Waiting for core biopsy results

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Lavender250
Lavender250 Member Posts: 187
edited September 2016 in Waiting for Test Results

Hi everyone, looks like I'll be joining the "waiting room".

Went for my biopsy yesterday. I couldn't help but try to fish for a probability assessment from my surgeon. She was a little coy but did say she felt that the lump shape and my age made her think it's benign. For whatever that may be worth because I'm still so worried. She also guessed a 10% chance of malignancy. It made me feel good at first until I rememberd that she hadn't seen me or touched my lump in three weeks. There's really no way of knowing where she got that statistic from. I'm trying to take it to heart but it's difficult.  I was TERRIFIED when they said my husband couldn't be in the room but the nurse was WONDERFUL. No offense to my husband but she made a better companion. She was talking to distract me whereas my husband would have just stood there holding my hand. The talking was  very helpful. My surgeon was more pleasant this time around too.

I'm not feeling too much post-op pain but the procedure was a little more painful than  I was expecting. She took 4 samples and sample #2 was pretty painful. The rest really weren't bad at all. I think I was on a high afterwards from being proud to get through it. Now I've come crashing down a little bit and realize that "this is it". I can't do anything but worry about results now. It's too much to even imagine and I don't really know how to find comfort. It's all in God's hands now and I desperately want things to be okay.

I should know my results next week.... thank you everyone for your kind words, prayers and support. It gets me through some of the most difficult moments! I hope everyone else in the "waiting room" gets good news soon! Bless you all!

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Comments

  • martygra
    martygra Member Posts: 128
    edited September 2011

    Hi Lavender,  I have been wondering about you,  glad you made it through the biopsy ok,  I had mine on Tuesday still have not heard any results.  Glad your surgeon gave you some reassuring words.  I was even afraid to ask.  Praying that you have b9 results. 

  • Lavender250
    Lavender250 Member Posts: 187
    edited September 2011

    Thans martygra! I hope you get good results!! This is no picnic at all..... I'm right there with you.

    I wonder if 10% chance is considered low in the medical community? As much as I love these boards, this has been where I hear unsettling stories about young women being told by surgeons that it all seems okay and then it's not Undecided I know I shouldn't fish for guesstimates because then I overanalyze. I'm freaking out one second and calm the next. I've been waiting so long that I've finally started to feel like I don't really want the answers anymore. I just want my life back so I can live it a little more.

  • martygra
    martygra Member Posts: 128
    edited September 2011

    I know Lavender,  That is all I want right now too,  I just want to be my old self,  it is so hard to function right now it is driving me absolutely crazy.  My normal life is not all that exciting but it is my life,  enjoying the summer, enjoying my dogs,  watering my flowers,  enjoying people and summer get togethers barbeques and all that stuff.  Now I can't even think about anything but the big hand gernade on my chest.  Just praying that some day things can be normal for all of us.

  • VSM
    VSM Member Posts: 345
    edited September 2011

    My thoughts are with you both today ladies!  The mind games that breast issues play on us are no fun!  Our minds immediately jump to the worst case scenario when we face the unknown.  Please try and take it one step at a time (easier said than done)...

    We all know how the mind spins and can be logical, sane, and calm one minute, and then freaking out the next--those are normal feelings!  Know that the waiting is the hardest part--we can't start "fixing" what we don't know, but our natural instinct is to try...The results from the biopsy will get here soon.  Let us hear!

    The good news: 10% chance of malignancy means 90% chance of no malignancy.

    I hope you both are able to enjoy this treat of a long weekend!!!  Find a fun, new diversion--my DH and I turned on the sprinkler and lay under it on our lawn chairs...Laughing

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited September 2011

    OR, remember, you have only a 20% chance of malignancy. Take her 10% of the 20% and you are down to only a 2% chance of it being malignant.

    You should post in your other thread Lavender, I had to look around to find you! Now go to Boston!

  • KatMJ
    KatMJ Member Posts: 75
    edited September 2011

    When I had my biospy on a Friday afternoon the surgeon called me Sunday to tell me it was B9.

    Your wait may be a short one like mine was.

    Glad you made it - I knew you would!!!!! :)

  • 3beans
    3beans Member Posts: 46
    edited September 2011

    Hi Lavender,

    So I am glad all went well...at least as far your anxiety. I know it was scary and painful but you obviously handled it LIKE A CHAMP!!! I had my appt....lol,,,I posted under in the old thread,,,annoying but they all are these days!! haha

    So whats the verdict on Boston? I know the waiting is agonizing, but are you feeling better now that the procedure is done?

    To all you other wonderful ladies who are waiting...I am waiting for you to give me your B9 results....Hugs to you all! 

  • Gottobme
    Gottobme Member Posts: 107
    edited September 2011

    Well done Lavender.  Now go do something special and acknowledge the mile stone you made.  Yes you had lots of support leading up to yesterday but, it was down to you in the end and you did what you had too.  YAY!! 

