help with vit D levels

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  • Ang7
    Ang7 Member Posts: 1,261
    edited July 2011

    Leia~

    I had Basal Cell Carcinoma.  On my nose.  I am also taking D3.

    Have been using the "Natural" suntan lotions on the Environmental Website.

  • Ang7
    Ang7 Member Posts: 1,261
    edited July 2011

    JO~

    I like that "leaning on the Lord."

  • kira1234
    kira1234 Member Posts: 3,091
    edited July 2011

    And in the vain of leaning on the lord. He gave us the sunshine. I am finding getting natural vitamin d has brought me to the realisation what God has given us is good for us.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    Leia, I hear you and we all have to come to our own understanding and do what we think best for us with wihat we have at the present time.  As JO-5 says, it happens and no-one knows why.  There are as many reasons as there are people. 

  • Leia
    Leia Member Posts: 265
    edited July 2011

    Here is a link that I recommend:

    This is an interview with Dr Cannell from the Vitamin D council with naturalnews.com founder the Health Ranger, Mike Adams. About Vitamin D3 and it is really great. It is about an hour, but I downloaded it and put it on my iphone and an educational walk to the bus.

    I learned a lot of things I had not known. I would recommend that you all listen to it. 

  • Luna5
    Luna5 Member Posts: 738
    edited July 2011

    Blood test from 5-25-11 showed my D3 to be 114...Blood test for a dif doc on 6-9-11 just 15 days later was 80.  When I got the score of 114, that doc said stop all D3...I knew better than that and that he wasn't due to see me for 6 months so no way I was going without for that long...but did stop it for a few days and then dropped my dosage from 20,000 IU to 10,000 IU and it dropped to 80.  So...the second doc (my hormone specialist) who is much more up to date on this stuff than my internist PCP...said to lower my dosage to 15,000 and he will check it again after one month.  It has taken me about a year at 20,000 IU plus 20 min in the sun whenever I can to get my level up at all.

     

  • Leia
    Leia Member Posts: 265
    edited July 2011

    Luna5 you're doing great. I think this "threat" nonsense about higher levels of D3 is just that; Nonsense. 

    The peoples of this planet earth are starved for D3. We all used to Live In the Sun. By now, noone does. We're all huddled, in our cubicles.

    As Dr. Cannell said on that interview, this has been a tiny portion of time that the entire society has avoided the sun. As some sort of ... menace. 50 years. A blink, in evolution. Yet, in that 50 years, disease has just Ramped UP. By now, everyone is sick.   The disease rates, are incredible. 

    I went to a new dentist, today, and filled out the health form. And the dentist said, "You're not taking ANY drugs?" Which I'm not. Yet, he was surprised. I guess everyone he sees takes lots of drugs.

    But we do not need drugs. We need the sun. The sun. The source of all life.  

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited July 2011

    I will mention again b/c there were postings fiying by, talk with your Endos& Oncs about high usuage of D effect on the kidney and Parathyroid hormone levels. My Endo is not adverse to the higher levels , but insists on 1-3 month kidney function screening depending on the amount of D I'm taking. I may be more sensitive to the words b/c Dad had End stage renal disease and dialysis  b/c of uncontrolled hypertension-----he wouldn't take his meds properly, different story. The only point here is when I heard the kidneys had to be watched my ears perked up.

  • Leia
    Leia Member Posts: 265
    edited July 2011

    sas-schatzi, I am just saying get back to the basic level. Why did your dad have "End stage renal disease and dialysis  b/c of uncontrolled hypertension."

    Why did he have that?

    I would speculate, not enough D3.  

  • MaryNY
    MaryNY Member Posts: 1,584
    edited July 2011

    Good advice from sas-schatzi. We need to listen to our doctors on supplementation. I'd prefer to get my advice from my doctor or onc (both of whom encourage the taking of Vitamin D3 in moderate doses) over getting it from an organization like the Vitamin D Council that has a vested interest in selling tests and supplements and worse -- promoting tanning beds.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited July 2011

    Leia----not everything can be blamed on d3----In his case genetics --------strong family hx for cardiovascular disease traced back to Ireland with no CA hx. When he was dx with HTN he'd take his medicine only until he felt good --then he'd stop. I taught him the outcome of not taking his antiHTN med------stroke, chf, renal disease, peripheral vascular disease.  He chose instead to take supplements and juice. -----would D of been any influence, who knows. 50lb weight loss and exercise and a better diet along with the alternative stuff he was doing would certainly of  been help. But he made certain items center to every thing he talked about and would ignore others that didn't fit into his belief system at the time i.e he was juicing in the 60's. I still have trouble with eating carrots. I'm too lazy to juice---would I love to have someone hand me a glass every morning like he did, you betcha. 

