Calling all ladies in their 20's

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  • Melanie_Ann
    Melanie_Ann Member Posts: 414
    edited August 2011

    Bimmer- I finished radiation on Thursday. I saw my ONC two days before and he wants to see me back in 3 months. He said we would talk about scans then. As far as their concerned my cancer is gone, but my mom requested a follow up scan so he said he would. He just wants to wait for a few months b/c radiation can make things appear like cancer so I'm going to take time to heal first. If you want one, just ask!

  • Mandy85
    Mandy85 Member Posts: 31
    edited August 2011

    Thanks Melanie_Ann for the welcome, I just got my lumpectomy done monday, the Dr, said I am negative on my lump nods, which is good. Now I am waiting for the final result (which is the final pathpologist report) and see what my Dr going to tell me. Then I am go see my Oncologist for the treatment.

    Hope radiation is not going to hurt! 

    Mandy

  • Melanie_Ann
    Melanie_Ann Member Posts: 414
    edited August 2011

    Mandy- that's great to hear about the lymph nodes! I am actually done with radiation...and chemo and surgery. I thought chemo was the worst out of all three but everyone reacts differently. I finished chemo in May and it already feels like a distant memory. I finished radiation last week. Radiation wasn't too awful bad in my opinion. I thought the worst part was putting my arms over my head everyday. My shoulders would sometimes hurt, but I survived! =) Let us know what your treatment plan is.

  • Mandy85
    Mandy85 Member Posts: 31
    edited August 2011

    Melanie Ann, thanks for the support. That is great to hear that you are done with radiation, chemotherapy, and surgery, now you can live your life normal again, but what is normal life? Anyway, I will give you an up data of what the treatment is. I hope radiation isn't too bad, b/c I am really affraid of pain. :)



    Mandy

  • Mandy85
    Mandy85 Member Posts: 31
    edited August 2011

    Melanie Ann, thanks for the support. That is great to hear that you are done with radiation, chemotherapy, and surgery, now you can live your life normal again, but what is normal life? Anyway, I will give you an up data of what the treatment is. I hope radiation isn't too bad, b/c I am really affraid of pain. :)



    Mandy

  • NannaBaby
    NannaBaby Member Posts: 510
    edited August 2011

    Hola Senoras!!!

    I had a great time in Cuba!  I had a hard time not drinking alcohol though! LOL Because I'm on blood thinners still, so I couldn't endulge :(  I only had a few sad moments about my boobs... occasionally I could see kids starring.  It's funny how kids can make it look so obvious! The one peice suit fit really well and my prosthesis didn't flop around, but it was hard to get in and out of when nature called! So I mainly wore my cheap tankini.  Which didn't support my prosthesis well :S I can't wait for my reconstruction! I should wait 1 year post rads... which maens April 2012.

    Welcome to all the new young ladies!  It sucks to c so many of u, but I am glad u found this thread :)  We are a bunch of awesome chics! That know how to kick ass!

    I have done Adriamycin, Cyclophosphamide, Taxotere, Cisplatin and Vinorelbine chemos.  Had a unilateral Mastectomy and 25 rounds of daily tomo radiation.

    Lately I have been worrying about going back to work.  Chemo brain... I am worried about feeling stupid at work!  Because my memory and concentration is crap since chemo! :(

    And since putting my dog down before the summer and LibraryJenn's death, I haven't been handling the thought of death very well :(  Little things seem to trigger death thoughts and send me into a depressive trip :(  I will see my shrink soon!  I can't get all emotional and sad just out of the blue when a song, commercial or something else reminds me of death or getting sick!

    I'll keep in touch!

    Stay STRONG!

  • Natalie28
    Natalie28 Member Posts: 1
    edited August 2011

    Hi,

    Sorry to hear about your diagnosis and all my wishes for a good recovery x

    I hope you dont mind but i wonder if you could give me any advice.... even though you are really the one who needs support!

