Aging Parents Anonymous
Comments
-
apple, oregano oil is soooo strong that allowing its taste into a salad, I suspect, would make the entire salad taste like nothing but oregano. My next experiment will be to place one drop in a capsule and top off with olive oil, then take it with a large meal. ...gotta plan it so I'm close to home, if ya know what I mean.
-
Ok, ladies, I have a new topic that I hope will bring forth some good information. Mom's due for a hearing test, which is now scheduled for next week, plus her oldest hearing aid is 10 years old.
Now I need to ramp up on what's the latest with hearing aids. Anyone with some knowledge to share? I've heard they figured out how to isolate certain ranges of sound that a person has trouble hearing and they can program the device to fill in the gaps.
-
Althea yes the new hearing aides are wonderful. DH has hearing problems. One ear has good volume but he cannot understand anything. the other ear is good understanding but volume is bad. He would never wear is old hearing aides. The new ones they were able to take the things he does not understand in his bad ear and change the frequencies so that he can understand some of them. It is not perfect but by far better than his old ones. At least now he does not mind wearing them in certain situations.
-
Reminds me of the time spent trying to make molds of my father in law's ears to make hearing aids for him.. I had to try 6 times, with just enough time between molding sessions to build up the gunk..
I don't know that I would be a good nurse.
-
Thank you to all who have posted here. The details of your stories with loved ones are really helpful. I didn't realize there are so many of us in parallel universes. Sorry I didn't post back with my thanks earlier. As you know an aging parent can be a full time job. My heart goes out to you all.
You were right about the rage escalating. I have found a doctor dealing in geriatric medicine who is reputed to specialize in behavioral issues. Unfortunately, it takes forever to get an apt because he is in such demand.
-
lucy 88... I think a general practitioner could probably address 'anger issues'. .. while you are waiting for an appointment with the specialist. Imagine having to deal with not being able to do the things one used to do.. I'd be raging if elderly.. I went on a small dose of sertraline for a while.. it really helped me chill. Dealing with all my disabling drugs (thankfully temporary) really frosted my cookies. I am not on sertraline presently but I had to really focus on my response to family members when they'd ask where their laundry was... or asked me what was for dinner.. things like that.
-
lucy, this is your father-in-law who's living with you, right? That makes the situation a lot more complicated, and what I'm about to say probably won't apply. But, it might help others who are dealing with "difficult" elderly parents.
About the same time my dad went into a nursing home for Alzheimer's, I heard from a very deare college friend of mine that her father also had dementia and was in a nursing home. My dad has been calm and peaceful ever since this nightmare began, for which we're really lucky. My friend's dad was not. He had uncontrollable anger that resulted in him being evicted from several nursing homes. The family was beginning to think there was no hope for their situation -- nowhere that their dad would be accepted.
After months of investigation and interviews, my friend's family finally discovered a skilled nursing home that specialized in residents with behavioral problems. Specifically, they were very good at managing anger in their residents. Instead of using drugs to control his behavior, they took my friend's father off the drugs he'd been on. They worked with him one-on-one for much of each day, instead of parking him in a wheelchair in front of a TV. (There were a lot more staff members at the new place.) They learned to recognize when he was becoming agitated, and they identified the things that were most likely to trigger his outbursts. Then, they figured out ways to distract him, or to divert his attention, when he became angry. Basically, they got him involved in something he enjoyed doing. Once distracted, his anger would melt away.
My friend could finally sleep peacefully, knowing her dad was in good hands and was being cared for by people who understood his situation.
otter
-
Hi otter, do you have more details about what kind of distractions were effective? I have a friend whose dad is having angry outbursts. It seems to make him come unglued that he doesn't have the autonomy that he used to have. Then he has a meltdown, and drama ensues.
sherryc, I haven't started looking into hearing aid information. I'm not even sure what words to google.
-
hate to say this but little would help my dad when he got mad. his balance was so off and he wanted to walk by himself.. if you'd help him he'd hit ya.... really. the best we could do is stand back and catch him if he fell, which he did quite often.. fortunately his ambulatory ability quickly deteriorated.. talk about a mixed blessing. We did things the natural way, and he could definitely have used some medication.
we could distract him.. with food, games, tv.. but it was hard always coming up with something different.
but, best of luck to you..
