Sept 2011 Rads
Comments
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Cherr, I read somewhere to 'give your radiation machine a name'. So in my mind I call mine "R2D2" because it's like a big robot to me and I think of all those good Star Wars vibes. Another suggestion, you can always comment to the technicians by saying something like, "for some reason every day I come here I am tense about these treatments." Sometimes it helps just to let the techs know where your thoughts are in regards to what you're going thru. They often will be encouraging.
gogirls, I've had the stickers replaced a couple times and there was zero irritation or pain. The tech took her time to remove the stickers, and yet it didn't take long at all, and didn't 'rip' it off or anything.
katehudson, congrats on one more to go....I'm definitely jealous!
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Kate, I can imagine how thrilled you are being finished today. Excellenet news!!!! Hopefully the rash will subside soon and won't give you any problems.
gogirls...I have no idea why they are keeping tape on you. I think they used tape to initially mark my areas but I have never had to keep it on. They use a Sharpie on me and ask me not to wash it with soap, but as it wears off they just mark it again. No tape. I guess everyone does it differently. Can you ask your RO about the potential skin irritation?
Hope you all have a great day!
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Cherr, I am tense, too. It's getting better this second week. And I did fess up to my techs, which helped, along with the iPod.
I don't have stickers, only tats, and I only have two. One on the inside and one on the outside. They line me up with the laser beams. I'm pretty sure the hair under my arm is about to start getting in the way, though. Holy cow, that stuff is getting long. My daughter thinks it's hilarious.
Gogirls, I have cried more since I started radiation than I have since I got diagnosed in early July. I don't know what it is, whether it's fear or stress or just plain exhaustion from dealing with this for months. I didn't even have chemo. I don't know how you girls who are coming into rads from chemo deal with all of it.
I should see the doctor today. Fun times!
Kate, congratulations!!! Hope you have a wonderful trip. You deserve a celebration!!!!
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katehudson, thank you so much for continuing to come on here and post about your lack of SEs because that really gives those of us who haven't started or who have just started some hope that we can get through this with minimal fuss and pain.
stephN, I am with you. The only thing that has made me cry through all of this has been the visit with my RO. Biopsy and surgery, while not fun, were OK and I soldiered through with the support of my family. Started taking the Tamox the same night I got the script. But rads....ugh. The RO was just so negative about it, saying things like "oh you won't want to exercise or wear any tight bras one week into this." Although he did minimize the risk of fatigue. He said it depends if you are low-energy or high-energy to begin with. And since, like you, I didn't have chemo, I still have plennnnnty of energy. Maybe too much!
But I am going to stick with him, I've decided, because has is supposedly the main "breast guy" at the rad onc dept in the hospital I want treatment from, because it's almost halfway between work and home. I also love his nurse. And my MO didn't recommend me doing the B43 clinical trial. Apparently, he's not a fan so I'd have to see my BS again if I really wanted to try and participate in it. But enough. I just want this to be over and done with.
So I had a talk with the RO's nurse this morning and asked her to find out from my RO how much longer he thought I could keep putting it off. I was really hoping to get another month to enjoy the warmer weather on my new boat, but she made it sound like he would be itching to get me in there asap. My surgery was Aug 18th, so it has been over a month now *sigh* I might need some retail therapy (again) this evening. Breast cancer is hard on my nerves and harder on my pocketbook!
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JANIS, oh that comment by your hubby was funny. I cannot BELIEVE how insensitive your rad doc was to your situation! I'm sorry nobody is listening to you, dear one.
MOSTLYSEW, my shoulder has finally gotten better. Massaging it on the floor and doing my surgery exercises has apparently fixed it. I thought it was the rads, but I think it was indeed when I yanked it trying to drag in some grocerie. I DO take a bunch of pain medicines already for my busted-up back from a car wreck, but the shoulder still hurt on top of that. You asked if the boob swells during rads, and I noticed right after I get them, a fatty place on one side of the incision does get red and swells, but then it goes down by the next day.
CHERR, deep breathing sometimes helps nervousness. Also, those rooms are cold, so if you notice that, ask for a warm blanket. I ditto the advice of telling the rad people.
