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I have had chronic pain in the back and shoulder since surgery 2010. The implants are very uncomfortable and am thinking of deconstruction just to get some pain relief. I also had axiallary web syndrome and  may have residual pain from that.My doctors think that part of the pain is extreme anxiety and depression.I am being treated for that, but I can't resolve one without fixing the other. The chronic pain is wearing me down. Did deconstuction help? Please - tell me  I not alone. Desparately need to hear from others. 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    bevb- I haven't had deconstruction but I have heard from a lot of women that the relief was immediate.  I also had chronic pain that started soon after my exchange surgery last June. I kept thinking it was going to get better but after 9 months it wasn't.  I just did a revision where my PS swapped out my implants for smaller ones and then did fat grafting over the top.  I ended up about the same size but the pain was gone.  I think the combination of having smaller lighter implants, and because my pec muscles weren't being stretched as tight, was the answer for me.  (And the added benefit of the fat grafting making everything look and feel more natural.)  Just wanted to make you aware of another option but I'm sure others will come along and let you know about the deconstruction, too.  Good luck.

  • bevb
    bevb Member Posts: 9
    edited July 2011

    Thank you for your message.  I hope you are doing great!  I have had such a struggle and just want to get it over with so I can heal and be 'real' again.  Are there any others like me out there?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    bevb- I think there are more of us than people realize.  Between the issues of our pectoral muscles being distorted during the TE process, how much heavier implants are than breast tissue (something they don't warn you about), pain from multiple surgeries, loss of breast tissue to support implants, women with auto-immune diseases which can flare with the introduction of a foreign object in your body, the need for lifetime stretching and PT, etc, etc, etc.  The list goes on and on of possible causes for chronic pain or uncomfortableness after TE/implants.  There are several threads about this if you want to read what others have said.  I think there are women on there, too, who have deconstructed that might have some words of wisdom with that.  The titles of the threads are-

    Still uncomfortable with implants (there's a member on there named "faithroad" who has recently deconstructed)-

    http://community.breastcancer.org/forum/44/topic/766702?page=5#idx_149 

    trouble with implants-

    http://community.breastcancer.org/forum/44/topic/771550?page=1#idx_9 

    and Visible ripples in implants (which originally started regarding aesthetic issues with implants but now deals with all the comfort issues, too)-

    http://community.breastcancer.org/forum/44/topic/758350?page=20#idx_584 

    I'm sure there may be more out there.  These are just the ones I post on.  If you put the word "deconstruct" in the search box you may find more.  Good luck! 

  • jessicav
    jessicav Member Posts: 161
    edited July 2011

    Kate described it exactly. I have had pain issues with implants from the beginning and was never told about the possibilities.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    Hi, bevb



    Within a few months after my exchange surgery, I developed serious back, neck and shoulder pain. I also had painful spasms in the right pectoral muscle. That implant became distorted and felt like it was popping outward. That became a consistent, nagging pain that made it hard to function. I also developed lymphedema on that side. I went to a myofascial release/PT for a year and got some relief from the pain. After that year, the pain level was such that I knew I could no longer live like that and needed to deconstruct.



    I started out in my BC journey a strong and happy woman. I dealt with the loss of my breasts and came to terms with that. However, the pain from the expansion process, the lymphedema, and the continual, never-ending chronic pain whittled me down to an emotional and physical basket case. I took an antidepressant, and during the time leading up to my deconstruction surgery, my primary physician prescribed narcotics for the pain. I interviewed three PS's and found one that sounded best for my LE situation, and scheduled surgery. I had my implants removed April 5 of this year, and upon awaking from surgery, even with the post-surgery pain, I felt immediately better. Within six weeks, was starting to hit my stride again, and my back, neck and shoulders felt pretty much normal again. I saw the myofascial release therapist twice to help my body readjust to not having to carry the weight of the implants, and he remarked how my shoulder muscles were no longer tight. My posture was improved as well. By eight weeks post surgery, I suddenly felt like myself again in my own body.



    I am still amazed how I could go from having debilitating pain to being pain free once the implants were gone. The new PS discovered I had thick capsules around both implants, and that the implant on the right was poking through the muscle. The pectoral muscle on that side had been seriously damaged by the expansion process and from the weight of the implant. My ribcage has indentations from the expanders. I am not the prettiest sight, but I am so happy to be free of the pain. I feel like my body and mind are finally healing and well on the way to being whole again.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    Hi, bevb



    Within a few months after my exchange surgery, I developed serious back, neck and shoulder pain. I also had painful spasms in the right pectoral muscle. That implant became distorted and felt like it was popping outward. I developed a consistent nagging/intense pain that made it hard to function. I also developed lymphedema on that side of my trunk. I went to a myofascial release/PT for a year and got some relief from the pain. By the end of that year of treatment, the intensity of the pain was still too much for me, and I knew I needed to deconstruct.



