Stupid Story & Any Recommendations for Therapy/Retreat/
So I went to a pedicure. And I sat in one of those massage chairs...and I REALLY wanted a massage so I pressed really hard against the chair so those little prongs things would dig into my back. Well, my position in the chair was really strange. I couldn't reach the floor.
Anyway the next day I woke up and my back KILLED me...I had NEVER felt pain like this... I had forgotton about my pedicure...Totally forgotton about it!!! Near my spine I had pain..I spent the next 2 days in a COMPLETE panic... Then I wake up in the middle of the night, sat straight up and remembered about stupid pedicure.... I couldn't believe I had forgotton about how I grinded my back into the chair in desperate need of a massage.Dugh! Anyway the pain is gone of course but I lost 2 days of my life to fear.
Anyway after my husband having cancer only 3 weeks after we marriend and myself having cancer while prego I really need to go to therapy...But I can't seem to find the time or sub conciously I don't want to really go through it all again. My doctor strongly recommends cognitive therapy. I would love to hear recommendations for what you did to help deal with the tragedty of your diagnosis.
Thanks:)
Comments
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Hey Jen,
I fought going to a counselor for a long time. Finally about a year after being diagnosed-right about 4 months after active treatment ended, I gave in. All I can tell you is that is was the BEST thing I could have done. I was still feeling scared, actually terrified, on the inside but everyone thought I was completely fine. I functioned incredibly well for someone consumed by fear- took care of my kids, went through the motions of my day, etc. But that was the thing-I was simply going through the motions. When my kids would come home from school I was physically there but emotionally I was creating distance because I just thought I would be dead soon anyway. I was very distracted in my head but no one could really tell-although I suspect my kids felt something was up. Anyway, the counselor I saw helped me come to terms with all I had been through. I went once a week for maybe about 6 months or so. The first session or two we really did not touch on my big issues. It took some time before I could admit how scared I was. Once that happened and we talked it all through week after week, I emerged so much more together. My outside facade finally matched how I was feeling inside-not sure if that makes sense. In other words, I really found a sense of peace. Now, don't get me wrong-I still have moments of fear but I am certainly not obsessing on cancer like I did before. Anyway- I say look into therapy but make sure you click with whoever you see. The counselor I saw worked specifically with people dealing with cancer and the aftermath-she was at the hospital where I was treated. She seemed to understand me immediately. Also, I tried group counseling with other bc people but when they heard I had 6+ nodes they would gasp so I gave up on that group. lol
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Pure:
Your story isnt stupid at all. I had the identical experience shortly after being dxd. I remember pressing my back into the chair so the roller would really massage my back. My phone rang and I twisted to reach my purse and somehow the roller ended up hurting my back. I quickly forgot about it and the pedi continued.
The next day, I had pain in my lower back, which translated into OMG I have cancer in my bones/back. At that time, I completely forgot about the roller chair hurting my back. It took a few days and a lot of worry to remember being in the chair.
I have just finished chemo - well 8 weeks ago. I am thinking of going for counselling/therapy. I am still not sleeping through the night - insomnia since being dxd in March. I think about cancer continually so much so that I am having a hard time living. It seems to consume all my thoughts and I often end up in tears.
My husband and I went away for a short break after chemo and I found myself looking for other women like me, but I didnt see anyone. I felt so alone.
So I believe counselling is in order, so that I can learn to live again.
In addition, I am not sure where you live, but I recently signed up for a retreat that caters to women and cancer, helping women heal from the trauma and recover emotionally. I have heard many wonderful things about the retreat, that it is a life changer - hey this dx is a life changer and I need help living with it! The website is www.healingodyessy.org. It is a non-profit retreat that is offered 2 times per year - Oct and April. I can actually say I am looking forward to it, I havent said or felt that in a long time - looking forward to something.
I wish you all the best, it seems as though we all face similar issues and fears. Cancer is an insideous disease!
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Great story...nice to know I'm not alone in doing things like that
I've thought about therapy myself, I hate to admit that it might have come to that but I actually think I might need it. Physically I'm getting by, you know chemo/rads done but mentally I'm all jacked up at times. You're not alone.