  • Gottobme
    Gottobme Member Posts: 107
    edited September 2011

    Wishing all short wait times and B9 results.

  • Zombean80
    Zombean80 Member Posts: 101
    edited September 2011

    Hey Lavender,you had yours on the same day as me! Except i had a lumpectomy! I am SO glad you had a great nurse to help calm your nerves! I really hope for B9 results for you and all the other ladies here in the " waiting room".

  • Lavender250
    Lavender250 Member Posts: 187
    edited September 2011

    I hope you are recovering well Zombean! I was doing okay yesterday but it's starting to really hit me now. I'm very worried but I'll keep praying..... for everyone! Waiting is harder than I ever thought, especially when I have such a bad family history.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited September 2011

    We TOLD you waiting was the worst....but, NO, you thought getting the test was the worst!! hehehehehehehe

    Hang in there sweetie!

  • gloryofthe80s
    gloryofthe80s Member Posts: 5
    edited September 2011

    I agree that the biopsy was the easy part.  Tuesday can't get here soon enough!

  • jamiebeth
    jamiebeth Member Posts: 50
    edited September 2011

    I'm hoping your results come back benign, and I'm pretty sure they will, even with your mother's history. Will you be satisfied if the biopsy results are benign? Or would you plan further tests? Good luck waiting through tomorrow--I'm sending positive vibes your way.

  • Lavender250
    Lavender250 Member Posts: 187
    edited September 2011

    jamiebeth, that has been the million dollar question. IF this even is b9, what do I do? Leave a lump in my body and pray the results weren't wrong? I've been very depressed about that. I wanted this biopsy to be the final answer for me.....and it sounds like it's nothing more than another educated guess. I feel like this won't really be over. There will always be some doubt to trusting these results.

  • Gottobme
    Gottobme Member Posts: 107
    edited September 2011

    It's my understanding that complete removal of the tumor, lump, area of concern, is the only way to determine it's complete pathology.  In dealing with melanoma, I have had many excisionel biopsies with clear and not clear margins and have trusted the path reports from those procedures.  Inside or out, the excisionel tells the hystory of the area of concern.   

    If you know your not going to be able to trust the core biopsy path report, then make that known to your dr and get the wheels in motion for an excisionel biopsy to be done. 

    In my case, the surgeon wanted another ultrasound and based on that report, I am having an excisionel biopsy on Sept. 13th for a solitary papilloma with a path report that came back B9. 

    It's not uncommon to have excisionel biopsies on B9 lumps.  So, given your overwelming fear of your family hystory repeating itself through you, further testing shouldn't be an unreasonable request to be met to give you the answer you need to move forward.   It sounds as though you are not going to be comfortable with or be able to trust the path report from the core biopsy you just had.  

    See how you really feel when you get the path report and go from there. 

     Take care.  I'm hoping for a B9 outcome for you. 

  • Lavender250
    Lavender250 Member Posts: 187
    edited September 2011

    The Bs recommended a core needle and I really don't know why. I've waited so long for an answer and now all I'll get is a guess (unless it is cancer). I was afraid to ask advice on here cause I knew everyone would suggest excisional. Maybe she thinks it's cancer IDK. WHY else would she prefer a bx that doesnt remove the lump? I feel so hopeless

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited September 2011

    Lavender, it would be the other way around! If she did expect that it was cancer, she'd go right to an excisional to remove it! It sounds like you're only going to be happy with a cancer diagnosis, so I'll say it. Lavender, you have cancer!

  • Lavender250
    Lavender250 Member Posts: 187
    edited September 2011

    That's a horrible thing to say..... what a bummer

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited September 2011

    Come on!! You have fought every single thing we have said to you! You have questioned every move by your doctors and even ones they haven't done yet!! What are we to say???? Now that you have heard it, how does it make you feel?

  • Lavender250
    Lavender250 Member Posts: 187
    edited September 2011

    I'm expressing my fear that sampling a piece of this lump won't get rid of it. I'm scared sick and so tired of being told that I want cancer. I'm scared and feeling upset that I won't have the final answer I've been waiting forever for.

    I appreciate your previous attempts to reassure me but it crushes me to be told that I want cancer. It hurts me because I'm obviously terrified enough.
  • barbe1958
    barbe1958 Member Posts: 19,757
    edited September 2011

    Sampling a piece of your lump will NOT get rid of it. You've been told that. You would have to have an excisional biopsy to get rid of it. But in your previous post you expressed a desire first to have an excisional, and then to not want one. We know you are scared. Most of us answering you already have cancer. We have heard our name and cancer in the same sentence. I was trying to shock you to see what it feels like. I was the one that told you that even if you don't have cancer, you have lived it. You have experienced the fear and the tests and all the wait times. I have been your biggest fan to date. I need to hear you listen to us and repeat some of the positive things we have been trying to help you with.

    The results of this single biopsy will NOT give you the answer you need if it is negative because you will always wonder. Gottobeme has suggested you ask for an excisional biopsy anyway and that's where you disagreed yet again. She had a great point!

