New lump after lumpectomy - waiting game again...Ugh!

Options
116
116 Member Posts: 108
edited June 2014 in Stage III Breast Cancer

I am four years out and about six months ago I started noticing a retraction line coming off of my scar line, and I also keep having weird twinges under my arm on the good side, that are increasing in frequency. So I made an appointment and I talked to my general physician... who told me to talk to my oncologists. My oncologist told me to talk to my general physician, so I got a new general physician, but had to wait a long time to get an appointment. The new general physician also told me to go talk to my oncologist. By this time six months had passed by and the retraction line was growing. Seems like after 4 years that the scar bed would not be changing???, although I have put on some weight and going through menopause again...... Anyway by now my yearly mammogram came up so I told the nurses in the mammography center about what was going on and they insisted that I get in to see my previous surgeon asap. This was after I also had been called back to have more films on the other good side, (that they determined were OK the second viewing, scary!). Anyway I went and saw my surgeon who said I have a lump there and sent me for an ultra sound, after the ultra sound the radiologist and nurse took me in a room and said I need a biopsy for a 1 cm lump that is there at the end of my scar line near the skin. I am scheduled for the biopsy Thursday. The surgeon said that the weird feelings I have under my good armpit must be nothing since he could not feel anything and did not order an ultra sound on that side, which makes me a little nervous since when diagnosed they felt nothing and my nodes were matted, Anyway has anyone else had something like this, and what was your biopsy results. They still declined to order the MRI I have been asking all the doctors for the last six months. I never get any follow up tests, not even blood, just hi how are you, a really lame breast exam, and out the door, that is not really worth the copay. I am just grateful that the nurses in mammography finally listened to me. I hate the way that if I have a concern I always walk away feeling like they think I am just paranoid or something even though I seldom go to the doctors and have never complained and I am always nice and pleasant. ugh!

· Share on FacebookShare on Twitter

Comments

  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited October 2011

    Giddyup,

    Ugh, I'm sorry you are having this concern, but glad at least someone is taking you seriously.  My onc is the "watch and see" type too----no annual scans, etc.  

    Keep us posted on how you are doing!

    (((Hugs)))

    Sharon

    · Share on FacebookShare on Twitter
  • jennyboog
    jennyboog Member Posts: 1,322
    edited October 2011

    I'm so sorry and my heart and prayers go out to you.  I hate dealing with these scares but I guess this is our life now.  I hate that the dr's make us feel this way too...I swear my GP is scared of me, everything that happens she says go to your onc and my onc says go to your GP, WTH!  Let us know how it goes, I'll be thinking of you.

    · Share on FacebookShare on Twitter
  • 116
    116 Member Posts: 108
    edited December 2012

    Thank you Sharon and Jennifer for responding to my post, in hindsight I guess I was just scared and was looking for some support during the waiting game. I go for my biopsy tomorrow and I am crossing my fingers that it will be all for nothing, honestly I do not think I have the energy to go through any kind of treatments again, at least not right now, so it just has to be benign!. Thank you again for being so kind, I really do appreciate you both!!!!!!!!!!!

    · Share on FacebookShare on Twitter
  • kim40
    kim40 Member Posts: 904
    edited October 2011

    Hey Giddyup

    I just wanted to pop in and send you some positive vibes, hugs and prayers for a B9 result!  (((Hugs)) to you!  Best of luck tomorrow.  Keep us posted! 

    · Share on FacebookShare on Twitter
  • jennyboog
    jennyboog Member Posts: 1,322
    edited October 2011

    Of course you are scared, I would be too...I just got done with a scare myself and was sure it was going to be bad but I was wrong.  I'm waiting with you and will be thinking of you today.

    · Share on FacebookShare on Twitter
  • lollypop59
    lollypop59 Member Posts: 123
    edited October 2011

    i was diagnosed last sept 2010, with ibc had 17 nodes removed but 7 of them were positive, had chemo firs four half months, the masceptomy, immidiate recon, and then 15 days of rads now back in skin, around by my scars i had biospy, confirmed cancer cells, i have sacan next tues on the 11th october and thensee my sugeon on thurs iam still having hereceptin until jan 2012,.

    · Share on FacebookShare on Twitter
  • jennyboog
    jennyboog Member Posts: 1,322
    edited October 2011

    Thinking of you, I hope everything went ok, let us know when you can.

