kids and fear

Steff66
Steff66 Member Posts: 33

I know this is a difficult topic, but I have such difficulties getting away from the thought that I will not see my beautiful 13 and 6 year old grow up. I have a high recurrence score, feel the chemo I am given is not enough, and that I cannot change anything. I know, all I have is today. I love my children so much. How does any of you cope with these feelings? Does any of you have a mantra, or a thought that fights this horrible feeling?I thank you for all the comments I can get. Hugs, Steff

Comments

  • pejkug3
    pejkug3 Member Posts: 902
    edited August 2011

    All of us who are mothers with small kids share the same fear, Steff. And it would be abnormal not to have that fear, IMO.  I'm not out much further than you are but it has gotten a little less intense as time has gone on. 

    I don't think there is one thing that anyone could say that would alleviate the nagging fear that comes with a cancer diagnosis.  But you have to have faith in your healing and the medical process.  You are doing everything that you can to see your babies grow up.  There is nothing more that can be asked of you.  Do you pray?  It helps me.  God doesn't always heal the way we see fit - I know, my daughter died after a drowning accident - but prayer does change things.  Cancer is evil and steals so much from us that we just cannot get back.  But don't let it rob you of tomorrow by destroying it with fear.

    I know it's cliche' but none of us are guaranteed tomorrow.  I know, I know, an invasive cancer diagnosis really makes you think about tomorrow. 

    Praying for your peace of mind tonight....

  • kt1966
    kt1966 Member Posts: 1,326
    edited August 2011

    Hi Steff66, sorry you are feeling like this.

    I remember feeling the same at your stage. I know it doesn't help right now but it does get easier...once you are over the shock of all this happening to you. You need to be kind to yourself & let yourself heal, it does take time...but you'll find as time goes on it gets better.

    These forums are great, you'll find people who understand where you're at. My kids were 6 & 8 when I was diagnosed, now they're 13 & 16, teenagers! Fun! They are great for taking your mind off your own situation. I found my kids helped me get up each day & to get on with life. I hope yours do too.

     Smile wishing you all the best! 

  • mommichelle
    mommichelle Member Posts: 191
    edited August 2011

    Steff66,

    I too felt those same fears.  My kids were 3 and 5 when I was diagnosed.  I remember sitting at dinner looking at my 3 year old daughter and being so sad at the thought of not being here to see her get married.  I got up from the table, went to my room and cried.  We had just bought a house the fall before I was diagnosed.  I remember being so excited for the summer to get out and enjoy the weather, then I had my diagnosis.  The summer didn't go the way I planned, but one night sitting on the back porch with my husband watching the kids play on the swingset with a bunch of neighbors, I remember being sad thinking, "This is what I hoped this summer would be like."  I realized in that moment, the summer was just what I wanted if I only looked at it that way.  Yes, I was dealing with cancer, but my big dreams for the kids in the summer were still coming true.  It is hard, I know, and even now I have my days.  I try to remember to be happy for each day I have, knowing that no amount of worry is going to change my chances.  I got a fortune cookie a while ago and have used that as my mantra ....If you worry you do not trust, if you trust you do not worry.  :)  

    Good thoughts going out to you,

    Michelle

  • Steff66
    Steff66 Member Posts: 33
    edited August 2011

    Thank you all, for your thoughts and feelings!

    Pejkug3- I feel so sorry for your loss of your daughter! It must be so hard, and with our diagnosis, too. But you have prayer, which I wish I had, but being raised as an atheist, it is not an option. Actually, I feel grateful tonight for having these two lovely kids. My daughter is composing, writing lyrics and exploring her talent with voice and guitar, my little boy plays the piano with me every evening, he loves to learn new songs. Today was the first day I could actually push the pain and fear a bit further out while sitting there with him. So thank you so much for including me in your prayer, my mind is more at peace right now. I wish you peace and a wonderful tomorrow!

    Kt1966- it seems we are the same age, 1966? I still do not dare to think further than next year, but you are encouraging! Yes, my kids help me get up in the morning! I want them to feel that mummy is there when they need me! I wish you happiness and best of luck ;-) with the teeny phase!

