Who are you and what have you done with me?

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jenbal
jenbal Member Posts: 82
Who are you and what have you done with me?

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  • jenbal
    jenbal Member Posts: 82
    edited September 2011

    I finished treatment about a year ago. In the almost three years since my dx, I've not only had this to deal with, but two major job changes, my husband's health problems, my kid leaving home, house on the market (and no takers), a 20 pound weight gain, a second round of hair loss, and on my first vacation in three years a few weeks ago suddenly realized that I don't even recognize myself anymore -- on the outside or the inside. I'm frustrated, scared, knocked off center, and all my old strategies for pulling myself together just aren't working anymore. I haven't been to church in months, I've dropped out of the book club I founded 15 years ago, I can't seem to get back in to an exercise regime, and about the only good thing I can say is that for the first time in my life I actually have long, strong fingernails. Go figure. About the only thing keeping me from total implosion is an all-consuming job (which I love but which is extremely challenging and stressful). I know this isn't healthy but I don't know what to do. Any suggestions????

  • Katarina
    Katarina Member Posts: 386
    edited September 2011

    It's sounds like you are struggling with your meaning and purpose in life. Ask yourself what are you here for and then if the answers don't come so easily then what I do is ask God what service can I do for him today. I then find things come my way that make me feel better about my day and life.

    I hope this helps.

    Hugs

    Kat 

  • jenbal
    jenbal Member Posts: 82
    edited September 2011

    Thanks for trying, Katarina, but God and I aren't talking these days. I know what I'm here for -- it's the feeling sh***y everyday that I am struggling with.

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited September 2011

    jenbal -- I don't have any advice for you, but I do have empathy and compassion.  A cancer dx turns one's life upside-down and makes us think of things we've avoided thinking about.  it changes us inside and out, and our relationships with those we love are also changed, because we have changed.  We want to get back to "the way it used to be", but that's just not possible.  There's always going to be that virtual Sword of Damocles poised above our head, and we're the only ones who can feel it there.

    Some have termed it our "new normal" and it takes awhile to get used to it.

    I just really want you to know that the way you're feeling is common to many of us here. 

    Hugs,  Linda 

  • jenbal
    jenbal Member Posts: 82
    edited September 2011

    Thanks, Linda -- I'm sure you're right. What do I do to survive while I'm "getting used to it"?

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited September 2011
    Jenbal -- I don't know that there's any surefire means of getting used to it -- other than time.  Some people do a tremendous amount of research, looking for ways to ensure there isn't a recurrence.  Some make significant lifestyle changes, for much the same reason.  Some are determined to keep their experience well in the past and get on with their new normal and still others insist that "I'm still the same me, minus a part or two".

    From what I've read here, (and have experienced to some extent) depression is an SE that often rears its ugly head.

    What helps, I think, is learning what others are going through (misery loves companyTongue out) and knowing that you are not alone in how you are feeling.  This website is so very helpful in that regard.  It can serve as an outlet and personal rants are accepted!
     
    Having someone to talk to is helpful, but then again, we often don't want to worry our loved one(s) with our own fears and worries.  I've never gone to a therapist, although if I felt I were on the verge of severe depression, I would run, not walk, to a psychiatrist or a therapist.
      
    I'm still not being very helpful (!) but as I said, I can clearly understand your emotions and send you cyberhugs to let you know YOU ARE NOT ALONE!
     
    Linda 
  • changes
    changes Member Posts: 622
    edited September 2011

    Hi Jenbal,

    I have no words of wisdom, but your post really resonated with me. I am feeling the same way, and feel like it's a struggle to put my life back together. Thank you for posting - it makes me feel a little more "normal".

    Karen

  • jenbal
    jenbal Member Posts: 82
    edited September 2011

    Well, dears -- my profound gratitude to you three for trying to help. I do appreciate the cyber hugs. It doesn't comfort me much to learn that this is normal and others share my feelings. It actually increases my despair to hear that others are suffering in the same way. If this is the case, why haven't the gurus of "survivorship" figured out some way to help us? I'm sorry, LInda, but it just isn't good enough that we have to wait passively for the transformative action of time. Surely there is SOMETHING  we could be doing to ease our pain and accelerate our adjustment?? I have been to see a therapist recommended by my cancer center folks, but I'm not optimistic. The lad can't be older than 12 and bears a striking resemblance to Le Petit Prince, with golden curls and an out of control left eyebrow that keeps shooting into his hairline with either alarm or skepticism. We'll see. In the meantime . . . what? scream into my pillow? burn something down?