    I found a lump in my breast and was sent to the hospital, after a scan they doctor said she thinks i have a fibroadenoma but said as i am 0ver 24 (i am 28) she wanted to do a biopsy to make sure.

    I just wondered if when you first saw the doctor they said the same thing? I have been doing research and it dosent seem that commom to have a biopsy for this lump, so i am worried the doctor suspects it may be something else!

    I have 2 close relitives that dies form breast cancer.

    Thnaks for your time and good luck with everything

    Nat

  • Melanie_Ann
    Melanie_Ann Member Posts: 414
    edited August 2011

    Hi Natalie. I would go ahead and get the biopsy just in case. It pays to catch BC as early as possible  The biopsy wasn't so bad in my opionion. I hope it's nothing!

    Mandy- life doesn't really feel normal yet...I still have LE to deal with so it's a constant reminder that I'm not the same. But life definitley moves on. People still have high expectations of you. I get a little frustrated at times b/c I just want to hide in a hole and deal with what I went through the last 8 months. But it's been hard to find time. I got so behind on cleaning and organizing through all of it, so if someone offers to help with that, take it! I still have tons of stuff to clean and organize, but now I'm so busy again, I don't have time.

    I do feel good though and I find that it is a real mood lifter to feel good again. I've started running and exercising again. I sleep better and feel more rested each day. These things make me feel as if I'm on the mend.

    Nanna- sorry you're dealing with thoughts of death. I have had moments where I'm gripped by an all-consuming fear that I'm going to die. It's just happened a few times but it's scary when it does. I've found that my faith has helped me a lot in this area. I try to remember that today is all that anybody has. No one is promised tomorrow. So I remind myself that even though I had cancer, I am no different than anyone else. Others face illnesses and tragedies equally as frightening as this. But allow yourself to work through your emotions. I had a friend give me some great advice. She said that God gave us all of these emotions and he experienced many of them himself. So 1st we need to recognize our emotion and allow ourselves to momentarily feel them. Then she told me to ask God why I'm feeling them, and then give them over to Him. I practice that quite often. I still have many moments of fear and uncertainty but I try not to let them overtake my joy of living. I believe that those that have passed on, would do anything for another day. So I try to remember that each day is a new blessing, and try to live it with as much joy as possible. I feel like I succeed about 80% of the time. =)

    I hope that helps some. I don't want to sound preachy but ya never know what might help someone else, so I try not to be my usual shy self all of the time.

    Have a great day ladies! 

  • kyroheal
    kyroheal Member Posts: 48
    edited August 2011

    Hey Melanie-Ann

    I like you outlook and appreciate it alot. My faith has helped me through this entire process as well.

    Sandy

  • Mandy85
    Mandy85 Member Posts: 31
    edited August 2011

    Melanie_Ann, 

    Thanks for the support, well, normal life, like you said, we or I never be the same until I am done with all these treatment. Anyway, as I said before, I will updata my treatment, so I went to see my doctor for the follow up, she give me a great news. The report came back with negative, everything is negative. But still need to go through radiation.  Have an apointment next month with medical oncologiest, then radiation, also need to do a gentic testing for mutation. But other than that, I been happy and now I am back with planning and reserching for my wedding next year!

    Mandy

  • texasrose361
    texasrose361 Member Posts: 1,829
    edited August 2011

    Wow i have been busy this summer too and havent had a chance to get on

    Devestated for Jenn :( i will pray for her family

    Rebekah- I had a bi lat mx and i am glad i made that decision because it was really right for me, but look at my stage and all that- thats what made me go with bi lat

  • NannaBaby
    NannaBaby Member Posts: 510
    edited August 2011

    Thanks MELANIE ANN for the encouraging words, you are right.  I am not a "religious person", but I am a confirmed lutheran. I do pray once and a while, I should try it a bit more.

