How long did it take to get diagnosed?

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NannaBaby
NannaBaby Member Posts: 510

From when your first noticed a suspicion, how long did it take until you got BC diagnosis?

I first noticed a lump Sep. 2009 and because my ignorant dr., it took 8 months before I got a biopsy and diagnosed with IDC locally advanced May 2010.

Comments

  • wallycat
    wallycat Member Posts: 3,227
    edited October 2011

    I was thinking about this the other day.

     I think I "knew" something was not right for about 6 or 7 years.

    I remember DH and I were traveling when he retired, to locate a new place to move to, and we were in a motel room.  I was showering and noticed that one of my breasts responded differently to nipple stimulation than the other one. I remember standing there thinking...is this normal?  I wonder if I have breast cancer in one of them.  I had regular mammograms and ultrasounds and nothing until an MRI found my tumor.

  • NannaBaby
    NannaBaby Member Posts: 510
    edited October 2011

    oh wow! 6-7 years is a long time!

  • SandyAust
    SandyAust Member Posts: 393
    edited October 2011

    For me it was more than a year. 

    I first noticed non-cyclical pain and internal itching in my left breast at 35.  I knew something wasn't right. After several months and couple of visits to different GPs I had a mammogram, and possible ultrasound (can't rember now), which showed nothing.  Ten months later I found a lump at the site of the pain and itching. Nearly didn't get it checked.  The mammogram tech told me off for getting too many mammograms, she shut up when she saw the films.  Four weeks later they cut off my breast at the age of 36.

    Sandy

  • mrsnjband
    mrsnjband Member Posts: 1,409
    edited October 2011

    Thank God for my breast specialist, it only took two months.  With my aggressive type of bc that was a blessing.  I am so grateful! NJ

  • Carola32
    Carola32 Member Posts: 206
    edited October 2011

    Something weird had been going on in my breast since two years (searing pain sometimes, especially when exhausted), felt the actual lump in October 2010 and called my doctor a month later when it didn't disappear with the next menstrual cycle. Two weeks prior to my phone call I saw my nipple inverting from one day to the other. I got diagnosed december same year after an echography and biopsy. Treatment started in January 2011.

  • lagaviota
    lagaviota Member Posts: 13
    edited October 2011

    I had an unusual set of circumstances, but for me at 23 yo it was 4 weeks after my husband (at the time) found the lump that I went into the doctor's office to have him look at it.  Then 2 weeks after seeing him to have him call me into his office to give me the devastating news.  But...he did something very unusual, although I wasn't aware of it at the time.  He told me to lay down, he grabbed a needle, told me "okay, if I draw out fluid, it's a cyst, if I draw out blood, we have a problem".  Well out came blood and he put it on a slide right there in front of me and told me he'd call me when the results came back.  He apparently had gotten the results back a week before his office called me in because he later told me that he had a conference to go to and wanted to wait until he returned.  This doctor, my primary care doctor from the time I was a little girl, slowly went crazy over the next 12 months and died from a brain disease the next year while in jail after assualting another patient.  So I always think...thank goodness my doctor went crazy and took me seriously, or I might not be here today.

  • Beeb75
    Beeb75 Member Posts: 325
    edited October 2011

    I first found a lump in April 2009...took it to the docs a month or 2 later, and they felt it too, but they didn't see it on ultrasound and just told me to follow up in 6 months. Long story short, I wasn't diagnosed until July 2010. Still hoping and praying that delay doesn't end up doing me in.

  • Leah_S
    Leah_S Member Posts: 8,458
    edited October 2011

    Things went very fast for me. I showed the doc the lump I found on Thurs; she sent me for a mammo and U/S which was done a few days later on Sun. Mammo was clear but U/S showed the mass so doc did a core needle biopsy right then and I got the dx the following week on Mon. So, 1 1/2 weeks from going to doc to dx.

    Leah

  • SAOIsenberg
    SAOIsenberg Member Posts: 429
    edited October 2011

    I was unusual, but at 32 I had extreme bilateral breast pain and went to see a new OB/GYN. Never in a million years did I think of breast cancer - literally never crossed my mind (no family history of any cancer, I was so young I knew no one who'd been dx'd, etc.). There was nothing palpable and she assured me it was probably nothing, that the pain was probably related to ovulation. I'd just gone off the pill (which I'd been on since college!) - married almost a year earlier and trying to get pregnant.

    She wanted to be absolutely sure so ordered bilateral mammos and sure enough, I had microcalcifications in my left breast CLASSIC for a malignancy. I will never forget the look on the tech's face when she told me I needed to see a surgeon, STAT. Ended up with very high grade, HER2+ cancer, but stage 1. My breast surgeon, one of the best in her field, told me I needed to start going to church and/or playing the lottery, b/c I got so lucky that someone took a flyer and sent me for a mammo. It was moving fast and I would've been in rough shape in another year or so. Needless to say, that OB/GYN is one of my favorite people in the world. Still see her.

