Depression Over Good Prognosis?
Comments
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Hugs to all of you.
It has been almost 3 years for me since my radiation treatment ended.
I did better during treatment...the 3 years after have kinda been "h*ll."
I have to admit that I have to really work at being normal. I think about cancer in the morning..and before I go to bed at night..and it follows me during the day like a black cloud.
If I hear of anyone getting cancer, breast or not,,it just weighs sooo heavily on me.
Apparently my prognosis is good...however...just living through it once is bad enough.
I have been for counselling and he says this is all normal. Called Post Traumatic Stress!
So this week...by choice,,I book my annual breast mri (I am in Canada..and choose a breast mri as extra screening)...anyway...I haven't even booked the appointment yet...already i have pains in my stomache..and this morning I woke up in panic mode...the phone rang and I just about had a heart attack! I am like - what the heck are you doing...you haven't even had the breast mri...and not even booked it and already jumping at the phone!!
This is the kinda madness that a cancer diagnosis causes
I do have good days though...and think positive..and look on the bright side. I try to go out and have fun with my friends and have a normal life. I work, I exercise.
It is however,,,a constant battle. I wonder if it will get easier or even worse as time goes on.
I envy those women that can just move on from this.
Hugs to all!! Kosh
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@crazykittie...it IS crazy when it comes down to those close to us knowing prog is good that it is almost with time treated with as if we have the Flu.
I too have always been very positive but now that there was a complete screw up with my lumpectomy (took the wrong area of breast so cancer is still in there "somewhere") I am finding myself crying at the drop of the hat. It has been 2.5 months since diagnoses and 1.5 since op and i am still nowhere on this. I hate that I cry and I hate that with time my situation becomes *annoying* to my partner.
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I'm a little late to the party here but I am glad I found this thread! I couldn't agree more with what everyone is saying. The problem with getting seriously ill (and even though I don't "feel" seriously ill, how much more serious can it get than hearing a cancer diagnosis?) is that we want to maintain a semblance of normalcy for ourselves (so we don't go insane) and the people around us. And those people don't like change. As women, we are the glue that holds the family together. But then "The Big C" creeps in and dissolves our glue, leaving us unhinged and unable to fully care for those who depend on us.
I have found the process of having cancer is very similar to grief. When my father died, I was confounded by how little support I received from many of the people closest to me. Some people never even acknowledged my loss (including my stepchildren!). I tried not to judge; I know people don't know how to deal with death, they don't know what to say, and it's the same thing with cancer. It forces people to face not just your mortality but theirs as well.
The good news: Guilt is good. For me I feel guilty when I begin to mother myself instead of everyone else — I somehow feel I don't deserve it. But ladies, we DO. So the next time you feel a twinge of guilt about taking care of YOU, pat yourself on the back and congratulate yourself! We can't wait for someone else to do it.
I believe that is the lesson that cancer is here to teach me: To care for myself as much as I care for everyone else. (Gotta find some silver lining, right?) Happy weekend to all!
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Wow this thread is good.the last message has my name written all over it.I just learned a lesson today.TO TAKE CARE OF ME..sure I heard it before but I never really heard it because someone always needed me...and that someone was never me.It is now.I have been doing it without knowing it.Thanks for pointing that out.
I read on someones post..it goes something like this--early stage,grade cancer is like messing with the Italian Mafia and not getting caught.You are always looking behind you.Thats exactly how I feel.Just waiting for the other shoe to drop.
Will this feeling go away?????I sure hope so.Im prayin for it too.huggggggggggs K
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This is a great forum. I feel exactly like you guys do. I just had a lumpectomy last Monday and the Path report came back Thursday. My BS told me the cancer was smaller but a small deposit was in one of the nodes. I went from a Stage 1 to Stage 2. The node biopsy was really painful for me and the scarring is horrible. My BS told me the positive node would get me chemo. They did not think there was cancer in any of the other nodes. And they have to go back and take out more tissue as well. My initial reaction was anger. The doctor was so optimistic after the surgery and while I know I dont have the death sentence and he cant know for sure, he still was so matter of fact about it. You know kind of like a hit and run. I see him on Tuesday and hopefully get my appt scheduled for the oncologist next week. I will yield to her take on this whole thing but I am bummed out. I also get tired of putting on my game face for others. We all have the right to be mad about our medical situation and to not have to pretend we arent scared. It seems we are more about convincing our friends and family we are okay than ourselves. This is truly a disease you have to go through yourself to understand. So grateful for this forum. Praying for all of us.