    One of the Canadian political leaders died from cancer a couple days ago.  Everyone is sholed because it happeneds so fast! No one knows what kind of cancer he died from... confidential.  With all this buz about Jack Layton dying isn't helping my death thoughts :S

    I used to meditate a few times a week, but since my step son has been over, I couldn't get comfortable doing it at home.  I'm shy.  He is gone now back home, so I better start meditating again :)

    So far I have raised $1610! For the Breast Cancer Run for the Cure! (5K) I am having a garage/bake/plant sale at the end of September.  Hopefully i will raise enough to meet my $2000 goal!  :)  I posted an ad on kijiji for perennial donations, and got a good response :) People like to help :) 

    My puppies are doing well!  I am taking them with me to Vancouver in a couple of weeks ot visit my family.  I hope the weather will be nice and warm so I can enjoy the beaches :)

    Take Care

  • CiaoVino
    CiaoVino Member Posts: 15
    edited August 2011

    man oh man i haven't posted here in....months. and even then it was...almost nil. anyways...i am done with chemo and still dealing with side effects...one month out and still can't feel the bottoms of my feet. and my finger and toenails and eyelashes are just starting to fall out. chemo...the gift that just keeps on giving. bastard. those are small things...my feeling will come back, my nails and lashes will grow, my long brown hair will one day be as long as the peoples' hair i'm wearing now. in short...i'm hitting my low after chemo. i have less friends now than i did when i was first diagnosed. i'm having my BMX on september 16 and, while i am 100% confident this is the right decision, i'm already mourning what i have now (albeit a small lumpectomy scar). my exboyfriend is playing off my vulnerability which is making me feel...vulnerable. and, along those lines, i haven't gotten my period since May 1st. i'm...worried. about everything. 

    i'm not crazy, am i? i just didn't prepare myself well enough for all this "after chemo" shit. :/ 

    -mary
  • kk11
    kk11 Member Posts: 210
    edited August 2011

    Hi ladies - It's been a while since I last posted. I've just been treading water so to speak, but I'm done with AC and just had my first Taxol on Tuesday. I have 3 more treatments left and the last one can't come soon enough! I've been suffering from chemo induced anemia and then I had to start back up at work again (part time) last week to avoid having to go on COBRA, so that hasnt helped the fatigue factor. I wish I didn't have to get back to work smack in the middle of treatment, but I guess the world doesn't stop because I have cancer. At least I'm able to go back part time until after my implant swapout.

  • kk11
    kk11 Member Posts: 210
    edited August 2011

    I just wanted to add welcome to the new ladies on this thread. I'm sorry you have to be here, but glad you did find us.

    For those done with treatment, congrats!

    Mary - it's okay to feel the way you do. I've been through chemo before for a molar pregnancy and learned that it's not until you're done with treatments that you truly have time to process a lot of your feelings. 

    Melanie_Ann - Congrats for finishing rads earlier this month! You have a great outlook on life after cancer. I try to stay as positive as possible, but there are days (today was one of them) that I feel down because my life has been derailed by cancer and everyone around me is having babies when that's all my husband and I wanted for the last 19 months. I need to find something positive to focus on while I'm on Tamoxifen for the next several years. 

     Nannababy - That's a nice sum of money you've raised! I'm glad you had a good vacation. I plan on going somewhere when I'm done with all of this, but not sure what my restrictions will be after my next surgery in November. 

    Texasrose - Welcome back. How are you doing?

  • NannaBaby
    NannaBaby Member Posts: 510
    edited August 2011

    The After Chemo crap I totally get!  Down in the dumps some days... It's weird I keep re-living moments of last year. either day dreaming or at night in my dreams!  Things like the chemo smell, soaps I used, clinics I went to, the shock of diagnosis and my first chemo etc. I hope that doesn't make me a big baby! I mean, 1 year of aggressive treatment and advanced cancer will make anyone kinda messed up eh?

