My friends have organized a walk in "honor" of me???

bedo
bedo Member Posts: 1,866

I wasn't sure where to post this, but noticed that there were a lot of Pinktober posts here.

They want to call it "Team Sally"  I said,"No, I would kill you. How about the Nachos, or Hot Mammas?"  I don't know what they are doing, I think it's Oct 30th.  Is this worth it?  Is it Susan Komen? And Is it a good cause.  Thank you very much. 

Comments

  • Celtic_Spirit
    Celtic_Spirit Member Posts: 748
    edited October 2011

    I'm sure they're doing it to honor and support you, and that's commendable. However, if my friends wanted to "honor" me in this way, I would be mortified. I'd have to enter the witness protection program.

    If you're uncomfortable with this (and it would be waaaay too much attention for me), ask them to donate in your name (or not) to a reputable breast cancer foundation or assistance/research program.

  • bedo
    bedo Member Posts: 1,866
    edited October 2011

    Celtic_ Spirit How about if it's anonymous? And I am just one walker among many and there is no way to connect it to me, just raise money?

    Btw, I love Celtic music and play it on fiddle, though I live in the US. Can't do that clogging though, lol

    I am hoping that it will raise money for research, I know they love me, but it's not really about me. and they know that I have only told a few people.  I plan to put it behind me. after radiation is done in 6 days.  Please see my diagnosis. Denial or not, this is the way I chose to go.  . :)  Thanks
    Diagnosis: 6/17/2011, IDC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2-

  • Rachel1
    Rachel1 Member Posts: 363
    edited October 2011

    You get sick (no pun intended) of being the poster child for bc, don't you?! My daughter's school did a fund raiser play without my permission. I asked not to be named, but they didn't respect that either. I know that folks do this out of the goodness of their hearts, but what I want most of all is to just be me again (normal me). Is that truly possible? I want to be my kid's mom, my husband's wife, the woman who likes to garden and walk. Not that poor lady with bc.  I guess that is just my perception, though. Maybe folks don't even think that.

     I better get off. I'm starting my own pity party.

    Hugs,

    Rachel 

  • Celtic_Spirit
    Celtic_Spirit Member Posts: 748
    edited October 2011

    Rachel - Exactly! I told very few people about my cancer because (1) it's none of their business, (2) I didn't want to be Cancer Girl, and (3) I wanted to maintain as much normality and control of my life as possible.

  • bedo
    bedo Member Posts: 1,866
    edited October 2011

    My friend who is doing this is 24 and awesome.  I asked not to be named  I just wanted to know if this Susan Komen walk is a good charity.  Thanks!  There will be many other 'lucky ladies' there.  I will remain, yours, anonymous.

  • skigrl
    skigrl Member Posts: 53
    edited October 2011

    When I was diagnosed my dear friend did a 5k walk /run with donations excepted. She called it "a friends walk". I only found out about it the day before. She kept it quiet because she knows I am a private person and thought I wouldn't approve. She did it to raise money to help with my gas expense at the time. I was traveling 5 days a week for 6 weeks to radiation and it was 200 mile round trip. The $ helped me so much and I was grateful for all that participated in the " friends walk". It has now become an annual event held on mothers day and the proceeds made go to an individual from the town who can really use it to help with medical expenses etc......and I am happy to be able to participate in the friends walk and help give back to those that helped me.

  • Maire67
    Maire67 Member Posts: 768
    edited October 2011

    I haven't posted in ages but I feel I can comment on this.  My well meaning friends decided to take the money we collected for annual outing and donate it to a walk.  That was fine but they wanted me to come to the overnight walk so I could walk around the track with the survivors holding lighted candles.  I am not kidding.  

    I was in the middle of rads and just finished chemo and working.  I told them I appreciated donation but I couldn't go...first I was exhausted and still immune compromised but most of all I didn't want to be on display.   I hope they understood.   Five years later we are still friends but I know they still don't understand why I am not proud to be a "survivor"  I am sad for all those who were not as lucky as I and did not survive.   This is not a contest.  

    My suggestion is to give your money directly to the American Cancer Society or hospice or whatever...It is lovely that people helped a local like skigrl with gas money...that's is the kind of help people need.    Walks of survivors....remind me of a circus...and I didn't want to be on display.

    I am glad I am a here to enjoy my friends and family but I am heartbroken for those friends lost and friends from these boards who are gone.  I empathize with those who are going through treatment.   I know my friend wanted to help now but at the time...it was hard for me.     