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I'm searching for the right match since my psychiatrist and his therapist wife moved to Colorado. It was a perfect match. He px my meds, she did the therapy. It's tough to find the right person and the last couple I had I didn't gel with. So I keep searching.
In the meanwhile have you tried a meditation class (I need to follow my own advice now)? When I did them they really did relax me.
Love,
Sharon
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I have good insurance that covers therapy and psychiatrists, but it was really hard to find someone in my plan here. I did OK, not great but OK, until I was in the middle of radiation. Then I just lost it. Tried seeing a therapist, she just didn't work out well. Tried to find someone to prescribe me antidepressants, couldn't find anyone on my plan. It was awful. I had really, really dark thoughts and could not find anyone I could afford to see (my primary is wonderful, but the wait to see her is months). After I started feeling a little better on my own, I finally found a psychiatrist I like who's on my insurance. No therapist for a while, but now I'm trying out a new one.
But the psychiatrist is leaving her practice. I think now, having been through that, even though I'm doing much better I want to have my ducks in a row. I'm trying to find anohter psychiatrist because I don't want to go through that awful feeling of not being able to find someone who could help me again.
I don't judge myself harshly for needing this kind of support, what would be the point? This is awful to go through. I just want to get through and live my life as best I can now. Therapy has helped me at another point a while back in my life, and I'm hopeful it can make a difference again.
I second the retreat and meditation ideas. I've done a different retreat in my area, met some great people, learned more about survivorship. Meditation is something I'm trying to work out kinds with. Sometimes I'm just too anxious to do it when I'm alone.
I've also really benefited from a support group that's for people who have been diagnosed with any cancer, not just breast cancer. I think what we have in common is that our diagnoses have been all pretty bad. I tried a support group for women with breast cancer, but some of the women had DCIS and that was hard for me at stage III. I also felt like it wasn't as well facilitated, and that's really, really important for a group.
And I don't think your story is stupid at all. I worry about every tiny sensation in my back. I worry about everything in my body 3000% more since my diagnosis.
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I hit my second low point with my onc last August. I'm not a person who cries easily but that is where I was at because I hurt and was frustrated that two years after my dx I was feeling better. I was also in the middle of some significant med changes; Aromasin to Tamoxifen and Paxil to Lexapro. BTW - the first low point with my onc was when my RBC was 7.8 so it was a very physical thing -- this time it was totally emotional. So he recommended therapy and I was completely on board because I wanted to start feeling better.
I did 5 sessions with a therapist and my husband did 1 (at my request). I was so glad! The bottom line was that she confirmed that I was mentally healthy. Boy, did I need to hear that! But it also gave me a chance to tell my story whcih also made me realize the hell that I had gone through. I realized that I need to go back on FMLA, that I wasn't physically well enough to handle work everyday.
I still don't know when I'll get back to work but it took a big load off my shoulders when I had a chance to talk with her and explain how I felt. I was feeling like a wimp but now I realize that I just need to concentrate on getting my blood counts back to normal and my energy at an even keel.
I feel that I was lucky getting a counselor that worked for me on the first try. I told her upfront that I was willing to give it 3 sessions and, if we didn't click, I would be changing counselors.
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DebRox-When I was first diagnosed I would sit on my bed and cry each day. I set aside 4:00 as my time to cry. I would look out the window at all the houses in my neighborhood and feel so alone. I was the ONLY person in this whole neighborhood with cancer. I was so mad/sad. A month later my friend, who lived on the next street whose house I could see while I cried , got diagnosed wtih multiple mylomia...A non curable cancer. She has a 20% chance of survival 2 years..She is not 2 and half years out and doing great. I felt horrible when she got diagnosed...Cancer made me feel dirty-like I was rapped and I was now different then anyone else around me... The truth is, over time, I have learned we all have our cross to bear...It's how we hold up that cross that matters...I am 2 years from surgery ...and there are days I forget about breast cancer...You will get there...
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I now go annually to rancho la puerta....wonderful health spa. Amazing...physically and spiritually. It's a life changer for me, and keeps me looking forward. It's hard. We all know that feeling of looking over our shoulders.
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Coming to these boards, and delving into my personal spriituality has helpd me a lot psychologically.
Barb
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