How was your BC found? By doctor or you?

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Anonymous
Anonymous Member Posts: 1,376

Forgive me if this has been posted before...but I'm curious because I know a lot of women assume that if they get their yearly mammograms...they don't need to bother with the self exams (me included!)   So I wanted to do an informal "poll" ....what led to your bc diagnosis?  Something you noticed (whether by a regular self exam or by chance) or was it caught by a doctor visit/mammogram?

I did self exams maybe once or twice on a good year.  Had my first mammo around 39.  Procrastinated about getting the next one (just "kept forgetting") ..and then when the study came out that said annual mammos weren't really recommended until 50 and self exams were not helpful....I didn't feel quite so guilty about my procrastination.  Then at 43, by pure chance, I felt my breast and noticed a thickening that wasn't there before.  Thankfully I didn't procrastinate this time and got it checked out. My GP didn't think it was anything to worry about ~ said it felt like "normal breast tissue" ~ but (thankfully!!) ordered a diagnostic mammogram to be safe.   Would the "regular"  mammograms have caught it sooner had I gotten one at 41 and 42?  I don't know.  I also have (had) very dense breasts.

I know all BC's don't always present themselves with a palpable lump, but I'm just curious.  

Was your BC discovered because of a doctor exam/mammogram ~ or ~ from you noticing a lump/change in your breast?

*********Edited to add completely non-scientific results:*********************

Updated 10/17/11 through post #144:

# of responses as of update= 118 

64 (54%) = BC found by self 

54 (46%) = BC found by doctor/mammogram

********  Additional Info ************************* 

54 (46%) = BC didn't show on mammogram ~ had to have further testing (US, MRI) to confirm

31 (26%) = BC found by self less than one year after CLEAR routine mammogram 

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Comments

  • jennyfrombama
    jennyfrombama Member Posts: 63
    edited October 2011

    I found mine. I am 50 and had been having yearly mammograms. My last was 5/23/10. so I was due soon. But I probably would not have been in any hurry and probably would have not gone for several more months.

    We were going to the beach with my sister memorial day weekend and I was snow white so I wanted to go to the tanning bed to knock off the shine! I rarely go cause it can give you cancer! But going helped me find the lump. My boob got little burned and I was rubbing lotion on a little differently than I normally do to soothe the burn and I felt the lump right next to my nipple. 

    Called Monday and got ultrasound the following Thursday; then biospy etc etc.

    I never did self exams.

  • TAPPY
    TAPPY Member Posts: 283
    edited October 2011

    My yearly Mam. - which I did every year to the date.

     I had small dense breast and always had cysts....every year I was called back in for an ultrasound.   I always knew somehow that one day my luck would run out, but it did grow fast in one year.

  • Padiddle
    Padiddle Member Posts: 853
    edited October 2011

    I found my right breast mass.  Annual mammo found the left breast mass.

  • Sherryc
    Sherryc Member Posts: 5,938
    edited October 2011

    Mine was found with MRI.  I had previous B9 issues and had yearly mammo's faithfully every year for 14 years.  At 48 got called back for calcifications.  Biopsy recommended, had a difficult time getting the biopsy so they recommended MRI to rule out cancer.  The califications were not cancer but I had a 1.6cm tumor that was hiding in my dense breast tissue that never showed on any of my mammo's

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2011
    Thank you for the responses so far ladies! Smile
  • comingtoterms
    comingtoterms Member Posts: 421
    edited October 2011

    I found three palpable lumps two months after a clean mammogram. I had NEVER done BSE, but because I had recently lost weight, I was standing at a full length mirror admiring my flat tummy, but rather disdainfully poking at the effect the weight loss had on my breasts! I have extremely dense breasts. Apparently those lumps had been in hiding. Thank goodness something inspired me to check. I don't know where I would be today if I hadn't. They also found multiple lesions during my MX which hadn't been seen previous. That's why I always tell premenopausal women to do breast self exam. It virtually saved my life.  Tammy

  • mokenagirl
    mokenagirl Member Posts: 24
    edited October 2011

    I noticed my breast was changing. Skin was thick, inverted nipple, swollen. I told my BFF that I think I have BC. She told me I was crazy.This was Jan 2010 I had a dr appoinment, then cancelled it. She was right, I am crazy. I didn't have BC. The situation didn't improve.  I went to my GP for another reason in March, he asked me if had a mamo lately. I told him "no" he wrote me the script, and we all know what happens from there.  I know I am in charge of my own health, I don't blame my friend, but I do wish she told me to get to the drs immeadaitly.    

