Getting off of Effexor

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Melonda
Melonda Member Posts: 309

I started taking Effexor in January of 2009, right after my ooph when my hot flashes got unbearable. I quickly had to up my dosage to 150 mg and have been on it since. It really helped me for a while but recently I've been feeling like I don't need it anymore.



I've heard the worst horror stories about getting off this drug, so I've been very careful and came up with a plan on how to get off it without issues,



I had a bad time for the first few weeks, I got really depressed really quickly and was feeling pretty crappy. I'm about halfway into it now- 6 weeks actually and I'm already at just 37.5 mg, the smallest dosage. I've been doing ok for the last week or so. I hope the next 6 weeks go as well!

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  • Melonda
    Melonda Member Posts: 309
    edited September 2011

    This 37.5 dose I'm taking is giving me some issues, I may stay on this dosage for a bit longer than 2 weeks. I'm slipping back into the depression again a bit :(

    And I'm so surprised no one has comment on this! This was a big topic on the other place.

  • Kimmer1975
    Kimmer1975 Member Posts: 423
    edited September 2011

    Oh man! I can relate to this post for sure. I was on effexor for 5 years and it took me MONTHS to find a doctor who could help me get off of it. The side affects of coming off that anti-depressant were worse then the symptoms I was taking them for. I had brain zaps, within 2 days of coming off I was an emotional wreck and felt like a ticking time bomb. I would be crying for no reasons and literally thought I was stuck taking them the rest of my life because I could NOT get past the withdrawal symptoms. EVERY doctor I talked to said it was all in my head because they didn't have addictive affects! YA RIGHT! It still makes me mad talking about it. It was a horrible horrible experience. Finally, I found a doc who knew exactly what I was talking about because he had other paitents go through the same thing. So he was able to get me off the medication without any issues what so ever. He put me on Cymbalta to come off of the Effexor and I literally had NO side affects and was easily able to stop the Cymbalta few weeks later. I had been trying to get off the Effexor for almost 2 years to no avail. I had even went so far as to open each capsule and reduce the small balls/beads 2 a day in hopes after WEEKS of minimizing the dosage in such small amounts would help. The psychiatrist who gave me the script for Cymbalta was my hero! If I had even went away for a weekend and forgot my medication, I was a wreck within 48 hours. I was on Effexor for anxiety. So really, I am not fibbing when I say the side affects of coming off of it REALLY was worse. The longest I went was a week and by the end of that week I felt suicidal and went back on it. It wasn't depressing kicking in, it was because of the Effexor withdrawal. I am no longer on any medication and haven't been for over a year now. I was and still am, so thankful for the doctor who knew how to get me off that horrible medication without any side affects. 

    Man, I would never ever ever, recommend that medication to anyone. Ever. I think it should be banned!!! Doctors don't even listen when you try and tell them because the drug company claims there isn't anything addictive in it. I think they should all be required to take it and then try and come off it a few months down the road.

    Sorry this is so lengthy and my opinion is so strong, but it really did mess with my life for a very long time. I am still angry about the whole situation. HORRIBLE medication!

    Kim 

  • Kimmer1975
    Kimmer1975 Member Posts: 423
    edited September 2011

    Melinda, I should add, even at the small dosage, within 48 hours of being off of it, everything would flip turn upside down. People mistake the symptoms as a recurrence of depression and it's not. It's a symptom of withdrawal. The ONLY thing that worked was Cymbalta and I tried EVERYTHING! 

  • Kimmer1975
    Kimmer1975 Member Posts: 423
    edited September 2011

    Yes. I thought I was nuts or something when I first experienced them. I was away for a weekend picking up my Mom from the airport when it happened. The only thing I had done was forget to take my medication. I figured at the time, that couldn't be it. It felt like a very small electrocution or something. I put two and two together, when I realized the next time I had that feeling, I had also forgotten to take my medication. Then I knew for sure, when I tried to come off of it. Ugh. Yes it was horrible and I hated it too!

  • Melonda
    Melonda Member Posts: 309
    edited September 2011

    I've heard horror stories from so many people! I really liked it for the hot flashes I have to say, I think it really helped me a lot.

     Luckily I did a ton of research due to seeing bad stories like that so I came up with my own schedule and brought it to my Dr and she agreed to use it :) I am using Prozac to help me get off or it right now. I'm thinking maybe when I'm done i should try Prozac by itself for the AD part of it. It's hard to decide what to do.

    I experienced those brain zaps when my pharmacist gave me generic effexor for the first time a few months ago, I thought i was insane, it took me 3 weeks to figure out what was wrong with me. I did NOT want to go through that again!