-
althea, I'll check with my college friend about the distractions. I need to call her anyway -- I haven't spoken to her for awhile now. Ironically, her mom and my mom died less than 24 hours apart, earlier this year. We held each others' hand virtually on Mother's Day.
apple, I was so worried my dad would behave the way your dad did. My dad had quite a temper when he was younger, but he mellowed with old age. I had always figured that if he developed dementia, he'd end up being one of the really difficult patients who would curse, strike out, and throw things. He's done none of that, though. I wonder if your dad was just frustrated because he couldn't do things himself anymore... ?
Hugs to all of you who are dealing with these problems....
otter
-
Hi ladies, me again with my latest hissy fit.
My mom has another uti. Big bummer. This time, however, she was prescribed penicillin for it. In previous encounters (two that I've been involved with), I learned 80% of uti's are caused by e coli, but that's not what she had. She had pseudomonis arueginosa which required cipro.
So I went to the pharmacy to get the penicillin, and it wasn't there. Over the last year, there's been probably a half dozen times that a new scrip gets faxed to the pharmacy, and every single time I have this problem. The first several times I made the doctor's office aware of this problem, suggesting each time they check their fax number on file.
About three weeks ago, I physically went to their office, explained the problem, asked for a printout of the scrip so I could go back to the pharmacy and get the #%^& thing filled. I had the pharmacy's fax number written down, handed it to them and asked face to face to a live person that they check their records for the fax number on file.
I was still being polite at that juncture, and I thought for SURE this problem would now be a thing of the past. NOT! It happened AGAIN!!!!! This week when I called the doctor's office, I asked them to look up the record and read to me the number of the pharmacy's fax. It was the wrong f#$*&^ number. I managed to not cuss, but I did yell, and very impolitely shouted if it might be within their capabilities of faxing the information to the correct pharmacy TODAY.
That was days ago and I still feel irritable when I think about this. I think I continue to feel irritated because I have a feeling in my gut this problem will happen again. Surely THIS time I took sufficient corrective action to keep this problem from happening again, but one must consider the source of the problem to begin with. They had several previous opportunities to fix this and they didn't.
So after all that, I'm now second guessing whether they prescribed something that will be effective. They explained previously that P aeruginosa doesn't respond to all antibiotics and that's why they give her cipro. I might come seriously unglued if I find out they gave her the wrong thing.
She's also scheduled for a colonoscopy next Tuesday. I'm concerned about an invasive procedure on the heels of antibiotics for a uti.
-
My father has started saying I am taking things from him. My mother is having me help her get rid of clutter. We make Dad aware of what we are doing and ask his advice. Unfortunately, his short term memory is awful and so he doesn't remember agreeing to letting things go. Today it was garbage cans. He owned 18 and is now down to 8 thanks to Mom and I decluttering. He wants to buy two new ones. Mom and I convinced him not to. I just ate half a bag of cookies to stuff my frustration. Ack ! I need to start meditating !
-
So sorry to hear that, JFV. My mom is 91 and starting dementia....very, very forgetful, and I am wondering when I might experience what you are going through. My dad is almost 95, and still sharp as a tack. They live in HI, but come here often, but when they are there I do worry a lot. I would prolly have grabbed the cookies too, like you did! Would be nice if we could think of exercizing to get rid of the stress, but food calls my name too.
-
I'm gradually learning to laugh at things instead of getting frustrated. On Sunday Mum was tempted to get a big sugary cake with her coffee while we were out. I reminded her it's not good for her diabetes. She announced that she no longer had diabetes and I enquired how she came to that conclusion. "Well my blood sugar is down to nil now" was her reply. I asked her how come she wasn't in a coma and she quickly corrected herself, "Well it's really low now and I don't have diabetes any more". I asked if she was still getting insulin injections. "Yes because my pancreas doesn't work any more, but I don't have diabetes now". Sigh. I changed the subject and had a little internal giggle at the complete lack of logic. What's the use of getting upset as I know her memory and reasoning are disappearing and have to find new ways to interact that won't upset her.
-
Joy, I'm usually more successful at not getting so frustrated. I've learned to expect what level of service my mom's doctor office provides. On all the other occasions, it would annoy me briefly, I'd take what I thought would be sufficient corrective action to prevent another occurrence and let it go. This time, though, the irritation seemed to stick like glue. I'm over it finally.
