Ammo for Pinktober (suggesting alternatives)

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PattySprout
PattySprout Member Posts: 36

Pinktober is almost here.  Ugh!  Last year I had a glorious October where nobody at my office knew that at one time I had cancer.  Now, the jig is up.  And, while I am hopeful that it goes unnoticed, since half of the people here can't even say or spell my last name (for real, after 18 months, I hate people).  However, the other half are nosy bitches.  Gah!

Since I am all about research, I usually suggest that people donate to BCRF.  I love the fact that they have so little overhead ($0.90 of every $1.00 is used).  I am just wondering if anyone can point me in the direction of any other research organizations.  

Also, does anyone know of a quick and easy place to find a breakdown of where the other big breast cancer charity spends (besides charity navigator)?

 Thanks.   

Comments

  • J9W
    J9W Member Posts: 395
    edited September 2011

    go to Guidestar.com and you can find the info on spending for all charities.  You have to be a member to get some of it, but basic info shoudl be available to the public since it's all from tax documents.

  • PattySprout
    PattySprout Member Posts: 36
    edited September 2011

    Thanks J9W.  I am actually looking for more information thatn Guidestar has.

  • Melonda
    Melonda Member Posts: 309
    edited September 2011

    I think this kind of info is really hard to find.  There's the basic info on charities at the above sites but besides that I don't think there is much. Which sucks.

    And can I just say that I can't believe it's October? I'm not ready. I feel like I spend the whole month preaching or being preached to. UGH>

  • PattySprout
    PattySprout Member Posts: 36
    edited September 2011

    quoting melindy:  I feel like I spend the whole month preaching or being preached to. 

     Yup, exactly.

  • ringosmommy
    ringosmommy Member Posts: 91
    edited September 2011

    Melinda-I just can't believe it's going to be October!!!  WTF.  It is sooo true what our moms say about time going to fast when you get old.  I am just freaking flabergasted that it's going to be October.  I remember Christmas 2010 like it was yesterday.

    That said, I find great enjoyment in rooting out ridiculous pink items.  I walk into a store and IMMEDIATELY I scan all things pink.  If I see something I rush over.  If it has a ribbon I emit a little squeal of joy.  Then i snap a picture and text it out to Tasha who immortalizes it on her blog.  

    There is a pink tow truck with a big fat pink ribbon that takes up the whole hood driving around my area.  I have yet to catch it to take a pix.  but soon I will hunt it down and corner it and move in for the kill.  

    but for now I am content with the pink ribbon eggs.  Opening every magazine and reading an article about someone that has had/will have/knows someone that did have or will have cancer, or just plain has breasts and might be interested in cancer.  

    But most importantly, I am ever vigilant to make sure that no other rotten cancer peeps step on my toes.  october is mine, it's for the pink, and if you even THINK about pimping your gangs colors in my month, well, me and my homies will beat your ass with a pink bat and spit pink chocolates on your carcass.

    So, while some of you dread the month, others of us are zealously guarding it.  It's like my birthday but better.  (although my birthday DOES fall in October).  and Mothers Day!  kind of rolled into one.  

    anything I want, i can have or get.  Oh, look, massages for the cure.  see ya.  it's a constant reminder to my family that otherwise takes advantage of my overall goodness and consideration of other people that yes, I am once again the center of the universe.  (frankly, i can't believe they forgot it, but fuck em, I'm not above reminding them).  Everything is about me and only me.  If I want it and they have it in pink, bring it.  To bad I don't drink, but I think cosmo's are clearly for the cure. Now that I am half heartedly typing this, I am thinking, damn, this shit must piss my brother and sister OFF.   I have always been the center of the families attention, and not above a tantrum if I am not getting my way, I know, I know, hard to believe.  But then I go and get cancer.  And not just cancer, but the grand mammy of all cancers, the holy grail of attention and pink!  And although I am sure my family wouldn't wish ill on me (well, pretty sure.lol), I am sure they are thinking, oh, freaking great, it's October again, and we KNOW what that means.  yep, not just her royal highness's birthday, but every single day is about her.  geez.  and to make it even BETTER, it's not just October anymore!!  It's like Christmas, it's spreading it's alien tentacles into other months.  September is contaminated with pink.  My poor sister, her bday is in September and my pink took it over.  ha.  I spot pink year round.   Even the ice cream store is about me.  Yes, they have a pink ice cream just for my month.  all is right with the world. I see the cure everywhere I go.  My lip gloss is curing people right and left.  I feel like it's a little ray gun, I pull it out of the 2 buck kate spade handbag, apply and hear this light saber sound, whoosh whoosh, cancer is falling dead all around me.  Do you need slippers?  There are slippers for the cure everywhere!  Your feet will be warm and the cure will be with you.  I see the cure everywhere.  Well, everywhere but where we need it.  :( 

    I am beginning to suspect that whomever thought up mother's day, dreamt up pinktober.  I salute you, whomever you are.   way to take a perfectly good day/month and bastardize it into something obnoxious and well, gross.

