MIDDLE-AGED WOMEN 40-60ish
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I just bumped up the Bonfire of the Goddesss thread.
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Hauntie, DOL fan here. They sent Marlena off to care for John Black, but they are both headed back to the show starting Sept 26. In fact, they're bringing back several original stars to get back to the good ole way of telling soaps. My main soap is Y & R. Taking the soaps off the air is truly the end of an era. I remember watching those shows with my Mom & when my Dad would come home from work, she'd hurry up & turn the TV off because he didn't like them. Too Funny!! I still miss Another World.
I'm glad you had a good day today, making progress is a good thing.
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I used to watch the Edge of Night and Secret Storm with my mom after school. Wow that was a while ago! And when they were over, I would try to sneak in Dark Shadows--can't wait to see Johnny Depp reprise Barnabas Collins.
An improvement I say!!!
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Oh, I used to watch Dark Shadows! Am looking for to Johnny Depp doing it also.
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justmejanis, I absolutely love the bus idea. I've always wondered what to do w/those people before I get rid of them.
tinker and kay, let me just say...aaaahhh, Dr. Noah Drake. wow. ok. trying to focus here
cmblastic, I thought I'd be the only one who loved Dark Shadows! I am DIGGIN the idea of a movie w/my boyfriend in it. Awesome
Thanks ladies, I woke up a bit pissy 'cause my drain sucks and now I'm thinking, what drain?
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stjude, there is so much you can do with the bus when you are feeling creative. Seating arrangements was my speciality. My friend Mary and I worked together and often had long stretches while we were faxing documents. We just had to wait till they went through. So, we drew our bus and it got bigger. Her ex, Doug, was a serial cheater. He was a regular fixture on the bus. We NEVER sat him near attractive women. Not even unattractive ones, as he wasn't picky. So he had to either drive, or sit alone, or sit near guys. We could be flexible. The women he cheated with were all on the bus. Then we had old bosses and co workers that had to ride the bus. OJ Simpson was usually right up front. We had a fun time with our bus. Sometimes if we got over something, we actually did let people off the bus before we shoved it off the cliff. OJ never got off the bus.......
Hope everyone is having a great day. I went to rads this morning, very uneventful. I was asked by my navigator if I would talk to a reporter for Breast Cancer Awareness Month. Okay...it is acutally about the navigator program. I talked to the reporter on the phone today. Tomorrow he wants me to go to the hospital where Nanette works so he can take our picture togerther. I really hate having my picture taken. I said I would do it though. For Nanette. Oh no!
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Had a simulation for rads on Monday. Was just under 5 weeks since MX with lymph node dissection and DIEP. Had to work really hard to get the mobility in my arm to get it over my head. Simulation went fine. But I had squeezed my hand so tight for such a long time that I couldn't unclench it when simulation was finished. Nurse had to unclench it for me. Now my hand and arm is swollen. It's probably from the simulation? I hope so any way. Don't want to even think it could be lymphedema. That wouldn't happen this quickly, would it? It isn't that bad, and it doesn't seem to be getting any worse. If it does, I guess I'll call doc tomorrow. But which one? I used to only have onc to contend with. Now, would I call onc, bs, ps or ro? Ugggg..... Hopefully won't have to call anyone and it will just resolve on its own.
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OK Days & Y & R here, with occas All My Kids thrown in. Definite Dark Shadows geek & can't wait for MY boyfriend ( not stjude lori's) to reprise Barnabus! For Christmas last year my mom got me a DVD collection of old Dark Shadows show; watched them not too long ago-what a riot!
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OOOOHH, I watched all the Dark Shadows series on Netflix not too long ago and loved it but wanted more! I didn't know a movie was coming out with Johnny Depp! Awesome, I'll be there! Best wishes and hugs to everyone with treatments this week. I'll be to the RO tomorrow for my follow up check. Kitty
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Ugghhh...sorry I need to vent just a little. So I have a minor infection where the drain came out and my surgeon told me yesterday to just put antibiotic cream on it. I am worried it is going to stop chemo next Tues. so I left a message for her asking her to call in an antibiotic and of course she isn't in today so they will ask her in the am.
Then, I go to my orthopedic doctor cause 8 weeks ago I had a fusion done of my c5-c6 vertebrae and he tells me that their is movement around the top screw and I need to be real careful to make sure it doesn't move anymore. Also informed me that chemo might extend the heal time from 6mo-1 yr to as much as 2 years and I need to stop moving so much. My couch has a serious butt impression already from the time I have been laid up from all these surgeries...how can I do any less!!! He says its super important because if it doesn't take or slips, they will have to go in or risk damage to my spine and surgery could be very dangerous during chemo.

I am just too tired and too young for all this stuff. I have only been 40 for less than 2 months and it has really stunk so far!! I am boycotting any further decade birthdays
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lwarstler...wow! I am so sorry you are dealing with so much all at once. You certainly have had a rough passage into this forty year mark. I know it doesn't seem like it now, but it will get better eventually. That helps you very little now of course when all this crap is happening. You come here anytime and unload! You have had so much to deal with in such a short time. Wish I could make it all better for you. Sending big (but soft) healing hugs your way hon.
