MIDDLE-AGED WOMEN 40-60ish

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  • reesie
    reesie Member Posts: 2,078
    edited September 2011

    Lyndan I just started Anastrozole (generic Arimidex) last week. I don't think I've been on it long enough for any SEs yet. I'll let you know how it goes

  • Soccermom4force
    Soccermom4force Member Posts: 631
    edited September 2011

    Yes,I tested... Once before my dx and then was retested a year or so later after I was diagnosed..negative, as was my Mom who was then end stage w/ same & 3 maternal aunts.

    Haven't bothered w CHEK2 Li- Fraumeni etc. testing etc as the "die has been cast" and will make sure my daughter is followed closely.

    I have / had 3 brothers all of whom have had cancer of one sort or another:(

    I grew up knowing I'd have cancer, kinda like some family's have artistic talent,well, WE have cancer!



    Nice getting to read the posts on this thread!

    Marcia

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited September 2011
    Rose6, you are welcome here.  We have a little of everything...women fresh out of surgery to women past the five year point.  A lot are on hormonal maintenance, like yourself, and there are probably a few more, besides Reesie, that do Arimidex.  I take the Tamox. myself.
  • elimar86861
    elimar86861 Member Posts: 7,416
    edited September 2011

    soccermom4,  I just recently read an article here on BC.org (and now cannot find it!) that said only 5%-10% of cancers are inherited thru' the BRCA genes, another 20% percent come from other factors (unknown) that tend to run in families, and the remaining 70% are strictly random.  So, you fall in that 20% group.  You are probably aware that they are now saying the inherited cancers tend to show up in daughters 5-10 years earlier than when it showed up in the mom.  So the daughters need to have monitoring much younger than the standard 40 years old.

    Sorry that B/C took your mom.  Did she have a recurrence after some years, or was she a Stage IV at her first Dx?

  • Rose6
    Rose6 Member Posts: 36
    edited September 2011

    Hi Ressie and thanks for writing, let me know if you do get side effects,hope not

  • Rose6
    Rose6 Member Posts: 36
    edited September 2011

    Thank Elimar and thanks for the beautiful fall photo!

  • lwarstler
    lwarstler Member Posts: 341
    edited September 2011

    Thanks everyone..

    Marcia: wow! I know there is an hereditary factor in mine (cancer in each generation), but not like that.

    Eli: thanks for sharing, I am gonna try to find that article. My mom got her cancer 8 years earlier than her day and I got mine 12 years before my mom. I'd like to see what my daughter's risk is. 

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited September 2011

    Anyone who has died in my family; mom, dad, aunt, uncle, grandparents, etc have died of cancer. I know EXACTLY how soccermum feels. It was never a question of 'if' but more one of 'what kind'??

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2011

    Going into BC #3 - -

    No family history of BC.

    #1 in 1996 at age 39, right breast - small 1 cm with 10 out of 20 lymph nodes, ER.  Lumpectomy, chemo (AC) & radiation.

    Full hysterectomy in 2001, non-cancer tumor.

    #2 in 2005 at age 48, left breast - small 1 cm with sentinel node, ER.  Lumpectomy, chemo (Taxol) & radiation.  At that time, I asked about a double mastectomy with reconstruction - but the surgeon didn't think I should because of previous radiation.  Arimidex almost 3 yrs until I had "enough" of the side effects.

    Watching liver spots found in 2009.

    Now, 2011, going into #3 at age 54.  Again, cancer found by mammogram & ultrasound.  Seeing new surgeon next week (I "fired" the 2005 surgeon) - - - I'm thinking a double mastectomy, not sure what reconstruction option is available for me now. 

  • SAB
    SAB Member Posts: 1,498
    edited September 2011
    chiluvr1228, YES!  MY COLON!  In color! Oh, I should have saved that info in case I ever guess the secret picture. Oh well.
  • reesie
    reesie Member Posts: 2,078
    edited September 2011

    Maybe annette has one from her - it could really be annette's a$$ lol.

  • juliet62
    juliet62 Member Posts: 3,412
    edited September 2011

    well i did think christmas card photo with mine!

  • Sherryc
    Sherryc Member Posts: 5,938
    edited September 2011

    sandibj so sorry you are dealing with this a third time.  If you get a good PS you can have reconstruction.  I had a lump and permant nerve damage from rads.  Finished rads late Jan.  I am going to have a MX with reconstruction and I had alot of damage.  I will be having DIEP, PS said I could not have implants because of the rads damage.  But I do have to gain weight as I am thin and not enough belly fat at the moment.  so will continue with my meds until I can gain enough weight.  Then have BMX with diep reconstruction.  I ws 48 at diag and 49 now and don't want to deal with this again in my lifetime.  I know a BMX is no guarantee but those bc cells will have to work hard to survive in this body.

