August 2011 chemo, anyone w/ me?!

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  • karebear76
    karebear76 Member Posts: 288
    edited September 2011

    Chemo #2 tomorrow. Gotta go to bed. I had a rough day and am wiped out.

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  • Taylor777
    Taylor777 Member Posts: 141
    edited September 2011

    Glad to see your back from your treatment Chrys...Have a good night!!Smile

    karebear good luck with your treatment tomorrow and everyone else going through treatment tomorrow!!

    Good night everyone!!

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  • Chava
    Chava Member Posts: 50
    edited September 2011

    Flautale-- your welcome. Hope the shaving went well. I am day 21 after first tx and although I shaved my head on day 12to beat the rush on it fallling out I am still waiting. Since it is shaved I have been coving day and night. I find it gets chilly without something on my head. Each morning keep checking for little hairs in my scarf and still none! I find the t-shirt scarf idea really comfortable and an inexpensive way of getting a collection of head coverings. They describe it at in the booklet at the look good feel better and there are some you tube videos on it. Basically cut any size t-shirt.I bought some great colors at the dollar store today. Cut off under the sleeves and wrap it around. It is really comfy.

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  • capinva
    capinva Member Posts: 138
    edited September 2011

    Going for 2nd TX of A/C today. Worked a 12 hour day yesterday, slept really good so I'm ready for today. Hope the WBC counts are up and can get a TX. hope everyone has a day with no S/E.

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  • Taylor777
    Taylor777 Member Posts: 141
    edited September 2011
    Good luck with everyhting today capinva Smile
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  • Chrys23
    Chrys23 Member Posts: 291
    edited September 2011

    Dear Taylor -- How are you feeling so far?  I know some of the ladies here (includiing myself)  keep a light journal of any side-effects they may expereince (if any) down the line on the days following their treatments.

    It's helpful for me to know how my body reacts as I have a handy list that  I can relay it to my Oncologist and Nurse Practioner when they see me before each treatment.

    I hope you are doing ok so far! Smile

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  • Kasi
    Kasi Member Posts: 216
    edited September 2011

    Capinva & Karebear - Good luck today! I'm going for AC #3 this afternoon! 

    Madismommy- Ahh, yes, the wig. It's been a bit of a process. The one they ordered for me...sucks. It looks very dry and over processed. Like I've never heard of conditioner before. They are ordering me another one which I should have on Wed. Thankfully! It's hard enough to be bald but then walking around with a wig you don't like. No good. I hate people think that I did my hair this way on purpose. LOL. 

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  • Robyn6463
    Robyn6463 Member Posts: 167
    edited September 2011

    Dianamaps  - Thanks for the BRCA info. It's one of those things that I understand, but not well enough to explain, and you did a great job! I'll be tested in October.

    Still having some trouble with the port. Not happy with it. Trying to work today, before treatment number 2 tomorrow. Drinking lots, water, tang, gatorade. I think I'll go for a walk and enjoy the sunshine for a little bit. 

    Hope everyone is feeling well today! 

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  • Chrys23
    Chrys23 Member Posts: 291
    edited September 2011

    Kasi -- Good luck on #3 today -- how many more do you have to go?  Sorry that you don't like your wig; I hope the new one is better for you.

    As my Onc told me yesterday "you are almost 1/2 way done, Crystal!"  I guess he's right -- gotta think positive!  I go again on Sept. 21st and my last one is Oct. 12th. 

    Good luck to Capinva & Karebear today!

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  • vtellen
    vtellen Member Posts: 345
    edited September 2011

    Oh totally, Chrys! More than 1/2 done in my book. I am the 19th and then 10/10. As long as my bloodcounts hold! I feel more fatigue w/ this second dose, do you? Still using the steroids, though, so few SEs so far.

    Good luck, everyone on your treatments today. Another step forward, Yay!!!

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  • Grimbol
    Grimbol Member Posts: 326
    edited September 2011

    So are you all only getting 4 txs?  I am getting 6! that doesn't seem fair!! :(

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  • Madismommy719
    Madismommy719 Member Posts: 781
    edited September 2011

    Grimbol, I'm getting 6 too, we can let out a BOO together!!!! boooooo!

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  • Grimbol
    Grimbol Member Posts: 326
    edited September 2011

    booooo, indeed.

    I've heard of the issue of 4 or 6 txs, I guess you do whatever your onco chooses for you, have to trust someone in all of this.  Plus our dx are different.  I want to do all I can to get rid of this, having got this far.

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  • Chrys23
    Chrys23 Member Posts: 291
    edited September 2011

    Hello!