KATE congrats! Enjoy your trip!!!
GOGIRLS, I have a bunch of those sticky things with drawing underneath, and I too worry about not being able to get my lotion on there mostly. I have one right directly on the incision, too. Just ask them when you can PLEASE take them off to get it washed and lotioned up good. Also, when I took mine off one time, I did it in the shower, and it actually comes off fairly well that way, it did not hurt.
QUESTION: I do not feel nervous when I am in the radiation room. But I have noticed I am in general much more nervous than usual, pretty jumpy. Is anyone else feeling lots of nervousness in general as a result of doing rads?
I had to go to the dentist this morning very early, it was still dark and raining like crazy, I didn't want to go. So, I get to the dentist, thinking they would pull my teeth and make the impression for my denture, and then I'd go back to get the denture after rads, all in one day. WELLLLL, they said no, I'd have to come back AGAIN tomorrow morning, it would be a two-part thing. I CRIED MY EYES OUT. Oh well, at least it'll be done after tomorrow. I've been waiting to go to the dentist since back in February. All the best to my sisters, Gail
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My heart goes out to everyone who is experiencing stress before and during rads. I felt fine emotionally during surgery and chemo, but I cried so often during rads. The sadness disappeared the day I finished rads and I hope all of you will have the same feelings that day, too. Hang in there. It does end and life does get better.
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katehudson: Congratulations on finishing rads today. Enjoy your vacation.
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Thanks DivineMrsM and DogEyed for letting me know about the tape, that makes me feel much better!
StephN good luck at the doctor, love the pit hair humor! As for the weepiness, I also felt fine with everything until I had to do rads (fortunately, no chemo for me). Before surgery, I knew they would go in and get the cancer, so I was good with that, but before rads I was afraid of what healthy things are going to be damaged in the process. That's the difference (and the stress) for me.
Knowledge is power, thanks for all the posts everyone!
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katehudson - congratulatons on finishing rads.
cherr - Add me to the list of people who watch the radiation machine during treatments. I also time each blast. I also ask questions which helps me feel more comfortable. I have found that my RO and team do not volunteer information. I have to pull information out of them. To me, information is power.
To all dealing with pain and idiot doctors - keep speaking up!
I finished 11 of 33 today. One third done!
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Good morning everyone,
Dogeyed, I'm so sorry your denture thing won't be done in one day. That is disappointing and probably uncomfortable too. Hope you're not in much pain from the procedure. I'm glad your shoulder is better though and you know what to do to help it.
I seem to be the opposite of many of you. I've been teary thru all the surgical appointments (my incision wouldn't heal and I saw the surgeon weekly for 5 weeks before having a second surgery). The minute anyone showed any concern for me, I'd tear up. Silly but I couldn't help it. I learned to carry an Ativan cut in Half in my purse to at least be able to retain some dignity. For radiation though, I've never been that way about it. I've no clue why it doesn't bother me, perhaps because I view it as the last step and that it's eradicating the last vestiges of cancer from my body.
That being said however, I find that as this goes on, and I get more silly side effects, I'm afraid this teary business may show up again. I think it's just that we're under lots of stress trying to manage this complicated business, and our bodies are fighting mightily hard to get well. For myself I intend to concentrate on eating more protein.
Have a great day everyone, and be sure to mark this treatment off your todo list for the day! -
Hi everyone. #12 of 33 here. I'm not sure the stress, and at least some of my fatigue is from rads. I think it is the whole journey, from that first mammogram to rads that slowly accumulate stress as we work to fight, to be brave and strong for our families, to research endlessly, and to advocate for ourselves while still attending to our daily lives. Who wouldn't be tired and stressed!
Today I told the rad techs that it would be easier to lie on the table if I had a fluffy robe instead of a gown, and maybe some nice cool cucumber slices for my eyes. Perhaps they could follow up with a nice foot massage, as long as I'm laying there. That way I could think of it as a healing spa treatment!
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I have not had any serious skin SE's at all. My skin is pretty red now and my nipple is sore, but nothing bad at all. Mostly just some discomfort. I don't have any anxiety either going in now. My biggiest issue still is the pleurisy and the fear it will rear it's ugly head again. I do not need that. So far nothing since Saturday and hope it stays that way. I haven't had a lot of fatigue, although sometimes it pops up and surprises me. Most of the time not bad at all.