  • bedo
    bedo Member Posts: 1,866
    edited September 2011

    Ok, the only sugestion I have is the impossible in this economy.  Find a job that isn't all consuming.  It sounds as though you could use things that make you happy and bring you in contact with other people, like the book club, church or exercise.  I know you said that you don't have time and you can't get into it.  What did you like to do as a child?  Chances are you still like  it.  I restarted violin and reading which I loved as a child.  I know about the kid.  I almost had a meltdown recently when my daughter got a new boyfriend who she is with 24/7.  I'm single. Can you start a walking group? Check out meetup (type meetup + your city in the search bar) for a group you might like.  Change therapists.  I, being a brat, said I wasn't going to a support group led by a 10 year old.  I found a lady my age.  Maybe medication will help.  I cried for 3 days straight because of the humidity a few days ago , air conditioners are no longer for sale, until someone said, buy a dehumidifier.  I too, in the last 2 months have lost my job, been diagnosed with BC, fell down the stairs and had surgery to repair a broken eye socket (it looks fine) moved into a studio and I can't remember what else.  I am trying to think when I do something, "will this make things better/" ie drink a beer and pout or go buy a fan. Maybe medication will help.  I am only saying what helps me. I don't know what would help you.  I used to work 60-80 hours a week.  It stressed me out and left no room for me.  If that is the problem and I don't know, maybe you can look forward to a day when you can do these things in the mean time.  Sorry if I was no help.Oh, and after having surgery after being attacked by a rottweiler, xanax helped.  That was a few years ago. If I force myself to clean up the mess and make myself look my best it helps. If I do one nice thing a day for someone else it helps. even if it is a stranger and only a compliment. Rome wasn't built in a day, you will dig yourself out day by day  Sorry for the novel.  I'm reminding myself as well as making suggestions.

  • J9W
    J9W Member Posts: 395
    edited September 2011

    Jenbal,  are you taking tamoxifen???  I got depressed from that drug. Stopped taking it and after a few months the depression was gone (bone pain abated too).

  • nowords
    nowords Member Posts: 423
    edited September 2011

    I too think it is normal. Besides the cancer diagnosis...lots of other life events unfold to all. The older we get, the crap economy, the wider our circle of friends and family, the more "bad" stuff we are aware of. Aging is not for the faint of heart and time goes on and we reach milestones...empty nests etc. - I think in the cancer aftermath..."normally" occurring events are magnified.

    I coped by a version of the one day at a time thing...on bad days it was one task at a time.

    Life is unfair and cancer is a bad hand....but eventually the fog lifted for me. I am on Tamoxifen. I think I was depressed a bit...I got cancer!!! I felt depression was a normal part of the process. I was not one who ever looked at it as a "gift" that made me more aware of every thing and thankful....I was living a pretty good ride before cancer....

    Hang in there...it passes....you wake up one day and feel more like your old self...the weight comes off, the hair grows back...cancer is not your first and last thought of the day...

  • nowords
    nowords Member Posts: 423
    edited September 2011

    I just wanted to add that your desire for something more than the passage of time as an answer and frustration at the medical community for not having a fix....I understand that view....but it is my experience that to some extent no amount of therapy and pills and cancer coping groups etc. etc. are a substitute for the passage of time in the process. "Time" is part of the fix your looking for.

  • dlb823
    dlb823 Member Posts: 9,430
    edited September 2011

    Jenbal, it sounds like you've really had your hands full -- although I'm convinced that fully recovering from bc is never a picnic, even when someone has little or no other stress in their life. As others have said, it is a process and I don't think the time factor can be completely minimized.  But none of us wants to wait around, hoping it will get better, especially when you feel like you do now -- which I so get.

    I'm a little ahead of you in the process, and I am honestly just beginning to feel "whole" again, although I'm still frustrated with a lack of passion and direction.   But in thinking about it, there are 3 things that have clearly helped me in the past year.  

    The first is walking, which I actually started 2 years ago, and which has been a sanity saver for me.  It's not only improved my shape & tone, so I feel better about my new body after a mx & DIEP, but it's given me a lot of alone time to think and reflect about everything.  And as you probably know, exercise creates endorphines, which are necessary for happiness.  And exercise also has a proven future bc recurrence prevention benefit.  One thing I like about walking is that you can start with as little as 10 mins.  In fact, we have a self-imposed "10 Minute Rule" on the Motivation thread, which you're welcome to check out and join if you're looking for motivation to exercise.  That thread has been a huge motivating factor for me.

    The other thing I've figured out is so important and that we often don't take seriously enough is good sleep.  There's no way any of us can function well without it, and a lack of deep, restorative sleep can absolutely add to feelings of depression.  I actually have 3 different natural sleep aids that I rotate depending on what I think my body needs.  One is simply a stress relief thing, to quiet my mind after a busy day.