    Dear Michelle, you are so right saying that no amount of worry will change my chance! It has been the way I have coped with uncertainties all my life - worry about them and they will not come true. But now cancer has entered my life, a worry I cannot make disappear by any power in the world. So my usual strategy does not work anymore. So how not to worry? I have no answer to this and just hope that time will make things easier, not harder. I appreciate each day more now, but at the same time it seems so unfair that we have to be reminded of our mortality constantly with these nagging fears. For me there is nothing to trust in- no higher power, only that I go to bed each evening knowing I will still be here tomorrow, and see my kids. I hope this immediacy will become less scary, and I will have some peace of mind some days. And this is exactly what I feel these days, the way you describe it. I fear not to be here when my youngrst starts middle school, or my daughter high school. I simply don't know. But I try to live each day. Sending you big cyberhugs! Steff

  • kt1966
    kt1966 Member Posts: 1,326
    edited August 2011

    Hi Steff66, yes we're the same age!

    I remember how I felt all thoses years ago. I think the first year after diagnosis you are dealing with the fact you have cancer (& that is scary) and dealing with all the treatment. The second year I found was a recovery year and it was about getting back to 'normal'. The year after that I was more able to 'move on', although its always there in the back of your mind, you can forget about it (until a check up comes along).

    I know its not the same for everyone, but it may be similar for you.

    Got to go the barefoot trimmer is here for my daughter's pony! 

  • pejkug3
    pejkug3 Member Posts: 902
    edited August 2011
    Steff - I'm glad you're feeling more at peace today.  It's all so difficult to get your head around, isn't it? 

    KT1966 - Thanks for letting us newbies know that the shock and consuming nature of this diagnosis does lessen as time goes on.  I finished rads two weeks ago and I'm a bit lost right now.  Fewer appts., no idea how to get on with my life, self-concious over my appearance, etc.  And to think, at this time last year, I had no idea what was coming my way...
  • nash
    nash Member Posts: 2,600
    edited August 2011

    Steff--my kids were 5 and 8 when I was diagnosed. Now they're 9 1/2 and almost 13.

    My Stage IV bc mom died while I was still in treatment, and it was a long time before I could stop obsessing about recurrence. Both my father and father-in-law died of cancer as well, and I couldn't see how I would possibly not go down that road.

    But now that I'm over four years out from diagnosis, I hardly think about bc or mets anymore. I've had some scares regarding new primaries and possible mets, and the stress that came with that was horrific, but things ended up OK. The fear and thoughts about bc come and go in waves--right now bc is more on my mind and I'm checking bc.org b/c one of my friends, who is pregnant with her fourth child, was just diagnosed with Stage III triple neg. But really, most days bc is not on my radar at all.

    pejkug--what you're describing about feeling lost after treatment ends is very common. It's like one's safety net has been taken away. I promise that time will fix it. The farther out you get from treatment, the easier things will be. The only thing that is harder for me now is actually going to the onc, since I'm down to 2x a year. Seeing the rad onc is once a year. So at those appointments, it's more of a shock to the system to be at the cancer center again since it's now infrequent. My onc said she has a lot of patients say the same thing. Also--I'm so sorry about your daughter. I can't even imagine having to deal with a child's death.

  • Susie123
    Susie123 Member Posts: 804
    edited August 2011

    Steff, I know exactly how you are feeling. You're less than 6 months out from your diagnosis and still going through treatment. I remember last year, about 5 months after my diagnosis, attending a school function with my oldest son and breaking down crying during the opening prayer. I was so thankful to still be there to experience this with my son and the thoughts of not being there in the future were overwhelming. He served on that "junior board" for a year, so this May we went back to that same place, for the same function, and I felt relief and gratefulness during the opening prayer. I remembered how hard it had been the year before, but this year it was a little easier. During the function one of the speakers broke down crying, seems his wife had just been diagnosed with breast cancer and was going to have a bmx. After the function, I introduced myself to her and offered to help. I think what I'm trying to say is that we all have that fear of never seeing our kids grow up, go to college, get married, have grand kids, but with time and prayer those fears ease somewhat. From what we've been through we learn to cherish the moment we're in and make it count. Not to say that those ugly fears won't come to mind at times (especially around the onco appointment times), but they won't be as consuming as they are now. Hugs, Susie

  • Moderators
    Moderators Member Posts: 25,912
    edited September 2011

    Steff, there's a section, Talking to Your Family and Friends about Breast Cancer, on the main Breastcancer.org site that includes advice about talking to children (as well as other relatives and friends) that may be helpful for you.

    Judith and the Mods

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