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Edwards750, just checking in on you. What did the oncologist say? Have you had more surgery?
PS I totally agree with your statement "it seems we are more about convincing our friends and family we are OK than ourselves" !
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you are entitled to be sad and worried and depressed. I am 3.5 years out, and I still worry. My prognosis was good, no node involvement, low oncotype but we all know that cancer is a very unpredictable disease and sometimes will defy the statistics. that is always in the back of my mind. And i also feel that if my body produced cancer cells once, it can certainly do it again.
I try NOT to worry about every ache and pain - the Tamoxifen makes me very achy. I struggle with what I should worry about, when I should call the doctor, what are menopause symptoms, and what are side effects from the medication??? It is never ending in the minds of BC patients. I know! I try to keep my mind busy so that I don't spiral downward into the worry zone.
Good luck to you......I pray that you can deal with this diagnosis and move on with your life.
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This is such a timely topic for me. First it was "just" DCIS so that was a good thing and I should be happy. Then it was "just" 2 micro invasions and my BS said it was nothing to worry about. Now it's stage IIb and everyone keeps telling me how "stage II is not a death sentance" and I know all this and I'm not pouting, I'm laughing, joking, back to work one week after my bi-lat mx, but damn it, sometimes I feel like I should get to be sad over this "good" prognosis. It's still cancer, any way you dissect it and you get to feel however you want to feel and that is OKAY.
One of my friends bought me a shirt that says "remember kids, Cancer sucks" and somedays you just can't escape that feeling.
I've decided I'm just going to "be."
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I agree with everyone saying that even though the prognosis is good, it is still hard to go through! I know that not needing chemo or radiation makes this comparatively a cakewalk for me. My IDC looks so uninteresting to my surg onc that she says I don't need the oncotype test... BUT, since 12/13/10:
12/15/10 - met "my oncologist" - I NEVER WANTED TO HAVE AN ONCOLOGIST! Had to miss a work Christmas party for my appt, but didn't tell anyone why...
12/17/10 - should be at a holiday party or watching Christmas movies the the kids, but I'm driving downtown at 9pm for a breast MRI
Nevermind the distraction of trying to keep Christmas normal for my kids...not telling dd11 and dd16 that I got cancer for Christmas...
12/28/10 MRI guided biopsy when I would rather be playing with Christmas toys!
2/28/11 after 2 long months of waiting for my DIEP and uniMx it's time, but have to miss Lady Gaga with my 16 year old daughter, AND put everything important at work on hold for 6 weeks, have to ask everyone around me for help with kids, pets, meals, etc... not used to needing help OR asking for it!
April 2011 - wanted to go visit best friend in Germany with the family over Spring Break. The minute I got the dx in December, we knew not to bother booking tickets. So much for that idea.
I'm seriously not trying to whine or complain (yeah right??) BUT I know we all had similar lists of things we were doing before cancer knocked on our door. Hell, it didn't even bother to knock! It just sauntered on in, insisting that we now work our entire lives around it. Did I expect to spend 3 solid months with my head buried in cancer books and on this website? Ever? In my life?
Even the "mildest" cancer puts our lives on complete perma-hold until it is dealt with. And we're busy people leading busy lives. I remember saying "If they ever told me I had cancer, I would just look at the doctor and say 'I don't have time for THAT!'"
Now I know for real, she would just look back and say "Honey, you're gonna MAKE time!"
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XmasDx: I too got cancer for Christmas. DH and I spent all of December keeping the news to ourselves so we didn't ruin anyone's holiday (just our own).
I feel your pain and can relate entirely. Cancer is cancer in that the feelings related to it are the same. We all still need to grieve our former "carefree" life, grapple with medical terminology and research and doctors visits and surgeries and talking about nothing else but The Big C... and, oh yeah, facing our own death. None of it is easy. And yes, we DID get lucky that we found ours early! And I will never take that for granted. But it still sucks!!
