Help with Glove and Hand Lymphedema

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foreverhopeful
foreverhopeful Member Posts: 68
edited June 2014 in Lymphedema

Hello!

I have had lymphedema for 6 months now, primarily in my hand and a bit into my forearm.  My hand started to swell the night of my very last radiation treatment.  I tried 4 different over the shelf gloves and just received my second custom glove in the mail.  I was sad to see that it didn't seem to do much better than the first custom glove.  The first was a class I (the OT wanted to start slow) and the second is a class II.  Both are Juzo cotton.  Is there a more agressive fabric?  In both the top of my hand just puff up almost immediately.  It also gets into my palm a bit too.  The therapist ddin't want to go to top at the top of my fingers, so they wouldn't turn blue, but they are pretty stretched out and then I get swollen on the tops of my finger too. I have tried wearing the glove without the sleeve to see if that would help. (The sleeve is class I).  I still have a bit left in my two week window to possibly get it adjusted, since I just received it.  And would love any advice from anyone who has had success with such a tricky area.  I would actually see if I could get another one if I could figure out something that would work.  I hate the thought of having to go another three months with this glove.  (All of the "gear" that I have for my arm works great.)

I bandage at night and have a Solaris Tribute.  The hand piece for the Solaris wasn't the magic I had hoped for either.  I now use foam and wrap over it.  It brings done the swelling in the top of my hand, but my fingers actually swell up at night.  That is why I alternate with the bandaging.   

 I would love any advice that anyone has had with hand lymphedema.  I feel like it has gotten worse than when I first developed and would have hoped that I was moving forward by this point instead of backwards.  From what I have read it is hard to manage and different than arm lymphedema.  I need help and I thank you all in advance!!!!!!!!

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  • foreverhopeful
    foreverhopeful Member Posts: 68
    edited September 2011

     I should have reread this before I posted...

     This line should have read...

     The therapist ddin't want to go to tight at the top of my fingers, so they wouldn't turn blue, but they are pretty stretched out and then I get swollen on the tops of my finger too.

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