How was your BC found? By doctor or you?

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  • Woody53
    Woody53 Member Posts: 3
    edited October 2011

    Mine was found during my routine mamogram on 10/5/11. I had calcifications and the radiologist suggested I do a biopsy. When I went for my stereotactic biopsy that radiologist said the calcification was an "artery" told me I didn't have cancer and I need no follow-up. My internist wasn't comfortable with this "diagnosis" and ordered an MRI. The MRI came back with a BIRAD 5. The biopsy showed "invasive ductal carcinoma". I don't know my stage yet as I am meeting w/my surgeon on 10/25/11. All I do know is that the biopsy showed the cancer to be "estrogen & progesteron+". I am just starting my journey.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2011

    Hi Susan :-)

    Well, 

    I had a baseline at 35 which, incidently they called me back for about some "suspicious" spots that wound up to be "nothing" after more Mamms, and US...hmmm...

    Fast forward 16 months to my next mamm, calcifications seen, biopsy said LCIS.  I opted for what I thought was going to be a prophy BMX (large family history), 3-4 cms of multifocal DCIS found on pathology.  I had mamms, US, MRI and NOTHING saw my BC...crazy!!!!!

    Had I done lumpectomy for LCIS I would be looking at a whole other future.  The DCIS was adjacent to the LCIS, but completely not visible on diagnostics.

  • jenn333
    jenn333 Member Posts: 178
    edited October 2011

    I found mine myself.  Noticed an indentation and went to my doctor who referred me for an ultrasound.  I had yearly mammograms since I was 42, the most recent in January 2011.  A "happy letter" each year.  None of the mammograms showed anything despite the fact that I had 5 tumors, the smallest 1cm, the largest 2cm.  It took extensive ultrasound, biopsies, fine needle aspirations and finally MRI to diagnose.  Even when we knew exactly where the tumors were, still couldn't see them on mammogram.

    Turns out I have "extremely dense breasts" which was printed for all the world to see on each of my mammogram reports (which I didn't know to ask to see).  No one bothered to tell me.  I will be firing my doctor when I have the energy to research a replacement.

    Jenn

  • debbie6122
    debbie6122 Member Posts: 5,161
    edited October 2011

    Didnt feel my lump that my yearly mamo caught- It was a large mass across my left breast, was very surprised when they had me go in the next room for an ultra sound. which showed it more clearly.

  • Chickadee
    Chickadee Member Posts: 4,467
    edited October 2011

    Regular mammo. To this day I've never felt the lump even with medical help. Must be tactility deficient.

  • mgm1953
    mgm1953 Member Posts: 79
    edited October 2011

    I'm really fibrocystic (or was, before menopause) so I'd been checking my boobs for years, since my mid 20s. Later especially under the arms, where things got ropey 3rd week into the cycle. At one point that ropeyness started feeling like a bamboo shoot, wider and flatter and stiffer. I was in denial, cause I thought we were looking for "peas" and this wasn't really lumpy at all- more stiff and flat. For maybe 3- 6 mos I had some suspicions. Then I had this feeling...took out some life insurance the day before my mammo. And sure enough.

  • Mimidi
    Mimidi Member Posts: 231
    edited October 2011

    Me.  It was very cool here in the southeast the first weekend of November, 2010.  DH and I were enjoying watching college football games on telelvision.  We brought in wood for a fire.  I saw sawdust on my blouse and brushed it off.  I felt a lump.  I asked DH what he thought and he thought is was a lump too.  Monday I called my doctor and was told to come in that afternoon.  Yeap, it was a lump.  I was sent for a mammo and the rest is history.  I had a mastectomy and reconstrucion the first of November (Thanksgiving Christmas and New Years are a blur).  Chemo from January until June(bad allergic reaction to tamaxotere) and radiation from July until August.  I started taking arimadex(sp) in August.  I will be taking that little pill for 5 years.

    What happened to my life.  I am 65 years, been married married to the same guy for 46 years, have two sons, their wives, and 6 grandchildren. Live on a farm that has been in DH's family for 5 generations. No history of BC in my family.

    I am in a dark place and can't seem to find my way to the light.

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited October 2011

    Found by me after 4 years of digital diagnostic mammos and 2 months after another "clean" mammo congratulating me on my results.

    I noticed a dimpling in the skin then felt the lump.   The tumor was nearly 2 cm.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2011

    Thank you everyone for sharing your stories.  It is interesting how differently BC presents itself in each of us.  