     But that was only given as an example of why I listened to My Endo doc, that watching kidney function while taking high doses of D2/3 perked my ears up--------I saw esrd and dialysis up close and personal and don't want to create a situation for my self that wouln't be there if I was aware.

     I agree with you the sun is our friend, My ENDO doc was surprised when he moved from Kansas to Florida. He was shocked at how many deficiencies he was finding, and quickly made it a part of his routine screenings with new patients coming for other reasons. I was deficient as well. In Florida, the year round residents have for umpteen years have been warned about avoiding the sun between 10am and 5pm. and to use sun block. Now there are public education advertising's saying get 10-15 minutes of sun a day etc.

     We have traced the high amount of CA&BC to paternal grandmother------her family were all farmers in Canada in the early part of the last century when pesticides and fertilizers were NEW and used heavily. Prior to the introduction of these chemicals, farmers controled pests etc, by crop rotation that didn't deplete the nutrients in the soil. Her family tree is riddle with CA.

     Cancer has been around since the dawn of man. It's documentation has been best in this past century. There is a book called Omega 3. I believe by Dr. Rudin , but it has been many years. He wrote it in the early 80's. He coined a phrase "The diseases of Modernization">> Increases in CA, diabetes, heart disease. You might find it very interesting. Talks allot about getting away from natural foods and going to processed foods at the beginning of the 1900's.

    I agree that D deficiency is a strong component of the debacle of cancer, but there are so many other things contributing. You have a good message, but if you make it a one item message you will loose people in the delivery.

  • Leia
    Leia Member Posts: 265
    edited July 2011

    SAS, thanks for the detailed response. 

    Yet, I think a one item response is the answer. D3.

    Genetics is beyond anyone's control. Some people are going down. Even the D3 studies that I have read, it prevents cancer in 75% of the people. Those 25%, not so lucky. I'm just going for being in the 75%.

    But this current society is not even going for that. We're just going for more drugs, to treat the symptoms.And then, more drugs to treat the symptoms of the drugs.  My work colleague just called in sick, yesterday because the drugs he was taking for his past MRSA diagnosis, cured, I guess, were making him sick. 

    He IS cured of the MRSA; why does he need more drugs?

    This current American society is just addicted to Prescription Drugs. The answer for any malady is another drug. I went to a new dentist, yesterday, and the dentist was SHOCKED because in the drugs taken section of the health history I listed NONE. He was like, you're not taking ANY prescriptions?

    That told me everyone else is.

    And THAT is one of the problems. Again, the main problem the lack of D3.

    It is just common sense.  

  • amidala
    amidala Member Posts: 30
    edited August 2011

    Is it better to consume vitamin D a little at a time (like one in the morning, one in the evening) like I do with my calcium or is all at once okay?  Does it absorb the same regardless?

  • Moderators
    Moderators Member Posts: 25,912
    edited September 2011

    Hi ladies,

    Thought you might be interested on Dr. Marisa Weiss's latest blog post on the topic: Think Pink, Live Green: The Importance of Vitamin D.

    Enjoy!

    --The Mods

  • Makratz
    Makratz Member Posts: 12,678
    edited September 2011
  • DesignerMom
    DesignerMom Member Posts: 1,464
    edited September 2011

    Moderators and Dr. Weiss-  Thank you for this more progressive view of vitamin D supplementation and levels.  Most of us hear from our doctors that the FDA recommended amount is sufficient, levels in the 20s are "normal", supplementing with D2 is just as good as D3 etc...  Glad to see you agree with the ever-mounting scientific evidence that we are also reading.  Bravo for stepping up....even if most of the medical community is slow to respond.

  • Kaara
    Kaara Member Posts: 3,647
    edited September 2011

    I hate to say this but I have never had any luck with traditional medicine doctors when it comes to any support whatsoever for supplements.  One of them called my vitamin regimen "expensive urine"!

    I finally went to a private physician who supports alternative medicine and he tested my blood and saliva and found many deficiencies, one being my Vitamin D levels.  I am now on 5,000 units of Vitamin D-3 since April of 2011.  Who knows how long my levels were low, but I had three colds last year, a case of shingles, and now a possible BC diagnosis....think there could be some connection?

