"So, Someone Close to You Has Breast Cancer..."

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KTJ21
KTJ21 Member Posts: 20

(For the sake of parsimony, I'll be using feminine pronouns, but I fully acknowledge and support all of the guys out there with BC. We love you guys!)

(Also, I use "friend" here, but many of these probably apply to family as well.)

(And thanks to barbe1958 for helping me out with editing this. If a line seems especially insightful or clever, it probably came from her.)

    So, your friend was recently diagnosed with breast cancer. It's really, really scary for you and even worse for her. You want to be there for her, but you're terrified of saying the wrong thing. I totally get that. The BCO "When a Friend Gets Sick" Blog is excellent and should absolutely be utilized. I'm just adding my two cents. Basically, I've learned a ton from these boards and from horror stories told to me by a very close friend with BC, and whenever I reply to a post of a family member, friend, or caregiver who is scared, I tend to say "Use the boards!" This time, I thought I would put my money where my mouth is and try to add to the knowledge of the boards with a consolidated list of things I never would have figured out on my own. Granted, I've still put my foot in my mouth plenty of times, but snooping around the threads (like "OMG they found the cure for stupid") has definitely helped me determine what NOT to say. And I would be glad to have input from anybody on the BCO boards. If I'm wrong, tell me about it. If I forgot something, tell me about it. If, for some reason, I have offended anybody, I really want to know. Thanks in advance! So, without further ado... The DO's, DON'Ts, and BE CAREFUL's for When Someone You Know Has Breast Cancer.

    DO know your friend. If you know your friend well, it's probably not necessary to read this list unless you're just really interested. She'll understand if you say something weird or just don't know what to say, and she'll know you mean well. At the same time, it never hurts to do a little digging to avoid making well-meaning mistakes.

    DO use your instincts. You're a good person. It's unlikely you'll say anything "wrong." Go with your gut, not with clichés.

    DON'T worry if you don't know what to say. It's going to be very, VERY difficult (most likely impossible) to come up with something that will "make it better." So, when in doubt, you could try starting with "I'm so sorry this happened, and I'm here for you." It will show you care.

    DON'T tell stories that begin with "I know/knew someone who had cancer..." She's heard the ones she needs to hear or read them on the internet. She doesn't need to know about your cousins or friends-of-friends.  Besides...who cares about THEM???  This is about HER!  General stories probably won't be super comforting anyway. Breast Cancer has so many variations that a general cancer story might not be applicable at all. Even if you happen to have details like Type, Stage, Grade, Oncotype dx, or Hormone Receptor Status, she's probably heard enough stories to last her a lifetime.

    DON'T trust the movies. It would appear, from the general consensus of the boards, that movies tend to get it wrong. Try not to build any ideas in your head about how conversations or reactions "should" be based on the silver screen. I would imagine that nothing in life (cancer related or not) will play out exactly like it does in the movies, so why try to make it fit?


    DON'T send her a million e-mails with AMAZING CURE FOR CANCER in the subject line. Just don't do it. Lemons, asparagus, the hide of a 36-year-old Grizzly Bear... These won't cure cancer. Healthy eating is probably a good idea, just in general, but the "asparagus diet?" Seriously?

    DON'T compare breast cancer with ANY other cancer out there. There is NO cure for breast cancer. That's why there are still "Run For the Cure" charities going on all over the world!!

    DON'T send her research info (unless, of course, she specifically asks). If she wants to do research, let her do it. What's important to you (say recon) may mean nothing to her!!  If you're going to question what she tells you or urge her to get a second opinion, be very cautious about it.  Doctor-patient trust is really important, and causing an unnecessary rift could be problematic.  

    BE CAREFUL when telling her she looks great. It may come across as silly or insensitive depending on your sincerity. Of course, others may gain a boost from these words, so this is a "Proceed with Caution" sort of area. This could also depend on the treatment phase. If she's three months out of her final chemo, she seems to be feeling good, and your comment is sincere, it might be a wonderful thing to say. Did you always tell your friend she looked good? If so, keep doing it. If not, don't push it now. She has cancer in her breast, not her face. Why shouldn't she look good??

