At the Beginning
So I am just at the beginning of having breast cancer, and my Doctor referred me to this site for guidance and support.
I am 28 years old and it has been one week since I found out I have cancer. Of some sort. I had a lingering chest cold and was having pain in the right side of my chest with difficulty breathing, so my Doctor referred me for a CT scan, as she thought I might have a blood clot in my lung. I went and had the CT scan done, and the radiologist comes in and says "Good news is you don't have a blood clot; Bad news is I found a lump about the size of a half dollar in your right breast, and you need to go in for follow up". I regret having gone alone to the CT scan, because I was absolutely stunned and dazed when he said that. Of course after the fact driving home I had a thousand questions I wanted to ask, but at the time when he told me I was at a loss for words. So the next day after the CT scan I was at my general practitioner for follow up and then over to the lab for a fine needle aspiration of the lump. Apparently the lump is pretty deep inside the breast and under the breast tissue which is why I could not feel it during self exams, nor could my Doctor feel in when she did an exam. My Doctor said the fine needle aspiration came back positive for cancer markers, but I don't understand exactly what that means.
I am scheduled Monday morning for a biopsy and for exploratory surgery. They are going to be doing a lumpectomy and checking the lymph nodes while they are in there. My Doctor said they will send a portion of the tumor out for biopsy which will be able to verify what type of cancer it is and what stage it is at, and they will also know if it has spread to the lymph nodes as well. Once the results come back is when we can start planning my treatment options such as more surgery if necessary on the breast and radiation vs. chemotherapy.
I am a little concerned, as my mother had breast cancer when she was 22 and had a full masectomy and lymphectomy at that time. I can say that my mother is a great resource right now and is the only person I believe when she tells me "I know how you are feeling". She has been through this, and I'm sure she felt a lot of the same exact things I am. In talking with my mother I have found that her grandmother passed away from breast cancer, although they didn't know what it was back then, as her death certificate stated "tumors of the breast". My mother's aunt also died at age 40 from breast cancer, and I found out tonight that my father's paternal grandmother had breast cancer, was treated and in remission from it and then died four years later from cancer of the throat. That is just the family history that we are positive on, there are some unknown causes of death for females on both maternal and paternal sides of the family.
I'm not sure what I am supposed to do or where I am supposed to start. I apologize if I don't know some of the correct terms or spell them wrong, I'm just learning all this stuff, and right now I don't have a lot of information. The last four days have been absolutely agonizing for me, waiting for my sugery. I have never been a patient person and I am definitely not being patient now. I am a do-er, not a waiter. I want to know exacty what the answer is and formulate a plan to start beating this, not sit around and wait. The pre-op instructions I got said the biopsy will take two to three days to come back, so I should know for sure by Wednesday or Thursday. The report I got between the CT Scan, the mammogram, and the ultrasound is that I have a 13mm X 13mm X 6mm asymmetrical nodule with hypoechoic shadowing. I've tried looking it up online but I'm not sure I really understand what it all means. I have to wait for the results of the biopsy to come back for my referral to oncology. If anyone knows what that all means or has had something similar I would love to hear your thoughts.
I know I am scared more than I have ever been, but I also know I'm pretty strong willed and a fighter. I feel bad because while I know people mean well I am getting a litte irritated with others telling me to be positive and keep my head up. I know that is cliche and is meant to be supportive, but I have to find a healthy mix of positive vs. reality. I do want to be positive but I also don't want to stick my head in the sand either. My partner and I have had a very rough week, and to be honest I'm not sure him and I are going to make it through this. We have had a couple heated arguments because he doesn't understand the abrupt change in my personality and what I am focused on. I am the type of person who when I get focused on something it is 100%. There have been times this last week that I can't seem to go more than 30 minutes without crying, and sometimes I don't even know what I am crying for. My partner tells me that I need to calm down and not be so stressed out, and I can't get him to understand that I can't make this stress disappear and act like nothing is going on. I can't get him to understand that there are going to be times that I am calm and focused while other times I am an absolute basket case, and it has driven a wedge between us. I have tried to limit the amount of research I do online, because we all know that some of the stuff is unreliable and some of it is worst case scenario, and I don't want to make my anxiety level any higher than it already is. My partner told me that other night when I was in the middle of a breakdown that I was being too sad and it seemed like I was just rolling over and not fighting. I told him that I would fight this with everything I had but I couldn't NOT be sad when it felt like my whole life has been completely turned upside down in the blink of an eye, and that everything in my life changed with one sentence. It's just like he doesn't get it, and now I am resentful and upset with him because I don't feel as if he is being supportive at all. I feel like he wants me to only think positive and talk about how this is all going to work out, and that I'm going to be like some warrior going to battle. At this point I feel like talking to him is like banging my head against the wall, and I don't know how to get him to understand how I am feeling and what I need from him. I've tried to tell him but that just doesn't seem to be working. So that has added an entire new level of stress on top of this. As I tried to tell him the other day I need him now more than I have ever needed him and I feel further away from him than I ever have. I don't expect him to be a mind reader or now exactly how I am feeling or what to do, but I have tried to tell him what I am thinking, what I am feeling, and what I need (which sometimes changes from day to day), and his response is that I am dwelling too much on this and need to stay positive that the biopsy results will be something good. I'm so frustrated with him that I could cry.
