YSC ladies moving over from FB?

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  • amidala
    amidala Member Posts: 30
    edited August 2011

    Just testing my signature.  Trying to put my name in it so let's see if it worked.

    and darn, it didn't

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  • in_cognito
    in_cognito Member Posts: 429
    edited August 2011

    JC3win - That really blows about your co-worker. I also have a co-worker that was just diagnosed as well.

    Everyone is different - just let your co-worker know that you are there to talk if she needs you. For me, when I was diagnosed, I HAD to talk to people that had been through this. It was comforting for me to talk to people that were on the other side of this bad dream. Other people may not be the same way so just let her know you are there. I also had to read, read and read everything I could about this darn disease. I read Susan Love's Breast Book from cover to cover in about a day. I think if she approached you and you are not really close, then that is a sign that she is open to talking to you more about everything.

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  • wendy72
    wendy72 Member Posts: 22
    edited August 2011

    I live in a small town.  After I was diagnosed and people started learning about it,  women I have known since I moved hear started calling me and telling me their experiences with breast cancer I never knew these women ever had cancer.  It was very comforting to me to know that all these other women went through this and were doing great 6, 10, and 20 years out from diagnosis. 

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  • marial
    marial Member Posts: 255
    edited August 2011

    I just wanted to pipe and say hello to everyone here..I tried a few times without success to figure out the YSC site in the past..noticed it was transforming and then kinda gave up. I am 43, but feeling more like 90 lately!..and to think before this all started I had just got I. The best shape of my life..grrr..Welcome to these boards!

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  • Melonda
    Melonda Member Posts: 309
    edited August 2011

    I'm 29 and feel like I'm 90 all the time so that's nothing new to me!



    When I was dx I didn't want to talk to anyone about anything whatsoever, I so desperately wanted everything to be normal again.

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  • ringosmommy
    ringosmommy Member Posts: 91
    edited August 2011

    Ha, I feel like I'm 90 to. 

    My hip is hurting me something fierce right now.  I haven't really pursued any treatment.  Kind of waiting it out.  ugh.  I don't want to hear that I have arthritis (or cancer but that goes without saying)

     :)

    Cori

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  • mimivac
    mimivac Member Posts: 14
    edited August 2011

    Cori,

    I'm sorry about your hip. I have post-treatment arthritis and it can be very painful. Mine does better with movement and when I take Omega 3 supplements along with eating my fish. Although, I know I don't have to tell you anything about nutrition and disease. They should be able to see arthritis on a simple bone scan, although for me they could only see it in my ankles and it's much worse in my arms, so I'm not sure what that's about...

    Mimi

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  • Melonda
    Melonda Member Posts: 309
    edited August 2011

    I've been taking fish oil, evening primrose oil and flaxseed oil for the last few months. I'm taking them for joint pain, hot flashes and chemo brain. I feel like I've noticed a difference since taking them.



    Also- I told more people about our revolution so maybe we will have more come over :)

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  • Lauren3
    Lauren3 Member Posts: 289
    edited August 2011

    Yes I am here!  Yippee! 

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  • Cheylana
    Cheylana Member Posts: 12
    edited September 2011

    Hi Lauren!!!!!!!!

    Melinda, did you really leave the Facebook group permanently (as opposed to hiding posts there)?  I'm sorry things took a downturn over the weekend.  Frown 

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  • Melonda
    Melonda Member Posts: 309
    edited September 2011

    I did, I deleted myself from the group and I know I can't get back in after I delete myself.



    there is stuff going on behind the scenes as well and I feel that it's gotten worse partly due to it being on FB. I hate the format and I hate my full name being used in every post. When you have an unusual last name it's super easy to find you. I said that to begin with months ago and I should have listened to my instincts and deleted myself then.



    Plus I really like a BB format, it works better for me and is easier to track posts. I have anxiety over missing something about someone I love but I guess I hope I hear things hear or on regular FB.

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  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited September 2011

    Thank you ladies for understanding an not telling me that I am crazy for being so upset about my crazy girl (pup okay she's 4).  We are now trying to figure out how much time and when it is right and IT SUCKS.  We told my son and after talking to him he understands better than we do that everything is going to be okay.  I feel like I am being selfish because she is still here but she still is loving to be loved on and treated extra special so I am cherishing these days and longing for a month ago when I thought all was okay and how was I going to get her to lose a couple of pounds. 

