YSC ladies moving over from FB?

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  • Bany
    Bany Member Posts: 53
    edited August 2011

    And some of us were diagnosed at 39, but have been surviving the beast for 11 years (Oh, that would be me! LOL!).  Definitely over 45 now.... but I still consider myself a "young survivor."

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  • jenxreboot
    jenxreboot Member Posts: 17
    edited August 2011

    I'm pretty sure they'd be glad for anyone to attend the conference, Jan. I'm sorry to say, though, that while I might go to the conference (city) to see friends, I've been to my last YSC conference. Not because I'm 45, though I am, but because there just hasn't been enough information I can use... And also, I'm disappointed in the organization. Anyway, you're welcome at *my* conference anytime, Jan. We'll meet up where we met at the conference in Dallas... the hotel bar, I believe.

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  • othermother
    othermother Member Posts: 18
    edited August 2011

    I think YSC's age specifications were always meant to be a guideline, not a doctrine. I know of a couple of sisters who are in their 50s, and never (that I know of) felt like they were too old for the sisterhood.

    Jamie, you must be devastated. I am so sorry. I wish there were adquate words to address how you must be feeling. (But since there aren't, I'll just say fuck, as in fuck you cancer.) 

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  • Melonda
    Melonda Member Posts: 309
    edited August 2011

    By the way, I deleted myself from the fb group for obvious reasons, so if any info is there I will miss it so I hope I'm able to keep up to date here.

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  • Melonda
    Melonda Member Posts: 309
    edited August 2011

    I will be joining you ladies at the bar! No more conference for me either. I've found the content very lacking and the social aspect is daunting at best, overwhelming and so many mis understandings happen there. But I will be happy to be a delinquent this year! Or even better, at the pdp booth;)

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  • ringosmommy
    ringosmommy Member Posts: 91
    edited August 2011

    lewing-my dd is at Concordia in meqoun WI.  :)  My son is at Marquette also in WI.  Both my kids bailed on IL.  How is your dd liking school?  Elle starts class tomorrow but she's happy as a pig in shit.  I miss her WAY more than she misses me. 

    Sally-I am so glad you got to go out and hang with your peeps.  

    J-I would belly up to the bar for a hummus and quinoa platter to be sure, but not sure how much actual parenting help I can give out.  Making it up as I go along.  :)  

    Melinda-ugh, nothing NOTHING worse than pain in the teeth.  (((hugs))).  I am with you every step of the way as you get off the meds.  I love you.  I puffy heart you.  We have friends.  I am also unsubbing.  Well, I am going to have tasha unsub me bc I have no idea how to.  but honestly, after that I will pretty much be off facebook for good.  I think you know I'm not much of a facebook fan, never have been.  I love message boards, it's more my style.

    Cori

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  • Melonda
    Melonda Member Posts: 309
    edited August 2011

    Lol cori I know your not a facebook person! But really for me this format works so much better.I'm already loving seeing new names and old ones too. I how some others make it over here. I am concerned that some won't see the revolution thread since it was buried but that is not my concern anymore since I'm not in the group anymore!



    And cori, that really means a lot to me. This effexor thing is really hard and mentally I've been falling apart a bit with it. I know it makes me overreact to things but I can't stop myself, its awful. And the crying out of nowhere, it doesn't help that there was actual negative things going on too this weekend but cori I wanted to tell you that you are awesome, before I met you in person I was unsure if we would get along because you are super cute, little, super healthy and I'm kind of the opposite. But when I met you I knew right away you weren't the kind of person to careabout those things. Now I think your one of the most caring straight forward people I know and think your fabulous. So anyways thank you for the support!

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  • lewing
    lewing Member Posts: 1,288
    edited August 2011

    Cori, glad your daughter is having a blast at school -- I'm sure she'll continue to love it, even after those pesky classes start.  My daughter thinks she's died and gone to heaven.  She loves Chicago, loves the campus, and already has a big posse of friends (she went there not knowing anyone, really).  Classes start today for her, too.  Talked with her last night (before she had to get off the phone to introduce a bunch of her dormmates to the wonders of Dr. Who), and she claimed to be a teensy bit worried about Spanish (her first class), but I know she's going to do just fine.  I'm loving hearing her so excited!

    L 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2011

    Melinda- i was diagnosed 7/11 and have had a left mastectomy. I have had one round of Tch dOne on 8/22 I've got 2 more weeks until my next round and only 5 more to go. . Right mastectomy (mass found in right side during all the f/u screening) , radiation, oophorectomy, 5years of hormones still to come. How about you?

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  • PattySprout
    PattySprout Member Posts: 36
    edited August 2011

    Wait.... jenx is 45???? Jen, honey, I thought you were younger than me!!



    Cori - glad Elle found a roomie. But, really, such a awesome kid, I am sure she will do great!!!!

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  • ChicagoJen
    ChicagoJen Member Posts: 5
    edited August 2011

    Yikes!  It took me 20 minutes to read through this and try and catch up with everyone!  I must say I didn't realize how much I missed the boards. 

    So I am here and I will try and keep up.  No clue on my signature and stuff.  I have to go figure that out.

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  • AnimalLover
    AnimalLover Member Posts: 24
    edited August 2011

    Jamie, I am so very sorry  :(

    Hello everyone - Happy Monday!  I miss this format too.  So happy we have re-grouped and found a new home.  

     OK, so my rib pain is still through the roof!!  I am not a happy camper and scared to death that I might have to have a lat flap!! 