  • carcharm
    carcharm Member Posts: 486
    edited September 2011

    OMG I too have been on it for 3 years and recently weaned off it. I can't function. I get brain zaps, I'm throwing up, dizzy, hot than cold, brain shivers, and every muscle aches. I am/was seeing a psych for the script with clonapin for muscle relaxation. I think it is a big mistake.My psych never called my pcp and vice versa. I was having trouble sleeping. I went for a sleep study and they found I was waking 20 times every night. My pcp said it was due to effexor and stop taking it. I weaned off it way too fast. I am having horrible withdrawal. I've missed so much work because of it. The psych  thinks I can drop everything and run to her office WHEN she has office hours not when it's convenient for me. It's horrible. My advice: Never ever take this drug... it's horrible.

  • jc3win
    jc3win Member Posts: 61
    edited September 2011

    I am still on Effexor and am really terrified to even try to come off it. I forgot to get my script filled for two days this week and by the end of the second day, I really thought I was losing my mind. I had to leave work and rush to the pharmacy. I opened the capsule and chewed some of the little balls of med just to get it back in my system quicker. I fell better today - much calmer but going with out it for just 2 days was living hell. It is really scary...

    Melinda, how is your weaning process going? Do you notice a difference? Is it tolerable? Is your anxiety increasing.

    I even had to take an ambien to sleep the night that I skipped the 2nd does b/c I was "sleeping"  in this weird twilight sleep with HORRIBLE, anxiety filled nightmares. Totally irrational but very real feelings of fear in my dreams.

  • Melonda
    Melonda Member Posts: 309
    edited September 2011

    I am at the end of my weaning off process.

     I've been taking 37.5 for the last 2 weeks and this week I went to every other day and for the first time I noticed some side effects from it. I think this last step is going to take longer than the rest. My head feels off today and reminds me of when I would skip on accident. I think I'm going to try taking it 2 days, 1 off, 2 days, 1 off and then go to every other day. 

    But honestly until now I've been very very happy with my weaning off process. SInce I was on 150 I was terrified it would never happen- I gave myself a 12 weeks schedule though so I did it very very slow and used Prozac as well to help with the side effects. I think I'll have to extend it another 2 weeks so 3.5 monhts to get off a drug, that's so crazy!

    But I do think it's doable if you do it this way. If anyone is wanting to try to get off of it contact me and I'll give you the scehduel I was doing. 

    I'll update in another 2 weeks when I hopefully am off for good. I still cannot say that Effexor was horrible, it really helped me with the flashes for a long time. But it IS scary how horrible it is to get off of it!

  • Kimmer1975
    Kimmer1975 Member Posts: 423
    edited September 2011

    I tried doing the weaning too. Several times. It was always a disaster after a few days. It didn't matter how hard I tried or what I tried, the withdrawal always got me. I know I said it before but I have to say it again. My psychiatrist learned a way to get people off Effexor without the withdrawal. He used Cymbalta. I was absolutely terrified the day I had to stop taking the Effexor. I even told my hubby "Please don't leave me if I lose my mind". It was half joke, half serious! My psych put me on the lowest dose of Effexor for 1 week. I finished my script of Effexor on Monday, started Cymbalta on Tuesday. I was waiting in dread for those 48 hours to determine if I was going to start having withdrawals. I didn't not a single solitary meaneal little brain zap. Not a tear, nothing! It worked so perfectly and I was shocked. I had wished I had met that pyschiatrist years before. I thought I was stuck on that terrible medication for ever. I too had horrible sleeps and nightmares when I was taking it. It truly was an awful drug. I can't even believe they still have it on the market. It took me one week to get off of it. One week of the lowest dose, then switch to Cymbalta which allowed me to do so, with no side affects. One month after taking the cymbalta, I too stopped it and never had an issue. It's truly the easiest and most pleasant way to get off that medication. 

  • spendygirl
    spendygirl Member Posts: 231
    edited September 2011

    Hi all - about six weeks ago I quit cold turkey.  I know one should never do that,but I was so tired of feeling like crap every day (taking Femara).  I'll admit the first four days were bad, especially the brain zaps.  But after that, each day was a tiny bit better.  I have no effects now at all.  And it's like I can see in color again.  I do cry much more easily, but that's a small price to pay for being so much more 'with it'.

    As an aside, when I told my doctor what I had done, he told me to immediately go get 5-HTP.  It really does help with the moodiness.  Hope this helps.

  • carcharm
    carcharm Member Posts: 486
    edited September 2011

    spendygirl - What is 5-HTP?

  • spendygirl
    spendygirl Member Posts: 231
    edited September 2011

    It's a supplement.  Got mine at CVS.  To me it really does help, take it at night because it might make you sleepy - it makes me not so mean, like I used to be when I was PMSing.  Might be worth a try for you!  All the best.

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