    I feel 100% better on my new supplement regimen, it's not cheap, but I'm going to need all the strength I can get to fight off this new threat to my system.

    Just because they have the word Dr. before their name doesn't always mean they are the final word on every subject.  Do your own research. 

  • Leia
    Leia Member Posts: 265
    edited September 2011

    To repeat, I think the D3 is a no brainer. 

    As I have said, above, the studies just keep coming in. Adequate levels of D3 are effective against ALL cancers. We could fight against so many cancers, if we all just had optimal D3. 

    To repeat, my current level, tested August, 2011 was 71, but I want to get it 91.  And not this nonsense level, the MIC is stating. Which is 19. I insisted on a D3 test back in 2006 when I had my 2cm IDC breast cancer diagnosis and the doc said that my level of 20 was "normal."

    I ignored them.

    You can get tested for your D3 level, with home tests. That cost $45/test.That is what I have been doing.  

    Again, the bottom line, taking charge of our own health.

    That is what I am doing. 

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2011
    A minute ago sas-schatzi wrote:

    A few seconds ago sas-schatzi wrote:

    Friends I'm reposting this here----------it has implications for you and your childern. Many of you don't post where you might see this.Wink

    2 minutes ago, edited a few seconds ago by sas-schatzi wrote:  I'm re-postig this from another thread. tested hyperlink. There are implications , not just for us, but all women and childern males as well as females. Children being exposed to high levels of estrogen. Could explain why early onset puberty has been such a problem. AND newborns being born that have signs of going through puberty.

    -I'm even more bummed that article was published in DEC 2006. It should have been a Public Health Warning issued from some agency. You noticed that at the end of the article they said they were going to lay low. It was fascinating that the Mongolians to empirically figure this out and have been doing it for 2 thousand years. That's HUGE.

    TO ALL---read the below hyperlink.-----How it affects us is-----Now we may have to make choices about milk.

    Another thought the government has NOT dealt with the public impact of what this article identifies. Guess it's not politically correct.

    I'm going to add the hyperlink here and re-post it on a couple of threads.

    http://news.harvard.edu/gazette/2006/12.07/11-dairy.html

  • cp418
    cp418 Member Posts: 7,079
    edited September 2011

    Great articles about Vitamin D!!  I'm surprised this Harvard publication was not more wide spread but maybe it was surpressed??  I had the same experience as Kaara described with both my Onc and PCP. Onc would not discuss supplements and PCP was not even familiar with adequate Vitamin D levels. I have a new PCP now and consulted with a Nutritionist who took extensive bloodwork to help provide me with proper guidance in my supplement, dose, diet routine. It seems the doctors only know about drugs and minimal training in proper nutrition and supplements. What a shame as I'll take supplements any day over drugs!!

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2011

    The same ignorance of vitamin d- levels existed in our Florida community a number of years ago until an endocrinologist was recruited by the hospital. The closest in three directions was an hour + away. The forth direction was the ocean.  He was surprised to find so many people deficient . I said it didn't surprise me. Here we have been encouraged to stay out of the sunlight from 10-4 pm and wear sunblock always. I then went for testing. His comment was "Do you ever go out in the sun"------WELL 3 days a week I work 12 hr shifts, two days are bed days to recover from the real 14 hour shifts.-----That's 5 of 7.  And then I avoided the sun between 10-5 pm. on the other 2. Prescription was the standard x amount for 7 days, then once a week  for x weeks---------you have all heard the drill.

    It came out about a year+ after he was here that FLorida had a significant problem with D deficiency. We now have TV adds that encourage sun exposure forx minutes a day. This is a 180 degree reverse since I moved here in 1992.

    BUT the first dose was Nirivanha, I felt this immense wash of well being like nothing in my life. I kept moving up the doses by hours. Seeking that feeling again . It never happened after that first dose. I moved the weekly dose up by a day and the monthly dose by a week. That first day my, my---------what a feeling. Has anyone had such an experience?

     We are still in discussion about where my blood level ought to be. He at first had not read anything regarding higher dose levels and cancer. The next year he was more versant. He is amenable to a higher dose , but has concerns about it pulling phosphorus out of the bone, and effect on kidney function. My level is 40, in his mind that is perfect b/c of above. Will go to higher level , but only with labs more frequently. Since Aromasin I have developed Osteopenia. So, don't know what to do b/c all the drugs for bones---fosamax, reclast etc scare the hell out of me. I have had a track record of being right about drugs that cause problems which has been b/c of closely following reports of trouble reported.

