The solution to painful intercourse!!!!!! Yipeee!

Cool info!  I have used lube for years, before cancer.  I like Yes, tried that whole line.  But it doesn't hold a candle to Astroglide, which is much more, eew....mucous-like.

Another cream that really helps intensify physical pleasure is "KY INTENSE".  Its over $20 for a tiny tube, but it only takes a drop on the clitoris to really intesify feeling.  Its made with niacin (another vasodialtor) so it stinks a little, but really works, and is available at Walgreens.

I am so glad I found this thread.  I have EMLA cream (lidocaine) for my port, but heck I'll give it a try!!  Ordinary lubricants don't really help with the pain - copius amounts of alcohol take the "fear" away and make it a bit easier.  I'm going to ask my doctor about the scream cream and take a look in some of those "love shops" to see if I can find any.

I recently got a survey from the cancer centre about my treatment....there were almost 100 questions about my treatment, the staff of the cancer centre, all kinds of things.  One of the questions was "Were you told about how your treatments would affect your sexual function?".  I was like ...hmmmm....well, NO!

Rx Lidocaine is probably what is needed, but if anyone has just a little pain, Nupercainal is an OTC product marketed for hemorrhoids that contains dibucaine - which is what I was given after my episiotomy way back when.  Might not be strong enough, but I thought I'd mention it.

Yes, Zohs post encouraged me to experiment. For me, Scream Cream externally AND internally made the entire connection comfortable. It took time for my bod to relax ith the cream exposure. If I could swab every inch 10 minutes before I think it would be perfect.

I printed out the recipe to scream cream weeks ago and I can't wait to give it to my "male" oncologist next week when I see him!

He knows there is a problem because I have discussed this with him for 2 years now.  He sent me to a gynocologist who sent me to a urologist and here we are - nothing resolved until NOW!  I am hopeful and maintaining a positive attitude that Zoh's Goop will work for me.

I will let ya'll know.

Scuttlers... thanks for my first belly laugh of the day!  Oh man... earplugs... now that's just funny!  Is it just awful that we all want you to let us know how it goes tonight?  Umm, we'll let you decide!

Zoe, when you market Zoe's Goop Cocktail, for my naming rights I would like... uhhh, let's see... Oh, who am I kidding, forget percentages and just send me a dozen cases!  Surely then the lulubee could get her buzz back...?

~lulubee 

PS.  Oh -- bahaha!  It just struck me how wickedly appropriate it is to call this stuff a "cocktail" -- get it?  GET it???  heh heh heh.

Hi all - Does the onc actually write scream cream on the script? Our sex life is nonexistent and I feel abd for my dh.

I asked the pharmacist if there was another serious name I could call it when getting refill. She said the doctor who created it tried calling it dream cream but people thought it was for sleep. So it is scream cream, close your windows.

More seriously ladies...this issue is so HUGE among every estrogen deprived woman on the planet! Whether it be through natural menopause or in the breast cancer community. I'm guessing it is so much more pressing to us because..well geeze...haven't we been through ENOUGH already?  Having lost all or part of our breasts has for many meant the loss of a level of sexual satisfaction never to be obtained again. As I had just arrived to the ranks of post menopausal when diagnosed, I suppose I would have had to deal with some of this anyway. I really grieve for you younger sisters deprived of such a natural living function so soon. Factor in the fact that as Apple so aptly described, our complete lack of desire or "sexual autism," and it's bye bye to not just attitude, but ABILITY to engage in what is really up there in importance as part of the human experience. Not just our own but our poor husbands as well. That this issue  also permeates through the core of our marriage/relationship really does require more attention both physically and emotionally for all concerned.

I am by no means a feminist crusader- I was a stay at home Mom if that helps to bring that point home! But I really do believe that this experience has made me understand better the need for feminist movement. We have made but a tiny dent in the male dominated medical field. This became abundantly clear to me during the reconstruction process. Oh how I wish I had the option of a woman plastic surgeon! I fired my first beyond egotistical, incapable of compassion and technically incompetent male surgeon. While pleased with the skill and the capability of human discourse present in his male replacement, there was still that gender disconnect. After all, I did have to have a second exchange because my first implants were too friggin big!!  And my top notch, wonderfully skilled and compassionate Oncologist does his best to try to understand and help alleviate some of these issues. But again, he can't possibly "get it" in the same way. I think the closest he (or any male) could ever come to understanding is if their wives/partners suffered our same fate.

My Goodness, I didn't realize there was this much in me to create such a rant! I must be sexually frustrated  I apologize- even more so for inadvertently hijacking this thread. I shall climb down from my soapbox now and end with the question that got me going on this post to begin with. Short of wishing ill will on the spouses/so's of our male providers, or spearheading a drive to get more young women into the field, how can we highlight this issue so it really gets the attention and serious consideration it deserves?

REKoz, thank you for your serious post. I have both a male onc (at home), and a female onc (MDA); and feel comfortable with both. My BMX surgeon is female and the PS I had is male (he was all you said and more).



Sexual health is very important to being a human being and is pushed to the wayside (shoved in most of our cases) while we are just plain trying to live through the current treatments (knowing full well that they may and probably will stop working in the future and we will be on to more treatments and so on and so on).



So, back to the cream. It was surprisingly a very pleasant and not at all uncomfortable experience, even though we were both very tired, very stressed (BIL went to palliative and hospice yesterday, another story, another time), and very out of practice. I used about an 8th of a teaspoon and waited a half hour before going to bed. It was placed on the clitoris and the vaginal opening. I was surprised at first (a cooling sensation which disappeared quickly). Then my body took the hint and provided the lubrication and feeling that I can remember from years past. Nothing over the top, just very nice. No messiness like KY or other potions have been. Just naturally pleasant.



All in all - 4 thumbs up (or 5 stars)



Thank YOU to Livingit!

Yesterday I had my 3 month check up with my oncologist.

I gave him the paper titled Scream Cream and told him I would like a prescription for this along with lidocaine cream (5% solution).  We started laughing as he was trying to figure out how to write a prescription for this and he never could figure it out.  However he told me to go to the compounding pharmacy and have them fax him an approval.  Then it was what type of lidocaine I should use, cream, gell, inserts, etc.  I guess it comes in all forms.  He suggested the "gell" form as it would stay longer on that area. 

Then it was "well how am I going to write the amount?"  Me...."I don't know you just put a little bit on your finger and insert it up there"

In any case we both had a laugh about it but he understands because I have been complaining for 2 years now and have had my gyno check me out along with a urologist and nothing has worked.

I am getting dressed and then on my way to the pharmacy to ask for scream cream.

Guess if he goes numb it could last longer which may be good or bad depending on how its going...

Laurie x 

It looks to me like the SC at this retail website (in otter's post) and the prescription version Livingit posted about both contain L-arginine and aminophylline, but the other ingredients are different, maybe?   What does the compounding pharmacist use as a base, I wonder?  

The website retail version contains peppermint oil, which tingles in a way some people might find distracting... but all the other ingredients sound healing, slippery and helpful.

Anybody want to test drive both and offer a comparison? 

~lulubee 

This is the prescription formula: you will need to copy and paste, it is the sheet I gave to the onc.

http://www.ijpc.com/_pdf/Scream_Cream.pdf



It does require a prescription. The are only some pharmacies that will so the compounding, the nurse found a local one here.



Good news - after two denies, the insurance has decided to pay for it in full! I told them that it is a prescription to treat side effects of chemo.



Other good news - it works!!