  • othermother
    othermother Member Posts: 18
    edited September 2011

    Cori, I like how you think. I may have to readjust my opinion of Craptober.

    This year I will be on the lookout for personal care products that have harmful ingredients and woman-focused companies that do pinkwashing. Basically, marketing disguises as "awareness." You know I hate that shit. 

  • Bany
    Bany Member Posts: 53
    edited September 2011

    Cassie...How about Avon?  Even Pure Romance (the one at the conferences) sells products with parabens!! YIKES! 

  • ringosmommy
    ringosmommy Member Posts: 91
    edited September 2011

    Cassie-check out the mack daddy of all cosmetic companies, Revelon, Pink lip gloss with a pink ribbon on the tube.  I am sure it's loaded with shit and crap.  Go get em sister. :)

    Cori

  • Melonda
    Melonda Member Posts: 309
    edited September 2011

    Damn Cori, very good points. I have to say that Tasha made me enjoy Pinktober way more last year. I looked forward to her blog posts and laughed hysterically at all of them.

  • ChiTownSherri
    ChiTownSherri Member Posts: 23
    edited September 2011

    Cori-- you crack me up girl.

     As for organizations to donate too--there is the NBCC. Their "goal" is to end breast cancer by 2020. They are funding grants and research for those who think "outside the box" to hopefully get to that cure faster. The are also BIG in advocating in Washington for our rights.

  • D4Hope
    D4Hope Member Posts: 352
    edited September 2011

    I just emailed several companies selling pink ribbon stuff and told them I hope you are not trying to make a profit off of BC victims suffereing. I told them if they are actually donating money they need to focus on putting money towards a cure. Everyone is aware that BC exsists. I don't know if it would help but I felt I needed to give the companies a piece of my mind.

  • amidala
    amidala Member Posts: 30
    edited September 2011

    Even though Pinktober and its effing pink ribbons are annoying as hell (although I do love the way you think, Cori), I must admit that the toilet paper with the pink ribbon on it is delightfully plush.  It's like a big 'kiss my ass' to cancer.

  • PattySprout
    PattySprout Member Posts: 36
    edited September 2011

    Sherri - Thanks! NBCC - will investigate.

    FWIW - I am mostly annoyed by the people I work with talking to me about cancer.  I don't want to be singled out.  It is a bizarre office dynamic here and I know it will be a big effing deal.  Sigh! 

    Otherwise, I usually ignore the pink, maybe I should start scouting for tasha!

  • othermother
    othermother Member Posts: 18
    edited September 2011

    Amy- The pink ribbon toilet paper is my FAVORITE! 

    Yeah, I'm on to Avon. And Estee Lauder. Even Sonia Kashuk (a breast cancer survivor) has some harmful ingredients in her products. Revlon is a biggie, too. I have to sit down and write a blog post about it.

    And btw, lip gloss is TERRIBLE for you. It tends to have lead and cadmium, even mercury in it. It's the all-time worst cosmetic you can use, unless it's from a company that doesn't use harmful ingredients. So, Revlon, I'm lookin' at you, with your pink ribbon, pink lip gloss.  I will NOT be buying it.

    My favorite pink ribbon is the one on my neighborhood garbage truck. 

  • elmcity69
    elmcity69 Member Posts: 998
    edited September 2011

    i love this thread. can i get the link to Tasha's blog? it sounds hilarious.

    hating the pinkwashing too. picked up a prescription today - and realized, once home, it was sealed with....a pretty PINK cap. what the f#*@(?! i have half a mind to run into Walgreens tmw and chew them out.

    i went grocery shopping today and saw that Milano cookies have the pink ribbon on them. hmm: saturated fat, waaaay too much sugar - yeahhh, that's a logical choice for a health issue.

    othermother: oh no i love love lip gloss! why do our cosmetics have to be full of crap.

    amidala: i laughed out loud at the kiss my ass comment.

    j

  • sandejosgirl
    sandejosgirl Member Posts: 57
    edited September 2011

    Cori, I just found pink ribbon rubber duckies.  pink ducks with the pink ribbon on them. priceless.