    · Share on FacebookShare on Twitter
  • annettek
    annettek Member Posts: 1,640
    edited October 2011

    please let us know how you are doing- i have been thinking of you and rooting for you:)

    · Share on FacebookShare on Twitter
  • 116
    116 Member Posts: 108
    edited December 2012

    Thanks for thinking of me, it really does mean a lot. I had the biopsy on Thursday. They made at least six passes at the lump and kept aiming at white spots, calcifications?, but you know how good radiologists are at having poker faces and evading direct questions during ultrasounds and biopsies. Although I never even flinched once, I have to admit I drove home feeling very bruised, scared, and alone. I have been alternating between telling myself it is nothing, just scar tissue, or something benign, completely confident that it will turn out to be nothing and feeling absolute terror. I am assuming I will hear something tomorrow, or Tuesday at the latest. The nurse said they will try to let me know asap. In the mean time I have been trying to just stay busy, spending time at the barn, I consider myself pretty tough and not too emotional, but this waiting is awful. I have decided that it this turns out to be benign, I will never ever, ever, ever have another mammogram or ultrasound again :). It is just too stressful and I just don't ever want to do this again! Thanks again for thinking of me, I only told two really close friends, and not my children, no sense in getting everyone else worried too, but it is nice to have the support here, knowing how you all understand. I will post as soon as I find out what the results are. I am actually staying very optimistic............ in between moments of extreme fear :)

    · Share on FacebookShare on Twitter
  • 116
    116 Member Posts: 108
    edited December 2012

    Lollypop59 - I am truly sorry that you are having a reccurance of cancer cells at your scar line, you sound like you have been through so much already, I can't imagin how you must be feeling right now. Please keep us informed about what the surgeon said and what is your next step. I am sure you must be terribly frightened and I hope you will lean on us for support when you need someone to listen. You must be overwhelmed right now.

    · Share on FacebookShare on Twitter
  • Kay_G
    Kay_G Member Posts: 3,345
    edited October 2011

    lollipop, so sorry, that totally sux.  As Giddyup said, please keep us informed.  Sending healing vibes to you.

    Giddyup, sending positive vibes for b9 results tomorrow, preferably early am so you can relax again.

    · Share on FacebookShare on Twitter
  • AnacortesGirl
    AnacortesGirl Member Posts: 1,758
    edited October 2011

    Giddyup -

    I'm so sorry that you have to go through what feel like a repeat.  I hop you have good news to give us on Monday or Tuesday.

    Lollpop59 -

    I guess it's a good thing that your docs found this while you were in active treatment and it didn't get too far along.  But I know that doesn't lessen the blow.  I'm sorry and hope they can fight it with more rads and chemo. 

    · Share on FacebookShare on Twitter
  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited October 2011

    Giddyup,

    Thinking about you this morning and praying you get some GOOD NEWS today!!!

    Sharon

    BTW, I love your profile name and pic.  I'm a horse lover myself (besides dogs as my profile name tells you !:)

    · Share on FacebookShare on Twitter
  • 116
    116 Member Posts: 108
    edited December 2012

    Yeahhhhhhhhhhhhhhhh! I just heard back that my biopsy was good, no cancer, they believe that it is probably just scar tissue. I am never going to have another mammogram, scan, or biopsy again, it is just too stressful! Thanks for all your support and for listening and for understanding the fear factor....... as only you guys can truly understand!

    · Share on FacebookShare on Twitter
  • Kay_G
    Kay_G Member Posts: 3,345
    edited October 2011

    WOO HOO!!  Wonderful news!  I am so happy for you.

    · Share on FacebookShare on Twitter
  • 116
    116 Member Posts: 108
    edited December 2012

    Thank you again for your support, I hate how silly I feel for worrying, but I can not help but feel overwhelming stress when waiting for tests, no matter how many times I tell myself that everything is going to be just fine, My only comfort is knowing that the women here understand and do not judge my fear,

    · Share on FacebookShare on Twitter
  • Kay_G
    Kay_G Member Posts: 3,345
    edited October 2011

    Giddyup, I think most of us have the same feelings as you do.  It is great to have a place where we all understand.

    · Share on FacebookShare on Twitter
  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited October 2011

    WAAAHHHHWHOOOO!!!  Doin the happy dance for you Giddyup!!!

    Sharon Foot in mouth

    · Share on FacebookShare on Twitter
  • lexi4
    lexi4 Member Posts: 1,074
    edited October 2011

    Great news!! I am relieved and very happy for you!!

    · Share on FacebookShare on Twitter
  • jennyboog
    jennyboog Member Posts: 1,322
    edited October 2011

    Good news Giddyup...congratulations, so happy for you!

    · Share on FacebookShare on Twitter
  • lollypop59
    lollypop59 Member Posts: 123
    edited October 2011

    thanks jennyboog,   i hand my drain out today, but i will be seeing my surgeon next monday and he will be telling me whether i need more treatment or not, he did say i might not after the op when he came round to see me, they might just keep me on the herceptin for longer but will  see, anyway thankyou for replying. i will keep you next week.

    · Share on FacebookShare on Twitter
  • lollypop59
    lollypop59 Member Posts: 123
    edited October 2011

    hello giddyup, t,hankyou for replying i had my drain out today, i will see my surgeon next monday then i will know if i need treatment or not he said they might just keep me on the herceptin a bit longer, but we will see what the oncoligist says fingers cross, anyway good luck four results.

    · Share on FacebookShare on Twitter
  • lollypop59
    lollypop59 Member Posts: 123
    edited October 2011

    sorry giddyuo,

     just seen your results were no cancer which is brilliant news for you. x x

    · Share on FacebookShare on Twitter

Categories