    DON'T crinkle your forehead, turn on your sad, puppy-dog eyes, and ask in a very meaningful way, "How ARE you?" Your friend may or may not have been answering this question thousands of times over, and if she doesn't feel like discussing the cancer, you're sort of forcing her into a corner.

    DO take her lead in conversation topics. A generic "How's it going?" or "How are things?" seems to be an okay starter. Then, if your friend wants to talk about her physical or emotional well-being, that option is available, but it's not forced upon her. If she doesn't mention the cancer/the medicine/the treatment, she might want to just talk about normal things.

    DO treat her like a normal person. Chemo, radiation, surgery... It shouldn't matter. She is still, for the most part, the person you knew. Cancer changes a person, but it does not change the humanity of that person. It is very unlikely that anyone wants to be seen solely as a "person with cancer."

    DON'T completely ignore that she IS a person with cancer. Sometimes, she might want to talk about treatments and fears, and these topics shouldn't be simply glossed over with a "You'll be fine" or "I know you can beat this." NEVER tell her she'll be fine. NEVER tell her to stay positive!

    DO let her talk about dying. Help her plan her funeral. Cry when she cries and laugh when she laughs. Let HER set the pace of these conversations. This is HER crisis, NOT yours.

    DON'T say "If there's anything I can do, let me know." It might be hard for her to ask, just because of social norms and customs. She might not want to intrude upon you. Questions like "Can I do this...?" seem to be better. Coming up with specific things you can do saves her the need to ask. So, things like "Could I give your kids a ride home from school?" or "Would you like me to bring over dinner?" might be more helpful than a general "What can I do?"

    BE CAREFUL about "Pinktober." Some women feel it's too "soft and fuzzy" to be associated with cancer. Some Stage IV ladies feel ignored by the month (and rightly so...). Some, due to being absolutely bombarded, grow to hate the color pink. Others embrace the pink and can't get enough of it. If you want to show your support through the pink movement, it might be a good idea to find out how your friend feels about it. Or if you're not comfortable asking, subtlety seems to be the best policy. Wear a pink bracelet or a pink ribbon necklace. Or better yet, find a breast cancer research center to donate to. Then you know exactly where your money is going (not always true with the Pink campaigns). Just don't deck yourself out in head to toe pink unless you're sure of how you will be received. Unless of course you simply LOVE pink and wear it all the time anyway. If that's the case, then by all means, continue!

And finally...

    DO be there for her! Listen to her, talk to her, cry with her, reassure her (though not in an overzealous way), give her pick-me-up sort of gifts, clean her house, make her dinner, take her kids out for ice cream, visit her, force her husband out of the house for awhile (but only if she thinks he may be going stir crazy), and give with your whole heart.

I really hope this is helpful to someone. And again, if you have anything to add or something here is wrong or offensive, let me know. I'll change it. In a heartbeat.

Edited for spacing and content suggestions.

Comments

  • cs34
    cs34 Member Posts: 253
    edited October 2011

    Love it, Love it, Love it!

    There are a lot of fine lines in dealing with us and I feel it takes a ton of perception to see what we may or may not need at the moment and some may (of course unintentionally) fall short but this list is so true and a great guide. Nicely done. 

  • KTJ21
    KTJ21 Member Posts: 20
    edited October 2011
    Thanks, cs34!  The fine line thing is really what I was trying to get at.
  • Wabbit
    Wabbit Member Posts: 1,592
    edited October 2011

    I think you did a very good job of putting this all together!  Should be helpful to many. 

    But I do disagree with this ... "Breast cancer is common enough that the only thing a second opinion generates is another co-pay!"

