to bed I rubbed a sore area near my armpit and found the lump. I retrieved my previous mammograms and had them read at Hopkins - they said that given the density of my breasts they would not have seen it on the mammogram at all either.  At least that gave me a bit of relief that no one missed anything on previous mammos.  And the doctors in California are fighting the proposed law requiring that doctors notify women if mammograms show that they have dense breasts.Yell

  • Makratz
    Makratz Member Posts: 12,678
    edited October 2011

    Great poll, very interesting.

    I found mine myself.  It did not show up on mammography.  Have mammorgram 1 month prior to my feeling the lump.

  • puce
    puce Member Posts: 159
    edited October 2011

    Found it myself.  Started mammos at 35 (dr. said to come back at 40), insisted and got 2mammos after, found lump myself at 38 while pregnant.  After diagnosis radiologist missed 3 spots of DCIS caught by BS after reviewing images.  Sorry, but in my opinion dr's miss a lot of things.  My mom died of BC due to medical error.  It's nothing they said for years!

  • InTwoPlaces
    InTwoPlaces Member Posts: 354
    edited October 2011

    I felt a lump in my armpit, the mammogram didn't show anything in my breast...I had very small lumps in my breast but they had spread to my lymph nodes...

  • chainsawz
    chainsawz Member Posts: 3,473
    edited October 2011

    I found my own lump...the NP at my doctor's office saw me after I had a mammo I scheduled for myself and she said didn't really feel the lump....shaaaaaa!!!!  I said it hurt and she assured me breast cancer didn't hurt...wrong!!!

  • Panmars
    Panmars Member Posts: 299
    edited October 2011

    Mine was found on routine mammogram. And just barely at that. I have very dense breasts, and the tumor showed on only 1 of the 4 views. Niether me nor any of my docs could feel it.

  • BeckySharp
    BeckySharp Member Posts: 935
    edited October 2011

    Calcifications found on my yearly mammogram.

  • Ainm
    Ainm Member Posts: 781
    edited October 2011

    Noticed 'a difference' while I was drying off after a shower but didn't attach any urgency to it - I was 45 and just put it down to 'middle age'.  Was at the dr on a different matter a couple of weeks later and I mentioned it  - as a throw away comment to be hones but he decided to send me on to have it 'checked out' and the rest is history!!

  • changes
    changes Member Posts: 622
    edited October 2011

    I found mine myself. I had been doing yardwork, and started having pain immediately after - caused by the tumor pressing against a muscle in the chest wall. The diagnostic mammo had trouble detecting it, even with me pointing out where it was - but it showed on the ultrasound. Disturbingly, when I had the surgery, they found a fair amount of DCIS that was NOT detected on mammo, ultrasound, OR MRI.

  • PinkShirtNow
    PinkShirtNow Member Posts: 134
    edited October 2011

    I found mine myself.  I have had annual mammograms since I was 40 (I'm 52 now) and I do self exams but not regularly.  I have very dense breast tissue so I am always a little lumpy and bumpy  and I was never sure what I was looking for.  I have had benign cysts in the past so I wasn't that concerned when I found this lump.  My annual exam was due in July and I discovered the lump in late May.  I waited until my regular exam and pointed it out to the mammogram who marked it for the scan.  I certainly hope they would have found it anyway because it was almost 4cm.  I'm pretty sure it must have been there at last year's mammogram but it was missed.  Who knows.

  • Makratz
    Makratz Member Posts: 12,678
    edited October 2011

    Just a thought/question:

    Does it matter if you had IDC, DCIS or TNBC, or another rarer kind?  Is one type of cancer picked up on mammos more than others?

  • mpeaches
    mpeaches Member Posts: 155
    edited October 2011

    Mammogram.  Even if I had been good about BSE (which I wasn't), I never would have found the tumor because it was pretty much against the chest wall directly behind my nipple.  (The stereotactic needle biopsy was agony for me - I think because it was so far in). 

  • cp418
    cp418 Member Posts: 7,079
    edited October 2011

    http://radiology.casereports.net/index.php/rcr/article/viewarticle/94/287

    The Shrinking Breast: An Unusual Mammographic Finding of Invasive Lobular Carcinoma

    http://www.mayoclinic.com/health/lobular-carcinoma-in-situ/DS00982

    Lobular carcinoma in situ (LCIS)

    LCIS usually doesn't show up on mammograms. The condition is most often discovered as a result of a biopsy done for another reason, such as a suspicious breast lump or an abnormal mammogram.

  • Makratz
    Makratz Member Posts: 12,678
    edited October 2011

    Thanks CP418.  Interesting!

  • ALittleBitBritish
    ALittleBitBritish Member Posts: 627
    edited October 2011

    I never felt a thing! Suspicious area spotted in annual mammogram, dense tissue, recommended 6 month follow-up, next mammogram 7 months later = DCIS + LCIS. Biopsy + Lumpectomy...

    Demanded MRI for other side..bingo! ILC, IDC...goodbye (@Y@)'s....hello foobs! 

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