NEED ADVICE

many
many Member Posts: 254

PLZ SEE THE SEIRES OF EVENTS

1] 24 TH JUNE 2011 --MY WIFE DID SONO /MAMOGRAPHY

MALIGNANCY DOUBTED

2]25TH JUNE 2011 -- FNAC DONE ----REPORT POSITIVE

3]26TH JUNE 2011---PET SCAN DONE--SHOWS A MASS OF 6 CM IN RIGHT BREAST WITH LYMPH NODES INVOLVED--ALL OTHER AREAS NEGATIVE( NO SPREAD SEEN)

4]29TH JUNE MRM DONE WITH ALND

5]3RD JULY--PATHOLOGIC REPORT COMES

IDC WITH 39/40 NODES POSITIVE AND EXTRANODAL SPREAD SEEN , WITH LYPHOVASUCALAR INVASION

6]CHEMO STRTED ON 24TH JULY ---FEC*4 +TAXOTERE*4

7]FEC#4 FINISHED YESTERDAY

MY WIFE HAS NO COMPLAINTS EXCEPT NAUSEA AND YESTERDAY MY ONCOLOGIST  ORDERED A SONOGRAPHY OF ABDOMEN AND PELVIS BEFORE STARTING TAXOTERE

I AM WORRIED AS TO WHY DID HE ORDER A SONOGRAHY SCAN  NOW

AS SHE HAS UNDERGONE PET WHICH DID NOT SHOW ANYTHING EXCEPTBREAST AND AUXILLA, ARE THER ANY CHANCES OF SPREAD??????????

OR IS IT NORMAL TO TO DO MIDTERM(CHEMO) ANALYSIS

Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2011

    HI many,  Your onc is just being pro -acitve.  Anytime I complain of ANYTHING, he orders a scan.  I even mentioned it once on this board about my Onc being to aggressive. I think your wife is just having anything else ruled out.  The chemo is brutal and often there is breakthru nausea even when they give anti nausea meds.  You and your wife are still raw from all you've been thru, and like all of us you are waiting for another shoe to drop.  Let your onc do what he does to keep those cancer cells at bay and try to trust that the treatment will bring good results for her.

    image

    Barb

  • kathleen1966
    kathleen1966 Member Posts: 793
    edited September 2011

    Oh Many, I can see this is soo very hard for you.  I hope that you are getting some support from these boards. You should ask your oncologist why they are doing a sonagram of your wives pelvis and abdomen.  You should ask if recent blood results indicate a need for this test. I had an internal sonagram during my treatment because I was having bleeding issues related to menstruation and also because my uterus lit up on my PET scan.  It turned out to be nothing.  But I WOULD want to know WHY they are doing this test. It seems that you want to be more informed with what is going on with your wife and her treatment and not in the dark...tell your wifes doctors that you would like to be more involved in the treatment process. There is always a chance of spread but just because your wife had a lot of positive nodes doesn't mean she won't beat this and live to be an old lady..with you by her side. At the moment, the cancer is treatable.  Try to live in each moment as best you can and think about today only. I know this is hard, but it is a good mental trick to help us cope.

  • AnacortesGirl
    AnacortesGirl Member Posts: 1,758
    edited September 2011

    many -

    Kathleen has a very good point.  Ask the onc.  So many of us get caught up in the moment when we're in the exam room we forget that basic notion.  But I will say that I had multiple scans during my active treatment - before chemo, after chemo which was before surgery, after surgery and even after rads. All those scans were just tracking how the treatment was going and making sure that nothing was being missed.  So my inclination is to say that this is jus a scan to verify that nothing new has happened since your wife is asymptomatic (nausea doesn't count since that goes hand-in-hand with chemo).

    Was she tested for a BRCA gene mutation?

  • many
    many Member Posts: 254
    edited September 2011

    No , she was not tested for BRCA as no one like her mother or sister had a breast cancer though her sister died of hodgkins lymphoma

  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited September 2011

    I agree with the girls above.  Call the onc today with a list of questions in hand.  That way you won't forget any (I HATE it when I leave the office and forgot to ask something important :)).  Each doc approaches each patient in a different manner, and there are SO many variations of this crappy disease that he/she is probably just being proactive.  Did they say anything other than they wanted to do the scan that alarmed you?

    Take care,

    Sharon

  • many
    many Member Posts: 254
    edited September 2011

    No ,nothing said but his nurse told that the oncologist normally does a mid-chemo analysis with every patient ,some with sonography ,some with CT scan and so on

  • jennyboog
    jennyboog Member Posts: 1,322
    edited September 2011

    As for the BRCA thing, I am BRCA+ and have had no family hx of BC...none, I am the first.  So, you don't have to have a family hx to be positive but it does happen that way usually.  I think dr is being proactive also.

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited September 2011

    I really think the onc is looking to see if the chemo has done its job of reducing or eliminating the cancer.  This is very normal and if the results show that the chemo is working, then you and your wife will be very encouraged and it will make the rest of the treatments more tolerable.  If, by some chance, the onc doesn't see the results he is expecting, then a mid-course correction can be made.  You really don't want to assume anything, and your onc is doing exactly the right thing!

    Wishing your wife the best possible results!

