Why didn't I do this sooner?

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More than a year after my BMX I finally went to get fitted for prostheses. Earlier I just couldn't face it. I think I was mad that nothing would be like my real breasts, so whatever was simplest was O.K. by me. I was happy enough with microbead forms in inexpensive regular sports bras. But my job requires some physical work, and I always felt like they needed regular adjustment...what a pain. So yesterday I went to a prostheses shop to check it out. Within 20 minutes I had a pair of Amoena forms and 3 bras. I told the woman who helped me I just wanted some shape in clothes, and I chose a B cup, although I had been a C. I said no underwires, and she found me bra styles that are soft and comfortable. What a difference a mastectomy bra makes!! The woman helped me find three by Amoena that fit my body. I look like I have real breasts. They are also more comfortable than the microbead forms. They even feel like real breasts.

I should have done this months ago.I guess I am just stubborn!!! But I am happy to have found these and I think I will feel much more comfortable.

Comments

  • Denise2730
    Denise2730 Member Posts: 648
    edited September 2011
  • TAPPY
    TAPPY Member Posts: 283
    edited September 2011

    Thank you for posting this !  I need to hear positive.

    What are they made of ?  Silicone ?

  • Carla9112
    Carla9112 Member Posts: 162
    edited September 2011

    Hi there - I had my DMX on 8/24 and my mom came to stay with me.  She had a DMX 29 years ago and currently has about 4 sets of the same type breast forms with bras.  Bless her heart - she knew that I had to go back to work so she left me the set of boobs she wore when she came to visit.  She said honey I have 3 more sets at home - you keep these.  Smile  Even though I'm still too sore to wear them - they do look and feel real.

     I think they are made of silicone.

  • sespebadger
    sespebadger Member Posts: 249
    edited September 2011

    Hi Carla......I love the story about your Mom. What a sweetheart she is!!

    And Tappy...I'm glad my post was helpful. I know I was on these boards A LOT a year ago. Now that time has gone by I visit much less often. Life goes on...hurray! Yes, these prostheses are made of silicon. I've had them on all day....first on a long walk, then through all other activities. 

    Good luck to both of you!!

  • TAPPY
    TAPPY Member Posts: 283
    edited September 2011

    Do you just rinse/wash the off at the end of the day ? and they stick to your skin naturally ?

  • Erica3681
    Erica3681 Member Posts: 1,916
    edited September 2011

    Tappy,

    What might really help you is to go to a mastectomy shop and try on some silicone breast forms. Perhaps there's even a boutique at the hospital where you had your surgery. Also, Nordstrom sells Amoena brand mastectomy products in some of their stores and usually has someone trained in fitting them.

    Silicone breast forms are normally worn in bras specially designed with pockets so they're not directly against your skin. Many women find that wearing the silicone against the skin is sticky and not that comfortable, but others don't mind. There are even "contact" breast forms that are designed to adhere to your skin and can be worn inside regular bras. Silicone forms can be easily washed with water and mild soap. 

    Silicone forms tend to be expensive, but if you have insurance, that will usually cover breast forms and two or three mastectomy bras every year or two. If you don't have insurance, there are many silicone forms of various prices available online and the prices are usually better than at a retail store.

    You might check out my non-profit website, BreastFree.org. I have all sorts of information about breast forms, bras, and generally about adjusting to life breast-free. I also have a Helpful Links sections, which provides links to many online retailers of mastectomy products.

    sespebadger,

    I've noticed lately that quite a few women use improvised solutions or go flat for a while (or permanently) after surgery. Everyone has to get comfortable with their new situation at their own pace. Your story is a great example of this. Still, I do think it's worth checking out all the options available post-surgery, especially if you have insurance, since silicone breast forms are almost always covered.

    I got forms soon after my surgery and I felt it was really helpful to me to realize that I could look like I had before the surgery if I wished, and I liked the lifelike feel of the silicone. In my case, as I adjusted to the new me, I gradually cared less about looking like "before," and more about finding the best, most comfortable options for "now." For me, that's sometimes non-silicone forms, sometimes silicone forms, and occasionally going flat. I hope your post encourages women to explore all their options. Thanks!

    Barbara

  • apple
    apple Member Posts: 7,799
    edited September 2011

    maybe I'll go do this.. i've just been flat.  like a tortilla.

  • sespebadger
    sespebadger Member Posts: 249
    edited September 2011

    I've definitely gone flat...especially through airports and in hot weather. I probably will still occasionally do that. There is no shame in having no breasts.

    These new silicon forms fit into a bra, like Barbara described. The bra itself is soft and feels good against my skin. 

    Yes, Barbara, I am trying to feel good about myself now and try not to spend much time thinking about how I used to look. I think my bigger adjustment has been to my hair.....it came back all silver (notice I don't call it gray). I think it looks good, I get compliments on it, and I keep it styled and cut regularly. I lost weight during chemo and have kept most off. I like wearing smaller breast forms now.

  • calamtykel
    calamtykel Member Posts: 1,187
    edited September 2011

    Maybe I'll do this too - I'm with you on the stubborn thing.  I haven't wanted to deal with this stuff - the forms I'm using along with a padded bra from K-mart and a camisole seems to work well, but your'e right - constantly adjusting is a pain in the neck.

    I actually still have my script from my BS that I never got filled - so I think my ins. will cover it, at least at 80 percent..