  • marial
    marial Member Posts: 255
    edited October 2011

    I found my lump myself, while gertting dressed for a party..I had a mammogram that came back clear about 6 weeks earlier, and have had them yearly for the last 8 years.  I was 42 and my lump was already 3cm at that point.

  • Luah
    Luah Member Posts: 1,541
    edited October 2011

    I found my initial lump, an accidental discovery (although I was doing self-exams every 3 months or so). Regular mammo 10 months earlier had showed nothing. Diagnostic mammo showed "asymmetry, abnormality not characteristic of BC" but requiring investigation. Ultrasound then showed lump, plus a second one in same breast. Subsequent MRI showed the same.  

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited October 2011

    I found a small lump one month after I had a "clear" mammo.  My pathology determined it was slow growing, so had most likely been there through several years of mammos, but my dense breasts are good at hiding stuff that should not be there.

  • annafrederik
    annafrederik Member Posts: 66
    edited October 2011

    I first noticed an inverted nipple. I was 30. Was told not to worry about it...that I was too young and was breastfeeding at the time. Continued to see my family doc with the same symptom plus a pain in my ribs for over a year which he diagnosed as costochondritis. Finally, when I couldn't lift my arm, a ct was ordered which found the bc and mets to my sternum, ribs and spine. Harsh lesson learned. I should have been more diligent.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2011

    comingtoterms~ I had a weight loss (20+ lbs) right before I found mine too. I was wondering if that helped make it more noticeable? 

    Three palpable lumps two months after a clean mammo? And a 3cm lump 6 wks after a clean mammo? Scary! Frown 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2011
    Wow Anna! That's what's so hard because statistically the chances were that your inverted nipple at age 30 was nothing.  But the docs are taking chances with your life.  I'm sure if I was in your situation at age 30 I would have trusted the doc and thought nothing of it too. 
  • REKoz
    REKoz Member Posts: 590
    edited October 2011

    Routine mammo for me which I had been doing for a few years.  No palable lump felt by me or breast surgeon.

    Obviously, I am a strong advocate of mammo's.  There isn't a doubt in my mind that had I skipped my mammo that year ('08), I'd be looking at a far more serious scenario- particularly after learning I was HER2+.  So I wasn't able to avoid the chemo I so desparately feared but thanks to that mammo, there was nothing in my nodes for the chemo to go after!

  • minxie
    minxie Member Posts: 484
    edited October 2011

    Found the lump myself. I had my very fisrt 40 year-old mammo about 1.5 years previous that was all clear - though they did say I had dense breasts. BS looked at the old films and said there was nothing there back then. I've been beating myself up about not having the 2nd mammo exactly one year after the first, maybe they could have caught the lump at an earlier stage...

    As soon as I found the lump the world just... dropped. I knew what it was even though I tried to convince myself it wasn't.

  • coraleliz
    coraleliz Member Posts: 1,523
    edited October 2011

    I found a lump in my armpits 3 year before it was confirmed as a positive SN. It took a MRI to find the associated tumor. I had US & mamography & the tumor never showed up. I was told the armpit lump was an isolated lymph node & was "watched". Good thing I have a non-aggressive cancer.

  • tarry
    tarry Member Posts: 156
    edited October 2011

    I found two lumps, one the size of a grape, 7 months after a clean mammo. I was putting my left arm across my right chest to scratch somewhere. My first reaction was just to dismiss them; I am plagued with cysts. Then in two weeke I got some bloody discharge. Wakeup time!

  • marthah
    marthah Member Posts: 322
    edited October 2011

    Mammogram, although I had noticed changes in the skin (grooving) prior. The grooving was there on a prior mammogram 4 yrs before, but the radiologist said there wasn't anything there, so I didn't worry about it. But now that's where my lumpectomy scar is.

  • mags20487
    mags20487 Member Posts: 1,591
    edited October 2011

    found it myself after losing 15 lbs.  Breasts shrank a little too so may be why I found it.  The Lcis in the right did not show up on the mammo or ultrasound when I went in after finding the sucker.

