Feeling down and anxious!

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bak94
bak94 Member Posts: 1,846

I need some good vibes! I have a ct scan tomorrow to check to see how the abraxane is working, I had good results with ac and this is my first scan since. I don't feel good today, my tummy is upset and I really think it is my nerves! Sometimes I feel like I am just waiting for the other shoe to drop and I don't know how to live my life, is this the best I am ever going to feel? With each scan I think this could be the time I find out I will have to be on chemo for life and that scares me. I am 44 and was working and going to school to get my BA, now I don't know if it is worth it to continue school, with my age and now the cancer. I am bored at home (no kids) and only feel good enough to work a couple days a week. Yesterday at work I had such bad hot flashes that sweat dripped into my eyes and burned my eyes! I had to leave my client for a few moments, I am having a hotflash right now and having to  run to the bathroom every few minutes. I am on an antidepressant and I see someone for counseling, so I don't know what else to do. I have been eating bad and only walking a little, I need to take better care of myself. I am sorry to be so whinny as I know many are going through alot more than me but I just needed to vent. Any great words of wisdom from my favorite ladies ?

Comments

  • starbeauty
    starbeauty Member Posts: 327
    edited September 2011

    (((hugs))) bak... Gosh it feels awful doesn't it? I wrote about my journey out on the forum moving beyond cancer... Topic... Recovery of self worth. right now... One key thing is the exercise... Get some piece of equipment you can put in your house and put 30 minutes per day... Not to lose weight but to climb out of depression and anxiety... It works. then once you are out start adding relationship types of activities that make you feel needed and happy... I am once again back to school finishing my MS... You can do it... You are exhausted as a part of the depression and anxiety. you cando this... Start clawing your way out.

  • Suze35
    Suze35 Member Posts: 1,045
    edited September 2011

    No good advice, scanxiety sucks. But huge hugs to you, and fingers crossed that things go well. You responded so well to the AC, and Abraxane is a good drug, I think you will hear great results! Oh, I wish I had better words. Hang in there and keep us posted!

  • christina1961
    christina1961 Member Posts: 736
    edited September 2011

    Bak,

    I don't have any good advice either but exercise has helped me through some of my most anxious periods. Scanxiety is terrible - I am always a wreck during that time.  It is helpful also to remember how much the chemo itself may be causing down moods. I believe the taxane drug Taxotere gave me a very hard time during my chemo treatment.   When I am unmotivated to exercise, I use the old trick of telling myself I'll only walk for 10 minutes.  Then of course after ten minutes I'm good for at least thirty. 

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited September 2011

    Oh boy...I just typed out a whole ong message for you and I deleted it!!  Gr...

    When I read your thoughts, I wanted to reach out and hug you.  You are ok.  It's a very emotional journey and this tuff can really mess with our heads.  But you are in control ... feeling down is normal, staying down can be a choice.  Sometimes we can switch it on and off, sometimes we need help - I needed help and "pre-cancer Fuzzy" would have probably never needed that.  It took a lot of coaxing for me to accept, but I'm glad I did.

    Please don't steer away from your life - you are headed for your BA!  GO GO GO!!!  If you need a few months break, give yourself some room.  But, don't get trapped in this monster.  Eat something good daily...with your comfort foods - even a little bit will make you feel great about doing it!  Excerise as you can - taking the stairs or walking up the parking ramp has worked it's way into my schedule ... and I feel great about that (ok, I don't do it everyday, but I won't beat myself up for it...I've always been active but I have to accept this healing process along with the side effects...it all OK :)

    Breathe deep...focus on what you can control...be good to you...and, one step at a time - that's all you have to do.

    ((((HUGS))))

  • Titan
    Titan Member Posts: 2,956
    edited September 2011

    Bak..stay in school!   Keep busy...you wil feel better!

    Those hot flashes suck though...but they will get better..seriously...

  • bak94
    bak94 Member Posts: 1,846
    edited September 2011

    Thank you all! I have been staring at my treadmill that has turned into a clothing rack for months now! The weather has been nice so I have been out to take the dogs for short walks, I am always afraid to go to far where I can't make it back :) as I still get tired easily.

    Suze, I want to give you a big hug, as you are facing what I fear. How did your appointment go? I will look on another thread to see if you posted. I really want to go to NYC in the spring and that gives me something to look forward to! Meeting up with the fab ladies from here would be so much fun, maybe we could get wild and crazy! Haven't done that in a long time.

