Where are the Skin Sparing Nipple Sparing Procedures Done?

Options
1…5681011

Comments

  • TinaT
    TinaT Member Posts: 2,300
    edited July 2011

    jenkwa2:  There are a number of threads with comments on this.  Type "nipple sparing" or "nipple sensation" into the search box at the top of the page to find....

    My breast surgeon does lots of nipple sparing procedures so I recently emailed her to ask what her observations are based on long-term patient follow-ups.  She commented that about 50% of her patients report a return of some feeling in the nipple.  However, she describes it as more of an awareness (such as clothes rubbing) rather than pleasurable sensation.  She makes the incision below the breast in the inframammary fold.

    I've posed this question a number of times on various threads and the few who responded that they do have sensation concur with my BS's observations.  Some actually describe it as an uncomfortable sensation and I've never read or heard of anyone who has the same sensation as prior to mastectomy.

    There are claims that the new microfat grafting procedures can regenerate feeling.  I'm obviously skeptical, but it sure sounds intriguing!!!

    · Share on FacebookShare on Twitter
  • Chocolaterocks
    Chocolaterocks Member Posts: 364
    edited July 2011

    Jenkwa2

    Yes, I did. I am not sure.  My nipples have sensation, reaction.... more their than in rest of the breast, but I am not sure. I had immediate one step direct implants.

    hope this helps

    Chocolate

    · Share on FacebookShare on Twitter
  • TinaT
    TinaT Member Posts: 2,300
    edited July 2011
    Ilovechocolate:  Is it a "feels good" sensation or just a sensation?  As you say, "I'm not sure..." sounds like it's not like pre-mastectomy....
    · Share on FacebookShare on Twitter
  • tigerw0man
    tigerw0man Member Posts: 63
    edited July 2011

    @hmom - I know it has been a while since your post, but I am now interviewing surgeons to perform a NSM on me. I am meeting with a second GS at Abbott Northwestern tomorrow and am wondering who you had as a surgeon, if you were happy with the results and if you would use them again?  Also, who was your PS?  I have met with 3 so far, really liked one of them, but would like to talk to people who have had good results.  Thanks!

    · Share on FacebookShare on Twitter
  • daisy4ever
    daisy4ever Member Posts: 75
    edited July 2011

    Orange, California: Dr. Helen Mabry did my NSM. She is fabulous! I also had immediate recon with DIEP. It's been two weeks, and so far so good. I am still healing, but I can feel my skin and have sensations. My breasts feel like I did while nursing. It's like my milk has come in.

    · Share on FacebookShare on Twitter
  • olearca
    olearca Member Posts: 215
    edited July 2011

     I feel so blessed to have had the option brought to my attention from Dr. Swistel at our first consult.  He is trying to do as many NSS as possible depending on diagnosis and his work was like art in my opinion.  Scar/incision is under breast fold.

    NYC: 

    BS - Dr. Alexander Swistel - Cornell-Weill / Columbia Presbyterian working with either Dr. Mia Talmor or PS - Dr. Robert Grant - Chief of PS, Columbia Presbyterian - one of the nicest, most compassionate doctors I have ever met. 

    I am one of the "rare" after NSSMx patients that found unexpected cancer cells in one of the nips.  Even so, I am going to have the nip cored out in the PS office and still get to keep the areola and the other nip.  So much better than not having had the opportunity. 

    · Share on FacebookShare on Twitter
  • Sherryc
    Sherryc Member Posts: 5,938
    edited July 2011

    There are several Dr's in the San Antonio Tx area that perform NSM.  My PS Dr. Chet Nastala will be performing mine and then doing my deip reconstruction.

    · Share on FacebookShare on Twitter
  • whippetmom
    whippetmom Member Posts: 6,920
    edited July 2011

    Bump

    · Share on FacebookShare on Twitter
  • Kristi_in_MO
    Kristi_in_MO Member Posts: 42
    edited July 2011

    Springfield, MO

     I must admit, I am a little concerned as I didn't realize this was so rare.  My surgeon didn't seem to have any concern about doing it at all.  I'll let you know how it turns out in the end.

