Recovery of Self Worth
So I just need to say this... need to write it out somewhere... and I am sure many others have had this "ah ha" moment before me, but please humor me.
Looking back - I had registered for my final semester in graduate school - the practicum bill was on my desk, Christmas was approaching, planned to spend the day with my husband shopping after the mammogram - but instead I ended up side swiped by BC, with a new biopsy hole punched in my breast, and all my efforts turned toward getting a surgery date for an obvious malignancy. The thing in my breast looked like a claw on US - and I knew from the second I looked at it on the screen my life was changing that very second.
I guess what I did not anticipate in those early days was the devastation it would have on my life. Yes, chemo, rads, surgery - all that was challenging, but one day I woke up after the last of the rads and I felt worthless. I felt worthless from so many angles it took me into a deep depression.
I felt worthless as a wife - all my efforts to reduce estrogen must be paying off because I struggle to function as a sexual being in any capacity. My unreconstructed body is not beautiful - no matter how many times my husband told me I was still beautiful to him... I knew my bald, sex deprived, ugly body was not beautiful. I was so fatigued - trying to do all the things that keep the house running simply didn't get done... we went weeks without the vac ever being turned on - months with the dust piling high - and my energy level was just gone. I used every fiber of my limited resources to do exercise - because I felt like I had to do that to survive and to somehow pull myself out of the depression - the meds for it just made me worse.
I felt worthless as an employee - I forgot so many things, put my head on my desk and just left it there for many minutes, struggled to complete tasks, went on the discussion boards over and over seeking who knows what to just make it through my work day. My mind was no where near as keen... and I was trying to avoid anyone else figuring that out... but it left me feeling worthless.
I couldn't do school - so my worth as a learning vibrant member of the educational community was a thing of the past. I had issues being a mother to a headstrong 19 year old girl too... felt like a failure - and was seemingly incapable of even having enough energy to care about it. I went to church, but hardly participated in any of the functions or events... I cried through songs. I never invited people over anymore - I just couldn't entertain. I was hurt, angry, shocked, and so many more negative emotions. I certainly did not feel like a "survivor"... and if I was a "warrior" I was a pathetic one... I was truly buried by BC.
Many friends withdrew... the person they knew was simply not there anymore. I lived on the surface - did very little real communicating. Tried very hard to brush anyone's concern away. I am not sure there was ever a day when I felt I had absolutely no value or purpose in any capacity - but inside that was the mantra that was being played... and it derailed me. I think there was a very low point when it finally dawned on me all I could ever achieve with this monster called BC - and only if I was blessed to achieve it - and who knew who would or wouldn't - was dancing with NED for whatever time I was allowed. What was the point? When would the next shoe drop? When would the next scan tank everything I was doing once more? The uncertainty of that concept captured my mind and I sank under the weight of it. I wanted to have hope - and the very nature of NED seemingly denies any long-term hope. I wanted to go back to my old life - and people were talking about new normals. I didn't want a new normal... I wanted it to be fixed - to be over - like a broken leg is fixed and over. All that treatment... and it wasn't enough... I was still searching for NED... always going to be trying to hug NED... was looking at an amputated breast site in the mirror and all I was going to ever get was NED?
I really don't know when it happened - but I started relating to people again. I committed to things that were going to go on for a year. I signed up to be a mentor mom to a Mothers of Preschoolers Program. I developed a friend off this board. I began to write my thesis. I set up several small parties with various people coming over for just a little while - including a little group of my Down Syndrome son's friends. Today I spent the money to take the final grad course - registering for it once more... but this time I drove there and started it. Hundreds of tiny little steps that took me back to participating instead of watching from the sidelines longing to have my old life back.
On the drive today I realized something - it is not in the "doing of things" that we/I am worth something - it is in the relationships where my/your person adds value to the life of other persons... I am valuable as a wife whether I can "perform" or not - because I bring light and love into that man's life. I am valuable as an employee because I connect with hundreds of students daily - assisting them on their journey. I make this house a home whether it has 4 inches of dust or not. I am a learner again... interacting with faculty at the local college. I am valuable as a friend because I have integrity and share my true self. In this discovery I found hope in this day - no matter whether I am dancing with NED or not - I have value until the last moment that I touch another with my essence. My focus has turned from what I can do/accomplish to who I can touch with my life today and I intend to dance like there will always be tomorrow. I just needed to say - after almost 2 years... I am believing that I have something to offer once more no matter how small that is on any given day... whether I am NED or not... no matter what stage I am or end up being... whether I work at a job or not or ever complete the education or not... whether my daughter succeeds or fails...I have me to offer... I am alive today... I am worth something to this world in this day...
Comments
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Welcome back..............................hugs to you.
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Wow, starbeauty - writing it out does help (I think I even titled my post 'Writing it Out') and that ah-ha moment is wonderful!
Big hugs to you and so happy for you to have reached this 'state of grace'. It will be with you now and forever...
LowRider
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Lowrider... I follow your posts and I am often encouraged by your thoughts and progress through the challenges... Thank you for taking time to comment on my journey.
Ducky... It feels so good to be back... Had to say it.:) -
Wonderful post. It touched me deeply and gave me new ideas to consider.
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Thank you.
Kind of stuck in a helpless feeling point right now. I don't get it. I feel like I should be feeling good now.
Your post was inspiring. Thank you again.
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Mybee... Certainly was there myself... Just after everything was kind of over... Thought I should be flying high and instead I crashed. I cried... Felt such loss... Hurt all over... Felt so disconnected from everything and everyone. Thank you for your kind words... Please know you will heal... Inside and out....((((hugs)))) to you.
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Alpal... Thank you for taking the time to read through it and comment... Warmest thoughts for you...
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starbeauty,
What a great post. It describes my thoughts over the last year so well.