     I wish we could just decide, oh, today I am getting a scan and then go in and get the results right away, so there is no waiting for the appointment! Usually I have an appointment on the same day as scan so I get the results very quick, but this time my doc appointment is the next day. Last time I had a ct I had a reaction to the contrast and it was a bit scary, so I just took my pre dose of prednisone, then I have to take more at midnight and in the morning before the scan. So no sleep tonight! They also want to give me benedryl at the time of the scan, and told me I will need to eat something before I drive myself home, as I am going by myself. I think that is another reason I am am stressing, what if I have a reaction and I have nobody with me:(

    If my scan is good, I have 6 more abraxane, and that is not getting any easier. Fingers and toes are starting to go numb and I keep forgetting to take my l carnitine which seems to help alot.

  • LRM216
    LRM216 Member Posts: 2,115
    edited September 2011

    I know only too well what you mean by "waiting for the other shoe to drop."  While I have not yet had to take the tumultous journey you have, I live that way as well, every since my triple negative diagnose.  I hate that I can't overcome it.  And please also know that you are not in the least little bit "whiney."  You have earned everything you are feeling with what you have been through and are currently experiencing.  You never have to fear saying whatever it is that you feel, fear, etc., to any of us - ever.  Who else but another sister could ever understand?

    I just wanted to let you know I deeply hope that the scanxiety is bearable, and that I wish you all good things.  Just know that you are not alone, and that we all care, very much.

    Sending gentle hugs,

    Linda

  • Luah
    Luah Member Posts: 1,541
    edited September 2011

    bak94 - thinking of you, stay strong. Scans suck, waiting sucks, hot flashes suck, waiting for the other shoe to drop... whine away, we get it!

    During treatment, I was part of a clinical trial looking at the effects of exercise. I can't tell you how beneficial it was to walk 4-5 times a week, a mile at first, then 2 miles, then 3 miles, then I started running! The comraderie of the ladies was great too. Maybe you can find a cancer support group that has a regular exercise program? And yes, agree with Titan, stay in school and do what you can...

  • bak94
    bak94 Member Posts: 1,846
    edited September 2011

    Today was a better day. Went for the ct scan and will get results tomorrow, but i have a calm about me at the moment! Whatever will be will be and I will just have to deal with whatever comes my way, like all of us. All I can do is my best and try to stay in the present moment.

    I sat outside today to let my chickens free range for awhile. I do not know why I find it so relaxing but it is. They were scratching around in the dirt just being chickens! One hopped up onto my foot. Then a few ran into the coop and started being very noisy, I went in there to see what was going on and I think they all wanted in the same nest box to lay an egg so I think they were complaining to each other! We have over 6 nest boxes and they all want to use the same one LOL!

    I did get some exercise today, as I accidently left a gate open and my goats snuck out! I had to chase them all back in and it pooped me out! Then I had to put the chickens back in their fenced run and had to chase them around. These dang animals will keep me somewhat active! I don't know how I manage to get bored with all the things they are up to!

  • Meggy
    Meggy Member Posts: 530
    edited October 2011

    I really felt like crappers for at least a year after treatment...then it's amazing how  you feel better.  Now I feel almost like my normal self.  Just know that that part will get better.  I could barely work at first...now I can do so much more. 

    I totally freaked out right after I finished chemo and my rads were done...totally freaked out because I felt so unprotected.  OMG I wanted my chemo back becasue I knew it killed off cancer.  Then, once I read the studies about low fat and read that it reduced recurrance something like 35% or 40%....and then read about the exercise studies that also lower recurrance some huge amount somthing like 30-40% I thought hmmmmm well....If a person did both....doesn't that really really really lower the risk...almost like we get to take tomoxifen (sp)...becuase low fat chokes the cancer cells...low fat really pisses them off.   And exercise aparently does also.  So I started to think of low fat as being like chemo...that my body was not a good host to cancer anymore.  Also...I just did it for one year (at first)...but you could just say dedicate yourself to a smaller amount of time to get started.  And I'd say to myself, what do I want more this high fat item of food or the risk of chemo for the rest of my life.  Also, don't tell youself that you can never have that food again....we can all have it later.  Also we can have it once a week or so. 

    Just start eating low fat for 3 months or 6 months or 12 and take it from there.   I can't eat salt because of lymphedema but if you can eat salt you can really enjoy eating low fat...it's actually good.  It is our medicine.  It is our after chemo drug.  Those studies are so inspiring and I told myself eating lowfat is just as powerful as tomaxifen or herceptin.  I really believe that it is.  

    I think it is like drinking cranberry juice to avoid or cure a bladder infection.  It is not a replacement for chemo which will get most of the cancer....eating low fat is to wipe out the remaining cancer....the stuff that we don't want reproducing.  