JFV, I've known, or known of, many instances where older people are convinced people are stealing from them, or coming in at night and rearranging drawers and furniture. It must be very frightening for them and frustrating for you. I hope you can achieve some decluttering without taking too much flack.
-
Thanks ladies ! I can certainly empathise with all of you ! Cancer and parents who are La La what fun. I do agree that the paranoia is in part about being frustrated over losing control of their lives. I can certainly see that. I do really need to develop a sense of humor about this or I will turn into a crazy person myself ! Today Mom (who is the organizer of all this decluttering) called and asked me what was happening with a certain stack of books. Ugh ! She is the one who set up that stack and told me she didn't want it moved.
I want to thank you all for listening. As with my cancer I find venting to family difficult. They really don't want to know how bad things are. If I do talk about problems I am having with Mom and Dad they get very upset.
-
Althea, Being philosophical with anyone who has dementia is one thing, but when dealing with people who are simply inept or not bothered enough to do their job correctly, my patience would no doubt run out too. It's the feeling of powerlessness that gets to me. At least it's a relief to share our frustrations with others here who have had similar experiences. I'm glad you're over it.
-
Hi Joy. Well, I'm over my hissy for now at least. Lord help the person who makes that same mistake just one more time!
Now I'm bracing myself for mom getting through her colonoscopy scheduled for next tuesday.
JFV, I hope you can hit a new stride in communicating with your mom. Conversations that seem to go in a circle are just part of the territory now. Had one just tonight with my mom. She called to say I didn't need to bring lunch tomorrow because I left so much food for her in the fridge. She could have that chicken and the rest of the salad that's in there.
Ok, mom. What are you having for dinner tonight?
Chicken and that salad you left.
That sounds good. Well, I have tomorrow's lunch all planned out, so if it's ok with you, I'll bring it over tomorrow at lunchtime.
Well, ok, if you insist.I'm just so glad that I'm able to meet her level of need at this time. ...but it's time to get more people involved. There's a conference I really really really want to attend in September in NYC. I can't leave her to fend for herself for 4+ days.
-
Wow althea ! It's like all our old people read from the same script !
-
what a bittersweet thread. I must read it more often.
Because of a seizure that I had in April, I am not driving until next month. An 80 year old picks me up and gives me a ride to rehearsals. I see signs of dementia. Truly, it would be much safer if I drove.
-
I am getting a lot out of this thread. Since my parents are 91 and almost 95, I am just starting to experience what you girls are going through. Nice to be able to share and help each other, or just let the stress out! Sorry about your seizure apple, hoping your 80-yo driver does okay, esp till you can drive next month! Awwww althea, so sad, but glad you can roll with it. My parents will fly back here on the 28th, so I know I will want to have all my time free to be able to help them. My mom has gotten extemely forgetful, just within the past couple of months. I will try to keep my sense of humor, and especially a big dose of patience!
Hugs, Kathy
-
Apple, I hope you're back behind the wheel real soon.
wahine, welcome to the thread. I'm curious if your parents are physically active?
As for having patience, I have oodles of it for my mom. It's her *care* providers that really get my goat. My episode yesterday was getting mom preregistered for her colonoscopy next tuesday. She's going to the same doctor as 5 years ago.
Instead of it being in a hospital like last time, this time it's in a 'surgical center'. One of the forms to sign was an acknowledgement making us aware that her doctor is part owner of the surgical center. Three hours later, we were finally done. Several things annoyed me, but just two are worthy of typing out. About halfway through the waiting game, my mom's name was called. We followed the nurse ... to another waiting room! We spent another hour in that waiting room. My ample supply of patience was suddenly wearing very thin.
Finally, it was mom's turn. We went through the laundry list of questions. At the very end of the interview, they have one more form to sign, one that states a diagnosis for polyps. wtf??? How can there be a dx BEFORE the procedure? No one will know if there's any polyps in there until the colonoscopy happens! I wavered back and forth about how much to squawk about that one. Finally I opted for 'not ok'. What nonsense.