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Thanks so much, Star. I'm just starting into a grand old funk myself. with my skin still peeling from rads. I just feel inadequate in so many ways, and my mother is dying. I can't even be with her much because she's 2 1/2 hr roundtrip away and I barely squeak by with my full-time job, 6 yr old and functionally blind 7 yr old who needs much extra help every day.
But you give me hope, thank you!
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Starbeauty: thank you, thank you, thank you, for your so eloquently written words. I am just clawing my way out of the chemo trenches, dreading the next courses of treatment.
I have been mourning what seem to my compounding losses in all aspects of my life, physical, emotional and spiritual. The biggest for me, my loss of confidence, self esteem and self worth. I feel as though I am damaged goods now, no longer the strong vivacious woman I was. I am no longer capable of accomplishing small tasks as I am overwhelmed so easily. This is so unlike who I am, yet I want to find me again.
Your words give me hope and inspiration that I can recover my sense of worth again. THANK YOU! -
Kira... Thank you for validating that my journey is echoed thousands of times by the lives of so many on this board... And yours as well... We truly aren't alone in this are we...
Pam...gosh, so much piled on your shoulders... I can't imagine having to go through all we went through and have my mom dying too... My heart grieves for you. One moment at a time... Otherwise it is beyond overwhelming.
DebRox... Your body is taking an incredible hit, but I guess for me the hit to my mind was really worse... Sounds like it might be for you too... Tell yourself when the hits to your body stop coming you will begin to fight the thoughts taking you down, but know right now the fatigue, sense of illness, loss of control , and feelings of panic are as much as you can tackle today... One day soon you for sure you will begin to claw your way out... Thank you for taking time to encourage me today despite all you are going through -
starbeauty!!!
Thank you for putting into words what I have been feeling! I have felt and am still feeling that horrid down feeling that you described. Couple that with guilt that I SHOULDN'T feel that way when so many have things worse than me and, well, you have a recipe for disaster!
I have started taking small steps toward returning to the person I used to be.... You have inspired me that, step by step and day by day, I will get there! I am ahead of you in diagnosis but behind you in recovery! Your words...."My focus has turned from what I can do/accomplish to who I can touch with my life today and I intend to dance like there will always be tomorrow. I have me to offer... I am alive today... I am worth something to this world in this day"... Will be my mantra from this day forward!
Thank you for sharing your story!! -
Starbeauty, I am in awe, such a wonderful journal. I have tears for who you are. hugs upon hugs, Karen
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You've helped many people with your post, and I'm one of them. Thanks for putting all this into words and sharing your love of life with us.
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Beautifully written. I've felt that very same way so many times, suppose to be flying high but not and actually disconnected from others. I've even thought to myself that my family would probably be better off without me. I'm a irritable, ranting, boobless shell of the person I use to be and I hate the new me. Don't get me wrong, I'm happy to be alive but I still mourn the lost of my old life. Thanks for writing....I needed this today.
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Thank you Star beauty, you put into words what I have truly been feeling and constantly trying to hide from everyone.I so want my life back and my body.I miss me, but your so right we do move on..we have too, thank you for your honesty and inspiration.
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Karen... You have dragged me out of the dumps so many times... You have the best smile. Hugs right back at you.
Jennyboog...boobless shell... Perfect description - gosh, why is it such a big deal, but somehow it is. Friends have said that they would get a MX in a heart beat to live and I say nothing... I guess I wasn't sure if I was just a whiner, people have it so much worse... But this has been really difficult to climb over. I think it will always hurt somewhere inside me... Sitting here in my slinky nightgown looking ridiculous... But walking out of it means leaving that thought and turning my mind toward the people I care about. our family and friends do need us. I saw this woman on TV who walked out of one of the 9-11 towers burned over 80 percent of her body. She is seriously messed up, but fought her way back to be a wife, mother, and a person touching my life today. she matters... Despite losing her old life... She is making a difference now. Courage for today... -
that was an excellent posting starbeauty.. my heart sank and sank as I read it hoping for that last paragraph to materialize or emerge ... and it did.
it's not so bad really (this BC beast).. everyone has something to deal with.
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This is beautiful. I want to drive to your house and give you a great big hug. I admire your honesty, integrity and will. You materialized everything I am feeling.
Maureen
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@ starbeauty....I've thought the samething so many times, I'm being a whiner, there are others who have it worse...I get mad at myself for letting it bother me the way it does. I've never been much of a "girly girl" or showed off the big o' D cups I had (I hated them actually) but having none is a whole other animal, it takes a while to process.
As an Army wife my DH has deployed 3 times and the wives & I have talked about how you go into "survival mode". You go through the motions of it all daily....kids are fed, check, are bathed, check, in the bed, check but in a year it will come to an end. But this BC thing will never ever end it will always be there. Thanks again for a wonderful post.
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Thank you so much for that post! You put into words exactly how I have been feeling! You also made me think about my life and how blessed I am to be alive! I am slowly coming out of my "fog". Hopefully, I will be able to rejoice and try to see the beautiful person I am not just on the "outside" but most importantly my "inner beauty".
Take Care,
Lisa
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Maureen... I could hear it in your posts... You have been under constant pressure... Please know dear friend I am keeping you in my prayers... Thanks for all your encouragement of the women of WNY... What would we do without you???
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Wow, I've just stopped crying after reading this. Thank you dear starbeauty for putting into words what my soul was searching for. I'm one week post final TCH (6 total) and on to herc to complete the year's cycle. The fingernails are disgusting, the fatigue can be overwhelming and my sense of myself as a sexual being is MIA, but after reading this and other posts, I know things will get better and I'll discover a 'me' that I can once again love, cherish and enjoy.
Hugs to you all,
Pam
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