    Please keep 'em coming. Smile 

    (Waves back at Megan :) 

  • MishaB
    MishaB Member Posts: 2
    edited October 2011
    I had a digital mammogram (and subsequent biopsy) indicating DCIS of only my left breast. This was discovered in Nov. of 2009 which led to my pursuit/meeting with a highly recommended breast surgeon. Due to a very strong family history, I told my surgeon that I felt strongly about having a bilateral mastectomy rather than what might have been more commonly approached with a lumpectomy/radiation strategy. As I was adamant re having a bilateral mastectomy, we both felt it wise to pursue an additional imaging study to look more thoroughly at both breasts to help determine if, perhaps, a sentinal node biopsy should to be done on both sides. She sent me for an MRI, within this first month of the DCIS mammograms. The MRI, and immediate subsequent second biopsy (under MRI,) identified two, identical approx. 1 centimeter tumors, one in each breast in almost the same location in each breast. Neither of these tumors where evident on any of the 16 digital mammograms taken that month, nor in the 18 previous years worth of mammograms. I had been having mammograms annually since age 25 (the year after my mother passed away from BC at age 46.). I was 44 when diagnosed. I am now 46, and am incredibly grateful that my mother's death made my decision to have an immediate bilateral mastectomy so easy. And, that I found a surgeon who really stepped things up for me.  For those who may want to know, it was a blessedly successful skin and nipple sparing mastectomy with immediate reconstruction. Even more blessedly, a node negative one that my doctors felt probably wouldn't have been that way possibly even 2 to 6 months later due to its extremely high grade . . . ALWAYS TRUST YOUR GUT. I had asked my doctor just ten months prior to write me a breast MRI prescription, and I let "life" situations delay this pursuit. I hadn't asked for that MRI 'script because I felt anything, I had asked because I was already four years past when my mother has been diagnosed and I really kind of felt surprised that nothing had been spotted yet. All is well so far for me, but if you, or anyone you know, have a family history, or are even just asking yourself/themself "the question(s)," I think any and all diagnostic approaches should be pursued. Intuition will always be more powerful than any individual test or a doctor's opinion as to what is "right" for "everybody!"
  • JustLaura
    JustLaura Member Posts: 276
    edited October 2011

    Because of my family history (mother, sister, and two maternal aunts) my OB/GYN thought I should get an MRI this year in addition to the mammogram that I get every year (and have for 7 years - I was 47 at diagnosis). I thank God for her!  She dealt with my insurance company and got the MRI approved. The MRI found THREE tumors. They were all ILC - so more a thickening than a lump (and could possibly be one tumor with long fingers). Even after I was told exactly where they were neither my husband or I could feel them (largest was 1.2cm). Mammogram 'confirmed' it but did not identify it.

  • MarieKelly
    MarieKelly Member Posts: 591
    edited October 2011

    I was diagnosed at age 49 just a week or so after my birthday. Had mammograms at age 40 and 41 then skipped them for the next 7 years and only finally had another one because my PCP kept hounding me about it everytime I saw her.  I never did self breast exams and still don't.  My breasts have always been very non-dense and I've honestly never felt any kind of lump in my entire life...and neither myself or any of the doctors could feel the tumor that I had even after knowing it was there.

  • sundermom
    sundermom Member Posts: 463
    edited October 2011

    I found it with a little help ;) My DD who was two at the time jumped on me while I was sitting on the couch and landed right on my chest. I felt a strange sensation and immediately went and performed a self exam (which I already did every few months). Sure enough I found a lump about the size of a marble. Of course, it was the weekend but I kind of knew right after I found the lump that it was going to be BC. That little voice inside kind of thing . . .

  • Curlylocks
    Curlylocks Member Posts: 1,060
    edited October 2011

    I found my large hard lump (4 cm tumour) myself while getting dressed.  I had a clean mamogram the year before at age 40.  I knew as soon as I felt it that it was "bad news".

    My annual followups include a mamogram and ultrsound and I have to argue each year with the radiologist because they think they can "play god" and decide who does and doesnt get an ultrasound despite a requisition for it.  You would think it was the radiologists money, ITS MY LIFE that they are not going to play with!!!

    Michele

  • Mardibra
    Mardibra Member Posts: 1,111
    edited October 2011

    Noticed a small skin indentation while applying lotion.  Had skipped the last two years of mammo's....just never found the time.  I wish I had because the followup mammo confirmed a lump, then a biopsy, then diagnosis.