    Michelle

  • bak94
    bak94 Member Posts: 1,846
    edited September 2011

    I think it is great your onc is being pro active. It could be he always does this and your comment about him always doing a mid chemo analysis seems to fit this. My onc is the same way. It probably is just to make sure all is good. It is nerve wracking waiting for the results, but when the results are good it is such a relief, and if not so good, so much better to know now. I am hoping for a clear scan for your wife, and it does seem likely that it would be. You are a great husband, you hang in there and do something nice for yourself. It is very difficult to be a caregiver. Do the two of you ever have a "cancer" free date or day? Pick out a time and focus on what the 2 of you enjoy doing, and then have cancer talk off limits.. I know it is hard to do, but a counselor recommended this to my husband and I and we have actually now have had a few cancer free dates and it is so nice!  Also, it was mentioned that he needed to take his time away, for my husband that is going fishing for a couple of hours. I can manage without him for a bit and he comes back in a much more relaxed mind set, better for both of us!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2011

    Hi many,  you are really amazing.  The care and concern that you have for what your wife is going thru is helping me to really understand how this whole cancer thing must have deeply affected my husband in so many ways that he never once let on to me.  He was always there for each and every step of this road, and I never once felt that he didn't want to.  Just little things like bringing the note pad with questions to ask my onc.  Always, being the one to handle any insurance issues or doctor appointments, always right next to me when going thru chemo, but never once showing me that he was scared too.  Just the opposite, the steady reassuring one, but now I see he must have been going thru major fear over my health, which is why he took control and was so protective.  I also remember he was the same protective one when I had gone thru a major cerebral brain hemmhorage 10 years ago. 

    Please let your wife know that she and you will begin to feel a little more confident as you get to trust your onc and the treatment plan he has in mind.  His treatment plan will be taylored to all the scans and blood tests results that he will interpret regarding your wife.

    Have a peaceful evening.

    image

    Barb

  • many
    many Member Posts: 254
    edited October 2011

    The junoir doctor as oclogist office said that this sono is done to to rule out any spread to liver / lungs/pelvis

    well when pet was done 3 months back nothing revealed in liver / lungs/pelvis

    is it possible for  something to show now after 4 sessions of chemo to showup in liver / lungs/pelvis

  • apple
    apple Member Posts: 7,799
    edited October 2011

    this is nice.  so many supportive husbands.  you've given me pause to think.  I will stop being mad at my husband for unplugging the stove because he doesn't know how to turn off the clicking (simply push the knob).  He has been an absolute rock.

    best of luck many.   as to your last question.. yes it is possible but i think unlikely.

  • Outfield
    Outfield Member Posts: 1,109
    edited October 2011

    Many,

    I'm really glad your wife is tolerating chemo well.  

    Especially for those of us diagnosed at Stage III, there are a lot of scans down the road.  Some doctors will scan periodically regardless of what's going on, some will just scan if there are symptoms.  But even if you have a doctor who just scans for symptoms, the threshold of what symptoms need to be there before a scan is ordered is really, reallly different than for a person without the cancer.  

    For example, I had some pain along the side of my sacrum during chemo.  I know if I were anybody else, and my doctor weren't an oncologist treating a cancer patient, I wouldn't have gotten a scan.  But I am a cancer patient so I got a scan.  It wasn't likely my pain would have been from a metastasis during chemo, but like Apple said, not impossible.

    Ultrasounds, MRI's, PET's, CT's, bone scans - we get all of them way more often, and the choice of which one is specific to the body part in question and what your particuar doctor and insurance favor.

    My experience is that I am always scared when I get any test now.  I think the fear is kind of normal, if that makes sense.  It makes it a little (only a little) easier for me knowing that.   

    My best wishes are with you and your wife.   

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2011

    many,

    What Outfield anad apple are saying is absolutely true.  When I was having a lot of lower back and hip pain early in the year, my onc sent me right in for scans even though he had scanned the previous year.  As an onc, they have to assume any bone pain in spine or back is bone mets.  He told me that if the scans come out free of any progression, then I can follow up with orthopedics, or physical therapy, or chiropractic or what ever pain management I may need.  I did that and the hip pain got better following a few visits to the chiropracter.  But they have to rule out any progression with scans.

    image

    Barb

  • kathleen1966
    kathleen1966 Member Posts: 793
    edited October 2011

    Yes, it is possible but not likely.  If this is standard procedure in his practice than I don't think there is any real need to worry at this time.  I like this idea very much, because an ultrasound is not really an invasive procedure that has a radiation component.  I kind of wish my oncologist did this sort of thing.

  • many
    many Member Posts: 254
    edited October 2011

    Thanks all

    sonography done today, nothing shows up on sonography of abdomen and pelvis

    off to taxotere#1 / 4 after 4 fec done

    will removal of ovaires help her ? (er 90%/ pr5% positive)

  • jennyboog
    jennyboog Member Posts: 1,322
    edited October 2011

    I'm glad to hear everything looked good, sounds like your dr was just being cautious.  I hope she can tolerate taxotere and continue tx, it was a rough one for me.  Yes, the ovary removal will help...I had mine removed in June & it was an easy surgery.  If you don't then she will most likely be on Lupron once a month, it's an injection to stop your ovaries from working.  Most of the ER is produced in the ovaries and an AI will take care of the traces of ER produced in other areas.  Good luck with the rest of tx.

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