    Just did my Neulasta shot with the Nurse at 2pm -- wasn't bad at all. I iced my tummy, she showed me how to do the injection, which I did myself, and it didn't even hurt!

    vt Ellen: I am a little tired it seems with this 2nd treatment, but it's only day 2.  I am such a dolt, I forgot to inquire about extending the steroids to help with the SE's. Oh well....I hope it won't be bad again.  Undecided   I don't have any nausea and I'm eating regularly so far....may be too early to tell though! LOL

    Is anyone else experiening really bad hot flashes?  I started having them a week ago -- they come and go at odd times. Sometimes I'm ok, then I get hit where I feel like I'm a 100 degrees and have to cool down. I can barely sleep with anything on -- just bra and panties.  I also sweat more around my face area.  It's a pain, but what can you do. My nurse said it may be the chemo shutting down my ovaries, which can happen. I had a hysterectomy in 09', but they kept my ovaries for hormonal purposes. Funny that my cancer was  hormone driven. Yikes!

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  • Flautalee
    Flautalee Member Posts: 118
    edited September 2011

    Hello again everyone,

    Help!  I have a question to ask you.  About how soon after the first round of Taxotere/Cytoxan will my hair fall out?  My wig was delayed 2 days due to the Hurricane, and now my hairdresser is all booked for today and I'm going away tomorrow.  I had hoped that she would trim my wig and shave my head - but if it can wait another week then that's fine, too. That will also give me time to order a night cap from the American Cancer Society. Thanks!

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  • Chrys23
    Chrys23 Member Posts: 291
    edited September 2011

    Hi Flautalee - On the T/C regimine; and for me,  my hair started falling out on Day 15 after my first transfusion, which was August 9th.  Currently, I still have hair on the top and back, but my sides and temples and crown are really bald.  Everyone is different though.

    I hope you have a lovely trip starting tomorrow!

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  • koalakid39
    koalakid39 Member Posts: 42
    edited September 2011

    Flautalee, I as well,  started losing my hair after about 15th day of my first T/C.  I shaved it last Friday and it's very thin today.

    I had the first half of round #2 today, almost to the halfway point! YAY! So far the worst thing has been the neulasta. I'm going to be prepared this time and start taking pain pills when I get the first sign of bone pain!

    I hope everyone is having a good day! HUGS

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  • vtellen
    vtellen Member Posts: 345
    edited September 2011

    Grimbol, I believe that you are getting the A/C, while Chyrs and I are suffering through the taxotere. Stronger stuff, I believe? Oh no, editing here.Grimbol, you are getting TCH. Don't know. Maybe I'm getting too little? Eeks!  But, also I will be getting nuked about 31 times afterwards and I will be on hormones for 5 years.

    Oh yea, Chrys. I most def get the hot spells out of the blue. Took my temp. yesterday, figured it had to be super high - 97.6! Ha! I sleep au naturalle w/ a fan and the evening temps here in Vt are @ 58* right now.

    I am 5 weeks out from start, short hair, scalp showing somewhat, wear a cap when I go out anywhere.

    Koala- my personal choice is to start BEFORE the pain edges in. Just sayin'. I have turned into such a drug user, it is amazing. A friend in college, frustrated w/ me for not partaking in her pill partying wrote on my door post " Reality is for those who can't handle drugs" Well, zofran, dexamethazone, Ativan, Aleve, Senekot-s, and the occasional vicodin  hmnnn have I forgotten anyone? 

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  • vtellen
    vtellen Member Posts: 345
    edited September 2011

    Oh, and my tumor was also super ER and PR positive. So, I believe the taxotere is very effective at getting it. At least that is what Mayo said..... Man, we are all just crossing our fingers here, aren't we?

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  • Madismommy719
    Madismommy719 Member Posts: 781
    edited September 2011

    I have a feeling my "crash and burn" day is coming..... Today I have been very fatigued....and it seems like a beginning and not an end.

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  • Justina
    Justina Member Posts: 53
    edited September 2011

    Day 20 - shaved my head. Wasn't as traumatic as I thought it would be, probably because it was falling out in clumps, getting stuck with the remaining hair, looked and felt horrible. I was leaving a trail wherever I went. I am not a pretty bald but feel clean and almost like it was the last hanging on step. Been wearing scarves because scalp is still sensitive. Getting port put in next week and wish I didn't have to. 2 more rounds of AC, then 12 T. Thank you all for being here and giving me the strength to face all this.

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  • isa702
    isa702 Member Posts: 12
    edited September 2011

    Hello ladies!!! hope everyone is having a great day with mino S/E...

    As for me yesterday was my 1st of 4 A/C Tx and then i'll be getting 4 Tx of the Taxol and today had my 1st of 8 Neuslata shoot. So far i have been feeling good thank GOD no major S/E more like a food poisoning and light headache that comes and goes.  Well i have always been anemic but never felt any of the S/E but today my onco told me that it might be a more serious type of nemia called THALASSEMIA and that am going  to a genetic test to confirm it BUMMER!!! has anyboddy heard of thalassemia? and to top of i have a UTI so taking antibiotic of that Undecided...