     So today I am grateful that she is here, hoping that she isn't in pain and thankful for my stash of ativan and xanex.  I have a feeling that I will need it next week. 

    Animalover~ Would another option be a free flap.  I am sorry to hear about the pain from the CC.  I know that I had free flap and I love it.  I hate the scars but love my new girls.

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  • ringosmommy
    ringosmommy Member Posts: 91
    edited September 2011

    Jaimie (hugs)



    Sorry I am scarce, taking a weekend away with kids :)



    Cori

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  • jenxreboot
    jenxreboot Member Posts: 17
    edited September 2011

    I don't know where to ask this-- there are lots of threads here! Has anyone had experience with a recurring rash on your foobs? I'm 3.5 years past surgery and was IDC. I have no idea what's up, but I have my second outbreak in a month. Looks like hives. All over my foobs.

     Anyone know anything?  -- itchy and not amused 

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  • Melonda
    Melonda Member Posts: 309
    edited September 2011

    Jen- I would just post it as a regular thread topic here in young women forum so that we all see it easily. That's what I'm planning on doing, otherwise I think I'll be too confused!



    And I know my mom has gotten what her gyno said was basically a yeast infection all the way up to her breasts and it lasted forever. But hives? I don't think I know anything about that, although I do get crazy acne on my foobs sometimes...

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  • jenxreboot
    jenxreboot Member Posts: 17
    edited September 2011

    Good advice, thanks, Melinda. That story about your mother certainly put the fear in me. Hoping for regular hives (whatever that means). Just going to call a doc tomorrow. Said it before, but such a pretty profile pic....

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  • jc3win
    jc3win Member Posts: 61
    edited September 2011

    Well the update on my co-worker is that she had her port inserted today and she starts neo chemo tomorrow. I am happy to report that she has contacted me a couple of times to ask random questions about all that is happening. I am so glad to be able to help her in any small way. I was so fortunate to have YSC to answer all of my questions.

    Cori- she is probably 50 something. I will tell her about this site next time I talk to her. Iam sure she would benefit from the collective wisdom.

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  • Melonda
    Melonda Member Posts: 309
    edited September 2011

    Aww Jen I wasn't trying to scare you, just trying to think of what I know lol. Hers definitely didn't look like hives!

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  • ringosmommy
    ringosmommy Member Posts: 91
    edited September 2011

    Jen-did you call your dr, what did he think?  Is it roasting hot by you?  or was it?  could it be heat?

    Cori

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  • Lowrider54
    Lowrider54 Member Posts: 2,721
    edited September 2011

    Just wanted to chime in on the welcome to BCO.  It is quite diverse and has a topic, forum, and/or thread that you get comfy in.  The Mods have done a great job putting together lots of help to get oriented and aside from the forum where you meet folks going through the same journey, the entire site if packed full of info and honest links.

    Personally, when I wanted to float down D'Nile for awhile, I spent lots of time on the OMG They Found the Cure for Stupid thread.  It is full of totally utter nonsense, give it lookie see - just be sure to make your foil hat!

    Again, welcome and sorry your group got all f*** up - hope these boards offer you a good place to be!

    Hugs....

    LowRider

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  • jenxreboot
    jenxreboot Member Posts: 17
    edited September 2011

    Thanks for asking, Melinda and Cori. I didn't want to call my onc and I'm shopping for a new GP, so I called a couple dermatologists... who can see me next month. I googled and currently speculate that it's either heat (it's been insanely hot here, though this week we're all the way down to the low 90s!), hives (which can last for a while but will resolve on their own), or maybe (squick) systemic candidiasis, which is more or less the kind of yeast infection your mother probably had, Melinda. Just in case it's the latter, I've cut out sugar, caffeine, and alcohol and decided to give myself a couple more days before giving in and calling my old GP or my onc. The whole business is unpleasant to think about, so I guess I'm going with something between minimizing and denial.

    Blech. How is everyone else?

    And hi, LowRider. Everyone here has been really welcoming. Glad to be here. 

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  • ringosmommy
    ringosmommy Member Posts: 91
    edited September 2011

    Lowrider-thank you for the welcome.  I will have to check out that thread!

     Jen-I am going to go heat.  Good idea to cut out the common offenders incase of candida.