    Sarah 

  • sundermom
    sundermom Member Posts: 463
    edited October 2011

    I foundk the lump on October 23rd, saw my OBGYN on October 26th, mammo on October 27th, appointment with BS on October 28th, biopsy on November 4th and diagnosis on November 8th . . . so a little over 2 weeks. I was 37 at the time I found the lump and am so thankful that my OBGYN didn't waste any time "watching and waiting." He even called me after getting a copy of the pathology report and said that my case was a nice reminder for him to be vigilant with his younger patients.

  • mommanurse
    mommanurse Member Posts: 12
    edited November 2011

    I still have not heard of someone finding BC the way that I did and I want to share my story to raise awareness so please share with me!!

    I was 28 years old and for about 6 months to a year, had noticed a dimple in my right breast. It was a dimple like you would see on an area of cellulite. I thought, "Well that really sucks that I have cellulite on my boob."  It would catch my eye sometimes and I started to notice that if I flexed my chest muscles it would pucker a little more. Then, about 6 months later I had an OB/GYN appointment. I mentioned it to the ARNP and she did a breast exam and said, "Well, I don't feel anything but it's a change so I want you to have it checked out." (She is still my hero!) I still procrastinated and another 6 months went by and I figured I'd better get the appointment scheduled before my yearly came around again. I had a mamogram and an ultrasound done. She spent about 4x as much time on my right breast and I could tell she was taking lots off different images.When she was done she had the Radiologist come in and he said they found about 4-5 different areas of suspicion and wanted me back the next day for a biopsy. He took about 8 samples I think and I said to him, "Are they fluid filled or tissue." He told me tissue and at that point I was pretty nervous. That Friday the ARNP told me it was cancer. Stage IIIC with one positive node. I beat myself up a lot at first not getting it checked out but I am a strong believer that everything happens for a reason.I am doing very well now and in a few weeks I will be 2 years out!!

    Thank you ladies for listening and for all of your posts!

  • Mandy85
    Mandy85 Member Posts: 31
    edited November 2011

    For me, after I meet my lovely fiancé of 3 years, I started to have discharge (maybe I have the discharge before, can not remember), just white/clear liquid. Then last year, around June, I started bloody discharge, only twice, when to my physician, order me mommogram and ultrasound, came back negative with cancers or anything. Thought that is the end until later that year, December of 2010, I notice a same lump near my areola, didn't see the dr until march due to full time student/job. Long story short, got my in cession biopsy in June of this year, came back report of cancer. Stunded for about two month of not wanting to think about, then got my lumpectomy in august 8, now also done with my radiation and moving into tamoxifen.



    Mandy

  • MiniMacsMom
    MiniMacsMom Member Posts: 595
    edited November 2011

    I noticed my lump a few weeks after I stopped breast feeding towards the begginning of August.  (I had yearly exam with breast exam on 7/14 with nothing noticed)  On 10/19 I had another breast exam, an ultrasound with imediate mammogram and biopsy on 10/24.  Path results on 10/25 and a right mastectomy on 11/3.  My chemo (TAC) was supposed to start on 11/18 but I will now be at MD Anderson, so we start after Thanksgiving. My post mastectomy diagnosis is Stage IIIa high grade Infiltrating and insitu adenocarcinoma. ER+ PR+ Her2 - and BRCA unknown.  Size is the kicker, 9x6x5cm.  This tumor must have enjoyed my Preggers estrogen!

  • SafetyBoater1
    SafetyBoater1 Member Posts: 3
    edited December 2011

    I thought things were moving slow for me, but after reading some of these replies I feel lucky...  I found the lump myself in early September.   Apparently my lump (hard, spherical, fairly easy to move around) felt just like a harmless fibroadenoma and looked just like one in the ultrasound pics, so it was two months before the breast doctor got me in for a biopsy.  Now things are moving really fast.  Just had a lumpectomy but need more surgery because they didn't get it all.

    It's frustrating -- I feel that because of my age (32), my biopsy was delayed.  Now that chemo plans are being made, I feel I have to keep pushing to get fertility concerns and the egg harvest / embryo freezing I want to do before chemo addressed.     

  • minky1225
    minky1225 Member Posts: 18
    edited January 2012

    I noticed my lump in may 2011 and did not go to the doc till October since I thought it was just another fibroadenoma...went to doctor October 18, ultrasound and mammo done following week, MRI and biopsy a week later. Officially diagnosed November 1, 2011. I underwent double lumpectomy on November 22, 2011. I am now about a week away from harvesting embryo process. Chemo will start after that. Thinking last week of January or 1 st week of February.

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