  • curlygirl614
    curlygirl614 Member Posts: 16
    edited August 2011

    Hey all,

    I'm a new poster but have lurked around this thread for a while. Nice to finally "speak" to you all. I am 26 and was diagnosed in March with TNBC, stage 1 or 2a (tumor size was on the border). I am also BRCA 1 - my mother died of BC when I was three and her mother died of OC before I was born. In April I had a double mastectomy with TEs put in, then I started chemo: 4 rounds DD AC followed by 4 rounds DD Taxol. My last infusion is in two days! Between my surgery and chemo I also did a round of fertility treatments and froze 4 embryos. 

    Phew - feels like I've done it all in just a mere matter of months. This crap is so completely overwhelming but now that I'm nearing the end of treatment I see so much light at the end of the tunnel. We've been dealt the suckiest cards - it's nice to know there are so many positive people out there who know what I'm going through! 

  • kk11
    kk11 Member Posts: 210
    edited August 2011

    Nannababy - I think we hit a new "normal" when we finish chemo. It's okay to have your days of feeling down after what you've been through.

    Curly- Welcome to our group. It sounds like you have quite a family history of breast and ovarian cancers and I'm sorry your mother and grandmother weren't able to be saved. I hope you were being monitored before your diagnosis and that it makes all the difference. Congrats on almost being done with chemo. I'm 5 weeks away from my last treatment and it will be good to be done! When is your swapout surgery?

  • curlygirl614
    curlygirl614 Member Posts: 16
    edited September 2011

    Hey kk,

    I haven't yet scheduled my exchange surgery. I had some complcations after my mastectomy (some skin had to be removed because it didn't survive) and I'll most likely need a couple surgeries to make things even before I get the exchange, so I have to figure out what needs to happen and when. Hopefully I'll be done everything by Thanksgiving!

    Glad to hear you only have 5 weeks left until your last treatment - it may seem like a while but it will pass before you know it! 

  • kk11
    kk11 Member Posts: 210
    edited September 2011

    Thanks Curly. My last one is October 4th, so I'm a month out from then. I go for my 6th treatment on Wednesday. Sorry to hear that you had complications with your mastectomy. I ended up having to have some skin removed as well about a month after mine, but it was around the stitching and they just restitched and it shouldn't delay my swapout. I hope we're both done by Thanksgiving!

  • Melanie_Ann
    Melanie_Ann Member Posts: 414
    edited September 2011

    Curly, congrats on finishing up chemo!

    KK- How are you feeling, and managing through chemo?

  • kk11
    kk11 Member Posts: 210
    edited September 2011

    I'm doing much better with the Taxol than I did with the AC. I had my 6th (2nd Taxol) chemo treatment yesterday and I'm 26 days away from my last one! I can finally see the light at the end of the tunnel!

     How are you doing? Have you started Tamoxifen yet? How is your hair doing? Mine already started growing back before Taxol, but just very slowly. 

  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited September 2011

    ladies, i am having  a real hard day here.

    all my treatments are done, and i am back to work, but i am having a hard time with feeling, looking and seeming different.

    all the estrogen is now gone, so sex sucks

    i had hair down to my waist, i look like a dike.

    and my joints hurt from the anti hormonals and i have gained weight in water from being bloated.

    i look a little pregnant but am not

    i was almost 100% er/pr + so kids are about out of the question.

    just a little depressed here today.

    most days i am fine, but today knocked me on my ass....

  • Melanie_Ann
    Melanie_Ann Member Posts: 414
    edited September 2011

    KK- I'm doing pretty good. I started Tamoxifen a month ago. So far it has been ok. The only really thing I noticed with it is an increase in hot flashes. It's still not as bad as they were through chemo though. I haven't gained any weight but I've been diligent about not gaining weight. When I go back to the Dr. in Nov, I want to have lost weight. =) Other than that, I'm doing good...I've had some sort of stomach bug and yesterday had a really bad cold/flu type thing. Ugh...reminded me of chemo. So I didnt' sleep well last night but I feel much better today.

    hd- sorry you had a hard day. My  hair is growing back very, very slowly. I hate how I look too.I almost liked myself better bald. My hair is much lighter than it used to be and so are my eyebrows. I miss my dark hair. I haven't started my period either and it makes me feel bloated. I haven't had one since January. I never thought I would say I miss my period, but I do. It always made me feel better once I was over it for the month. 