    · Share on FacebookShare on Twitter
  • FieryRed42
    FieryRed42 Member Posts: 15
    edited August 2011

    Dr. Jeannie Shen in Pasadena CA is amazing, both at surgery and just being knowledgeable and compassionate. She saved my nipple and it was a very challenging case. I couldn't recommend her more!

    · Share on FacebookShare on Twitter
  • baseballmom
    baseballmom Member Posts: 126
    edited August 2011

    I am 3 weeks post surgery and my nipples are pink, I have completely filled implants and I had the absolutely best BS/PS team.  I did my research and they are not in the same practice but they have worked together many times.

    Boca Raton, Florida at Boca Raton Regional Hospital

    Dr Joseph Colletta - BS

    Dr Hilton Becker - PS

    At one of my last appts the PS commented on what an excellent job the BS did on the masectomy.  I quote "that's how a masectomy should be done."

    · Share on FacebookShare on Twitter
  • Denirwin
    Denirwin Member Posts: 2
    edited September 2011

    I had a Skin-sparing, Nipple Sparing Mastectomy on my right breast Aug 7, 2007.  It was done by Richard Clarfeld, MD at Overlake Hospital Medical Center in Bellevue, Wa.  I was originally scheduled for a lumpectomy, to be followed by radiation therapy -- but when I discussed this with the Plastic Surgeon, Dr. Clarfeld recommended (Dr. Kimberly Lu) -- she said she'd have a much harder time doing the reconstruction with a lumpectomy than a mastectomy due to the space between the two tumors found.  I elected to have the mastectomy -- which then elimated the need for follow-up radiation therapy also.

    I remember asking Dr. Clarfeld what I would end up looking like, until the reconstruction -- he truthfully said " A Shar-Pei".  That sense of quirkly humor helped alot! 

    · Share on FacebookShare on Twitter
  • Sher7788
    Sher7788 Member Posts: 4
    edited September 2011

    I am BRCA2 + and i recently had mine done in Hartford, CT by Dr. Orlando DeLucia

    · Share on FacebookShare on Twitter
  • whitedove
    whitedove Member Posts: 292
    edited October 2011

    Bump*

    St. Raphael's Hospital - New Haven, Connecticut

    Dr. Deborah Pan of ESANA Plastic Surgery (PS extraordinaire)

    Dr. Nina Horowitz (BS par excellence) 

    · Share on FacebookShare on Twitter
  • orangemat
    orangemat Member Posts: 645
    edited October 2011

    Valley Hospital, Ridgewood, NJ

    Dr. Laura Klein, BS

    Dr. Gary Breslow, PS

    · Share on FacebookShare on Twitter
  • orangemat
    orangemat Member Posts: 645
    edited October 2011
    olearca, I went for a second opinion with Dr Swistel. He recommended the same exact procedure as what I had with my local doctors in NJ (who I liked better, btw), so I stayed with Dr Klein. Glad to hear you were so satisfied with him.
    · Share on FacebookShare on Twitter
  • bellamax
    bellamax Member Posts: 25
    edited October 2011

    Dr. Michael Kinney of Advanced Breast Care at Northwest Community Hospital in Arlington Heights, Illinois (a northwest suburb of Chicago-close to Ohare Airport). He is brilliant, kind, and caring! He did skin sparing/nipple sparing surgery for me and works closely with an equally brilliant and caring Plastic Surgeon Dr. Stephen Madry.

    · Share on FacebookShare on Twitter
  • ElsaPorter
    ElsaPorter Member Posts: 18
    edited October 2011

    I'm new, toodling around, looking for "My Topic," and had to chime in on this one...hope I'm not repeating.

    BEAUMONT, TX

    Gotta give a holla out to my guy, Dr. Garrett Peel, my Lisa and the rest of the wonderful staff.  Our fairly modest town is VERY lucky to have him locally.  Google "Previty Clinic." 

