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Melonda
Melonda Member Posts: 309
edited June 2014 in Young With Breast Cancer

The revolution is waning, we need some more action over here.

What do you suggest?

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  • ICanDoThis
    ICanDoThis Member Posts: 1,473
    edited September 2011

    Yuppers --

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  • Melonda
    Melonda Member Posts: 309
    edited September 2011

    I'm so tired of all of this. I want to be here or on a board and just magically have everyone here too. I feel like I've been trying to accomplish this for 6 months now between Yuku and here. I'm no longer on the FB group and it feels FABULOUS to be rid of the drama that came with it for me but I feel like I am missing some important updates and I hate hate that :(

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  • HeatherLS
    HeatherLS Member Posts: 29
    edited September 2011

    I agree. So much slower here than I expected :(

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  • sandejosgirl
    sandejosgirl Member Posts: 57
    edited September 2011

    It might just be this section? The younger women, I mean. I come on and check several times a day, but I'm still in Chemo blur and not feeling particularly witty to come up with threads, etc or respond all the time. Hoping to get back into action more with Chemo over and rads starting.

    Hah. I'll start a thread to congratulate myself on Chemo over! :)

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  • Melonda
    Melonda Member Posts: 309
    edited September 2011

    Lol Stephanie- you are exempt. You have had other things on your mind like CHEMO!

    Really, everyone is exempt I just am impatient and want things to magically be all better and have all my old friends with me with a snap of my finger, and new friends too.

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  • sandejosgirl
    sandejosgirl Member Posts: 57
    edited September 2011

    Isn't it funny how once we decide something how fast we want the rest of the world to line up and make it happen? I am like that too. I always feel like I am pulling everyone else along, come oooonnnnnn.  This format is just so much better I can't imagine everyone else not ending up here eventually.

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  • ringosmommy
    ringosmommy Member Posts: 91
    edited September 2011

    well, I'm in for the duration.  George Washington didn't give up half way through the war did he?? lol.

     Well, here's my stand. I HATED the format on facebook.  I would check the threads maybe once or twice a day and didn't know half of what was going on anyway!!  It's not searchable, it has no value to be whatsoever.  So in a sense, it was worthless to me.  Do I miss everyone?  In a way, but in a way, I had already LOST them already.  I didn't feel connected to anyone in any way shape or form. 

    I'm here for the duration.  I said, even if it's just me and you Melinda (and I'm glad it's not) that I'm here and I will make new friends to add to my old friends.  Bc fb just isn't for me.  I hope other join us I really do.  But if fb is the right format for them, so be it.   It's just not for me.  I was getting nothing and more signifigantly was giving nothing. 

     The only other observation I have is there are a lot of people, that when it moved to fb in the beginning, they were 'done' with cancer.  I don't think they ever would have deliberately walked away and moved on but bc they were kicked out of the nest, they decided to fly.  So, even though they are posting on fb, saying rah, rah, rah you can do it, nothing to it, at the end of the post, well, that's pretty much moving on, ykwim?  and I respect that.  But I know that if I was in treatment, reading that wouldn't personally help me.  But for the vast majority, they are done with cancer, moved on, made their circle of friends and they were keeping in touch on fb anyway.  which as I said, I am sooo NOT bagging on.  That's totally cool.  but not for me.  But what I am saying is there are people who didn't move here, or go back to ysc, or yuku, bc they didn't WANT to.  period.  But it's not for me.  And not just 'cancer' wise.  But bc I WANT to have this interaction.  I value the friends as much if not more than my irl friends, yk?  I find that saying, the eyes are the windows to the soul, well I also find the key board is also the window to the sould.  without judging people on looks, age, appearance of wealth or lack of it, I can meet people and see who they really are.  so, I'm here.  :)

    I have started lurking a bit on other threads.  but my home is on here.  I'm just not a fb'er, as you know.lol.

     cori

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  • sandejosgirl
    sandejosgirl Member Posts: 57
    edited September 2011

    As a newbie, FB was helpful, but not as much as this would have been. And I tried really hard to make YSC work for me. I had no baggage from the change over, I never saw how it "used" to be, but there was just NO traffic and I always felt lonely there. FB was better, but it actually felt sort of impersonal because of the volume and the way the threads move there. If you don't check every couple of hours you're lost. This is already way better for me.

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  • ChiTownSherri
    ChiTownSherri Member Posts: 23
    edited September 2011

    I am here. Just not a lot of time to check in lately. And of course the day I had to check in-today-I did a lot of sleeping!! I have a massive head cold. Could be from cleaning the pool out Monday when it was 68 out. (water was 68 also) I have to get in the pool to clean it.

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  • ratbait
    ratbait Member Posts: 141
    edited September 2011

    I'm here too, but I am still missing the old boards. I actually prefer yuku to this, but don't have the time to check zillions of places.



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  • ICanDoThis
    ICanDoThis Member Posts: 1,473
    edited September 2011

    Guys, I did want to mention that there is a 23-year old posting on YSC, who has an oncotype score of 50 (she's terrified), who is desparately looking for support. She is stage 1, but still...

    I have posted, and friended, but would like to suggest that someone closer to her own age scoop her up and get her feeling loved.

    Me, I'm really not even sure where to tell her to go.

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  • Melonda
    Melonda Member Posts: 309
    edited September 2011

    Cori- I just need someone to remind me of that is all lol. I don't know why I am not ready to move on and others are but I just am NOT ready for that. I think it's because I feel that I found my place in life through this experience. My closest friends are from ysc so I don't think I am ready to let that go. Obviously my good friends I am in contact with but it's the ones that I connected with that I hate to see go away, I hate not knowing what is going on in their lives. I love seeing updates from people I recognize.

    Maybe I'll be around forever on here or maybe I'll move on someday but right now I like it here. I agree that people were ready to move on and those people won't be recovered but I do enjoy the interaction on here. I used to check YSC after the change over but now I haven't looked in weeks. There is no point. And not being on the FB group is very very freeing.

    Sue, I would be happy to talk to her, but I can't even log in to YSC anymore. You are more than welcome to give her my email address or to direct her here.

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  • jc3win
    jc3win Member Posts: 61
    edited September 2011

    I have always been a bit more of a reader than a poster (I hate the term lurker) but I do appreciate having you guys here when I have some BC "thing" come up. I am trying to be done with BC for the most part but I know that I will never be completely done. There will always be a scan or a pain that will suck me back. I will always have to struggle with some type of antihormonal drug. I love this type of board and I really dig coming here and knowing you guys. Melinda, Cori and Sue and so many others have been with me since diagnosis and it is nice to have you around. I might not be here every day but I will make a point to be more active. I am still on the FB page and I posted another reminder of this forum just yesterday.

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