My insurance doesn't want to pay for chemo

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I just got a call from my onc office and she said that my insurance is terrible.  I thought that I only had to pay out of pocket up to $2500 and now she says that they will not pay for my chemo treatments,set to start Tuesday and my cost for each treatment is $3249 plus the cost of the Neulasta shot.  I am in shock and do not know what to do.  She reassured me that there were grants and programs that will help me but I now feel like I cannot breathe. 

Maggie

Comments

  • Beeb75
    Beeb75 Member Posts: 325
    edited September 2011

    Hi Mags,

    Well, that sucks. But there are options for you. I had really crappy insurance too when I was diagnosed and I found a bunch of programs that could help. Try CancerCare -- give them a call and see how they can help. Also, for the drugs you need, you can contact the drug companies directly -- most of them have a program to help patients in need. There's one for Neulasta, and one for Emend, the anti-nausea drug you will likely need. I'm sure there are others too. You will have to spend a lot of time on the phone and filling out forms. Start organizing and saving all your financial info -- your rent/mortgage payment, utility bills, credit card bills, pay stubs, etc. -- but if you are persistent, you can get the help you need. My efforts along these lines saved me tens of thousands of dollars. Another thing to consider is applying for financial aid directly to your hospital/clinic/doctor's office. If worse comes to worst, get the care you need, rack up the bills, then declare bankruptcy. It would suck, I know, but really, what choice do you have? You need this treatment to save your life.

    Good luck! 

  • Leah_S
    Leah_S Member Posts: 8,458
    edited September 2011

    Mags, I don't know a lot about insurance in the U.S., but from what I've read you can appeal. Chemo in your situation is considered standard of care so I don't know why they're denying it.

    Best of luck.

    Leah

  • Wabbit
    Wabbit Member Posts: 1,592
    edited September 2011

    I too would call the insurance company yourself and double check that information.  I've heard of insurance paying very little toward treatments but denying it completely seems way out of line.

    They certainly can't say it is not medically necessary ... unless they need more information from the onc or something has been coded incorrectly??

    Best wishes to you ... you certainly didn't need this aggravation too  (((hugs)))

  • Moderators
    Moderators Member Posts: 25,912
    edited September 2011

    Mags,

    The Paying for Your Care section on the main Breastcancer.org site might be able to help.

    Hope you find the answers you're looking for!

    --The Mods

  • Teka
    Teka Member Posts: 10,052
    edited February 2012

    Mags,

    Have an attorney file a grievance and handle any necessary appeals.   

  • mags20487
    mags20487 Member Posts: 1,591
    edited September 2011

    so here is the scoop on the stupid insurance denying the chemo.  The MO has a chemo room in her office and they do not cover it unless it is given in a cancer center, hospital or outpatient facility.  So the MO has agreed to give me the treatment in hospital and I am trying to get the Neulasta shot covered as they do not want to pay for that.  Applied for a program for it and should know if I get approval as she put urgent on the application.  Hopefully I can still start the chemo soon!!!!  Called around and cannot even get in for a consult for two weeks...bleh...hate insurance! On the plus side for today..my pet scan came back CLEAN!!! happy dance happy dance

    Maggie

  • lauri
    lauri Member Posts: 267
    edited September 2011

    WHY doesn't the insurance company think they should not pay for Neulasta ??  Obviously they don't WANT to pay for anything, but where in their contract with you do they specifically deny coverage ?

    In my experience, they often deny first ... and when challenged, back down or give a reason that you can get around (for example, moving the location iof your chemo as you have done.)  Would they cover the Neulasta if you self-injected at home?? (Did it -- no biggie.)  Or if your oncologist wrote the reason it's necessary in your case ??  

    My SO got denied several times for lab tests -- finally the hospital noticed that they had misspelled his name on the claim so the insurance company kept denying as "no current insurance".  And on my bills I had to tell the hospital three times (in writing) that my OLD Blue Cross had been replaced by a NEW Blue Cross -- finally wrote this across the front of the "this is about to go to collections" notice with a note that "If you send it to the right place, you will get paid."

    However, coverage that you have to fight for is better than no coverage at all.  

    Keep fighting !

  • Teka
    Teka Member Posts: 10,052
    edited February 2012

    Your MO is the problem.   My MO wouldn't allow me to self medicate because each Neulasta injection cost thousands.    OOPS!    I've been giving injections for over 30 years.

  • gale1525
    gale1525 Member Posts: 232
    edited September 2011

    My insurance didn't want to pay for the Neulasta they did pay for Nupogen instead check into that.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited September 2011

    Some insurance will not pay for prophylactic injections of Neulasta/Neupogen.  If you have CBC's done weekly (and you should) and there is a precipitous drop in your white cells, then they will pay for it because there is proof that you require it.

  • mags20487
    mags20487 Member Posts: 1,591
    edited September 2011

    thanks all for the suggestions.  Called insurance this morning and they are looking into why it was denied as I have a prescription coverage with the insurance.  If not I have applied for a program that pays for the shot for me.  Should qulaify as my husband has not had any steady work for 4 yrs and my kids' store only just started to provide income that is half way decent.  Fingers crossed hope to get first chemo next week.  Port was placed tomorrow so I am ready. 

    Maggie

  • gale1525
    gale1525 Member Posts: 232
    edited September 2011

    I have also found that some drugs are not covered under the prescription portion of coverage, but it is covered under the medical portion of a insurance I don't know why that is, but call your insurance plan.

  • shells43
    shells43 Member Posts: 1,022
    edited September 2011

    Mags,

    I got through chemo fine without Neulasta shots. They will check your blood counts weekly and if they are good then there is no need to boost your counts artifically. You can just wait and see on this. Like SpecialK said, they might pay for it IF it becomes necessary, but not until. It also has side effects, so do some research first.

    I just finally had a bill from January paid that the hospital was trying to collect from ME because insurance hadn't paid it and it turned out they were sending the bill to the wrong P.O. Box at Blue Cross Blue Shield. You really have to watch them!

  • mags20487
    mags20487 Member Posts: 1,591
    edited September 2011

    My Mo is adamant about giving the shot after the chemo.  not going to stress anymore about it.  If I have to I will just credit card it for now just to get moving on treatment. I am 4 weeks post bmx on tuesday.  i have bcbs as well...just realized in my last post that I said port place tomorrow but I meant yesterday..gotta love these drugs!

    Maggie

  • mags20487
    mags20487 Member Posts: 1,591
    edited September 2011

    Insurance gave in to my constant phone calls...hahahaha.  I start chemo tomorrow with a Neulasta injection on Thursday.  Not sure how to feel....nervous...excited ...scared....everything

    Maggie

  • Leah_S
    Leah_S Member Posts: 8,458
    edited September 2011

    Mags, best of luck with your chemo!

    Leah

  • lwarstler
    lwarstler Member Posts: 341
    edited September 2011

    Maggie, that's great! I'm so glad you can finally  relax about the insurance so you can focus on getting well. Good luck today, I guess the good news is that there is no right or wrong way to feel, its just kind of a roller coaster ride of ups, downs, twists and turns. Lets hope its all downhill from here :)

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