  • jo1955
    jo1955 Member Posts: 8,543
    edited September 2011

    Rose6 - Welcome to the middies.  I am on Tamoxifen - tried Arimidex and had too may tummy issues.  Someone will come along and help.  There is also a thread for Arimidex that will be most helpful.

    sanidbj - BC three times???? Absolute bummer.  Hopefully the new surgeon will work with you in treatment options. 

  • OG56
    OG56 Member Posts: 897
    edited September 2011

    I have been on Arimidex 3.5 years now and SE come and go for me. I recently took a 3 week vacation from it and was so happy to know that all the SE's went away. So, I am looking forward to the time when I can come off of it!

  • janinnj
    janinnj Member Posts: 89
    edited September 2011

    sanidbj-Was your's ductal or lobular?

    Rose6-  I'm just waiting for my pharmacy to send me my Femara (generic) we can compare reactions,  I hope it's not to bad as I want to fight recurrence as much as I can.  It was one year ago today I had my biopsy and I realy don't want to spend another year like this.

    Reesie-Glad you're back with us and had some time to relax on the beach.

  • justmejanis
    justmejanis Member Posts: 1,847
    edited September 2011

    Sherry..I will happily donate some of my belly fat to you...for a good cause of course! :)  Why do I never have that problem? 

    sandi I am so sorry you are having to go through this again.  It is just wrong.  Hugs to you.

    Rose6 I am going to start Arimidex in a couple of weeks.  Hoping it goes well for me.

    barbe that is so sad about losing so many family members to cancer.  I am so sorry. 

    I hope everyone has a great evening!  Hugs to all you brave souls.

  • Kay_G
    Kay_G Member Posts: 3,345
    edited September 2011

    There has never been breast cancer in my family.  I have one aunt who died at 48 from lung cancer, but she was a smoker.  I have one other aunt who died from colon cancer at 60.  And one cousin who died from brain cancer at 45.  No other cancers in the family, and I have a big family.  I never thought I'd get cancer.  My mom will be 85 in a week.  She has Alzheimers.  I think that is the worst disease to have.  I was thinking I really hope I never get Alzheimers.  I found out I had breast cancer and my first thought was I guess I am going to get my wish and not get Alzheimers.  Be careful what you wish for.

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited September 2011

    Welcome, sandibj!  You are not our usual Newbie, seeing as this is your third time.  We have a few two-timers here, but you might be our first three-timer.  I'm sure you have most of the info. you need, but we are happy to offer support as you go thru' the surgery and recovery again.  It will be different than getting a lumpectomy this time around.  Many of the ladies here have had Mx, so let them know if you need specific info.   Extremely sorry we had to make your acquaintance in this manner!

    SAB,  What kind of twisted mind could even think of something like that!  Surprised  ROFLMAO!  Innocent

    juliet62,  You are just as warped, girl.  Me likey!  Wink

    I would be incredibly jealous that you guys got actual photos but...although my saltine dispensing facility did not offer photo ops, they did have a skilled sketch artist (just like a courtroom) who would give you a 8 x 10" full color rendering of your colon, ready for framing, for an additional $20; plus for an another $10, wallet-sized reproductions & refrigerator magnets were also available.

    O.K., not really.  I AM jealous of your photos.

  • stjude10
    stjude10 Member Posts: 390
    edited September 2011

    sandibj, so sorry to hear of your crappy news. All I can say is third time is a charm to finally get this cancer to f&$@ off!

    elimar...girl...you know I'm w/you when it comes to twistedCool

    I'm the first case of bc in my family, either side. Yay me! We've had a bit of cancer on both sides. I had an aunt who died at 23 from uterine cancer and an uncle that died at 52 from a melanoma that mets in his lungs and bones, and then my daughter. All of the other cancers were fatal. I always grew up hearing in my family, " if the cancer doesn't kill you, the heart disease will. "

  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited September 2011

    OK SAB, Reesie & Juliet62 win the prize today for making me snort liquid from my nose!!

    I love this thread!

  • nancygv55
    nancygv55 Member Posts: 32
    edited September 2011

    I had my Rad simulation yesterday and will finally start the 34 treatments on October 3. Can't wait to get moving on those!  Question for those who have been through it:  Everything I read and heard from some professionals was to expect fatigue starting about week 3 and continuing for a while.  Yesterday the Rad Therapist told me I shouldn't experience any fatigue at all as long as I stay active and eat well.  Can you wonderful women weigh in on this?  I get very busy at work starting in early November so need to know what to expect so I can plan accordingly.  Thanks so much and know I'm cheering for all of you!

