MIDDLE-AGED WOMEN 40-60ish

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  • lwarstler
    lwarstler Member Posts: 341
    edited September 2011

    So excited about this wig I found. They gave me a synthetic wig for free at our cancer center and I am grateful but the hair was really scratchy on my neck. We live in a really small town and unbelievably, this little beauty store near us has all types of wigs really cheap so I decided to take a look. I got this exact silhouette human hair wig: http://www.silhouettehairs.com/goods_detail.php?goodsIdx=261 for $60 and it looks amazing. She is ordering it in my color and should be here in time for chemo. I am so excited that I will have something that looks good and doesn't scratch. It shaped like my hair was too before I cut it in prep for chemo. Happy Dance!

  • cmbear
    cmbear Member Posts: 1,086
    edited September 2011
    Welcome LeeAnn!! Hugs!! I bet you are going to look like a knockout in that wig. What's really great is when someone tells you that they love your haircut!! LOL. I think we ate all of Nancy's cake so here is one of your own--but you do have to share!!!
  • stjude10
    stjude10 Member Posts: 390
    edited September 2011

    Welcome lwarstler- I will not be too far behind you. I am still recovering from mx on Sept.7. Still have 1 drain, and am scheduled for port insertion on Oct. 13th. This is a great site, as many women on here seem to have a sense of humor like mine. The comedy relief is much appreciated. I have always had long hair but dreamed of a short, cool, rocker chick look. I think I'm gonna go for it here in a few weeks. I figure, it's gonna fall out anyway, so no biggie if I look stupid!

  • Paula66
    Paula66 Member Posts: 1,728
    edited September 2011

    welcome lwarstler.  I had mild bone pain from the nuelasta.  It wasnt enough to cause me problem that I couldnt handle.  I know some have swore that taking a clariten daily for 3 days handles this issue.  My Onc and the treatment nurses never heard that, so I didnt try it.  I thought if the pain was that bad I would.  Thank goodness it was mild and just a few asprins did the trick.

  • Denise2730
    Denise2730 Member Posts: 648
    edited September 2011

    Maybe I'm in denial but when friends & family ask how I am I tell them fine. I actually feel fine although I had one cancerous node. My oncologist wants me to do both chemo and the hormone blocker. As of right now I'm refusing the hormone blocker and depending on what my oncotype dx shows I will probably refuse chemo also.

    I know this may shorten my life span but I just want to put this behind me after the DMX. I'm anxious for my exchange and I want to go back to being just me. Chemo, losing my hair, more hot flashes, etc. is a constant reminder that I may still have cancer and I don't want to accept that yet. Only one positive node. Is that really such a big deal? Anybody else feel like this?

    Denise

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited September 2011

    chiluvr, There are women who had NO positive nodes, but would up with mets elsewhere in the body.  There are women who did do chemo, rads, hormone blockers, and they still wound up with recurrences.  There are women who did all the treatments and are cancer-free now.  Was it the treatment?  No way to be sure.

    You know what the worst case scenarios are for doing further treatment and not doing it.  Which will you be most comfortable with?  Any woman can choose her own "path" after a B/C Dx, but you are only at this fork in the road once. I know you will choose what is right for you.

  • stjude10
    stjude10 Member Posts: 390
    edited September 2011

    Denise, I think that everyone has their own personal choices, and reasons for those choices. I can see where you're coming from. My choice is to do whatever necessary, as sucky as it is, to not have to live with the worry. I wish you the best on your journey, regardless of the path you choose. Hugs!

  • SAB
    SAB Member Posts: 1,498
    edited September 2011

    As Elimar point out, it is hard to predict what will happen in the future.  We all have to make our own life choices, but for me it was important to be aggressive about treatment. The bc may come back, but at least I will know I did what I could.  My question is, will refusing treatments help you to forget about the bc and "leave it behind you?" For me, not doing the treatments might make me think about it more.  I wish you the best luck, whatever path you choose.

  • KittyGirl2011
    KittyGirl2011 Member Posts: 537
    edited September 2011

    Denise,  What you choose is always a path that you will be happy with no matter what happens in the future.  There are no guarantees of success no matter our choice.  I chose the most up-to-date path and took the chance of relying on new technologies with the mammosite rads.  But I'm happy with that choice and will not regret it no matter any consequences.  I did choose to do hormone tx and for me the SE's are very minimal to none.  Be happy with your choice and you can move beyond BC.  (((HUGS))) and stay strong.  Kitty

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited September 2011

    p.s.  It's just not like me to miss an opportunity to be cynical...  Speaking of "making a choice" on treatment, is there anything more loathsome than reading those statistics and studies?  Yes, I did do my homework to make an informed choice, but I really felt only slightly more confident than I would consulting a Quija board or Tarot cards.  There's just no way to know which statistical group anyone will fall into.  Maybe I'll get lucky?