-
althea, that would have taken all of my patience too! Yes, my parents are very active. We go back a few generations of being born/raised in Hawaii, and my dad has never moved away, so has had a healthy lifestyle. They do a lot of traveling, and he keeps up with all their properties...at almost 95, he really amazes me. My mom was still doing paintings (she is a good artist), and she built a low bookshelf (6' long, w/ shelf) last month, as well as a 6' easel so she could paint here! Pretty good for 91, but she is the one starting to get extremely forgetful. She did remember all the times I was going to pick her up last month to go shopping, art classes, eating out, etc. Those were important things! If she talks to someone on the phone, she forgets what was said as soon as she hangs up. And totally forgets her pills, which I am trying to get my dad to keep up with. It just breaks my heart that I don't have the mom I had for years, but I am still grateful to still have them, and for their health. I know it is on the downhill right now, so am gaining insight from you girls. It seems to change every day now for my mom, but like I said, I still am thankful.
-
Welcome Wahine ! I can relate to the memory problems. Dad's is getting bad very, very quickly. I am seeing it worsen every couple of days. At this point I am not sure if I will be able to keep my day job much longer. Oh well, one day at a time !
-
Thanks for the welcome, JFV! Are you still trying to help declutter your parents place? Hope your dad doesn't think you are taking things from him anymore. So, so, so, very hard. I guess all we can do is support them as best we can, and keep practicing patience....just heartbreaking though.
-
Thanks wahine. Honestly I am hoping mom stops with the decluttering for awhile. Now she is fogetting why things are moved even though they are piles she made. Also family members came by and did not take things out of the house that they said they would. So, I would really rather just deal with a couple of loose ends and let them live the way things are. There is alot of stuff. But, it is fairly neat and clean and not a hazard right now. Mom keeps saying she doesn't want me to deal with this after she dies. My parents live in a large house on a large piece of property. So, unless they end their lives in a nursing home. I will have to deal with their stuff when they die no matter how much decluttering I do. We just don't need the stress right now. I had a couple days off since my sisters were in visiting. I will check in with them tomorrow and see what Mom wants to do.
-
My mom had a good result from her colonoscopy today -- no polyps! yea! She seems to be recovering well so far. I had some homemade chicken broth for her to eat today, and there's more for tomorrow. Considering all I did today was sit around a lot, I sure am tired.
Oh, and that complaint I had from the previous post about the dx of polyps -- well, it turns out the dx stays with you for life even if the polyp was removed years ago. I just don't know how to best handle these scenarios. On the one hand, I'm glad there's an explanation for a dx of polyps before the procedure occurs. On the other hand, it would have been nice to have received that explanation last friday instead of it being a source of consternation. It's these kinds of things that lead me to be so critical of care providers in this community.
-
Althea, Sometimes when we have to sit and wait it can be more tiring than actually doing things. Sooooo very glad that your mom's results were good! Yay!!! Get a good nights sleep tonight, you need to take care of yourself too. Lots of stress worrying over our parents! Hope you're not near any of those fires....my DD is NE of Dallas, and they are not too far from them right now. I guess you had more worries about the storm than the fires though, being near the coast. Take care!
-
I found you Wahine, is there room for me?
My parents are quite yoiung, 76/74 but my mom has dimensia. I spend a week with them in SC and came back with a broken heart. My Dad, who was always the parent with bad health, triple bypass, diabetes etc. Now he just lives a very sad life taking care of my beautful Mom and it hurt so bad to see them both as they live their lives 600 miles away from their four children. Mom spends alot of time just staring with a blank stare while my dad plays games on the computer. They have the most beautiful property on several acres which my Dad loves to keep beautiful. He just brings Mom outside and she sits and stares. We are trying soooo hard to get them back to NJ but dd refuses to budge. They are having terrible financial issues due to the fact that Dad can no longer work but refuse any assistance. My two sisters have been down there several times and found them assistance but my damn stubborn dad again refuses help...he is in such denial. He told me that he will die first as Mom is killing him. Imagine that pain? Our hands are tied.
wELL thanks for hearing me, once I get my internet back, I will come here for support and love which never fails me on bco.(hacking into a neighbors wifi outdoors, in the rain under an awning, on a wet chair covered with a towel)...the things I do to visit my breast friends lol.
JFV, Althea, nice to meet you gals. Hoping to find peace here on this thread and support each other.I read yiour stories and feel your pain.
Forgive the typos, on a mini which takes forever and a day to type......
Peace girls, I feel the love already!!
-
Oh Dorothy K I am so , so sorry. What a heart breaking scenario for you and your parents. It sounds like a very, very sad situation. I hope something will make them budge soon !
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team