New TNBC Start Chemo 9/8/11 need good thoughts

Options
keepitsimple63
keepitsimple63 Member Posts: 4

I'm so glad to find you all here! I feel blessed to have been able to find a place that I can come to and share what is going on with me and to get to know other TNBC survivors and make new friends.   

Hello there, My name is Tammy and I'm in real need to talk to other TNBC survivors.  I was diagnosed July 15, 2011 with breast cancer, but on July 27, 2011 I was diagnosed with TNBC. Prior to this date I had a mammogram on June 2, 2011 that didn't look that suspicious to the radiologist but to be sure he sent me in for a biopsy. My surgeon (who I have seen numerous times before) scheduled it for me.  I was admitted to outpatient care and wheeled into the OR with no worries what so ever on my mind! I was released and sent home with no details and felt good about everything.  It never dawned on me that I had an incision instead of something smaller. I just thought that's what it was supposed to look like and never thought I had a lumpectomy instead of a minor biopsy. We won't go there!...not happy the surgeon left that tidbit out of the conversation with my husband. During the entire wait for my post-op appointment I never had a clue. I went to see my surgeon by myself believing that I would be sent home after being told, "it was negative everything looks good, keep up with your mammograms." Instead I was asked if I had brought my husband Paul with me, and of course I knew immediately something was terribly wrong.  I was recommended to have my left breast removed and I chose to have the right one removed as well.  My double mastectomy was on August 5, 2011 and it went very well. I was surprised at how well I felt and how well my left arm felt after the lymph nodes were removed.  I asked the surgeon post-surgery about that and he said that he had a new tool that allowed him to save the nerves.  I do have some numbness but not a lot.  I feel quite blessed! 

The biopsy report with the TNBC was given to me on July 27, 2011 and after doing much reading beforehand I knew that I was really interested in my er, pr, her2 markers. The doctor read the markers because I asked him to and after hearing it,  I told him right away that I was triple negative. I left with my husband and him not knowing anything about the markers and what that all meant until we got in the car and I told him. Once I got home I broke down. I thought for sure I wasn't going to be able to get out of that dark hole I felt I was in but now I try and think positive thoughts.       

Please anybody out there reading this I really need some encouragement from you Smile This is really tough!!!  I do not have much at all of an extended family on my side or my husbands side to rally around me, I feel quite alone.  We have 3 son's (27, 27, 17) who I adore but they do not know what to do or say...so they are choosing to say nothing at all.  Since July 16th the day after diagnosis I got on the phone and reached out to a local support group and thank God for that. Somehow I knew that this was too big for me and that I cannot do this alone. I couldn't believe how loving and supportive other breast cancer survivors were and stil are to me. They are the ones that have reached out to me the most and who are the ones picking me up the most right now.  

I start my chemo treatment tomorrow at 10am and I'm very scared!!!  I go today for my teaching class at 2pm.  I've read a lot but I know it doesn't compare to the real thing I'm afraid.  Is there anyone who would like to be a chemo buddy with me that is starting their 1st chemo very soon?  I look forward to reading your replies and hearing from you.  

Invasive Ductal Carcinoma, Stage 1, No Positive Lymph Nodes, Mammogram: June 2, 2011, Diagnosed Breast Cancer: July 15, 2011, Diagnosed TNBC: July 27,2011, Double Mastectomy: August 5, 2011, Start Chemo: September 8, 2011. Treatment: 4 rounds of AC and 12 rounds of T.

Comments

  • mags20487
    mags20487 Member Posts: 1,591
    edited September 2011

    I will be starting chemo in about 2 weeks.  Just behind you.  My bmx was aug 23 and my left arm where 18 lymph nodes were removed and i do not get along just yet.  From all the research I have done as well as this great forum I really believe that I will beat this and be a long term survivor..that is how it has to be.  I have a pet scan...my first...on Friday..I will be holding my breathe til the results come back.  My mind has turned to the "dark side" a few times but overall I try to stay positive even though it will not change my true prognosis it will make it easier to deal with the crap we have to.  There are so many strong independent women on this site that offer so much great advice on anything so know with that you are not alone to deal with your struggle.