Just yesterday I found out my oncotype score (16) and met with my oncologist for only the 2nd time. He gave me an Rx for Tamox and said "see me in 6 months." I should be jumping for joy! But I've repressed so many of my feelings just to get through this whole ordeal that even positive news is taking a loooong time to seep in.
Instead my focus now is on one of my incisions that keeps opening ... and I am heading back into surgery on Monday for a 2nd repair. Haven't had a fill yet because my incision refuses to heal. Perhaps it's my subconscious refusing to accept that I have cancer. Hmmm... I think I need to meditate on that one!
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Rennasus - Just now responding to your post...thank you for caring...fast forwarding to today...Saw the BS and he irritated me again...he is so clinical sometimes. Good grief he is a very well known and respected BS but he is severely lacking in the bedside manner dept. Anyway it turns out the oncologist recommended the oncotype test. She was undecided whether I should have chemo or rads because even though there was cancer in the SN it was a micromet. So, I had the test done and thankfully the score came back at 11. They also said the cancer was non-aggressive. I cried for the first time since I was dx. I told the BS office I thought my score was going to be 80...she said she had never seen an 80 but she has seen a 64 score. My BS was so confident I was going to have to have chemo because of the cancer in the SN but my oncologist told me it was no longer a slam dunk. She said doctors have discovered they have overtreated some women so the oncotype test is a barometer they use to help determine what treatment is best. So I will be having rads in a month and on Arimedex. Had the second surgery last Monday to even up the margins. Should get the Path report back tomorrow. Sore today but otherwise okay. Thanks again for asking. Hope things are going well for you. diane
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Edwards750... thanks for updating us! And FAB news on no chemo for you!! Your oncotype score is nice and low too. Congrats! And I'm glad you got a good cry in. My Onco also told me they had been over-treating with chemo so this new onco test really helps. BTW, the flip side to this no-chemo coin is that we *still* have chemo in our arsenal should we (hopefully never!) need it in the future. And that really is a good thing.
My oncotype score came back just last week...16. On the high end of the low-risk group but since I am Stage 1B, Grade 1, and I had a bilateral b/c of family history (and not wanting to worry in future and also wanting my reconstructed girls to match), my Onco said NO chemo, NO rads, JUST Tamoxifen for 2-5 years, then the Arimedex. yippee!
I really, really wanted a super-low oncotype score and I was actually disappointed when I heard the number 16 (my DH, however, was completely relieved!!). In my heart I knew my score would not be low-low, but my head really, really wanted it to be, to remove more of my worry. Oh well, I should not complain. So many ladies on these boards would love to have such a low onco score, I should just be thankful! And I am.
I had incision revision surgery on Monday, a hole opened up in my incision and would not heal. Set me back quite a bit as far as fills (so far I have had NONE and my BMX was on Feb 3! And now my right TE is half the size of the left since he had to remove more skin to re-close the incision). So I won't be looking at an exchange surgery until after the summer. ;-(
Diane, let us know how your path report comes out, and continued good healing to ya!!
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Hi Ladies............was just browsing and found this thread............I agree completely with all of you..........I said on other threads I had some of the dumbest things said to me when I got my diagnosis and tried very hard not to rip the lips off the people who were saying them like for instance "oh you got the good cancer"........."well if you had to get cancer BC is the one to get".............."you should be glad it wasn't one of the "bad" cancers..................I thought, ok you idiot........is there a good cancer................Then once I had my surgery, and all the pathology was back in I heard.........."Wow, you really are lucky"................."aren't you glad its just a small tumor"................."Hey, a little bit of radiation, and you will be fine".............So the crap never stops and neither do the assinine comments............Like I told my children "I will be looking over my shoulder, waiting for the other shoe to drop, until that final day when they close the lid".......
Am I happy my tumor is 1.1 cm, of course I am..............happy that I had no node involvement, absolutely....................thrilled I don't have to take Chemo, I prayed for that, but do I feel lucky that I got the good cancer......................Hell no, I don't want any type of cancer...............When I had my (mild) heart attack back in 2007 I thought I grabbed the brass ring...........I said to my destraught children.............Hey guys, cheer up, at least its not cancer..............Well I guess it never pays to brag...............I will deal with this disease, and I will also deal with the "idiots", and their stupid comments, and I will also have my days when I won't want to get out of bed in the morning...........................but I will survive, cause I had cancer, it did not have me............hugs ladies, your the best.