    Any suggestions would be highly appreciated.

  • LtotheK
    LtotheK Member Posts: 2,095
    edited October 2011
    My personal opinion, FWIW, is that statements like "Again, the main problem the lack of D3.

    It is just common sense." need to be considered carefully.  Science isn't even sure what causes cancer, therefore, a "magic bullet" that would stave off 75% of cases is an incorrect assertion.

    My bet on cancer?  Having grown up in the worst toxic landfill town in the country.  Chemicals are widely understood to mess with genetics and disrupt hormones.  I was low on D.  I think that was just part of the picture--I don't think you can argue that if all the people of my town were on D, none of them would have gotten cancer (and many do, along with other weird deformities).

    There are tons of studies out there showing how too much D can backfire.  Here is an interesting one on D and osteoporosis.  Too much can cause the parathyroid to overfunction.  I wish it were as simple as one vitamin, sadly, it just isn't:  http://www.osteopenia3.com/Osteopenia-treatments-Vitamin-D.html

    My doctors have been clear they don't want me OVER 60.  Even my naturopath says they just don't know what rates over that do to other body mechanisms.

  • 3jaysmom
    3jaysmom Member Posts: 4,266
    edited October 2011

    hi guys, i've been lurking, but now its gotten imp again. my vit D is down to 40: they think thats one reason my thyroids' messed up. im looking for a suggestion for a non soy pill. i gotta take 2500 aday for awhile. been using the liquid, but it messes up my stomach... suggestions? pm me, if ya goy any...thanks...3jaysmom

  • Char2010
    Char2010 Member Posts: 532
    edited October 2011

    3jaysmom - I buy Vit D at Trader Joe's - gel, no soy

  • Kaara
    Kaara Member Posts: 3,647
    edited October 2011

    My vitamin D levels were very low...probably why I had so many colds last year.  My private physician who does my bioidenticals had them compounded for me.  I started out with 2,500 and my levels didn't come up that much, so we went to 5,000.  I'm due to have my tests soon, so we'll see if that helped.  My boyfriend who has MS takes 8,000.  He never caught any of the illnesses that I had, so it must be working for him.

  • 3jaysmom
    3jaysmom Member Posts: 4,266
    edited October 2011

    did i understand 8, 000.00 a day?? i knew you needed more with MS. this dr. seems to think if i get vit d levels up, it'll calm my ms down, which in turn will stop it from attacking my thyroid.. hey, i'll try anything.. he said 2000.00 a day... is that too low, do ya think???>>>>>>.3jays

  • Shrek4
    Shrek4 Member Posts: 1,822
    edited October 2011

    Well I finally got my Vit D levels to normal range. I started with a 18, they put me on a 50.000 UI of D2 bi-weekly, and it didn't seem to do much. Then in Jan they put me on a 5.000 UI of D3 daily, by April my levels were 48, but my dr wanted them above 65. I just got the result from the last blood test, and my levels are 66! finally! Now I'll have to wait for the next dexa scan to see where I am with my osteopenia (in spring it was already better).

  • Shrek4
    Shrek4 Member Posts: 1,822
    edited October 2011

    I just got off the phone with the PA of my BSO. She said that they just got in the results of the MAP3 trial that shows that exemestane (Aromasin) has no influence in reducing bone density. There was no difference in bone density between the women who took exemestane vs the women who took placebo. Maybe you should switch?

  • sam52
    sam52 Member Posts: 950
    edited October 2011
    Day - that seems really weird to me ; aromasin is an aromatase inhibitor (actually an inactivator), just like the other two, arimidex and femara, so by its very nature it massively reduces estrogen. Lack of estrogen leads, among other things, to loss of bone density. Doesn't make sense to me that there was no difference in the two cohorts cited in the study above. Maybe it was a very small sample of people involved?
  • Shrek4
    Shrek4 Member Posts: 1,822
    edited October 2011

    No, not really. the map3 is a pretty extensive study done in severeal countries (USA, Canada, France and Spain) on 4,560 women.

    Here's the results

     www.nejm.org/doi/full/10.1056/NEJMoa1103507

    and I just noticed I had posted this whole thing on the wrong thread. Ach! chemobrain is still active I guess

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