  • xtine
    xtine Member Posts: 131
    edited October 2011

    I got a baseline mammogram at 36 as soon as I stopped breastfeeding, as my mom had been diagnosed with BC two years prior (while I was pregnant). The mammogram showed calcifications and they asked me to do a follow-up in 6 months (I waited 9). The next one led to a biospy. I had no suspicion they would find anything.

    I am the poster child for early detection via mammogram.

  • mrsnjband
    mrsnjband Member Posts: 1,409
    edited October 2011

    I had a 4 in. in diameter rash come up on my breast over night. I thought WTH?  That wasn't there yesterday.  BUT I had a forwarded email about inflammatory breast cancer.  I knew right away what it was.  I went to the OB/GYN given 10 days anitbiotic, no change.  Referred to a breast specialist & ad a mammo & US couldn't find anything.  Punch biopsy of rash negative.  Had an MRI that found the 3mm tumor area that was at 9:00 on the right breast.  Second biospy positive.  

    My best advise it to know your body & pay attention to it's changes. I thank God for my breast specialist for diagnosing my IBC-TN so quickly.  NJ

  • beacon800
    beacon800 Member Posts: 922
    edited October 2011

    Found via mammo which saw suspicious calcifications.  Even after my radiologist told me exactly where the spot was, I could not feel a thing whatsoever.  Nothing showed on US either.

    Mine was a non invasive situation but without mammo finding it so early it could have easily turned on me.  I am very thankful for the technology.

  • mumito
    mumito Member Posts: 4,562
    edited October 2011

    Found one of the tumors myself under my arm.Mamography was clear 4 months before.Ultra sound later revealed 3 tumors.No cancer history in my family.

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited October 2011

    I found mine - always did regular self-exams.

  • thats-life-
    thats-life- Member Posts: 1,075
    edited October 2011

    i accidently found a tiny lump lying on the couch itching a spot on the side of my breast.. the 'grain of rice' kind..mammo didnt pick it up, but ultrasound did and another one, both 1cm.  IDC and DCIS. ended up stage IV 2 weeks later.

  • LRM216
    LRM216 Member Posts: 2,115
    edited October 2011

    My yearly mammo in '09.  First time since I was 40 and began my yearly mammo that I was ever called back in (I was 62!)  No cancer whatsoever in either side of my family.  Mine was 1.2 cms IDC (Triple Neg) but was 5 cms. below the nipple at 11:00 and couldn't be felt at all.  Sure glad the mammo picked it up and thet investigated further.  At least we caught it at Stage I with no nodes or vascular (not that puts me "safe" by any means), but had I not gone then, who knows what it would have been, or where else it may have gone if I had waited longer.  I am very grateful for my mammo that year.

  • whippetmom
    whippetmom Member Posts: 6,920
    edited October 2011

    Found on MRI 10/08.  Not visible [or missed] on mammo 5/08.

  • jo1955
    jo1955 Member Posts: 8,543
    edited October 2011

    My yearly mammo in 2010.  I was really bad about doing self exams.  My tumor was not palpable and would not have been found that way.  I was 55 at the time of mammo and had skipped my annaul mammo in 2009 - I was given the form to call and schedule it myself and just kept putting it off.  I am a huge believer in mammos and have vowed to never skip it again.

  • belleeast
    belleeast Member Posts: 653
    edited October 2011

    found my 1in lump, did monthly exams 1 month not there next month there it was. immediately called dr.  previous mammo was 18 months before no sign of it.

  • bahamamom3
    bahamamom3 Member Posts: 285
    edited October 2011

    In reading the replies to this post, it looks like as many are found by self exams as are by mammography.  In my case, I had my gyno check up at the end of August '11.  Then my mammogram was about 2 weeks later, and that was where the radiologist saw it.  Neither my gyno nor the radiologist (even after seeing the location on the mammogram) felt the lump.  Also the surgeon could not feel it when I met with him.  Mine is 11 milimters.  I used to do breast self-exams, but I was always feeling my ribs, or nothing and asking my doctor about what I was feeling.  He was always saying it was nothing, so I stopped doing the self-exams years ago.  I don't guess that I would have felt it even if I had done the exam myself, though, if the doctors and surgeon can't feel it.  In a way I am glad because I would be so angry at myself if I thought that I could have prevented this in some way. 

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