Sept 2011 Rads

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  • katehudson25
    katehudson25 Member Posts: 2,467
    edited September 2011

    Hi pam53,

    I did not have oncotype. I go to see my medical oncologist Thursday, and I will ask him about it. I think the reason I didn't have it is because I do not need chemo.

  • neecee
    neecee Member Posts: 663
    edited September 2011

    luv2trav - I am in agreement with you about the drudgery of daily rads.  I did not have this much of an emotional problem with my chemo.  I worked full time during chemo, and am still working full time.  Juggling my work schedule to accomodate daily treatments is not fun. 

    On a positive note,  I had my first treatment today, and have only 32 to go!

  • ashleere
    ashleere Member Posts: 19
    edited September 2011

    Hi Ladies,

    Stormy, my mold was like a bean bag around my shoulders, they got me positioned and then took all the air out and it became one hard mold.  Not too comfy but  it will do.  I am in a clinical trail because I am HER 2 + but I was told today that I will not be getting the Herception just radiation.   I will have 30 treatments and they pushed that back now until 9/13.   This means i won't be finished until about the end of October. Halloween is my favorite holiday and I want to enjoy it.  I hope everyone has a safe and Happy Labor day.

    Clelia

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited September 2011

    I find the daily treatments to be a tedious drag, also.  Even tho the rad tech ladies are personable and professional, the idea of driving to the center every day-a 15 minute drive-after work for 33 days (not including weekends) seems like it's gonna take forever.  I have 25 more to go.  Blah.

  • marybm
    marybm Member Posts: 6
    edited September 2011

    Hi everyone,

    Just found this discussion board and glad to join in the conversation. I had my 8th rad yesterday and am pretty sensitive and sore. I have 25 more to go and am nervous about how bad this might get. I'm fair and have pretty sensitive skin. Finished chemo early Aug. and just regained my energy. Hate that I might lose it again.

    luv2trav, I feel the same way. I just want this all to be over. I live an hour away from the tx center and I'm having to leave work early every day. Plus I figured it will cost me almost $500 in gas by the end of my treatments. I know I should be grateful that my prognosis is good because of the medicine, and I am, but right now I'm having a hard time with it all.

    So tired of wearing scarves every day. Wish I were the kind of woman who's comfortable showing her bald head!

    Okay, enough complaining for one morning. I'll try to be more positive next time I post. Thanks for listening.

  • marybm
    marybm Member Posts: 6
    edited September 2011

    I'm right there with you DivineMrsM! Double-blah!!

  • neecee
    neecee Member Posts: 663
    edited September 2011

    marybm - welcome to the club!  We will all get through this.  Hopefully by the end we will all be more bubbly than blah.  lol.

  • jackifp
    jackifp Member Posts: 185
    edited September 2011

    They didn't make a mold for me, either - took photos with a dinky digital camera...makes me wonder just how accurate it will be, eh? Guess my alternative would be to go to a big city center...

  • jackifp
    jackifp Member Posts: 185
    edited September 2011

    marybm - my rads office offered me the American cancer society's gas reimbursement - pays 14cents a mile, which wil help tremendously towards my half hour each way daily drive. Just got my first card from them, 49$ on an American express card. Ask your rads office. Apparently it could have been offered thru the onc office, too, but they never mentioned it, so I missed out on help for the hour each way for the last 4 months.

  • ginger_mea
    ginger_mea Member Posts: 264
    edited September 2011

    Like the comment about the Rad onc being easy on the eyes Ruffolo1  hahaha....

  • marybm
    marybm Member Posts: 6
    edited September 2011

    Jackifp - thanks for the suggestion. I'd LOVE to get 14 cents a mile. Even 4 cents a mile! I'll ask on Tuesday. I didn't have a mold made either - had the same digital photo routine as you. The techs spend a lot of time shifting me around on the table before treatment starts. I've also wondered about the accuracy especially in case I move a little.

    Neecee - thanks for the welcome. I'm sure we'll get through this, especially with the support of people in our lives and on this board. It does help to complain a bit now & then even though it doesn't change a thing!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2011

    Jackfp, Thanks for the info about the gas. I will ask about it on wed. Thats when I start rads. I too will have a 1/2 drive both ways. We live out in the country and lots of times you get stuck behind farm equipment so my 1/2 hour drive can easily become much longer. We are entering harvest time so there will be increased farming traffic for sure.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2011

    Love the comment about easy on the eyes. With all the new doctors you'd think at least one of them would be good looking, nope I got all old farts, lol

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2011

    Just an fyi, I found Toms deoderant at Walmart, $4.45 What is the name of the cream or lotion thats soemthing Utter? My onc said not to use anything preventitve. Dont see any harm in doing something preventitve. Ive also heard women talk about 100% Aloe gel. I seen that today too, but it looks sticky. Has anyone used it?

  • neecee
    neecee Member Posts: 663
    edited September 2011

    stormy123 - I think the cream you are asking about is udder balm.  I use 100% aloe when I get sunburned.  It is a little sticky until it dries, but it is the only thing I trust with a skin burn!  We grow aloe in our garden to use.  My husband puts it in his water. 

  • katehudson25
    katehudson25 Member Posts: 2,467
    edited September 2011

    Hi Stormy,

    It is Utterly smooth body cream. I am using it now and I love it.

  • geocachelinda
    geocachelinda Member Posts: 223
    edited September 2011

    I don't know why but my rad group told me just to use Aloe Vera gel for now and then if I need it they will give me stronger/other lotions etc to put on it.  I have not started.  19th for me..

  • MostlySew
    MostlySew Member Posts: 1,418
    edited September 2011

    Hi. Thought I'd join this group as I'm finally going to start radiation. I go for my CT set up 9/6. I don't yet know when the simulation will be nor when radiation will actually start, but soon I hope.