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lwarstler - What a major bummer - do much crap to deal with all at once - this is certainly the place to come to. If you surgeon is so worried about your spine moving why doesn't he give you a back brace? I know that is the last thing you want to hear but it would take some of the stress off. I don't know how all of this will effect your upcoming chemo since I did not have to do it. I'm sure someone will chime in with a better answer. Gentle hugs to you.
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Iwarstler-Make sure you let your MO know about the infection. I know mine would,'t give chemo with any hint of infection present because the chemo usually kills you white blood cells and a minor infection can become very dangerous. Sorry you are having such a difficult time. I didn't discover these threads until after I almost through chemo but when I did I went back and read through what everyone had been through and really learned alot. It is a hard journey but if you have a good MO that listens to you, you should get through it. We are all here to hold your hand when you need it.
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Thanks for the support everyone. I have a neck brace that I have been in until 3 weeks ago and this does mean I have to spend more time in it. I need to put it back on at night, in case I am just moving around too much and basically any time I get up to do more than go to the bathroom or get a drink. It is one of the biggest bummers about my appointment because it gets hot and it is really hard to lay down comfortably with something against the back of your head all the time. I especially don't like it at night cause its hard to get comfortable. I was really happy when he gave me the ok to take it off and just be careful. I warned all my doctors with the breast surgeries to be careful with my neck while I was out but there are so many people involved and there was no way for me to tell them if they move my neck too far to the left or right. In addition, I did have to take the brace off and turn a little far for the breast MRI, so it could have been from that. It's just frustrating because I have been so careful and was so good about keeping my brace on and doing all the things I was supposed to. oh well....I guess stuff just happpens.
Lee Ann
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Aww, Lee Ann, I am so sorry you are having to go thru all this crap. Echoing what was said, you need to make sure you are as healthy as can be (kinda ironic) before you start chemo. If they delay chemo a week or two, it won't be the worse thing that happens.Start drinking your water and eating protein so you can keep up your strength. I'm sending an air ((( hug ))))) so I don't hurt you!!!
AMC this week---interesting how people have aged. Some hardly at all--Dixie-- and others--well-- didn't recognize a few oldies. Nice to know that I am not the only 50 something that has packed on a few pounds!! And I never would have guessed who the secret patient was!!!!
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Okay eph, them's fightin words! Just kidding, but I do love me some Johnny.
LeeAnn, I agree w/cmblastic about delaying the chemo if needed, and my PS says that protein in your diet is good for fighting and preventing infection. Sure hope your doc gets back w/you asap and puts your mind at ease.
cmblastic, as far as weight goes, I met w/ps today and when she first asked me how I was I said I was a bit pissy today. I can't do anything but sleep, rest, and eat. These restrictions suck, and I'm gonna gain 25 just from this surgery. I thought things were leaving my body=some weight loss, but noooo. I may be the only one hoping for nausea when I begin chemo. She laughed and then told me I had another week w/my drain and restriction. God love her.
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Kay - I hope the sweling goes down quickly and as you suspect is just a result of having your arm over your head and hand clenched for so long. Re which MD to call - that's a good question. When in doubt I always call my PCP and ask who she thinks I should check in with.
Lee Ann - sorry you're having such a tough time. Just when you think you are starting to move forward through this process, there's a set back. My standard reply is always "it's not fair." and it's not. Sometimes that's just the way things go and there's nothing you can do about it, but it's still " "not fair" and it's ok to feel it and rant and rave about it. Just in case, try and prepare yourself for the possibility of a delay in chemo. I know how hard it is to have any delay. You have that time table in your head (or maybe even on your calendar, I did) where you tick each thing off and it brings you one step closer to being done with it. I know, any delay just makes what's already difficult that much harder.
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Hauntie...I asked earlier how you were doing? I so hope you are feeling better.
So I have my needle aspiration biopsy next Thursday, the 29th at 1:45. I will go dig out the apron I will be wearing. I bake a lot and I love aporons. Will find one with a nice big pocket for all who want to hop in and support me during the process. Pocket party a week from tomorrow!!!!
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Kay, I just wanted to jump in here for a moment to respond to your questions about lymphedema.
Lymphedema can happen at any time after surgery, sometimes immediately after. Because getting treatment promptly makes a BIG difference to how easily lymphedema can be controlled and managed, getting a referral for an evaluation by a well-trained lymphedema therapist would be really helpful at this point. Early-stage lymphedema can come and go, but once you notice swelling it's definitely time to get help, whether it resolves shortly or not. Treating it now will save you on-going grief. Rads often aggravates lymphedema, so getting help now makes good sense.
