BRCA: Why I decided to have a mastectomy

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justsayom
justsayom Member Posts: 12
edited June 2014 in Genetic Testing

What is right for one person may not be right for another.

That is what I always tell others when I share my decision to have a prophylactic mastectomy. We are each individuals and the decision is very personal. I also share the importance of doing research about the BRCA (Breast Cancer) mutation, statistics, surveillance, procedures and doctors. Talk to as many people as you can who have gone through or are going through what you are. Attending a "show and tell" at FORCE (Facing our Risk Cancer Empowered) allowed me to see results of what a mastectomy and reconstruction actually looks like. There are a number of types of reconstruction offered today. I have chosen to have the one-step procedure.

My decision was based on a number of things.

First, I have seen many people in my life suffer from breast cancer. They received radiation and chemotherapy. For many, it was brutal. My aunt had a radical mastectomy after she was diagnosed. From seeing these experiences firsthand, a fear grew inside of me that it could be me but also a feeling that I was lucky. I was lucky enough to know that I was at risk and I could do something about it. Having surgery would reduce my risk by 90%. This number varies upon whether or not you have intact ovaries.

Feeling fear

I started getting nervous when it was time for a 6 month checkup for my MRI or mammogram. At my yearly mammogram, I was called back to redo the mammogram. That made me a bit nervous. They told me that the pictures didn't come out clear enough for the radiologist to read. I was relieved. But when I returned to the waiting room, I saw tears in my mother's eyes and anxiety and pain all over her face. I told her everything was okay; that they were just redoing the pictures. And, everything was okay. The results showed nothing abnormal. But I then realized that I didn't want to go through this anxiety every 6 months of "What Ifs?" What if they see something? What then?

Feeling lucky

I am not blessed to have this mutation, but lucky enough to know that I can do something to lower my risk. I want to be healthy, live a long life and decrease my odds. And what is so amazing is the advancement in the types of procedures available today. I have chosen the one-step procedure because everything is accomplished in one surgery, mastectomy and reconstruction. There is minimal scarring, which is the result of an 8cm incision under each breast. And because I am getting implants, I will be perky when I am 80!

Comments

  • Sandals
    Sandals Member Posts: 104
    edited September 2011

    I chose to not to have a Prophylactic Mastectomy because I don't believe mutating myself will get rid of the cause of my Breast Cancer. 

     I chose to research BRCA and Cancer a lot too and yes, you're right, its a very individual decision.

  • Sher7788
    Sher7788 Member Posts: 4
    edited September 2011

    I too chose to have the bilateral mastectomy and reconstruction due to a BRCA2 + result. At 29 years old, it was a very difficult choice but I am at a point in my life where I will be getting married soon and starting a family. After watching my aunt lose her breast cancer fight and my mother battle the cancer for over six years, I know how hard it is and I couldn't stand the thought of my children and husband watching me possibly go through it especially knowing I had the opportunity to avoid it. I just had my final implants put in last week and although I miss my real breasts and I hate seeing the scars in the mirror, I know I made the right choice-not just for me but for my future family as well. When I'm watching my children grow up and graduate and give me grandchildren-I will have no regrets. I too feel "lucky" to be given this choice to save my life in advance.

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