    I feel like Leighsa and I'm actually excited to get this going. For me it feels like the last leg of my journey and I'm pleased to be starting it. Thanks for all the helpful information, I agree forewarned is forearmed as most of us seem to feel.

  • ashleere
    ashleere Member Posts: 19
    edited September 2011

    Hi Ladies,

    Has anyone use the Tom's deoderant? I used it yesterday and today and do not care for it at all. Is there anything else that I can use?  Thanks for the tips on creams and lotions.

  • revmama5
    revmama5 Member Posts: 48
    edited September 2011

    Hey Neecee & Sept RADS Ladies;

    I made it over, I go in Sept 12 for simulation and mold. Well let's get this journey started and on to the next. I got done with my last chemo Aug 16.  Hold my hand on this one really nervous.

  • revmama5
    revmama5 Member Posts: 48
    edited September 2011

    Neece;

    Glad to see you doing well and had your first treatment. Thanks for being there!!

  • EvelynMarie
    EvelynMarie Member Posts: 28
    edited September 2011

    Hi All ... were you specifically told to use certain products ... Tom's deodorant, etc.? On my first visit to the RO's office, the nurse went over the list of things with me and told me that there was no restriction as to deodorant, lotion, powder etc., and only that I should use a mild soap with no perfume. Since I use Johnson's baby wash, I figure that is mild enough.

    I am still using my regular deodorant. I am using emu oil on the one breast after each radiation treatment, and before bed time every night. I checked with my RO first and he said that was fine with him since the purpose is to keep the breast moisturized. I am his first patient to use emu oil and he is curious to see if it works.

    I am also using emu oil on my head, eyebrows and eyelashes. My hair has been growing steadily but that is pre-emu oil. We shall see if emu oil makes any difference in the radiation treatments and with the hair growth.

    I've done eight radiation treatments so far ... 27 more to go!

    EvelynMarie

  • neecee
    neecee Member Posts: 663
    edited September 2011

    revmama - Welcome!  It is good to see a familiar name on this thread.  We will get through this together.  I started rads this past Friday.

    EvelynMarie - my RO did not tell me to use specific products, but did make some suggestions regarding lotions.  He did say no to any underarm products with aluminum, which eliminates all antiperspirants and leaves me with only aluminum-free deoderants as a choice.

  • lilylady
    lilylady Member Posts: 1,079
    edited September 2011

     My place is suggesting Aqua-Phor only. I had already bought the emu oil and have been using it on my scars. I also found plain old cornstarch works Ok for deoderant. I put it in a tupperware and am using a powderpuff. I am off work right now so the BO issue isn;t that important. Told my family they will have to just ignore it!!

       I see the BS tomorrow and have my CT and sim at the Rads place after. He wanted to start the actua;TX the foloowing Mon.  I am again holding fluid on my chest again so I doubt the BS will release me for the rads. She wants the skin stuck to the chest before we start. He thinks it will be fine but I am letting her make the call

  • justmejanis
    justmejanis Member Posts: 1,847
    edited September 2011

    Ruffalo, nice to meet you but sorry about the circumstances.  The radiation so far for me has been a breeze.  I have had 9 treatments with no side effects.  The treatments themselves are very quick and painless.  I use Calendula gel on the radited area several times a day.  I got it from the Cancer Treatment Center.  It seems to be doing the job.  You will have a great bunch here to hold your hand through anything you need!  We are here for you. 

    HUGS!

  • Suebee48
    Suebee48 Member Posts: 28
    edited September 2011
    Hi everyone. I would like to join this group. I started rads Aug 31, had 3 treatments, 26 to go. I was told to use only Aveeno unscented lotion twice a day and Dove unscented soap in the shower but I had already bought aloe and Aquaphor and Udderly smooth from reading these boards. I use a little of everything because after 3 treatments, I feel tender already.Frown I have 4 tatoos but also a ton of ink markings that go quite high up my chest that need to stay the entire course of treatment. V-necks and scoop necks shirts are no longer an option. These markings are very de-moralizing for me. Anxious to put this all behind me
  • katehudson25
    katehudson25 Member Posts: 2,467
    edited September 2011

    Janis and Sarahbob I am right between you. Sarah I think you said you've had 7 treatments and Janis 9. I've had 8 treatments.

  • justmejanis
    justmejanis Member Posts: 1,847
    edited September 2011

    Kate...you are right, we are in a horse race for sure!  Tomorrow will be 10 for me.  How are you doing Kate?  I hope everything is going well!

    Suebee, I know this is not a lot of fun.  I get drawn on too and have the Sharpie marks on my chest.  Mine are low so really don't show too much.  You'll get through this, we are all here for you!  Use whatever cream/oil/gel works best for YOU.  Hopefully you won't have al ot more discomfort.  So far I have had none and hope it stays that way.

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited September 2011

    Suebee, I know what you mean about the markings.  The day I got mine I had worn a v-neck shirt, so when I put it on afterwards, some of the bright blue sharpie lines were visible.  I've been wearing shirts with collars to work, but I have one mark below my neck/above my cleavage that is still usually obvious.  

    It would have helped if the women who marked me all up had mentioned something about how the markings would still be seen when wearing clothing.  Did they just assume that because I'm 53 that I no longer care how I look?  I would have appreciated some compassion or something from them for what I was going thru. They just acted like it was no big deal, but I'm sure if any of them had to walk around with this visible sign of treatment, they might feel differently.

    I work at an elementary school, and you know kids.  They are very observant.  Several have asked me about this mark they see.  I tell them it's a band-aid, that I had to have some medicine.  A couple of them have given me a look that says, "I know there's more to this, but I can't figure it out."

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2011

    Neecee, What, your husband puts Aloe in his drinking water? Why?

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