I apologize if I seem a little long winded, I guess you could count this as my introduction. If I have posted this in the wrong forum than I apologize, and if so if someone could move it to the correct forum I would appreciate it. I would love to hear some feedback on others who have already moved past this stage. Like I stated in my subject line, I'm just at the beginning, and I'm only a week in. I know I have a lot of steps ahead of me, but right now I'm just focused on making it to Monday and then to the results of the biopsy. Thanks for taking the time to read what I've written, and I hope to be spending a lot of time here.
Comments
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You are at the most difficult stage of this whole ordeal. Not knowing what the next move is going to be SUCKS. While I was reading your post, I was thinking, wow, I can certainly relate. My husband of almost 25 yrs, has been my backbone. He loves me, more than life itself, and it is very obvious. When I was first diagnosed, he pulled away. He kept telling me I was going to be fine. I felt as if he were sweeping my anxiety right under the rug. To sum it up, he was not very supportive, at all. I was furious. I told him, I really needed him at that time, he just wasn't getting it. If you click on my post, you will see, I posted a very similar thread. I really believe they are just as scared as we are. Men just have a different way of handling their fears. My son called me 2 weeks after my diagnoses and asked me "are you dying or was Dad drinking last night" lol, he has such a way with words. Apparently, my husband called him and was crying, uncontrollably on the phone. He was scared too, he just didn't want me to know that. Try to be patient with your partner, my husband eventually came around and was back to his loving supportive self. Use us here for the support you need. This is the best place you can be right now, with a group of woman who understand your every thought and fears. Best of luck to you.
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Hi there - boy your words were my exact thoughts in August. I had a double mastectomy on 8/19. For three weeks prior to that I thought I was going to go crazy with all of the waiting. Like you, I am someone who just wants to get started on whatever needs to be done to get this "stuff" behind me. I learned real quick that I was not going to be able to control this cancer thing like I do other areas of my life. If nothing else, I've learned to have a lot more patience!
I'm divorced so I can't add much about your boyfriend's reaction except that maybe he's just scared and this is the only way he knows to react. I can't even imagine how my ex would have reacted. He couldn't handle it if I ended up in bed with a stomach virus! He would almost get mad because I wasn't up and running around. He really couldn't have dealt with cancer.
Your family history sounds a lot like mine too. My mother had a double mastectomy at my age - 47 - and her mother died from it years ago. My onc had me do the genetic testing and sure enough it came back positive for BRCA 1. My sisters and daughter are going to be tested. There's a 50/50 chance that they will test negative. I sure hope that they all do.
I know you're scared and overwhelmed right now but I can honestly say that it gets easier. It's only been a month since I felt just like you and now I'm in fighting mode and just am determined I'm going to beat this crap. I'm getting ready to start chemo this week and just can't wait to get it behind me.
Hang in there sister. I hope all goes well for you this week.
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You are in the tough period.
With your family history, you should be tested for BRCA and BART. If you test positive, a mastectomy should be considered.
A great reference for women with is facingourrisk.org -
I agree with ratbait - you are in the worst part. Once you get an actual diagnosis and plan, you will feel much better. It is weird, but totally true.
Hope surger goes well.
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Thank you all for your kind words, it is comforting to know that I'm not alone going through this. I went in for the lumpectomy today, and once I got there they decided they were just going to do a Core Needle Biopsy. They took 4 samples and told me it would be 3-5 days for the results to come back, so now I'm just doing the waiting thing again. I asked why they changed it from a lumpectomy to the CNB, and they said they didn't want to do the surgery until they had a definitive answer on the pathology report. I guess it makes sense, but I had myself all geared up for one thing and was switched at the last minute. I'm not sure what the next step will be once the pathology report comes back.