                                                     

                         

    There, I feel better now.

  • stjude10
    stjude10 Member Posts: 390
    edited September 2011

    Hey elimar, love the pic of All My Children. I grew up with them and they will be missed. Also, I'm right there with you in reference to the Tarot cards and Quija board. Too funny! Roll the dice sister!!

  • Sherryc
    Sherryc Member Posts: 5,938
    edited September 2011

    Is All my Children being cancelled?  I still watch it on soapnet

  • stjude10
    stjude10 Member Posts: 390
    edited September 2011

    Sherry, I think ABC cancelled All my Kids and One Life to Live. Not sure if any others have been axed. Last I heard, they were going to tape new episodes to air on the internet. It's sad, really. A piece of history going away.

  • SAB
    SAB Member Posts: 1,498
    edited September 2011
    Goodbye Ericka!
  • jo1955
    jo1955 Member Posts: 8,543
    edited September 2011

    Denise - Treatment choices are so individual there is not a right or wrong answer.  We know our bodies best and have to believe we are making the right choices for us.  I did not rads and Tamoxifen - did not need chemo.  In this crap shoot called breast cancer, I wanted to do what I could to prevent it from coming back.  Is it already back?  Only time will tell and I am not going to lose sleep wondering.

  • Kay_G
    Kay_G Member Posts: 3,345
    edited September 2011

    Just back from the simulation.  Why am I so tired?  Probably because I didn't sleep at all last night.  Holding my arms over my head for the 40 minutes or so was not hard.  But after, the tech said you can bring your arms down.  I said no I can't.  The left was fine, but the right was clenched on to the handle and I could not get it to open.  The tech had to pry it open.  It was asleep, but okay after a while.  Got some tattoos and made some appointments to start 28 rads in 2 weeks.

  • lwarstler
    lwarstler Member Posts: 341
    edited September 2011

    Stjude: I saw these visors with spiked hair sticking out the top on e-bay and am thinking of getting one just to be able to have fun with.


    Paula, I'm glad you didn't struggle with the neulasta. I remember my mom had bone pain so bad, she would actually cry in her sleep. It has had me really scared so I bought Claritin, but I am glad to hear it wasn't bad for you.


    Denise-In the beginning I thought I might skip chemo, then they said it was stage III, but when the doc said chemo basically reduces risk of recurrence by 25% and I could be cancer free now or not I thought about it again. In the end, I decided that I have been through enough and don't want to do this again, so I am going all out. However, I agree that you have to think about what you will live with best in the long run and go with that. I'm sure you will make the best choice for you, just make sure you get all the facts so that you can feel confident you made the best choice five years from now.


    Kay...ouch on the clenched hand. I know how it is when those muscles start to relax. Glad it wasn't bad during the simulation.

  • Paula66
    Paula66 Member Posts: 1,728
    edited September 2011

    Denise I know its hard to deceided on all this.  You have to do what you feel is right for you.  Dont let anyone talk you into something you are not sure about.  You can please anyone in the end.  You have to do whats right for you.

    When I found out for the second time I had BC I was shocked and stunned.  I didnt think I was going to be going down that road again in less then 2 years.  All my options were laid out to me and I did alot of reading and talking to others about their experences.  I even had people who thought I was off my rocker for have both my breast removed at 45 years old.  Alot of people just dont understand what goes on when you are told you have cancer.  Its easier for them to tell you what they want you to do. Some people dont understand what being BRCA+ means and what my family history is.  Once they heat alot of them understand, some dont but thats ok because in the end its my choice and noone else's.  They are (or were) my boobs and my choice on how I wanted to be treated before during and after.  Cancer had my boobs but thats all I wanted to give it, nothing more nothing less!

  • janinnj
    janinnj Member Posts: 89
    edited September 2011

    Iwarstler-I hac chemo 4AC + 4Taxol.  The Nuelasta did give me some minor bone pain and the Claritan definitely helped but it wasn't that bad. I did have alot of joint pain about day 3-5 from the Taxol.  My MO offered me more meds to fight this but I'm not one who likes to take alot of drugs.

    Denise-  Are you considering Radiation?

  • Denise2730
    Denise2730 Member Posts: 648
    edited September 2011

    Nobody ever mentioned radiation to me so I'm assuming I'm not a candidate. I'm not sure where they would direct the radiation since I had a DMX. The way I understand it - that one stinkin' lymph node that was positive could have put a cancer cell(s) into my bloodstream which is why they want to do chemo, in the event that the cancer did travel. My attitude, however, is why poison my whole body in the event cancer MAY HAVE traveled.

    I have always felt this way about chemo, even 30 years ago before all the advancements were made. If they could give me 100% guarantee that if I did chemo it wouldn't ever come back I would do it but since they can't I'll take my chances.