I feel so bad for everyone who is having a hard time! Just remember it will be over soon. Your life will get back to normal.
My navigator asked me to speak to a reporter for the paper regarding the navigator programs in general. He did a phone interview a little while ago. I have to go to the BC Center where Nanette works tomorrow. Reporter will be there to take a picture of us together. Ugh....I hate having my picture taken! No.............
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Kate, this is for YOU!
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Time to party, because I am done, and I have a big glass of Chardonnay in my hand right now to celebrate. Go Girls, Natters, Dog Eyed, Elizabeth1889, Sab, Neece and Janis thank you so much for the good wishes. Go Girls I am glad that you are encouraged because of my lack of bad side effects. I do have a slight rash, and I am a little red, but no exhaustion( I honestly have never felt tired 1 day from radiation),no pain, blistering or peeeling. Natters I especially liked your post regarding my minimal side effect were giving you and others hope for no fuss and no pain. Thank God I did not have to do chemo, and I truly feel for those who had to do it, but it seems that radiation is a breeze in comparison. Janis how sweet of you to post the baloons. I am celebrating alone because like Kymn( although not during cancer treatment) my husband deserted me a few years ago. I will be with friends when I go to Nashville sunday, and then the real party can start. Then when I come home to Santa Monica, Ca. I plan on looking for Mr. right, and hopefully I can find him. The only advice I can give to those who are doing rads, and those who are about to start is moisturize, moisturize, moisturize, and keep a positive attitude. I used mostly Udderly Smooth body cream($6 at cvs) and Miaderm. Be well friends, and radiation will be finished before you know it and you can celebrate and party then too. Love, Kate P.S. Kymn I will be thinking of you, and I know God will give you the strength to pull through this without your jerk of a husband.
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SAB - I loved your last post. You really hit the nail on the head with "who wouldn't be tired and stressed". You really captured everything in a nutshell.
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ceezthe day, yes, that was a perfect hit, I agree.
Kate, I am so proud of how well you handled all this. Enjoy that wine sweets! I am really happy for you that you get a few days away. It will be a wonderful escape and I know you will have a fabulous time. Glad you liked the balloons. I thought they were perfect. You go enjoy your life....but stick around here too of course! HUGS!!!
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Janis thank you so much. I will hang around a little to give encouragment to whoever needs it.
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Kate I hope you do, you did so well with your rads you can be a real inspiration to others. I think some SE's are going to happen, but to hear that in some cases it is fairly easy really gives people hope. You are not done here at all. You have much to offer and I hope you stay with us. Hugs to you, and I am really happy you are finished with this part. Much luck to you!
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Kate, Congrats on the fnish line! So happy that you made it through with no SE
I hope you have one hell of a vacation, after all this you deserve it and no doubt need it! Enjoy life to its fullest!!!
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Thank you so much Stormy! You ladies have been great!
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I had my second real rad today. I get 5 blasts each session. I am using the aloe vera gel. I go out all marked up too but don't really care. Kids are observant The Divine Mrs M aren't they? Best thing to do is tell the truth up to the age they can deal with it!
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Thanks to everyone for their suggestions and encouraging words! I was still somewhat tense today during my second day of radiation therapy and the tech picked up on this. I think I am making his job harder. Hopefully, I will do better tomorrow.
Thanks again and have a good night.
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Dental Update: Well, after crying all over the dental office yesterday becuz they wouldn't do my teeth until today, I have an announcement: MY TEETH IS PULLED & I got me a nice upper denture. But folks, after that, I went right over to radiation, and as I waited, slowly the pain and the gauze got to me, very painful, and after my radiation zaps, I was to see my rad doc and I had to say no, for I was crying again and needed to come home. I was so glad to get all that gauze and teeth stuff outta my mouth! Ye gads! I got me some antibiotics, took that and my lunchtime regular pills to keep me from losing my mind and to prevent my back giving out, and I am feeling MUCH more peaceful right now.