    The third thing is getting out of and away from your normal routine.  I noticed during a weekend away several months ago that I wasn't thinking nearly as much about bc, and that happier mindset seemed to hold when I got home.  I think seeing new places (even if it's just a weekend overnight somewhere)  and being around people who don't know anything about our breast cancer dx can go a long way to making us feel "normal" again, and do wonders for our outlook!

    Another thing I very recently did was to see a naturopathic doctor who did some extensive hormone and antibody testing.  She put me on three hormones that I desparately needed, as well identified a couple of other things that play into our well-being that my conventional docs hadn't been too interested in.   You're welcome to PM me if you'd like more info.  But I feel like it was one of the best things I've done to get my body back in balance.    (((Hugs)))   Deanna 

  • Binney4
    Binney4 Member Posts: 8,609
    edited September 2011

    Jenbal, what you posted certainly resonates with me. I'm 10 years out, and frankly I don't think that time alone does all that much. And I don't like the term "new normal" either, because a new normal is not me, it's somebody I don't recognize. I suspect you know exactly what YOU need to do to begin to heal and get the YOU back. Lose weight? Re-start some favorite exercise? Read books again (without feeling like you have to discuss them with anyone)? Forgive yourself for the lack of motivation? Give yourself room to grieve? Add some balance to your workweek (a day of rest a week with a meal out someplace nice, maybe)?

    Pick one. Small steps daily toward one thing YOU value. It heals.

    Thanks for your honesty. Be well!
    Binney

  • gutsy
    gutsy Member Posts: 391
    edited September 2011

    I can relate. When you are in the mids of treatment there are people to help and they allow you not to carry the whole world on your shoulders. You actually have time to take care of yourself because you are in survivor mode. As soon as you are supposedly better, you are back in the mids of everything and more. I go to yoga for women who have breast cancer or had. It is nice, but afterwards I have to run literally 15 blocks so I can pick up my 3 kids on time and take them to their activities, do homework with them, clean the house, make dinner and this is after working all day. I usually have a really good diet, but the last couple of weeks it has been lousy because I am so stressed with all the responsibilities. My husband finds lots of time to sit down, watch tv. I want to scream at him, I have too much stress, I am afraid my cancer will come back. Ok, I am no help, but can certainly empathize with you.

  • jenbal
    jenbal Member Posts: 82
    edited September 2011

    OK, this is starting to shape into something I can grab onto -- thank you all!!

    From Bedo: think about what I enjoyed as a child, walk, stop pouting and "buy a fan" (I'm seeing that as a metaphor for all kinds of simple solutions to problems that have taken on WAAAAY too much importance), clean up the mess once in a while, do something nice for someone else. Oh, and avoid rottweilers. I think I'll give the Little Prince his chance, but I'll ditch him if it's not going anywhere soon.

    From nowords: accept that some amount of this is just life happening. I've been struggling with trying to sort out how much of my distress is due to the cancer and how much due to other things that would have happened anyway, and maybe it just doesn't matter.

    From Deanna: Sleep! You know I actually woke up this morning and thought to myself, through a headachey fog, "why can I never just get some rest!!" Yep, sleep is something to work on. Get away from my normal routine occasionally, forgive myself for not being able to pull it together instantly, rebalance. Walk.

    That's a good start. Now if I can just do it . . . . 

    And Gutsy -- whap that husband of yours upside the head and get him to take you out for oysters.

    Thanks everyone! 

  • tarry
    tarry Member Posts: 156
    edited September 2011

    I think i was in a somewhat similar situation. I tried to get swimming time in- 15 min a dqy for 4 days a week, and two private pilates sessions. I got swim time up to 25/20 min and added in weight lifting. By the of my surgery, i was physically much more centered. Three weeks after surgery i'm starting up again.

  • tarry
    tarry Member Posts: 156
    edited September 2011

    Ps, we shouldn't let our hubbies sit around while we do all the stuff. It isn't psychologically or physically good for them.

  • hopefortomorrow
    hopefortomorrow Member Posts: 193
    edited September 2011

    Oh wow,  I am relating to the hubby subject, and throw my kids in there too! (13,16). They all were great during my treatment, but now that I am done, they don't realize I am still trying to cope with things. I too have been worried the cancer will come back from all the worrying and stress. I will say one thong though- my husband works lots of overtime- I feel like we work like dogs, and we are swimming in bills. I get so depressed I don't even want to open the medical bills. Today I have been really depressed. I am taking antidepressants with the tamoxifen. I am not any help, but I am appreciating the imput others are giving here!

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