    Think before you pink... We all know that pink means breast cancer ...we need to make sure everyone has the opportunity to be diagnosed and treated.  Please, don't buy another pink plastic cup...we need access to treatment for everyone.

    Lucky to be dancing with NED

  • pickle
    pickle Member Posts: 1,409
    edited October 2011

    I am sad for everyone dealing with this disease and I am especially sad for all the women dealing with stage 4 and for those that went before.

    I don't like all the pink stuff but I must say that I am encouraged and honored that people take an interest and want to help out in any way they can. For some people, helping means a casserole, a note, an offer to watch the kids, and for others it becomes larger than life. Pink boas and a walk with our names on the their backs, a candle at the Relay for Life, etc. People feel helpless and they sooooo want to help..perhaps we aren't ready to receive that kind of help.. depending where we are in this journey that no one wants to be on. 

    It is so difficult to ignore the pink or to decide to embrace it. I am always on the fence...appreciative and yet skeptical all at the same time...hmmmm 

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited October 2011

    I walked for her for more than a decade.  This year she walked for the both of us.  30,000 people participate in the Komen Walk in Kansas City.  I can't be upset, even if I wanted to.  This year, we are walking in the Boston race.

    They walked for and with me in Boston last year.  And we will walk again this year even though they may have to carry me.  These are my children, my son-in-law and one of my grandchildren from last year's walk.  I was still living in Missouri and I flew out for the weekend when I found out that they were all walking.  It was an act of love and support, and I can only be appreciative.  There is no debate, for me.

    Michelle

  • QueenOfHope
    QueenOfHope Member Posts: 61
    edited October 2011

    After I was diagnosed in Feb. 2010, a friend asked if she could create a team in my name for the SGK Race for the Cure (the event is in June in my city).  I said, "Sure!"  Several friends even came up with a list of team names, and I got to pick the name:  Shawn's Bosom Buddies!  So many people got involved, that I was really touched, and discovered that I have waaaay more friends who love me than I thought.

    I'm very up-front about my disease.  Within 5 minutes of meeting someone new, they know that I'm a BC warrior.   

    I'm a costume designer, and during our May production, I spoke about BC to every audience following the curtain call, asking for money for my SGK Race team.  Over 10 performances, they donated over $3000!  :-D   I've done some volunteer public speaking about BC, as an example of someone living with cancer, to help raise money for SGK and a few other cancer charities.  I do it leaving my wig at home, and I have no trouble asking people for money.

    I understand everyone is different, but if my friends want to honor me in any way, I love it!  The way I look at it, is that they often ask me if there's anything they can do for me, but I usually can't think of anything (fortunately, my cancer's stable, and I honestly don't really need any kind of help right now)... so...  when they wanted to create a SGK team in my honor, I thought that was a great way for them expend a lot of energy for a good cause, and I don't mind being the face of my team. 

  • solange49
    solange49 Member Posts: 102
    edited October 2011

    I can relate pickle. I tend to be on the fence as well. My friends, family & co-workers wanted to create a team in my honor for the race this year. Shirts are being made & we are Diana's Divas. Lol Its very important for them to show their support in this way. And I know it'll be an emotional day for me. I finished my last chemo on Sept 19th and two days after the race on the 24th of this month I'll have my BMX,



    Hugs everyone,



    Diana

  • AnacortesGirl
    AnacortesGirl Member Posts: 1,758
    edited October 2011

    bedo -

    There are so many walks that it hard to say what is happening in your area Oct 30.  As far as I'm concerned there are two rules involved with using me or any of my loved ones who've passed away from cancer.  First, you have to ask my permission. Second, you have to tell me what is going to be done and where the money goes.

    It sounds like you have a lot of respect for this friend and she understands that she needs your permission to use your name.  Go back and ask her about the walk. 

    I've changed my stance about walks.  After my sister died there was no way I was going to walk with her name on my back advertising her death.  But as part of the grieving process I've moved on.  With my dx and the confirmation of the BRCA mutation I decided to get involved in our local Relay for Life.  My team captain/chairman is a good friend and he always asks me before using my name on anything.

    This hasn't been an easy change for me.  I've always been the person in background doing the support work.  I get a lot of pleasure helping others and not being the one in the spotlight.  But, as my counselor pointed out, sometimes we need to be the ones getting the help so we can make the support people feel good.  My friends (and these are real friends, not just aquaintances or co-workers) enjoy this work and I'm honored that they are supportive of me.

    But it's so important that we do what is comfortable for ourselves.  No one should be pulled into an event that they are not comfortable supporting or being a participant.  It's not for everyone.

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