  • MJLToday
    MJLToday Member Posts: 2,068
    edited September 2011

    I know you guys aren't metsters, but http://metavivor.org/ is a great small organization with a strong research grant funding mission.  Very little overhead.  And since it's mets that kills people...makes sense that maybe looking at the metastatic process is a good idea.

  • MJLToday
    MJLToday Member Posts: 2,068
    edited September 2011

    I just looked at the BCRF website and it said:

    Currently, over 90 cents of every dollar donated goes to breast cancer research and awareness programs.  

     I'm sorry, but I think we've had enough of "awareness" I can get on board with funding research into prevention, and effective treatments at the early stages, along with mets disease.  But who isn't "aware" of BC today?  Or at least think they are, even when their info is wrong and they try to argue with you (rolleyes). 

  • NannaBaby
    NannaBaby Member Posts: 510
    edited September 2011

    What about the young women who are refused mamos?  (Like me) I was told many times I'm too young to get cancer... the lump and blood will go away on it's own blah blah blah. It took 8 months  to finally get a diagnosis! My tumour was 8cm by then! and spread to my auxila and intercostal lymph nodes and my pectoral muscle!

    SO, awareness is a biggy for me! Even the medical community is ignorant!

    I agree most people are aware of BC, but there are too many ignorant people (men and women) who think they are so healthy, and will never get cancer?

    Money is needed for screening programs, equipment, prevention, awareness, treatment and a cure!

    I guess it all depends what you are passionate about and which orgs you will support.

    I def. do not support anyone making a profit from this! If someone pinks up their product, they better be donating all their profits to the cause! Especially the companies producing poisonous products! Parabens, preservatives etc.

    check out http://www.ewg.org/skindeep/

    it's a health hazard database of popular cosmetics.

  • NannaBaby
    NannaBaby Member Posts: 510
    edited September 2011

    I don't mean to sound like I'm arguing :S

    Does my post seem abrasive?

    I worry about what people think... that's why i'm so nervous about my radio interview... I am talking about the importance of breast exams...

  • othermother
    othermother Member Posts: 18
    edited September 2011

    NannaBaby, I am right there with you. I'm all about clean personal care products, and all about transparency and integrity in breast cancer fundraising. And there's not enough of any of that. (I even have a blog about clean products, and cancer finds its way in just about every post.)

    MJLToday, I'm with you, too. The "awareness" that we have is all focused around profit. Buying a product with a pink ribbon doesn't make anyone aware of anything, but people think they are informed because they've participated in some kind of fundraiser. (Meanwhile, most of the funds they've raised are for a Fortune 500 company, but whatever.) I am constantly stunned by how much people don't know about breast cancer. All of the hype surrounding October seems to be for the benefit of people who have never had breast cancer, and once you've been diagnosed you're a marketing tool. Facts? Nobody wants to hear any of that.  (Bitter? Noooo......)

  • MJLToday
    MJLToday Member Posts: 2,068
    edited September 2011

    Not abrasive NannaBaby, we're just having a spirited discussion :D  And yes, I was a 34 yr old woman who gestated a large lump for 9 months, because I was"too young for a mammo."  Idiot doctor didn't know the difference between a screening and diagnostic mammo.  I sure the hell hope she does now. 

    If the "awareness" truly worked -- then maybe I would be on board.  But the only thing that people seem to be "aware" of is that it's pretty, it's pink, everyone survives, because everyone can be cured if they catch it early enough and the surgeon can get it all.  Or if the surgeon gets it all you just have to go through a little yucky chemo or take a little pill and you will be fine.  Or BC is 100 preventable with a prophylactic BMX because that gets it all.  And that only stupid people die of BC.

     Even screening is only marginally effective, thus the controversy at what age to start.  They finally ran a study with enough millions of women to show a statistical significance in survival when screening mammos were run on asymptomatic women.   Screening mammos are NOT a slam dunk -- too many false positives, and ESPECIALLY too many false negatives. In summary, marginally useful, but don't count on it to save you from dying from BC.

    No I'm not bitter either LOL. 

  • ckptry
    ckptry Member Posts: 350
    edited October 2011

    This pink stuff is hard. I remember last year someone sent my daughter a large pink ribbon teddy bear. I mean, my mom had bc, I had bc, I know the person really meant well but did I need a reminder at Christmas that my then 3yo could get bc. It gave me chills to see her holding it, I had that 'disappear ' fast. I had this summery pink dress pre bc that I used to love. When I tried to wear it this summer I felt like a giant pink ribbon.

    Also,you be surprised how unaware some people are.  I had to go the the ER at a local hospital to get fluids during chemo and the NURSE asked me why I was getting chemo for breast cancer if I didn't have breasts. Really!?

    Carolyn

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