  • sespebadger
    sespebadger Member Posts: 249
    edited October 2011

    Hi calamtykel,

    Thank goodness for insurance. My new silicon boobs were $345.00 each. Shocking. I hope you find a good fitter like I did. I've read posts from women who felt pushed into something that wasn't comfortable to them. I had a good experience and am happy about that.

    It's nice to have options. Good luck!

  • Faith316
    Faith316 Member Posts: 2,431
    edited October 2011

    I got the Amoena light forms because they weren't as heavy (they are still silcone).  I take it into the shower and wash it with soap and then toss it out onto a towel laying on top of the toilet seat while I shower.

    I also bought some extra of the little covers that you slip the prosthesis into before putting it into the mastectomy bra.  I'm glad I did.  I like having a fresh cover to use each day.  I bought them online and they were pretty cheap.  (My prosthesis only came with one cover.)

  • Starak
    Starak Member Posts: 536
    edited October 2011

    Hi All:  Well, I have a confession.  I have gone FATT (Flat All The Time) which is now 17 mos, so I have become really comfortable with it and it is now just normal for everyone around me.  In fact when I was out on leave recovering from the MX, I walked into my boss' (senior partner) office, with the announcement that "Just telling you there will be no reconstruction and no prosthesis.  I imagine it may be a little shocking - I expect they will get over it."  There were a couple of weeks for it to sink in before I came back to work.  Nobody has ever said anything other than how good I look - mostly because of a now 50 lb weight loss.  

    As part of the process of pursuing removal of The Mutants (center dog ears), I went in to discuss the situation with a fitter who is also a survivor.  The Mutants are prominent enough to create issues with anything with a center seam.  In any case, I had a fitting.  I was falling out of an M cup before BL MX and was a DD in the 8th grade so I have never known or seen myself as "normal".  I was put in an Amoena bra with a size 6 ABC lightweight assymetrical silicone form.  I was wearing the same shirt as in my avatar and I must say it looked amazing.  It was really nice to see what I might have looked like if I had ever been a "normal" size.  At the end of the day, it became clear that I certainly will not be wearing prosthesis until The Mutants are removed as they are indeed an issue.  Whether I change my mind about prosthesis after the surgery and healing will just have to be a wait and see.   I have everyone so "trained" to flat for so long that I think I would feel REALLY self-conscious if I suddenly showed up with foobs.

    Barbara 

  • sespebadger
    sespebadger Member Posts: 249
    edited October 2011

    Hi Starak,

    I have felt kind of self-conscious around my work mates because I have gone flat one day and wearing forms the next. Oh, well. Once I start working, I tend to stop thinking about it!  It takes a while to figure out what works and what feels best. I continue to like my Amoena silicon forms. They are comfortable all day long.

    Congratulations on your wight loss. I do think that depending on your body type and clothing choices, going flat can look just fine. 

  • Starak
    Starak Member Posts: 536
    edited October 2011

    sespebadger:  Thank you!  I agree that body type, clothing and I would add accessory choices are the keys.  I use the accessories not to hide or cover but to create an illusion or a different focal point.  I have become a huge fan of wide elastic belts like the one in my avatar as they help create the illusion of an hourglass figure. The 50 lb (10 lb of it from the BL MX) weight loss has gone a very long way to create an overall balance.  Being very broad shouldered and having very long legs have also proven to be assets in creating a balanced and pleasing look. I am early 60's so at this age it is easier to forgive a less than perfect figure.  I have been fortunate that my chest is flat but not concave so that too is a plus in continuing to go flat.  Still the foobs looked amazing....

    I figure I have months to have the surgery and completely heal before I have to make any decisions.   And even then could get them and they end up in the box on shelf.  Who knows?

    Barbara

  • PLJ
    PLJ Member Posts: 373
    edited October 2011

    OK, I have been putting this off and you have convinced me to go for a fitting. The LuluLemon sports bras that I am currently using just don't cut it anymore. Wow, $345/prosthesis...I'm sure it can't possibly cost anywhere near that to manufacture. Oh well, we know what happens to cost when there is demand!

    Thanks for posting this...I am looking forward to shopping for new girls!

  • snorfia
    snorfia Member Posts: 47
    edited October 2011
    I hear that insurance often covers the forms - and the insurance companies pay a higher price than retail.  Also, the American Cancer Society can help with the cost of forms, and they have a non-profit website: www.tlcdirect.org which has more reasonably priced options.  It is important to get a professional fitter to recommend the right size/shape/weight at first, but after that there are less expensive ways to go.
  • sespebadger
    sespebadger Member Posts: 249
    edited October 2011

    Good point, snorfia, about going to a professional fitter, but later trying other sources, such as on line. It's good to have options. 

    Good luck, PLJ. I hope you find something you like, that is comfortable and looks good. I really like mine and I haven't gotten a bill, so I believe my insurrance covered them. Cheaper than surgery anyway!  

  • CarylC
    CarylC Member Posts: 230
    edited October 2011

    I don't know about forms but my local prosthetic place just told me that if I want extra bras above what my insurance plan will pay for, they will sell them to me at the same price the insurance plan pays (which is about $20-$40 cheaper per bra than what the other local stores have them priced at.)

    That seemed pretty fair to me.  My insurance company covers forms and bras as "medically needed" but if over $700 per year, you need approval.  That turned out to be a pair of forms - I had a BMX - and 6 bras from my provider.  

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