  • jo1955
    jo1955 Member Posts: 8,543
    edited September 2011

    nancygv55 - I don't know who that rad tech is trying to fool.  I work a full time and I felt the rad fatigue at about 2 1/2 weeks.  I did work all through rads and the fatigue stuck with me for a couple of months after I finished.  My rads were done late in the day - I asked for that time - and then I would go straight home.  A lot of nights I was in bed by 7:00 and slept for 12 hours sometimes.

  • shayes37
    shayes37 Member Posts: 33
    edited September 2011

    I just found this and thought it may be a good place to ask . . . Have any of you had a hysterectomy after chemo and rads? My tumor was estrogen based . . . If you have had one, how was the surgery, recovery time, etc? I'm pretty uptight just thiNking about it! Also, just wondering about what SE's I can expect from Tamox?

  • Kay_G
    Kay_G Member Posts: 3,345
    edited September 2011

    Nancygv55, we are starting rads the same day!!  I had a simulation on Monday and am having another one Monday, the third.  Then another one Tuesday followed by the first session of rads.  So I guess I am really not starting rads until the fourth.  There is an October rads thread started.  You should sign in on it.  I think there are about 5 others signed up there.  It's so comforting to have others going through (or who went through) the same thing.  Good luck to all of us!

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited September 2011
    shayes37, welcome!   Another woman new to this thread (sandibj) just wrote up above that she has had a hysterectomy, so maybe she (or another) will be able to tell you more about it.  About the Tamox...two words...hot flashes.  Not everyone gets them.  Just the 90% of us lucky ones I guess.  You may also get moody; notice a change in sleep pattern; get mouth, eye and/or vaginal dryness; you may lose your mojo; and some seem to get thinner or finer hair.
  • Sherryc
    Sherryc Member Posts: 5,938
    edited September 2011

    nancy I worked part time during rads because I had quiet a commute to get there and back.  Fatique hit me at about 3 weeks.  I am very active with work and exercise and I do believe that it helped but I still needed my nap when I got home so that I could then get up and cook supper and do my normal evening things.  Sounds like the tech has never had rads!!!!

  • lwarstler
    lwarstler Member Posts: 341
    edited September 2011

    sanidbj: wow, how frustrating. I'm so sorry you are having to go through this yet again, I am hoping and praying your new surgeon will work with you on your mx. 

    Barb: How devastatingly sad to loose so many to this wretch of a disease. I'm so sorry for your loss and hopeful that you will be the one to break this cycle.

  • Hauntie
    Hauntie Member Posts: 483
    edited September 2011

    My BS and I always thought it was the maternal side of my family that was the source of my breast cancer - (mom twice, one of her sister's twice, a first cousin, who never told anyone she had it and I didn't find out until after she had passed away.)

    Then, several years after my diagnosis it started showing up on my father's side, BUT only in the daughters of brothers. My father had 3 brothers who had daughters. Of the 4 brothers, 3 have had daughters with BC - all of us were premenopausal at the time of diagnosis. One of my cousin's and I are only daughters - she's had BC twice. Another cousin was diagnosed about 7 years ago. Last year her sister had a biopsy that was negative (thank God). There's only one brother's family that hasn't been diagnosed and there's 3 daughters in that family. We're keeping our fingers crossed. I have real concerns for the next generation. The cousin who had a negative biopsy has 4 daughters The cousin who had BC twice has a daughter in her 40's who is being followed very closely by our shared BS.

    Kay - My mother survived BC twice, only to die of Alzheimers. I'm so sorry you're dealing with this with your mother. It's a horrendous disease and one I fear even more than BC.

    Nancy - your rad tech doesn't know what the hell she is talking about.  There is fatigue. I think mine hit pretty quick, but I had just finished 4 rounds of chemo, so I was already tired.  Check out  the National Cancer Institute info on fatigue from radiaton http://www.cancer.gov/cancertopics/coping/radiation-therapy-and-you/page8#SE3  It's pretty straight forward and offers explanations about and suggestions for managing fatigue as well as other side effects of radiation.

    Sandy - So sorry you're dealing with this beast for a 3rd time. I hope your new surgeon can give you what you want If he/she can't, have you thought of not doing reconstruction? There is a thread for people who have chosen to go that route, that is very informative. After my diagnosis nearly 17 years ago, I was hell bent on reconstruction. I had one attempt that failed and never tried again. I just had a PMX and have no plans for reconstruction. I'm just happy to have the peace of mind that having the PMX has given me.

  • JudiH
    JudiH Member Posts: 1,184
    edited September 2011

    Hi All!  I recently joined the site.  Is anyone taking femera, and if so, how are you finding it.  I'm gaining weight and have sore joints.  Is there a better drug?

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