  • DocBabs
    DocBabs Member Posts: 775
    edited October 2011

    A little of both for me. I was diagnosed with LCIS 3 years ago and have been monitoring with Mammos,MRIs and USs every 4 months plus Oncology visits.In March I was lying in bed and doing a half hearted breast exam which I frequently did, and my fingers stopped on a small BB sized mass in my right areola. I didn't remember ever feeling that. At first I was not going to tell mt husband but finially blurted it out a few hours later. He felt it and asked what I wanted to do. I said that I'd keep an eye on it and see if it changed in the next few weeks. The next morning my husband called me and said that he spoke with my breast surgeon( husband is a physician and they were at an early morning conferance) and that she wanted to see me that day. I went in and she suggested a fine needle biopsy.BTW, she said that she wasn't too concerned. I went for the biopsy and the pathologist was unsuccessful getting any tissue ....3 sticks, no anesthesia.yikes!!. I went back to her and she suggested that I come back in 6 weeks and she'd check it again.There was a little nagging voice in my head that said  don't let this go so i called my Oncologist and told her the situation. I reminded her that I was due for an ultrasound in May and could I possibly go sooner .She said sure. My breast was really sore and black and blue so I decided that right then was not the time but maybe 4 weeks later everything would be good. I made an appointment for the end of April .Naturally my breast felt better in 2 weeks but I waited anyway. When I went in for the Ultrasound they asked about a mammo and I said that I had one in January and it was negative. Apparently if yopu find any new lesions between mammos they require a new one be done. Several views later the radiologist came in and said that the lesion I felt was there in the past and he wasn't concerned about it BUT there apperaed to be a new area of calcifications in a different part of the breast that he was concerned about and how about we do a stereotactic biopsy right now.He did it .It was a Tuesday and I was told that the results would be ready by Thursday.The next afternoon I received a call from my oncologists' office telling me that the doctor would like to see me on Friday. Silly me, I asked why, I wasn't due to see her for another 2 months and she replied that she would like to go over my biopsy report. I was surprised that she got it so fast and the nurse said that she didn't actually have it but she would by Friday. BULL. I knew she had it . I had listed my husband as the 2nd doctor to receive the report so the next day he called my, after I finished a tennis match ( I told him not to interrupt my match), and gave me the news that I had IDC, DCIS ADH and more LCIS.So as I stated at the beginning of this saga,while I had a negative mriin October and a negative mammo in January, a mammo finially showed my cancer.Why it wasn't seen earlier, I have no idea.

    Barbara

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited October 2011

    Was receiving annual mammograms and ultrasounds due to dense and cystic breasts. At my annual gyno visit, doctor felt a lump that needed to be checked out. Haven't a clue where exactly the lump was since it was underneath my breast. When I have my mammograms now, even the tech has to look real hard to find the scar. I was always told that my breasts were " lumpy" and finding a suspicious mass by myself would be hard. Bottom line... The mammo missed the mass and the ultrasound ultimately confirmed the mass that my doctor's magic fingers found! Bless him!

  • TifJ
    TifJ Member Posts: 1,568
    edited October 2011

    Had yearly exam in April and Dr. felt nothing. Early June I felt the lump. I have had yearly mammos since 34 (now 46) due to lumpiness. Waited until Aug (2010) to get mammo. My surgeon said she saw a very small spot on my 2009 mammo and said "the radiologist must have missed it"! Great!  I was shocked that the lump appeared so fast. Then when I found out I was triple negative, that explained why it was so aggressive.

  • mdg
    mdg Member Posts: 3,571
    edited October 2011

    I had a normal mammo in October.  Found the lump in June - it was 1 cm by then so the mammo missed it.  Was told it was a fibroadenoma.  Went back for a 6 mo check up in December and was told it was IDC after a biopsy.

  • pejkug3
    pejkug3 Member Posts: 902
    edited October 2011
    I had clear nipple discharge that I noticed in July 2010.  I knew in my heart that it was bad.  My sister and mom have some nipple discharge due to hormone abnormalities so they tried to easy my mind.  But there was something within me that just nagged me and reminded me that it was not normal for ME.  I call it my "God thing".  :)

    I called for mammo in December and they were scheduling out until April.  When I confessed the clear nipple discharge, they bumped me up to January.  I had a previous mammo at age 30 and I feel that because I had that baseline on file, they were suspicious of my 5mm tumor.  I'm chesty and I would have never felt that little thing.  But it's weird because I *knew*.  I could have placed her u/s transducer right where the tumor was.  I just *knew* - it's my "God thing"...
  • o2bhealthy
    o2bhealthy Member Posts: 2,101
    edited October 2011

    I found my lump, Mammo and US found two more...

  • squeak
    squeak Member Posts: 9
    edited October 2011

    Mine was found during routine mammogram screening.  When I went in for the ultrasound and biopsy, the ultrasound tech and radiologist could not feel it, I couldn't find it either.  The ultrasound tech turned to me and said, "thank God for mammograms."

    The breast surgeon couldn't find it by manual exam and the radiologist who did the wire localization couldn't feel it either.  All of them have remarked that people like me are the reason we need routine mammograms.

    I just had my lumpectomy on 10/11 and am feeling pretty good today!

  • Patriotic
    Patriotic Member Posts: 281
    edited October 2011

    I found mine due to a lump in my armpit. Ultrasound confirmed mass. Had supposed "negative" mammo 6 months prior. Later, I learned the report said I had extremely dense breasts, which "reduced the accuracy of mammography." This was not shared with me, of course. After a fine needle aspiration, stereotactic biopsy, MRI and PET Scan, I was diagnosed with IDC and DCIS at age 41.

