Received DCIS Diagnosis - Comments Invited

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  • eileenr56
    eileenr56 Member Posts: 135
    edited September 2011

    HI,  I think you're seeing women being very protective of other women. 

    I was diagnosed a year ago.  Had lumpectomy and radiation.  I was very fortunate to have a great experience. Lots of women just get lumpectomies and radiation. When I did my research, I would only look at stuff that was about DCIS because I didn't want to scar myself.   

    What I discovered at the end of the day is that I had to be satisfied with whatever decisions that I made.  I would read, like you are, and talk to my husband and we come up with a decision that is right for me.  Just like you and your wife will do.    If you feel you've made the decisions that are right for you, then you'll feel you've done the best you can.   When you see the doctor it should make things much clearer.

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  • BlairK
    BlairK Member Posts: 399
    edited September 2011

    Thank you for the latest round of posts.  I am home after the 14-hour flight - even with a bad cold.  I enjoyed The Blind Side and The Last King of Scotland on the flight.  Having arrived home, I can report that my wife seems in good spirits and she and my kids are happy that I am home.  The kids ran out to greet me and my car service in their Taekwando outfits.  We did not talk about BC, that will be tomorrow with the doctor.  She did let me read the pathology report.  There was extra information in it such as there were actually 4 samples (three breast samples - core biopsies and one sample of calcifications) taken and all of them had DCIS.  Only one of them had comedo-type with necrosis and the others had non-comedo type.  Three of the samples were 3 cm by 0.5 cm in size but I do not know how to relate that to the size or dispersion of the DCIS.  Even though I understand all the terms in the report I still need a doctor to explain and interpret it.  So I am going to sleep and then we go to the doctor tomorrow.

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  • dblh1227
    dblh1227 Member Posts: 34
    edited September 2011

    BlairK, just know that we are all thinking about you and your family.  Hoping that you get questions answered and some peace after talking to doctors!  We have all been there......and it does get easier to talk about with time and knowledge.  GOOD LUCK!

    dblh1227 (Heidi)

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  • MimiDPL
    MimiDPL Member Posts: 7
    edited September 2011

    Meg M - Another Hodgkins patient with DCIS besides me!  I'm sorry you had both, but am wondering why with everything that is written now about radiation they weren't watching closer, and my symptoms didn't ring any alarm bells.  I had to practically insist something wasn't right!  I had Hodgkins in 1981, and have had a double mastectomy one in 2006 and one in 2009.  I am currently waiting to have a very sore hard spot on one side checked out.  Waiting is the pits!  Thanks for your post, you are a blessing.

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