I haven't talked to my boyfriend for four days, and at this point I can't fight what's going on with me and fight for him too. I love him, I do, but my focus and energy is on this and not him. Maybe that is the problem, I don't know. He text me late last night and said "I love you baby" and I haven't heard from him at all today. He hasn't even checked on me after my procedure. I figure he knows my number and knows how to get ahold of me. I'm hoping it's like you all said that he is just scared and needs to come to terms with it. Hopefully that is soon, because I really need him right now.
I know my oldest sister had the BRCA and BART test done last year, and the test came back that she was not at risk. My doctor has referred me to the University of Colorado hospital for Genetic Counseling, so I am just waiting for them to call and schedule the appointment. I had never heard of Genetic Counseling before this.
I am not a patient person by nature, and this is very hard to just sit and wait. I know I can't do anything to speed up the process or figure it out on my own. I'm wondering if this is someone's way of teaching me patience
I do feel out of control, and it's not a good feeling. I'm going to try and keep myself occupied and busy this week to try and keep my mind off of things until the biopsy report comes in. Of course this time of year, I swear every where I look I see something about breast cancer lol
Thank you all for responding and the welcome to this forum. I hope to be spending a lot of time here and learning as I go!
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Hey Spunky
Sorry your having to be here but, it is the best place to be when you are scared and full of the unknowns. There is always someone who can help you through your fears and questions so please dont feel like a whiner because we have all been at that starting point at one time. It is a very emtionally trying time for us and is also bound to rub off somewhat on those closest to us as well. Deap breaths girl.........try to only take a little at a time and not get to ahead of yourself. Cancer is a big scarey word but, until you have your results try not to think the worst. Lots of women are here to support you, men on the other hand are very diffrent emotional creatures, maybe he just needs time to digest this too and has not figured out how to best support you until he puts his own emotions in check. I hope he comes around for you. I think we all wish we could speed up the waiting line eh??? That would help eliminate a lot of anxiety. You can always ask your doc for help with that if it becomes too much. Your world as you know it is as you say out of control right now but, once you have your answers and know if and where your headed you will gain some of that control back, it's just hard right now. So, in the meantime hang out here and talk all you want if that helps. ((HUG)))
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Hi Spunky Cow Girl - I sure hope the test results come back with good results for you. Just try to keep super busy during this "waiting" period to keep your keep your mind off of it. I worked while I was waiting between tests, biopsy, mastectomy and it really helped. Work was pretty much the only "normal" thing in my life in August and this past month.
You might just have to smack your boyfriend and tell him to get it together. Right now you are the only one allowed to fall apart (and that's just a temporary thing - we've got to be strong - right?). I wish he was there for you right now because you just don't need the additional stress. I'm just glad that you have your mom who has gone through exactly what you have gone through. My situation is the same - my mom had breast cancer at the same age as me and she has been such a source of strength for me.
Hang in there and let us know how your results turn out.
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The RN from radiology called yesterday to do a post-op check on me yesterday, and said that the results should be back this afternoon or tomorrow morning. I really hope it is this afternoon. I feel like my stomach is in knots and I'm very restless; I just want to KNOW. I'm trying to be patient but it's not going well for me
I'm not sure what's worse - knowing that the call is supposed to come in a certain time period and waiting for it or not knowing when the call is supposed to come. I am trying to keep busy today and find things to occupy my mind (it's my day off) but I keep checking my phone every five minutes.
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Hang in there Spunky, we're thinking of you!
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Hey Spunkycowgirl, I've been thinking about you. I hope you get a phone call with good news soon.
Your boyfriend should definitely man-up about this but I would bet he doesn't know how, or what to do. I know you feel anxious and helpless, but when you get the information about what your next steps are, at least you'll know what to do. Your boyfriend can't do anything, really. All he can do is watch you as you go through this process. So he must feel pretty helpless, and that's a bad thing with men. Well, it's a bad thing with anyone, but men seem to have a particularly hard time with it. I'm not defending his actions, because I'm on team-chick. But I do have a little bit of sympathy for him because I'm sure he feels pretty useless right now. Personally, when I was in treatment, I was very resentful toward my husband because he got to go on living his normal life while I was in hell. I felt he should be in hell with me. Looking back, I can see that he was in hell, too, but it was a different hell.
Still, he needs to apologize and get his shit together so that he can be supportive for you. Maybe it would help if you could tell him some very specific things you need from him. Like, "I need you to understand that I can't control my feelings every minute and sometimes I need to fall apart. I need you to remember that this is terrifying for me and I need a partner. Not a critic or a cheerleader. A partner.
I hope you check in today and let us know what the report says, and I hope it's the best possible news.
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I would recommend talking with a medical oncologist before having the lump removed. It might be recommended that you take chemo to shrink the tumor BEFORE the surgery.
Wishing you all the best, and especially I hope the lump is benign.
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