  • Brenna-30yrsold-NYC
    Brenna-30yrsold-NYC Member Posts: 34
    edited September 2011

    Hi my name is Brenna and i was diagnosed at 29.. 6 months ago.. im 30 now. i have stage 4 meastatic breast cancer that has spread to my bones, bone marrow, and pelvis.. i have a 4 yr old daughter. i live in nyc (brooklyn) is anyone else out there that has similar diagnosis. i am very scared and have been feeling very alone thru this battle.

    thanks,

  • kk11
    kk11 Member Posts: 210
    edited September 2011

    Melanie - It's good to read that you're doing okay so far on Tamoxifen. I'm NOT looking forward to it! As far as periods are concerned, I haven't had one since before starting chemo and I had only recently gotten them back to normal after the whole molar pregnancy business, so I too miss my period. I hope it comes back quickly for us. 

     HD - I'm sorry you have been feeling depressed. I have been down this week too because I'm nearing the end of treatment and I know that is when the clock starts ticking for when we get to try for kids (b/c of Tamoxifen). They told me to wait 5 years, though some doctors are okay with 2. My husband and I were trying for a baby as of the start of 2010 and we had a complicated miscarriage (molar pregnancy) and I needed chemo for that. 2 months after I finished chemo, I found the lump and on to breast cancer, so 19 months later we are still childless and that's not changing anytime soon. I am 2 treatments away from finishing with chemo and I would feel better if I didn't have to put the next 5 years of my life on hold. I was only 10% estrogen positive, PR-, and HER2-, so kids aren't out of the question for me in the future, but it's still hard. I can't imagine being told no kids at all. Sending you virtual hugs.

    Brenna - Welcome to our group, but so sorry to read you are at Stage 4. I don't really know what to say except you have someone in California praying for you and hoping you can beat this nasty thing. How are you and your family handling this? What treatments are you getting? Was it already in your bones, bone marrow, and pelvis when you were first diagnosed? If so, have things improved? I apologize if I'm asking too many questions. I'm just trying to understand your story. Know we are thinking of you and please keep us posted on how you're doing whenever you feel up to it. 

  • Yumaira
    Yumaira Member Posts: 18
    edited September 2011

    Hi everyone, I was just diagnosed with breast cancer aug.2011, I am 23 years, married, with a 3 month old baby boy, I am having a lumpectomy tomorrow morning and feeling very positive about everything,

  • texasrose361
    texasrose361 Member Posts: 1,829
    edited September 2011

    Brenna= welcome to this group :) i've talked with you on the stage 4 boards. Feel free to PM me anytime you want to chat! Totally know exactly what you're going through.

    2young4bcancer- Postive goes a long way! Glad to hear you sound so up beat, good luck tomorrow I will be thinking about you!

  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited September 2011

    Breanna, welcome. please know if you have questions, you can ask them here, never feel like you can't. we are a little group (cause of our age group) but a strong one. the other day i was so depressed i couldn't get out of bed, but after reaching out here, and just hearing some cheerleading, it made me feel a little better.

    in all honesty , it felt better to hear it from all of you rather than my husband or best friend

    cause (fortunately) they have not been through this.. they can try to understand, but unless they have travelled this road, they will never get the gravity of it.

    breanna, remember, you will have yucky days, but you will also have days you won't think, or talk about it. eventually.. but please feel free and comfortable to share both here.. many hugs.. angel

  • kk11
    kk11 Member Posts: 210
    edited September 2011

    Hi ladies....just checking in. I have my 7th chemo treatment on Tuesday and then the countdown really begins for my last one, which is just 17 days away. For those of you who had mastectomies with reconstruction and also needed Tamoxifen, when did you start the Tamoxifen? Did you start after the end of chemo, or after your swapout surgery? I'll be asking my oncologist on Tuesday, but I just thought I'd check with you ladies too.

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