    Breast cancer is common but not all alike.  I would agree that pushing somebody for a second opinion they don't want is not a good idea.  But I have seen numerous women on BCO who have greatly benefited from getting second ... and sometimes even third ... opinions.  Not all oncologists agree and some are much more up to date than others.

  • lisa-e
    lisa-e Member Posts: 819
    edited October 2011

    I logged in to second what White Rabbit said:  There are times when you should urge someone to get a second opinion.  

  • susan_02143
    susan_02143 Member Posts: 7,209
    edited October 2011

    I know it is hard to remember, but 5% of breast cancers occur in men. A little de-genderizing would go a long way, or change the title to "Your female friend..."

  • otter
    otter Member Posts: 6,099
    edited October 2011

    KT, you've done a fantastic job.  Several of your recommendations made me wish my family and friends had seen a list like yours when I was going through my "Cancer Year."  I'd like to think they would have behaved differently... but, maybe not.  (Just last summer, my sister and I argued about whether wearing pink for "breast cancer awareness" really made any difference.... as if she would know.)

    I do want to echo what White Rabbit and lisa said about 2nd opinions.  You are right in advising family members and friends not to pressure someone to get a 2nd opinion just because it's the thing to do.  Some women are perfectly comfortable with the advice and treatment recommendations they're receiving from their current medical team.  So, I think unless the person seems to be questioning the recommendations she is getting, or she thinks her concerns are not being addressed adequately, or she hints that she might want to consult another doctor, ... butt out.  Not everyone needs a 2nd opinion, and not every situation warrants a consult.

    Of course, one role of a close friend or family member is to recognize when a person is delusional or is unaware that she's being given bad advice.  I know of situations in which people with serious medical problems were faithfully complying with the medical recommendations they were getting, but those recommendations were out-of-date, inappropriate, or even dangerous.  (Think "elderly person" and "very small community hospital", and you'll get the picture.)

    So, sometimes it is necessary to urge a close friend or family member to seek another opinion.  As is true with almost everything on your list, it depends...  and, that's the hard part.

    otter

  • otter
    otter Member Posts: 6,099
    edited October 2011

    susan_02143, I don't mean to detract from your message about sensitivity to men with breast cancer, but your number ("5% of breast cancers occur in men") is too high.

    Only about 1% of diagnosed cases of breast cancer occur in men -- thus, it is 100 times more common among women than men... at least, according to these sources:

    "Epidemiology of Male Breast Cancer" -- http://cebp.aacrjournals.org/content/14/1/20.full

    "Breast Cancer in Men" -- http://emedicine.medscape.com/article/1954174-overview

    "Can men get breast cancer?" -- http://abcnews.go.com/Health/OnCallPlusRiskAndPrevention/men-breast-cancer/story?id=3635817

    "Breast Cancer in Men" -- http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1126640/

    Since KT is writing from the perspective of someone whose female relative has breast cancer, and since breast cancer is far more common among women than men, I think her use of the female pronoun is reasonable.  She even opened her essay with the acknowledgement that she would be using the female pronoun, even though "guys" get breast cancer, too.

    otter

  • susan_02143
    susan_02143 Member Posts: 7,209
    edited October 2011

    my error. sorry.

  • otter
    otter Member Posts: 6,099
    edited October 2011

    On second thought:  it must be really, really difficult for a guy with breast cancer to find his way through all this.  I wonder if there is a thread on the "Men with Breast Cancer" forum that offers advice to their family members and friends.

    Sorry if my post sounded harsh.  I'm feeling really prickly today.  I would blame it on PMS if I hadn't been solidly menopausal for the past, oh, 8 years and 3 months.

    otter

  • KTJ21
    KTJ21 Member Posts: 20
    edited October 2011

    Thank you all for your input!  I'll probably make a few edits.  As for the "Men with BC" issue, originally, I really did try to write the post for both sexes, but it got incredibly difficult to read with the "his/her" and "they" pronouns.  Clunky, if you will.  Really sorry I couldn't handle that more effectively.

    But again, I really appreciate the feedback.

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