    Madismommy179: thanks for the wam welcome sorry to hear that you are felling a little fatigue just hang in there, remember you that you are one step closer to the end... sending you a BIG HUG...

    michelleo13:  thanks for the warm welcome.  yessss, is great group of ladies here, i have been reading arround for quite a while but never dare to post a comment Embarassed... i am getting 4 cycles of the Taxol every two weeks starting some time in early november...

    Grimbol: sorry to hear about ur incident but glad to hear that at the end it all worked out; and sorry to hear about your hot flashes... hope today is going much better for you. Really they say advil ot tylenol, my onco told me to stay way from them because if i happend to have a fevewr it will be unnoticeable instead she prescribed me oxycode not really looking forward to taking them because they could be addictive...

    karebear76: sorry to hear u had a rough day yesterday... how was ur Tx today? Praying for minor S/E...

    Capinva: hope 2nd Tx of A/C went well today... Praying for minor S/E...

    Kasi: Good luck on Tx #3 today... How was it? Praying for minor S/E...

     BIG HUGSSS to everyone... and PRAYING that everyone has minor to none S/E... 

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  • summergirl1
    summergirl1 Member Posts: 182
    edited September 2011

    Madismommy, you may find after the steroids stop you may have 2 to 3 yukky days but nothing worse than having a flu, and then you should feel fine till next TX , I am now 15 days since first TX and cannot beleive how much energy I have , My poor Mother in law came with me for my daily walk on the beach and said she couldnt keep up with me , she wont be doing it again anytime soon LOL. 

    Hair is still shedding when I brush it but no clumps yet , I cant wait for next TX as then I will only have 4 more to go cant beleive how quick last 2 weeks have gone hope the next 4 mths fly by and we will be done with this. and VTellen how come you still have hair 5 weeks on? thats amazing they told me 12 days.

    Good Luck to all !!!!!!!!!!!!!

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  • isa702
    isa702 Member Posts: 12
    edited September 2011
    Justina:  sorry to hear about your hair but think of as one step closer to recovery sonner then you think you will have long beautiful hair again... Sending a BIG HUG!Laughing 
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  • isa702
    isa702 Member Posts: 12
    edited September 2011
    Justina:  sorry to hear about your hair but think of as one step closer to recovery sonner then you think you will have long beautiful hair again... Sending a BIG HUG!Laughing 
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  • vtellen
    vtellen Member Posts: 345
    edited September 2011
    I still have "hair" because I am hanging on till the last sad little tuff! Plus, it is curly so it sort of just messes around up there! But, just washed it and lots more hit the drain.Tongue out
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  • Flautalee
    Flautalee Member Posts: 118
    edited September 2011

    Hi everyone,

    When I called my hairdresser to tell her that I'd be losing my hair mid next week (by Wed-Fri) she asked if I could come over to her salon right away.  I skipped the shaving my head and she trimmed my Raquel Welsh wig to look like my current pixie cut.  Now, where can I find one of those old fashioned swim caps so that I can swim in the Atlantic on Tuesday? (I know the ACS sells one but am not sure if I will get it in time.)  It's always worth a try, tho....so I'm heading to their catalog and the phone - I would need to have it delivered general delivery.  I also have to check my portacath post-op directions to see if I'm even allowed to go swimming.  I'll keep you ladies informed.  Living on the wild side....

    Best,

    Lee

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  • dianamaps
    dianamaps Member Posts: 50
    edited September 2011

    My 13-yr-old daughter came in my room this afternoon as I was taking off my scarf and saw my balding head for the first time. Totally freaked her out and she ran crying from the room.  That was the worst part of chemo so far.  

     Diana 

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  • Robyn6463
    Robyn6463 Member Posts: 167
    edited September 2011

    Dianamaps...I'm sorry you're daughter was freaked. My 17 yo son told me he likes it better when I wear my wig than turbans, scarves and stuff. I look more normal to him. My 6 yo grandson loves my wig, but absolutely NOBODY has seen my bald head yet! They even let me wear my turban into the OR for my port placement surgery. I don't know why it bothers me so much, I just look so horrible. I'm so afraid my turbans will come off in my sleep...not that my husband cares about my hair at all, but I do. Big sigh. I guess this has been the hardest part for me too. I don't like looking like Uncle Fester at all!

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  • Justina
    Justina Member Posts: 53
    edited September 2011

    Flautalee, try just for you in east Hanover off route 10. I believe they have swim caps there as well as everything else chemo-hair related.

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