    I think it's just that we don't know how to help you when you beat down any help we are trying to provide you with. I was also the one that told you to post in the other thread you started. It's common of newbies to open up multiple threads but then no one can find you to see what's happening. You lose your followers.

    I'll shut up now.

  • Lavender250
    Lavender250 Member Posts: 187
    edited September 2011

    I know barbe...you have been great. Maybe you weren't around when the last person told me I want cancer. It just broke my heart cuz it was soooooo untrue. I'm not a breast expert so I figured the doctor advised a CNB for a reason but peoplr are saying thay it's not the best test. Some are even saying that removing the lump is the only wAy to know for sure . My Bs didnt tell me that sso now I'm scRed that this Cnb wont be my final answer.



    I appreciate your support and generally like hearing from you,.. I'm just scared of being misdiagnosed or having to do more tests after this biopsy/waiting has drained me

  • CoolBreeze
    CoolBreeze Member Posts: 4,668
    edited September 2011

    That last person also said you would not believe the biopsy results.

    Looks like that person might be right. 

  • Paula66
    Paula66 Member Posts: 1,728
    edited September 2011

    Lavender here is an eposide that aired on the doctors that yes you can have a biopsy that comes back cancer free.  I know the wait is hard.  I have had several cysts that I felt all the time.  You cant let this control you.  You have to take control!  You will have to copy and paste the link, sorry!

    http://youtu.be/93CzIs1jsyU 

  • jamiebeth
    jamiebeth Member Posts: 50
    edited September 2011

    Here's the deal: You need to get past this because there will always be another breast lump. Breasts are lumpy. Everyone's breasts are lumpy, it's the nature of glandular tissue. Even when this current crisis is over, at some point, especially being young and not yet having children, you will most likely notice another breast lump.

    Mind you, I'm not a doctor or any more knowledgeable than any of the people on this board, but I think you should be tested for the BRCA 1 and 2 genes since your mother had breast cancer and your grandmother ovarian cancer. If you test positive, maybe consider prophylactic bilateral mastectomy and ovary removal. If you test negative, be satisfied with the results of your current breast biopsy. 

    Another suggestion I'd like to make as a fellow severe anxiety and panic sufferer, is a book called, "When Panic Attacks." It's absolutely excellent. Cognitive and behavioral therapy has also worked wonders for me and might for you also. I can't imagine what it must have been like to lose your mother at such a young age, and I'm not surprised you're suffering from breast cancer fears. But there really are some great tools out there to help you. (I'm much more concerned about you getting help for your anxiety than you ever having breast cancer.)

    Good luck, and you're welcome to message me privately if you'd like to talk more about cognitive and behavioral therapy.

  • CoolBreeze
    CoolBreeze Member Posts: 4,668
    edited September 2011

    That's an excellent post jamiebeth.

  • Lavender250
    Lavender250 Member Posts: 187
    edited September 2011

    good advice jamiebetb.....dont have resultz yet so still waiting. What can I do to get through today and tomorrow and the next day? I dont know what to do. I hate having my family hx looming over me......makes it impossible to think positive



    Xo

  • martygra
    martygra Member Posts: 128
    edited September 2011

    So sorry you are going through all this fear.  I had lumpy breasts when I was in my 20s and had myself so scared that I had cancer and was going to die and leave my baby boy motherless.  I never had to have a biopsy just the mamo when the told me I had fibrosistic breast disease which freaked me out until I found out it was not a disease after all just what they called it.  I probably would have been even more freaked out then you if I would have had to have a biopsy. The mind can wreak such havoc on a person.  For what it is worth I feel you will be fine,  just make sure you pay attention to your body and get your yearly check ups.  I was much better at that when I was younger but kind of quit paying attention to things as I got older.  Wishing you peace and health and hope all turns out well for you.

  • jamiebeth
    jamiebeth Member Posts: 50
    edited September 2011

    Lavender--I strongly believe you need to stop coming to this board because it's fueling your anxiety. You're not learning anything new here, just reading scary stories. Get up, get away from the Internet for a while, get some exercise, read a book, meet with friends and ask about THEIR lives. Leave your head for a while. And when you feel the anxiety and panic, LET IT HAPPEN! Look at it from the point of view of an impartial observer and see for a fact that the fear and anxiety do not harm you. Fear will not hurt you in any way.  

    When you try to stop anxiety, strangely enough you can make it worse. When you just let it happen, it will run its course faster. What's weird, too, about anxiety, is that the subject of your anxiety doesn't matter. If the anxiety is strong enough, anything can trick your brain into thinking you're dying.

    You're probably more scared about your 99.99999%-likely benign lump than most women on this board are about their diagnosed stage IV cancer because your brain has convinced your body that it's facing the firing squad at dawn!! Anxiety is truly, truly a bitch. 

    Good luck, and please consider buying that book I mentioned.

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