Any doctor on your team can give you a referral, but most of us find our medical oncologists more likely to do it promptly. Here's how to find a well-qualified lymphedema therapist near you:
http://www.stepup-speakout.org/Finding_a_Qualified_Lymphedema_Therapist.htmGood news is, at this early stage treated lymphedema can be controlled and kept from progressing, and it will have the least possible impact on your life.
Gentle hugs,
Please feel welcome to drop by the "Lymphedema" forum with any questions you have -- lots of very helpful and experienced gals there.
Binney -
I'm hopping on in whenever you give the call!
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Janis - I didn't see your post. I am doing better. I really think I started back to work too soon. I wish I had taken an extra week off . I'm doing much better pain and nerve irritation wise this week. I did find an undisolved stich along my incision yesterday. I gave it a little tug and it didn't come out. This may require a call to my BS, who's on vacation this week.
I high hosie a primo spot in your pocket on Thursday. Will be reeady to party hardy the following week.
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Binney, Thanks for the tips. Will give onc a call tomorrow and also check out the lymphedema thread. I appreciate the link too.
Hauntie, glad my surgery buddy is feeling better.
Janis, count me in for the party. I'll bring the Cheetos!
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Hauntie, Kay, Claire...welcome to my pocket party. It is still a week away and there will be lots of room in my apron. Kitty and Jo want to come too, and a few others. I willl love all the company! Betting I won't get as many volunteers when I go in for the Colonoscopy. I might just be on my own that day, LOL! I really like the red one. Nice pockets in the front.

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Janis, Awesome! I love pocket parties, we can all get so cozy and then we all feel the warmth and love! Kay and Hauntie lots of hugs for you both and keep those spirits up, you will get through. Lee Ann, like Jo I did not have chemo, but I would guess a delay because of infection would be a good idea just for your safety and no more problems. Sending you lots of very gentle hugs. Oh and by the way go ahead and rant away, we will listen and help you get through it.
Kitty -
lwarstler, Hope you can stay on schedule with treatment, but that sounds right that you would need to have any infections cleared up first. A shame that you have to deal with all of it at once and I sure hope you can avoid further surgery on your neck!
Binney4, Thanks for providing the info.
stjude & Eph, Guess you will have to arm wrestle for Barnabas/Johnny. Wonder who is Angelique?
Kay1963, I think you now understand the calming and recuperative properties of our favorite orange snack food, and maybe janis better wear an orange apron 'cause there are sure to be crumbs.
janis, I wonder if you'll get a referral to the colonoscopy "specialist" I went to?
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First, thanks to everyone for the support...it really did bring me tears today because its so nice to hear from people who get it. My DH is wonderful, but all he can do is listen and then freeze cause he doesn't know what to do. I have definitely done my "its not fair" rant more than once. This afternoon too when I told him it just seems like things will not get better. 2 1/2 years I waited for doctors to find the cause of the pain that went down my left side from my neck to my knee. They finally do, fix it and one week later cancer. Of course, it is also how they found the cancer, so in that way it was a blessing but it still feels like everytime I think I am about to move forward a little something kicks me back three spaces. The neck issue took my job, my ability to drive and moved us from my church and friends (my husband took a higher paying job) and now the cancer has taken my school and sense of security. Its just been a lot of loss in the last 2 years and today, hearing I have to get back into my choke collar and have one more thing adding to my overall discomfort was just overwhelming. I'm sure I will be better tomorrow, but today I just feel really frustrated and down. Sorry, you all are being very wonderful and supportive and I really do appreciate all the hugs. I promise to be more positive tomorrow

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I thank God for this site - you all have gotten me through the toughest 7 months of my life. I love you all and can only hope I can be helpful in return.
DH is my rock - he didn't want to be but he had no choice.... I swear every molecule of his body wanted to explode away from me the 1st time I broke down because he knew it was something he couldn't "fix" - I told him flat out all I needed was a hug & someone to LISTEN to me. Since then, he patiently hugs me & rides out the storm.
Martha
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Martha, I am with you on that--my DH is my rock too. It took him awhile to know he just has to listen and hold me. He can't FIX me--he just wishes he could.
Janis, I stay in your pocket for your colonoscopy if you stay with me for mine on Tuesday. I have to swing buy Walgreens to pick up my "prep" OOOOOHHHHH. With all the research out there, its is amazing that you still have to "flush" yourself in such a manner. Ickky-icky-poo-poo. And Eli--LMAO!!! Your colonoscopy doc must be related to mine. If I see a big mother ship hovering over my clinic on Tuesday--I'll know for sure!!!
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mostlymom....I am so happy you have such a supportive husband. That helps so much and he sounds wonderful. I have not had a meltdown yet but I know mine will be there for me if I do lose it. He has been patient through all of this and insists on driving me to all my appointments. It gives him something to do.
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Oops...I forgot to thank Elimar for the picture of my new doc! When it comes to a colonoscopy I imagine they all look like that in our minds! Or evil Barnabus Collins! Thank you for my early morning chuckle......or fright! LOL. I go see him for consultation on Oct 4.
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