    How is everyone else?  I am still having random anxiety attacks over my appointment with the onc.  I might be anxious in anticipation of the hour long wait in the waiting room.  :)  But also I have to decide what to do about my zometa.  I was getting it twice a year.  but then I asked for another bone density exam, and it had signifigantly improved.  So, I thought, hmmm, maybe once a year?  so that time is up, and now it's time to get it again.  but it's not without issues, yk?

    cori

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  • rseventeen
    rseventeen Member Posts: 16
    edited September 2011

    Hi there ladies- I was out of town for two weeks so missed the revolution thread.  Glad someone posted up the link on FB. 

    I have not had a chance to catch up on much of this thread but wanted to chime in and say hi. 

    I don't think I have a signature on this site- but will work on that.  

    I hope this one sticks- it is too hard to chase around so many forums.  I am planning on going to Philly next month, so look forward to trying to meet up with some of you guys. 


    Rebecca

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  • jenxreboot
    jenxreboot Member Posts: 17
    edited September 2011

    Hi, Rebecca!

    Sorry about the onc/Zometa stress, Cori. I'm guessing you saw the recently publicized research about Zometa and similar drugs? They're saying that by three years you've probably maximized benefits and maintained lower odds of some of the worst SEs. My onc said maybe even two years (though she talked me out of doing Zometa at all for now).

    Of course, I don't know what you should do. I do know you'll make a good decision. Hope all goes/went well. Check back, I'll be thinking of you.

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  • Melonda
    Melonda Member Posts: 309
    edited September 2011

    Rebecca- I'm excited you're going to be in Philly! there is a thread a bit further down this page about who is going. Not many plans going on yet but my biggest suggestion is throw yourself into the fray! If you see a young person, go up to her- chances are she's one of us :)



    Jenx- For some reason I have you and your beautiful boy on my mind today, I hope all is well with you and yours!



    As for me, I had the most amazing time in Portland with my friends I made from YSC. Spending one on one time with people who get you like that is just awesome. I can't explain it but all I know is that I probably laughed more last week than I have in months. I've loved the conferences in the past but this makes me want to concentrate more on individual visits and traveling. It sounds unbelievably corny but that time feeds my soul or something like that. I'm so lucky my DH gets it otherwise I'd be screwed. I hope I'm rich someday so i can continue the traveling forever!

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  • ringosmommy
    ringosmommy Member Posts: 91
    edited September 2011

    melinda-I totally TOTALLLY get it.  I loved it when we met up in indy.   the conferences are fun but not the same.  Are you thinking about going to NO's?  i still want you to talk to your dr's office about the tat's if you don't mind.  maybe I could go down a day early or stay a day late.  I am hoping that if it's in the dr's they will give me the shots of lidocaine like my ps did.  Like I said, my tat's are my only disappointment. 

    Rebecca-I am excited to see you in philly!  I will be there.  I am not sure how young I will look but try to find me.  I will certainly be the one with the least amount of clothing on my boobs.  :)  If you see someone and you think to yourself, what's with cougar town over there?  come over and say hello.lol.

    jenx-I am glad to hear that about the zometa benefits.  thank you for telling me that.  I might do it once more and then call it in.  

    cori

     

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  • Melonda
    Melonda Member Posts: 309
    edited September 2011

    Cori- I totally forgot about the PS tat questions! I will call them this week, I'm off of work so i think I should be able to fit that into my busy schedule lol.



    I am still planning on New Orleans, hoping that I go as part of the PDP table so I can see new people but not have to do the sessions anymore. I'm thinking being a delinquent is what I need this year. I always think about not going but never happens because I can't imagine missing an opportunity to see people. I feel like I've discovered that my trips this year were amazing- chicago, Indy, Portland and those were all around individuals.



    We were talking this past weekend about how much more we get out of that time and talking yet again about planning something and telling people and whoever can make it, great, if not oh well. Seems that we always try that but it never works. I may attempt it next year.

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  • ringosmommy
    ringosmommy Member Posts: 91
    edited September 2011

    Melinda I land at 1125am in Philly. Thursday.



    Can't wait!



    Cori

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  • youyourbestthing
    youyourbestthing Member Posts: 19
    edited September 2011

    Melinda, in New Orleans we could do a Cafe du Monde takeover. Something simple

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  • angied808
    angied808 Member Posts: 30
    edited September 2011

    Cori what's going on with your hip?  What did the bone density scan show?

     If you're running a lot that could really be exacerbating it.  Maybe you should switch to elliptical or something like that.  Running is super-rough on the joints and hips...

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