    · Share on FacebookShare on Twitter
  • Crescent5
    Crescent5 Member Posts: 442
    edited November 2011

    I am back revisiting this thread as I'm meeting w/PS next week. I realized that I never said thank you for the information. So thank you!

    If anyone knows a great PS in Portland ME, please PM me. Thanks Smile

    · Share on FacebookShare on Twitter
  • besa
    besa Member Posts: 1,088
    edited November 2011

    New Orleans, Louisiana - Dr. Alan Stolier (breast surgeons),Dr. Dellacroce and Dr. Trehan (plastic surgeons)

    · Share on FacebookShare on Twitter
  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited November 2011

    For Kaiser patients in Northern CA at the Santa Clara campus, Dr. John Eggleston. Great work!

    Caryn

    · Share on FacebookShare on Twitter
  • odie16
    odie16 Member Posts: 1,882
    edited November 2011

    Northern Virginia - Dr. Cynthia Dougherty or John Williams...  Was told they only do the NSM/SSM procedures absent a medical reason not to!!!!!  Didn't realize this wasn't the common standard since it is theirs. Really think it makes a huge difference to still look like me. 

    · Share on FacebookShare on Twitter
  • spunkyboobster
    spunkyboobster Member Posts: 738
    edited November 2011

    Does anyone know of a Chicago-area PS who does NSM?  Thanks-

    · Share on FacebookShare on Twitter
  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011

    Bump for spunky.

    · Share on FacebookShare on Twitter
  • jwilco
    jwilco Member Posts: 486
    edited November 2011

    Just came across this and thought I would add Mills Peninsula in San Mateo, CA.  I was offered nipple sparring, but unfortunately due to prior breast aug/lift the PS said the nipple was getting it's blood supply from the actual breast tissue so I had skin sparring UMX with direct latissimus flap/implant reconstruction. 

    Anyway, it was offered without me asking, which is great since at the time I didn't even know such things were possible.

    · Share on FacebookShare on Twitter
  • TinaT
    TinaT Member Posts: 2,300
    edited December 2011
    exbrnxgrl - Hi, is this recent information?  When I saw my BS in San Francisco a few weeks ago (Sutter, not Kaiser) she sounded very frustrated that NSM is still considered "experimental" in so many parts of the country.  In fact, it is her understanding that Kaiser is currently NOT approving NSM.  Hopefully, that's a misunderstanding and not actually the case......
    · Share on FacebookShare on Twitter
  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited December 2011

    Yes, very recent! I had my NSM/SS bmx done at Kaiser Santa Clara on Sept. 7,2011. It was also a one step (straight to silicone implants) and I am pleased with the results. I did have one nipple removed several weeks later as path report showed DCIS too close to nipple, however my ps was able to maintain the implant and they look great. I do not think there is a system wide Kaiser policy regarding this. I think it just depends on the ps.

    Caryn

    · Share on FacebookShare on Twitter
  • TinaT
    TinaT Member Posts: 2,300
    edited December 2011

    exbrnxgrl - I'm sorry they had to go back and take one nipple Cry.  Sounds like everything else went well for you surgery-wise, that's great!  And.....great to hear that Kaiser doesn't have a blanket "No NSM" policy.  My BS apparently was mistaken about that.  She's a great proponent of NSM so I'll be sure to let her know that at least they're being done at Kaiser Santa Clara.

    Best wishes!

    · Share on FacebookShare on Twitter
  • sportschik
    sportschik Member Posts: 8
    edited December 2011

    I am having a NSM on Dec 14th at the University of Kentucky. My surgeon is from the Markey Cancer Center. 

    · Share on FacebookShare on Twitter
  • sportschik
    sportschik Member Posts: 8
    edited December 2011
    I am having a NSM on Dec 14th at the University of Kentucky. My surgeon is from the Markey Cancer Center
    · Share on FacebookShare on Twitter

Categories