  • nancygv55
    nancygv55 Member Posts: 32
    edited September 2011

    Kay, glad you made it through the simulation.  I'll try to keep my arm from falling asleep during my simulation on Wednesday but something tells me it will happen or not and I won't have much control.  Hope you get a good night's sleep tonight and from here on out.  I'll let you know when I find out when my rads start.  Oncotype results tomorrow so I hope and pray that I'm a big fat zero...or close enough.  Have a good evening, ladies.

  • justmejanis
    justmejanis Member Posts: 1,847
    edited September 2011

    lwarster...welcome to a great group.  Sorry you had to join, but you could not have landed in a better place.  Great people here, period.

    chivlur...everyone is different and so is every cancer.  You have to make the choices for your treatment that you are most comfortable with.  As long as you are happy with your choices, then that is enough.

    Paula..no gall bladder.  It is funny becasue the stabbing pains kind of remind me of when I had my major gall bladder attack over 20 years ago.  it was horribe and they say the pain mimics a heart attack.  Well, have ruled that out of course.  This pain was stabbing, sharp, and it hurt to try to take deep breaths.  Very nasty.  I am going to see a different RO tomorrow.  Mine is on vacation and I usually don't go on Tuesdays, but my techs wanted me to.  I have no idea if he will have any better take on what this is.  Now that I have had it twice I am scared of it hitting again.  At least this time I stayed home and just laid still and took pain meds.  The pain did not subside until late Saturday night.  The attack began at 9:30 in the morning.  Nasty stuff!

    Hope everyone is doing great.  Hauntie.....how are you feeling now? 

  • Paula66
    Paula66 Member Posts: 1,728
    edited September 2011

    Well Janis I am glad its not your GB, but darnit I wish they could figure this out for you.  I'm sure you do to!

  • Hauntie
    Hauntie Member Posts: 483
    edited September 2011

    Janis - The area of nerve irritation is getting smaller, but still lots of strange sensations. I'm 4+ weeks out and the incision is still sore especially where the drains were. I don't remember having this much difficulty with my first MX 17 years ago. Of course, I was 17 years younger then. I guess the younger you are, the quicker you heal.

    I hope someone figures out what's going on with these pain attacks you're having and soon. I know this was mentioned before, but it sounds like pleurisy, especially the intense pain when breathing. I've had it a few times, but it's always happened after a respiratory virus and goes away pretty quickly.

  • SAB
    SAB Member Posts: 1,498
    edited September 2011
    Sometimes the things we do to our bodies to fight cancer seems outrageous.  I know we've made so many medical advances, but I keep thinking about Dr. McCoy on Star Trek saying "It's barbaric I tell you!"  I hope for better, gentler treatments for our next generation (sooner would be OK too Smile.)
  • Hauntie
    Hauntie Member Posts: 483
    edited September 2011
    SAB - Well said. I'm reading a book "Bathsheba's Breast - Women, Cancer & History". It seems we've been treating this horrible disease the same way since the beginning of time - slash, burn, poison. The surgery may be less radical. The radiation more targeted. The poison, however,  just seems to be getting more poisonous. When will they find a better way to treat it? When will they learn how to prevent it? Where is our cure?
  • jo1955
    jo1955 Member Posts: 8,543
    edited September 2011

    Hauntie - Makes you wonder where all the money for ":cancer research" is really going?

  • Sherryc
    Sherryc Member Posts: 5,938
    edited September 2011

    Stjude I am sad that All my Children and One life to live will be off the air.  Grew up watching those and when in college made sure my schedule was around all my children.  Love Soapnet so I can watch it at night when I am at work.  Guess everything becomes history at some point.

  • Denise2730
    Denise2730 Member Posts: 648
    edited September 2011

    Janis - it sounds like pleurisy to me also. I had it back in March and I remember it hurt to breathe, especially to take a deep breath.

  • cmbear
    cmbear Member Posts: 1,086
    edited September 2011

    Janis and Hauntie--I am sad that you are still in so much pain. Here is to gentle and quick healing. I get stabbing pains in various places and my docs are totally unconcerned. I think our nervous system is totally out of whack after what we have been going thru. that and what might have been a minor problem before BC is quadrupled because our immune system is spent. What we do have left is focusing on the BC and its treatment. 

    Denise- your decision is yours and yours alone. There is no right or wrong, we all have our own diagnosis and reasons for going down that path.  Just remember to be diligent on getting tested and scanned in the future.

    As for All My ChildrenCry Can't believe its being replaced by a talk show. There is already enough talking heads on tv--give me back my fantasy world!!! I want to know there is someone out there that has more problems than me!!!! However it is sad to watch Tad Martin become the elder male star of the show--Tad the Cad, such great memories!! 

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