Who to call? When to call?

Aw, sundermom, I'm so sorry! I sure do understand the panic, but want to reassure you this is all going to work out and you'll get your life back again.

Let's sort out the tight, heavy, and numb first. Sure could be the start of LE, but if so it's the very earliest start and that's great news -- when you seek treatment this early, gaining control is much easier, and with some awareness on-going you can expect it not to progress. What you need is a prompt evaluation by a well-trained lymphedema therapist. Here's how to find one near you:
http://www.stepup-speakout.org/Finding_a_Qualified_Lymphedema_Therapist.htm

And what you need for that is a referral from any doctor on your team. Doesn't matter which one -- whichever one is most likely to listen to you. None of them treat it themselves, some of them don't know squat about it, and most of them won't take any responsibility for it, but that's okay -- all you need is the referral. Smile, speak patiently, insist.

IF the sleeve is a really good fit, and IF you have a glove or gauntlet to wear with it, you can wear them until you get an appointment. NOT at night, though, as they can twist and constrict lymph flow. Here's information about how to judge a good fit for a sleeve and gauntlet or glove:
http://www.stepup-speakout.org/proper_fitting_of_lymphedema_garments.htm

And here are some ideas of what to do for yourself until you get in to see a good therapist:
http://www.stepup-speakout.org/How_You_Can_Cope_with_Lymphedema.htm#while%20waiting

If all that's too much information, just concentrate on getting a referral. Then you can go from there. One day at a time (hmmm, where have you heard THAT before!)

It's gonna be okay!

Keep us posted. Gentle hugs,
Binney