    {{{{HUGS}}}} to you

    Maggie

  • Luah
    Luah Member Posts: 1,541
    edited September 2011

    keepitsimple and Mags: Sorry for your Dx, but this is a good place to be. We have all been in that dark hole when we first discovered that we had TN and began to realize the implications of that, but there are some positives too.  Generally, chemo works well on TN, and while the recurrence rates are higher than other types in the first 3 years, they decline quite dramatically after that. Plus, vigorous exercise and a good diet have been shown to have extra benefit to TNs in terms of reducing risk of recurrence. So there are some things we can control that help us.

    I urge you to look up the chemo discussion board, and find the month corresponding to your start date, or start a thread of your own. You will get lots of support from other ladies going through chemo at the same time. It is scary, but please don't think it's like the movies - there are very good anti-nausea medications and other things you can do to manage SEs. Aside from feeling fluey for a few days, most of us carry on. Loss of hair was a biggie for me, but remember it's temporary... and soon you will be on the other side of treatment. Hope this helps.

  • RJ70
    RJ70 Member Posts: 21
    edited September 2011

    Ok girls it has I been at this almost a year now. I was DX Oct 1. What away to kick off breast cancer awareness month. My Doctors did not wait not time. I had my port in, all the scans, and started treatments in 2 weeks. and to top it all off my husband after 19 year decided he wanted a divorce after I started my treatments. We have two girls. Me and the girls went and stayed with my parents until I got done with my treatments.I was really not able to take of myself, but he told me I was faking It. So I really know how bad it can get.. But I really think everything happens for a reason. I am happier then I have been in a very long time. I have two older sister that take such good care of me and a mom and dad that would do anything for me, and two teenagers that will not let me stop, I walk everyday 3 to 4 miles. Back in March I had a hard time walking to the bath room. Even  having no breast I am even happier with body. Less to worry about. I have got little sayings all over the house, but my favorite is Don't worry about tomorrow God is already there. Hang in there it gets better.

  • amidala
    amidala Member Posts: 30
    edited September 2011

    keepitsimple,

    Don't let the diagnosis of TNBC scare you out of your wits.  It's aggressive, yes, but it also responds very well to chemo.  I suggest checking out the website Positives About Negative (I think it's hormonenegative.blogspot.com) for a first hand account of a woman with TNBC who has so much positive information to share, plus she's a six year survivor of TNBC which is very encouraging.

    I won't lie-chemo is no walk in the park, but it's completely do-able.  I opened a fortune cookie shortly before I started chemo that had the fortune "When one must, one can."   Truer words have never been spoken.  That little message went with me to every treatment, every surgery, and I still carry it with me.  You can do this!  One day at a time.  One minute at a time if that is all you can handle at once. 

    As for support; keep coming here.  I haven't been on this site very long (was at another online support group until they changed the format) but I really love what I see around here.  Lots of great support and information

  • keepitsimple63
    keepitsimple63 Member Posts: 4
    edited September 2011

    Maggie, my thoughts are with you and will be with you in 2 weeks when you start Chemo. I would truely luv to be there for you if you feel lime you also want a Chemo buddy to talk to. I am here at home right now needing to get up and take care of the last few things I can before I take start my 1st treatment...which starts in 4 hours. Yesterday my teaching class went very well! The nurse was such a doll to me and I know they all will take good care of me. I wish you all the best and keep that positive attitude. Please contact me if you feel like it. Hugs!!!

  • keepitsimple63
    keepitsimple63 Member Posts: 4
    edited September 2011

    Luah, you are so right! There is more we can do to help our situation by eating well and exercising. I want to do everything I can. I will have to search for the Chemo boards. Thank you!!! Hugs!!!

  • babygirl73
    babygirl73 Member Posts: 1
    edited September 2011

    New to forum. I'm Erica and I'm 38 years old. Diagnosed on July 6 and began chemo August 3. No cancer in lymph nodes or anywhere else, just in left breast. I felt completely hopeless, especially after reading statistics on the internet. I am so afraid and feel so alone. The tumor is shrinking and I'm tolerating chemo pretty well. Very fatigued and no appetite. My oncologist is pleased with my progress and very confident that I will survive... I wanted to reach out to those with the same breast cancer.... tnbc is bad but it can be treated ... fight and stay positive.p>

Categories