So, it's over, and I been waiting since waaaaay back when chemo started to get this tooth stuff done. I had heard can't do dental during rads, but folks, my own cancer doc said I could, when the dentist folk called (the cancer clinic called me about something else and told me that). SO THERE! Smile. Oh, girls, ain't it good to get home from radiation, for those who do come home!?! Add dental on top, and it's double good. GG
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Dog eyed,
Horrah for you, that's wonderful! How exciting to have all that behind you. And tomorrow when you smile at yourself in the mirror you'll just look and feel great and have one less worry on your plate! Is it smoothies for dinner tonight? -
I got the OK to delay my rads until next month, so maybe I will be joining the Oct group
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yeah Kate!
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Ok, not a good day. My breast is so sore that I must have woke up every hour last night. Every time I would roll over I was awaken by pain. Then, in the shower it looked to me that my left breast was noticeably smaller than the right. So, I took a closer look in the mirror, yep... smaller for sure! I asked the techs if this was normal, they said, yes. So, will it go back to normal after rads? Maybe... sometimes not, you see the RO tomorrow, ask him. Some women end up having implants after. WHAT????!!!! This was all supposed to be simple case, lumpectomy with no noticeable change in size, RADS and hormone therapy. I'm freaking out!!!! Anyone else noticed this happening? Anyone have any advice, please.... I so don't want any more surgery, but I can't handle being deformed!!!!!
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Hi stormy,
I take it the smaller breast is the one with the lumpectomy? I've heard that radiation can change the size of the breast (smaller) but am not sure by how much nor if it's permanent. My breast right now is swelling. Not painful but is now back to the size of the non-surgery side which is saying a lot because I had tons of dense tissue removed ( my choice). Hmmmmm
Janis, as a update to the pleurisy thing, my RO is on the side of radiation doesn't cause pleurisy. He says even if he were doing lung radiation it doesn't cause this. He does seem to feel it should be treated agressively though and recommends taking 3 ibuprofen 3 times per day for 2 to 3 days to actually treat the inflammation. He doesn't think I'll have another bout of it, but if I do I should see my primary care dr. He was more than willing to prescribe pain meds so I'd have them on hand if needed. I told him I thought not. He hasn't heard of any other case like this. So, there you have it......you and I are unique. But I bet we knew that.
I think it's a matter of semantics. I agree that the actual radiation beam doesn't actually cause this, as it does the burning of the skin etc. I think the toll the whole cancer treatment thing takes on our body can cause this. And, I'm prone to this already, having had pleurisy attacks before, just not this bad in 45 years. He did say he'd heard of people getting shingles during radiation. I've had those too, but. Ot yet ( knock on wood).
So, there you are! Meanwhile I feel much better. Can take an almost completely deep breath without pain and was able to take strenuous walks yesterday and today with no I'll effects. I've been taking sleeping pills the last couple of. Ights and that has helped along with an increase in protein.
So.....I'm game for more....anyone else want to join the fun?
Peggy who's successfully completed 7 of 33. -
Hello everyone. We've almost made it to Friday. Hooray!! #15 today. Still going well, but I am having a weird SE. My sense of smell has gotten so intense. Not good when deodorant free with a hairy left underarm! Everything smells so strong that it sometimes is affecting my appetite. I don't feel like eating because the smells get to me. I wonder if this is from the rads, the tamoxifen, possibly the onset of menopause? So many things going on with this body, who knows? I got some Vicks vaporub and some coconut lip gloss to put under my nose. Anyone else ever heard of this?
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Hi Ladies,
Today was day 7 of 30. 1/4 of the way done, almost.
Kate--Congrats on finishing.
Mostly Sew- I have noticed that my breast is swollen as well. The nipple really hurts. I have a sticker on the middle tattoo. it came off night before last and yesterday when I had rads, it was such an ordeal. 6 xrays and 30 minutes to get me lined up again.
Ceez, are you taking tamox while having Rads? I was told to wait until I am finished then start. I have already gone through menopause (hysterectomy 12 rs ago) at 39. But still get hot flashes.Well, Friday is approaching and I am taking the day off work and going to the beach with my nieces and their little ones. It's been very hot here in Northern Cali.
Hope everyone has a wonderful day tomorrow.
Clelia
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