    I began my BC journey as a strong and happy woman. I dealt with the loss of my breasts and came to terms with that. However, the pain from the expansion process, the lymphedema, and chronic pain from the implants whittled me down to an emotional and physical basket case. I took an antidepressant, and during the time leading up to my deconstruction surgery, my primary physician prescribed narcotics for the pain. I interviewed three PS's and found one that sounded best for my LE situation and scheduled surgery. I had my implants removed April 5 of this year, and upon awaking from surgery, even with the post-surgery pain, I felt immediately better. Within six weeks, I was starting to hit my stride, and my back, neck and shoulders felt pretty much normal again. I saw the myofascial release therapist twice to help my body readjust to not having to carry the weight of the implants, and he remarked how my shoulder muscles were no longer tight. My posture was improved as well. By eight weeks post surgery, I suddenly felt like myself again in my own body.



    I am still amazed at how I could go from having debilitating pain to being pain free once the implants were gone. During the deconstruction surgery, the PS discovered I had thick capsules around both implants, and that the implant on the right was poking through the muscle. The pectoral muscle on that side had been seriously damaged by the expansion process and from the weight of the implant. My ribcage has indentations from the expanders. I am not the prettiest sight, but I am so happy to be free of the pain. I feel like my body and mind are finally healing and well on the way to being whole again.

  • bevb
    bevb Member Posts: 9
    edited August 2011

    Thank you, Tina. When I read your post, I began to smile and a feeling of hope came over me.  I, too, have become an emotional wreck over this. I keep asking myself "What's wrong with me? Why have I had so much trouble with this?" But that is how it's been.  I go to my PS on August 23 and hope to schedule surgery soon. Was the recovery process very difficult?  You said you felt like yourself by eight weeks out, so maybe I will be that lucky, too.  Thank you for your story.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2011

    Bevb, the recovery process for me was easier than the exchange surgery. And that's even with the lymphedema to deal with. By the end of a week with drains, I started to get a little crabby and tired of feeling sore. Once they were out, I felt more human, but it was around that time that the emotional part of the process kicked in. I was elated at first to be free of the implants and pain, but then the reality of my appearance got me down. It took me a couple of weeks to mourn and come to the point of acceptance. I had the support of the women on these forums, and they said so many wonderful things for which I am still grateful. Not everyone has the same outcome appearance wise, and not everyone feels the same kind of emotions. It is a period of adapting. I likened it to revisiting the mastectomy and that loss, but then I came back to feeling so lucky to be healthy, alive, and surrounded by so many friends and family who love me. I cut myself a break and was kind to this body that had endured so much. Not everyone makes it through life with all of their parts intact, and there are others who suffer much worse disfigurements. We are still who we are, and perhaps even a little stronger, wiser, and kinder from our experience. Once I wrapped my head around the emotional adjustment, I was able to resume the physical part of the healing process in a positive frame of mind. I had a 5 lb weight restriction for 6 wks but was allowed to put my hands over my head etc. After that, I was cleared to resume normal activities using good judgment and care.

  • bevb
    bevb Member Posts: 9
    edited September 2011

    Tina337,

    Went to my plastic surgeon and now have a date to have my TE's removed. I hope this can resolve most of my pain issues. All I have to do is wait for September 23 for surgery. I don't know if I can last that long. Did your surgeon tack down the pectorial muscle or just let it be?  Did you have your excess skin removed? How long did you have drains? Do you have any pain behind your armpits, toward your back and did it resolve? 

    Thanks to all that post here. You give me hope!

  • Erica3681
    Erica3681 Member Posts: 1,916
    edited September 2011

    Hi bevb,

    I very much hope your pain is greatly alleviated by the deconstruction surgery. I hope Tina will soon respond, but in the meantime I would just say that most women seem happier when they don't have excess skin on their chests. Please let us know how your surgery goes.

    Barbara

    BreastFree.org

  • bevb
    bevb Member Posts: 9
    edited September 2011

    Hey Barbara,

    I've been to your site and am pleased that there is so much info out there for those of us that will be and are breast free.  I know it will be a wonderful resource for me. Thanks for providing all the inspiration.  I hope and pray that surgery will help me over the pain hurtle and on down the trail.

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