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Rennasus - My Path report came back today. Margins are even now and no surprises...Thank God. Okay cried again. I have had my emotions so bottled up I may cry if the mail is late...no wait I wont because I am sure there will be yet another astronomical medical bill! Thank goodness for insurance and a flex plan. I was really worried about the Path report because I have had a lot of pain and discomfort from the recent surgery. Not nearly as much with the lumpectomy but BS says it is because the breast area is so tender and the lumpectomy was not that long ago so the breast needs more healing time. She said not to panic but if I have fever, severe redness, bleeding, etc., to call her. Fortunately, none of that is going on. I took one pain pill the first go around but this time I have had several a day. Really works too thank goodness. Now I wait for a month or so and get ready for Round 2 of the torture process with the rads. By the way I too was happy with the low oncotype score; I actually read, I think on this forum, that a lady had a 1 score. Thanks again for asking and keep me posted how you are doing. Diane
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Edwards750, glad you are doing well and your path report contained no surprises! Can't ask for more than that! Crying is good. Sometimes it's hard to cry. We stay strong for so long that tears don't always flow. So congrats for letting the river run through you. Also, staying ahead of your pain keeps you out of the cranky club and helps you heal so have at it!
Yes I too read on here somewhere that one woman's oncotype score was a 1. And you bet I was jealous!! ;-) Take care.
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Glad to have found these posts. I'm in the same group as all of you. I am stage 1, no lymph node involvement, no chemo, just rads. But so many people have made so many comments about "you should feel lucky" (including my doctors) that I feel guilty to be having any negative thoughts about being diagnosed with cancer. It feels like people think I'm dealing with a mild case of the flu.
Maybe it's my fault for downplaying it to everyone I talk to at first. It was ME that kept trying to reassure people that everything was going to be okay and that I caught it early.
Ho Hum.....
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He Eliz............I am the same diagnosis as you..........only difference I am going on a hormone of some torture..................yes your right..........in the beginning everyone was devastated that I was diagnosed with BC............once the pathology came back I got all the "happy thoughts" from the idiots who don't think before the talk.............telling me how lucky I was.........thank God my Dr. didn't make that comment..............all he said to me was "yes you do have a malignant tumor, but you are going to die of old age, not cancer"......................at least that was a nicer way of saying "your lucky"..................I told one woman, after hearing it for more times then I wanted to about "how lucky I was".................How would you like to change places with me".......She isn't talking to me anymore......................I know my news was good news, but don't dare tell me I'm lucky to have cancer.....................I don't care if its basal cell carcinoma on my friggin nose........................Its cancer you ASS................Well glad I got that off my chest Eliz, so don't feel guilty................there are idiots born everyday..............just a shame that we have to run into them............good luck with your Rads...........I will be starting that soon too. Hugs
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duckyb1 -- you have very aptly verbalized my thoughts these days. Thank you thank you
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I am happy to see this thread active again - thanks, auntienance.
I had what I knew was a false sense of euphoria when I heard I was Stage 1 with clear margins last week. I only missed 4 days of work so when I went back people asked me how I am and I was smiling and telling them I had good news.
Then I went home and felt sooooooooooooo depressed and I kept searching my soul for the trigger.
Three things came to me:
1 - I have shared something very personal in my life with colleagues (3/4 are males). I think I felt that they are not intimately connected to me and that I shouldn't be sharing with those who are unaffected by my journey.
2 - I gave up my overtime for the fall and someone has to cover classes for me. Trouble is, I am at work, looking fine, feeling great, clothes fit, energy's up...only 2.5 weeks after surgery. So it looks like I am a slacker, I suppose. But when I gave up my night classes, it was because I didn't know what may lie ahead - whether I could do 14 hour days and rads; or if I could be very public if I shed hair. So, I have this ominous feeling about the coming months but am "fine" right now. My emotions are in conflict.
3 - Probably the biggest cause of depression at this time is the most superficial. I do not want my identity to be a sick person or a cancer victim in others' eyes. I cannot control that; but some days I want my boring normal identity back.
Thanks, ladies, for being so honest and helping me so much.
