Any ER+, Her2+, node positive 3+ years??

ccjj - try posting your question on the "triple positive thread".  There are alot of ladies with that knowledge who will respond.

ccjj--  I also had dose dense A & C followed by Taxol.  Then had my bmx & got more Taxol, radiation and am still getting Herceptin.  I've been on Tamoxifen for about 7 months.  I saw 4 oncs (because I get some of my treatment at the cancer center and some at the hospital) and all had the same treatment plan for me.  For the heart, they have been doing Echocardiograms every 10-12 weeks since I started.  I really don't know if this is standard protocol with other chemos or not?--I've heard that it's standard during herceptin.  As for the ovaries, 2 have said I should have them removed, 2 say I probably should but that they can understand why I wouldn't want to so they don't push.  But I just had my estradiol level tested for the first time last week & it's very high while my other hormone levels show that I'm menopausal, so I have a feeling that will pull the 2 "maybe's" over to a yes?  I'm 34.  And I'm really not sure what to do--seems like removing them would just be smarter.  I agree, all of the decisions can be pretty overwhelming!   

Don't know if this post will help, but just wanted you to know that you are not alone in your treatment plan...  I'm sure others will post as well...

Wishing you well...

Hello to everyone!  :-)

ccjj - I had ACTH, and I think it is often given to those of us with positive nodes.  I'm not sure about the "odds" stuff, and don't really pay too much attention to it if I can help it, but it's possible that those odds are from "pre-Herceptin" days.  

6 years 10 months since DX, Stage 2B

Your welcome Saralmom! 16 months of chemo.. AC/T dose dense, then late Herceptin weekly x 52 weeks, 4 1/2 years Tamoxifen,Aromasin,Arimidex , no rads, recon delayed 2 1/2 years... Still here!!

Marcia

I refer to "H" as chemo altho technically it may not be , but after AC/T it was really So much easier! (The 16 months included the Herceptin)



Best wishes for time to pass quickly and uneventfully for all those in treatment!



Marcia

I am 3 years out this month......doing great.

Hi

I'm triple positive with 2+ nodes. I had single mastectomy and CEF followed by Tamoxifen. I had no radiation or Herceptin. I am now on Aromasin and it will be 9 years since diagnosis in January.

See, we are out here!

Hello Triple Positive sisters ... I'm coming up on two years.  I plan to come back to post on this thread again next year!

Btw my treatment was 6 rounds of Taxotere/Carboplatin & Herceptin before surgery, bi-lat, 38 rounds of radiation, 9 rounds of Navelbine, ovary removal & a total of 1 year on Herceptin.  I've been on Tamoxifen for 8 months.

Curly - WOW!  Excellent!  No Herceptin? If you don't mind me asking ... why?

Hi ccjj,

I too am triple positive idc/ilc 40 at dx and premenopausal, I had 6 x tch then 18 herceptin.

I was given a 70% chance of being around in 10 years due to my grade and stage so far 2 1/2 years ned and all looking good.  I also had ovaries removed after one year of tamox now on arimedex.

Hi! I am ER+,Her2+ positive. Almost six an half year surviving. No sign of recurrence. I am now on normal life without any medicine since March,2011.

Feeling so good  after a long time.

Hi - just thought you might like to know I'm 7 years out in Feb -yeah!!! Good luck with your treatment.

That's great Mitch!  Thanks for letting us know!