    Once I started to eat low fat and walking (inside the house in a circle because I felt self-conscious)...my true nervous breakdown after rads ended.  I felt so empowered.  It was so freeing.  Also I take Ativan every night to sleep.  Get something to help with the stress.  Ativan may not be the right choice though. 

    I have a small journal on my kitchen counter where I write down how many grams of fat I eat a day.  I dont even have to read a label I know it all by heart.  I put a smiley face if I did good and a frown on days I mess up.  That way I can assess a whole week or month in just a glance.  After a while I don't bother to write the grams just a smile or frown.  The journal really helps keep you on track.  You can do it sister.  You really can.  Don't let this stupid cancer come back.  Don't wait for it to come back.  Starve it out starting this week.  It's like denying the cancer air to breath.  It needs its fat.  Don't feed it.  Start this week. 

    Read the thread on low fat to find yummy replacement foods to have around...there's lots of confort food out there with no to little fat in it.  You can do it sister. 

    Meg

  • bak94
    bak94 Member Posts: 1,846
    edited October 2011

    Thank you Meggy! It has been hard to focus on eating good, but I know I must, starting right now! I am a bit better with exercise, I actually usually enjoy exercising, but it has been hard with all this treatment induced exhaustion. It is truly what we trip negs have, low fat and exercise, which is a good thing!

  • mammalou
    mammalou Member Posts: 823
    edited October 2011

    I want to cry reading this.  I feel so scared and down that I don't know what to do.  I'm trying to do everything right.  I'm exercising, eating well, taking supplements, working, smiling, and having a positive attitude.  I'm just so scared.  I've gone thru 3 surgeries, chemo, radiation, and am working on reconstruction and all the sudden it has hit me like a ton of bricks that my life will probably be cut short.  I'm just waiting too.  I had a biopsy on my scalp last week and am waiting to hear on that.  How do you manage this fear and anxiety everyday?

  • tibet
    tibet Member Posts: 545
    edited October 2011

    hi Bak94

    Have you got your CT result? Hope you are happy. Pls update us.

  • Luah
    Luah Member Posts: 1,541
    edited October 2011

    Mammalou: Sorry you are feeling so anxious. I was in that exact place a year ago. All I can say is, it gets better. In the meantime, if your anxiety is interfering with your daily activities, see your doctor about medication, or try meditation, or a support group -- whatever helps.  

  • bak94
    bak94 Member Posts: 1,846
    edited October 2011

    tibet, my ct and mri results were very good, my doc even said the word "remission". The scans showed nodes had resolved and tumor in breast is not showing up. I have bmx scheduled for nov. 30. I am having a hard time with my last few chemo treatments, hardly working anymore and tired and crying alot. Fingers and toes are numb.

    Mammalou, I get it! You must be mostly done with treatments. I think that is a hard point in our recovery. I want to be done with chemo and surgery, but right now it is a bit of a safety net. Hang in there, and find someone, like us, that you can share your real feelings with. It is too hard to pretend everything is just fine all of the time, sometimes you just need to cry and vent and let it all out! ANd right here is a good place to do it.

  • mammalou
    mammalou Member Posts: 823
    edited October 2011

    Thanks for the encouragement and for listening.  I am mostly done with treatment, so maybe these feelings will pass.  i think having a biopsy of my scalp last week has got me very worried too. 

    Meggy- I'll think I'll give the low fat a try. I've really stepped up my exercise and it really does make me feel better.

  • Reality
    Reality Member Posts: 782
    edited October 2011

    So sorry that you are feeling so down and scared. The journey definitely is a roller coaster. I keep a positive face on for family and friends, but deep inside I am terrified and always waiting for the next obstacle. I am very grateful that my recent SNB was negative and that my lumpectomy went well, but then the "shoe dropped" when I received my path report  - My Nottingham score is an 8 - very high likelihood of recurrence. In addition, the report stated that the tumor was poorly differentiated and that changes since my bx could be due to metaplastic cancer - a very rare type of breast cancer. None of this was mentioned by my onc. I knew my prognosis was not lookin good when my onc. presented my with an invitation from my hospital's Tumor Review Board  to join a research project. I decided to join the project so I will feel like I am still part of the fight, so I will be taking daily, low dose oral chemo, plus aspirin, for 16 weeks following rads. Quite ironically, the comforting part is that I will have two years of intense monitoring. Sorry I could not be more encouraging and just went on and on about myself. I will be thinking of you. 

    Sher 

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