Joan811 -
I am glad to have found this thread!!! I suppose it is true that people just don't know how to react or what to say to someone when they hear their cancer news. I have been so disappointed by people that I have been "friends" with for years and have comforted in their time of need. I have learned to ask for support when I need it.
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Speaking of asanine comments to cancer patient:
Did anyone ever watch "Rescue Me" on FX? It was about NYC firefighters. Maura Tierney was on the show and she really was treated for BC a few years ago.
She was telling Tommy (firefighter on the show) about stupid remarks made to cancer patients, because, on the show, she was playing a character who was being treated for BC. Something like this - you tell a friend ....
"I have cancer."
Friend says..."is it serious?"
You say - IT'S CANCER!
This did happen to me more than once! Amazing!
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I'm really glad to see this. I have not been positive and all of the positivity of the drs around me is irritating because I just can't believe it. I have a very doom and gloom attitude and I feel as though I'm being asked to believe in something I just can't believe in. When they happily and triumphantly tell me that I "only" have 9% chance of recurrence in 10 years i don't feel thrilled. It sounds like a lo to me. And I don't have terrific confidence in their predictions. I thought I was the only one, that's how they make me feel. As though I just don't understand that I'm in this terrific and lucky position.
Cancer is a hard thing to handle, physically as well as emotionally.
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This sounds very familiar. I was told my nodes were clean, no lymph invasion, etc.
I went for a second opinion at Memorial Sloan Kettering and they found both!
How did your diagnosis keep changing?
Sloan suggested chemo for me. My local dr does not think it will help.
what does that mean? I have to decide soon or i'll lose my mind.
I've read reports on line that it is good to treat micromatasteses.
If the cancer doesn't get me the blood pressure will!
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Timbuktu- I have no answers for you but sorry for your differing opinions. Hope you have figured it out now.
I am glad to have found this thread. I had a lumpectomy in April 2011. Stage 1, clear nodes. Then got results that I am BRCA2+, had a BMX in June and have been dealing with expanders ever since. Had lots of problems following final fill at end of August causing muscle spasms and very little sleep.
I am starting to feel like a very old woman (I am only 48) with all these aches and pains and muscles that freeze up regularly. Through it all I have had a positive attitude and reassured everyone else that I am doing great. I look like I am healthy at this point unless you look closely at my eyes and see the pain and fatigue.I finally decided to listen to my body instead of my mind and cut my teaching schedule back to 3 days a week.
I am scheduled for exchange surgery in 2 weeks.After that I am having oopharectomy. I think I am just starting to feel the mental part of the dx and am slipping into exhaustion and depression.
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Wow so happy to find this post - even though it's old. I've been struggling with these feelings since right after diagnosis. I was made to feel it was "nothing" by a family member and it's still been eating away at me. So much that the amazing news I got today - my margins are clear, no node involvement - was so difficult to process. I had such a sense of relief and joy but at the same time I felt like I was going to hear I told you so from this family member - see your cancer was nothing compared to others. I know it could be worse, but it's been pretty bad for me - had surgery will have to have radiation for 6 1/2wks not sure on chemo yet. I let everyone around me think I'm good and I stay positive but the thoughts of guilt of having caught this in time eat me up. I know sounds crazy to have Guilt over a good prognosis - and I think thats more how I feel than depressed - I'm not depressed, I'm beyond thrilled but I have this pang of guilt that just won't go away.
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Kayce,
I urge you to be kind to yourself, and forgiving while patient.
1. It takes a while for your brain to adapt to new information, you're right on track.
2. Comparison can be dangerous. The tendency for people to play one-ups-manship of our culture is ridiculous! Everything is relative to your body and your life.
3. Give yourself time and watch the "guilt train" wander around the bend so far into the distance even the sound of the whistle will fade ~ as you & your brain/body welcome joy with new enthusiasm. My experience is those who have known great pain experience even greater joy.
Namaste! CMG
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Grannydukes, one of the nice things my surgeon did for me was to tell me, early on in this whole ordeal, that the time of treatment and surgery should be MY time, that I should do what I want and enjoy, put myself first and leave others to fend for themselves. I have tried to take his advice, and it does help, in my opinion.
When others, like my mother, try to load their grief on me, I simply tell them that I do not have room and they will have to process their grief on their own. Sorry!
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