Any ER+, Her2+, node positive 3+ years??

Hi Missy,

I haven't made it to 3+ years yet so I'm not sure if I count, but I'm also ER+, Her2+ with positive nodes...  Nice to meet you...  :-) 

Hi Missy- there's a great thread on the Her2 forum called "triple positives". Several women there have positive nodes! I'm not three yrs out yet, but I certainly understand where u are coming from.

Hi Missy & Mom2twins34; I'm Kate, diagnosed in March with Stage IIIA, grade 3 IDC, 4 positive nodes out of 21, Her+, K1 67 scores of 60% and 70%. Obviously I've got a lot of time ahead of me before I reach 3 years, but I'm really hoping to get there. I have three teens, two boys who are 14 and 16, and a daughter who is 17. My daughter has some learning disabilities, and I've learned so much from her over the years. She accepts everything with grace and beauty, and is a tremendous troubleshooter, who is never sorry for herself. Guess what? She has been invited to her first school dance (at a private boys school). She is glowing. I love seeing her enjoy something all of her peers take for granted. I'm so happy today.

Hi, I am Sara. I am 34 with 2 little boys (5 and 2 1/2) and was diagnosed in April 2010 with stage IIIA, ER+(100%)/PR+(100%)/HER2+. I had a hysterectomy a week and a half ago to get rid of my ovaries. I was on tamoxifen and it caused my ovaries to go crazy producing a lot of cysts and elevated estradiol levels. I just started Arimidex now that I am in menopause at age 34! It is nice to meet some triple positive sisters! (this is my first post!)

Hi there!  Well, I'm not 3 years out but I am 2 years and 8 months out!  I'm doing great and loving life.  As you can see below, I had lots of nodes positive but to me, they were doing its job.  I had chemo, rads, and Herceptin for a year.   I finished Herceptin last July.

I am triple positive with 2 positive nodes.  I'm not 3 years out yet, but thought I'd join in.  I'm almost 20 months since diagnosis.

(Sara - I'm also Sara.  And I had a hysterectomy in February.  But I'm 45.) 

edited to add that the Triple Positives thread has lots of great ladies on it.  Check it out. 

Having kids is a good distraction and forces me to be active!



I started on tamoxifen in Dec 2010. I started out having a lot of hot flashes. Then in March I noticed that I was not getting them anymore and I was becoming very emotional. In April I started to have a lot of bloating and bad pains on my side. My PCP ordered an ultrasound and I had multiple cysts on each of my ovaries. We repeated the ultrasound 6 weeks later and had my estrdiol level tested. I had at least 7 cysts on each of my ovaries and my estradiol was much higher than it should have been. My MO was concerned that the tamoxifen may not be the best treatment for me and recommended that I either have my ovaries removed or shut down via Zoladex shots and then go on an AI (Arimidex).



I was very scared to go into menopause at age 34 and am concerned about my bones and heart health ( especially after AC and Herceptin) but after many opinions, I decided that it would be best

for me to have my ovaries surgically removed (as well as my uterus and cervix - no more pap smears!). I had the hysterectomy done with the davini robot and the recovery has not been too bad. Just cant pick up my boys.

Hi Missy - Have you had your estradiol tested? I never got my period back after chemo, but was definitely not menopausal.



The davinci robot surgery was not bad. I have 5 little incisions on my belly. I will have some scars, so I think that I'll be in a one piece bathing suit from now on. The surgery was a week and a half ago and I'm just taking advil a few times a day for pain and am restricted from lifting anything heavier than a gallon of milk. I am tired, but I think that my body is just worn out from the breast surgeries, chemo and radiation. I have been getting out for walks and that has helped.

Ladies- I am not certain how many of you are in the Boston area and know of this woman but I was introduced to her by a mutual friend- she was stage IIIA , her-2 pos, node positive and diagnosed 5 years ago. She is doing great! She has been a wealth of info and she shared her story with her viewers as she went through it- if you have the time, please watch, she's awesome.

Very inspiring, and she is thriving.

http://www.thebostonchannel.com/health/10723820/detail.html

Missy - the estradiol is a simple blood test that my MO ordered. It can help tell if your ovaires are still producing estrogen even if you are not getting a period.

Hi,

Those are my exact stats, and I'm 3+ years out. I guess it will be five years in November. So far, so good.

Take Care!

I'm almost there, Missy!  I was diagnosed in December of 2008.  4.6 cm IDC & 4+ cm DCIS, 1 node was positive - had TCH & rads. No major problems, but on Femara and have a lot of joint aches.

Triple positive and completed my 1st round of chemo 9/16/11.  I noticed that many of you triple positives were treated with TCH x 6 and then obviously Herceptin. I am being treated with dose dense AC x4 then T dose dense x4 herceptin and tamox. Wondering if anyone knows why different with similar diagnosis.  Is it a premenopausal versus post meno deal? I'm curious because my regimen of ACx4 seems tougher on the heart. That cant be good.  Also , wondering what your onco told you for % of survival being triple positive.  It seems like the numbers are similar to triple negative.  I was told 75%-82% disease free at 15 years out.  I know not to get caught up in that but was hoping for better stats.  Also figuring out the ovaries deal. So far 2 opinions for removal and 1 against. Too many decisions!  Fyi... Im 43.