  • otter
    otter Member Posts: 6,099
    edited October 2011

    My story fits right in with the rest here:  I found my own tumor.

    I discovered it during a semi-regular self-exam.  I pointed it out to my GYN at my next annual exam, but he couldn't feel it, so he blew it off:  "Stop worrying -- there's nothing there." He ordered a "regular" (screening) mammogram, which, like all the others I'd had, was clean:  "No cancer found. No changes since last year. Repeat in one year."

    The next year, I pointed out the lump again. This time my GYN could feel something there, but.... "Don't worry -- it's just your usual, fibrocystic tissue.  It's nothing." He ordered a "regular" (screening) mammogram, which, again, was clean.

    About a year later, I was at my PCP for a routine re-check (cholesterol etc.) and I told him about the lump. He immediately referred me to a breast health center at a major university hospital/cancer center. My PCP asked them to do a "diagnostic" mammogram and ultrasound, both of which my my GYN should have ordered years earlier.

    I pointed out the lump to the mammo tech at the breast health center, and she could feel it. But, it was not visible on the mammogram images. A few minutes later, the radiologist told me, "Your breast tissue is extremely dense. It would be almost impossible to see a tumor on your mammogram images." That is the first time I'd been told about "mammographic density" and how it could affect BC diagnosis. A whole team of radiologists had looked at my new mammo images, and had reviewed the previous 2 years' films that I'd had sent to them. They could not see anything suggestive of a tumor.

    Fortunately (I guess), the lump was visible with ultrasound.  It stood out like a car headlight ("spiculated" and all) on the breast MRI I had a week later.  The rest, as they say, is history.

    otter

    (P.S.: I fired my GYN.)

  • mks16
    mks16 Member Posts: 415
    edited October 2011

    My story is neither here nor there:)

    Had my first mamo (and ultrasound of my right breast) at age of 35. All was well, nothing suspicious.. some fat necrosis below my right breast that formed into a lump and has been there for 15 years.

    Just before my 37th birthday, changed GPs and the new doctor gave me a through breast exam. Everything felt absolutely fine, but she thought another mammo might be in order because my younger sister was just diagnosed couple of months earlier. No other history of BC in the family.

    The next mammogram was fine... BUT, because they had the old mammo on file, they compared and found some minor discrepancies, few dots of microcalcifications. They asked me to return for a magnified view. That too was inconclusive, still barely visible dots, but due to family history they decided to biopsy to rule out DCIS. 

    Well... it came back as almost 2 cm IDC. It wasn't hidden in my chest wall or anything, just very hard to finger it.. it was on my left breast at 12 o'clock. Had I had US of both breasts back when I did my first mammo, they might've found it...or not... The US I had before my surgery described the mass as VERY spiculated, with almost 3.5 cm in diameter at some spots. And yet, it almost got completely missed. 

  • juliet62
    juliet62 Member Posts: 3,412
    edited October 2011

    on routine mammogram-,  suspicious calcifications, , no mass/lump ever felt. us -neg

  • edwh001
    edwh001 Member Posts: 73
    edited October 2011

    I found mine, no lump was felt but on the underside of my breast was a pulling inward look, like someone had tied a string to that part of my breast and was pulling from the inside. went to the Doc, she felt no lump but she knew what it was. No lump was felt by any of my Doctors, they ordered Mamo then biopsy then mastectomy all within 1 week.They moved very fast and for that I'm thankful. 5 years clean now.

    Emmy

  • dngdonnelly
    dngdonnelly Member Posts: 36
    edited October 2011

    I had my annual mammo in October in 2010 and they found something suspicious, but then did another a week later and decided it was nothing. Told me to come back in 6 months rather than in a year, and again, found something suspicious on April 25. By April 29, I was having a biopsy and was diagnosed on May 4. No one, including me, ever felt any lump(s). Thank God for mammos!!

  • LMichele
    LMichele Member Posts: 165
    edited October 2011

    Mine was a palpable mass, though I was not the one that found it. It was first found by my primary care doc in April 2010. I went for high level mammo and ultrasound and nothing was found. At my annual GYN in January 2011 there it was again. I assumed it would be gone again if I had my mammo after my period, just a hormonal thing. This time, no. the radiologist told me then and there it definitely looks like cancer. Had all the testing, MRI's etc before my lumpectomy. Lo and behold my BS found THREE more tumors all malignant so I had to go back and have MX. Decided on double due to all the stuff hiding in there! One of the hidden tumors was 1.9 cm's and right under my nipple. WTH! It is so scary how insufficient the diagnostic tools can be. I tell all my friends DO the self exam.

  • nwest125
    nwest125 Member Posts: 240
    edited October 2011

    Yearly Mammogram , neither me or doctors felt mine, 2nd cancer found during  re-incision.

    Nancy

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