     Jenx - great to see you here.  I have missed you.  If we don't all go to "conference" then we have to find a way to have our own get together, somehow, someway.  That is the only thing I still like about the conference is seeing sisters that I would normal not see.  

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  • ChicagoJen
    ChicagoJen Member Posts: 5
    edited August 2011

    Just testing my signature

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  • ChicagoJen
    ChicagoJen Member Posts: 5
    edited August 2011

    OK, I am still testing, sorry ladies

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  • MustangIA
    MustangIA Member Posts: 177
    edited August 2011

    Jamie - sorry about your news.  I agree, cancer need to F off and leave us and our furbabies alone!

    JenX - I had no idea you were 45 either!  Join us at Shady Oaks....ha ha.

    Chicago Jen - I see your avatar and your sig line, so I think you've figured it out!  I agree wholeheartedly about realizing how much I missed this.  I love seeing you all again and I love meeting new people dealing with this shitty disease.  Hey - I have four days left of cycle three - other than tired and some dryness on my heals, I am having no real side effects.  Some random urpy (?) feeling periodically, but nothing to terrible.  Just tired..did I mention that?  tired!  :)  

    Bany - you keep kicking ass - you are my hero at 11 years!!

    Melindy - how is the pain today?

    Jendon - Welcome - sorry you have to be here - but glad you found some gals close to your age - ask and post any questions - one of us has been there at some point or another.

    Cori - Glad Elle is loving it!  She will do great!

    I know I'm missing tons of people in my shout out - thanks to all the BCO veterans for the welcome, welcome to all the newbies and hallelujah - we have a home base again!

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  • Melonda
    Melonda Member Posts: 309
    edited August 2011

    Yay, more people!!



    Jendon- I was dx 4 years ago and I had a bilateral mast and DIEP reconstruction. I've also had an ooph and did 3 years of tamoxifen and then stopped when I was retested and found to be triple negative. It sounds like you have a lot left to go. Good luck with everything!



    Hi Chiacgo Jen! It's amazing how much I missed this kind of format.



    Animal Lover- you are still in pain? How long do you until you have to make a decision one way or the other about the lat flap?

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  • MustangIA
    MustangIA Member Posts: 177
    edited August 2011

    Animal lover - hope you get some relief soon.  What are the docs saying about the rib pain?

    Melindy - started a thread I think you will enjoy!!  Wink wink, nudge, nudge!

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  • AnimalLover
    AnimalLover Member Posts: 24
    edited August 2011

    I go in for my follow up on the 15th to discuss next steps. 

    The rib pain is because of capsular contracture due to rads.  And I have a thinning flap so physical therapy is not an option for me.  And the pain is unreal Yell (first time I got to use a emoticon - yay me) 

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  • ratbait
    ratbait Member Posts: 141
    edited August 2011

    AL, so sorry to hear you are still in pain. I was so hoping the fat injection would work.



    Melindy, hope your mouth is feeling better.



    Mustang, hope you continue to kick cancer a$$ with minimal side effects.



    Jenx, how is retirement. Have you been doing enjoyable things?



    Jendon, welcome! I loved counting down the chemos. Hope it soon becomes a distant memory.



    Chijen, bany, sprout, welcome. Glad to see you.



    Lewing, glad to meet you. This board will be getting more active....and lively. Hope you like it.

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  • ChicagoJen
    ChicagoJen Member Posts: 5
    edited August 2011

    Hey Mustang, I started on Concerta during the tykerb/xeloda because I was so flipping tired.  I had forgotten that.  I take 18mg once daily and it really really helps.  It is in generic form now too so it isn't so expensive anymore.  Maybe ask the doc for it.  It helped my chemo brain too.

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  • bevin
    bevin Member Posts: 1,902
    edited August 2011
    Hi mustang- Ok, I was diagnosed at 45, but, I feeelll young Smile, so I'm feelin good about joining,. Does shady oaks serve pomaganite martini's? My old folks home, those are a must on the menu!
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  • jenxreboot
    jenxreboot Member Posts: 17
    edited August 2011

    Aw shucks, Patty (and Sally). I think it's because I get overwhelmed at the conferences-- maybe I seem young because I seem timid (IRL, not so much). I know it wasn't the bags under my eyes that fooled you.

    Animal Lover, I'm sorry to hear about your contracture. Is the lat flap really the only option? If it comes to that, fwiw, I have full range of motion and, when I was taking better care of myself, had worked my way back to full strength. It's not easy, especially if you like to kayak or do other lat-intensive sports, but it can be done. Conference or no, I'd love to see you, even if I have to fly out your way (it's a big sacrifice, visiting you in paradise, but I'm just that kind of person ;)).

    Ratbait, I've missed you! I've been off work for two weeks now. So far, it's been busy, but nice to have the time to attend to family and personal matters and not have to try to sandwich them into an overstuffed schedule. How are you? Traveling a lot, it seems.

     Lots of catching up to do. Nice to be here to do it. Hello to all you welcoming BCO folks! 

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  • ringosmommy
    ringosmommy Member Posts: 91
    edited August 2011

    Hello!

    Melinda-I hope your teeth are feeling better.  I knew I would love you irl, so I was determined to track you down...

    chicagojen-I forgot you had xeloda.  :(  glad it did it's magic though.  what are you doing to entertain yourself (and me) now that the battle with chippy is over.  or does it wage on...

    bevin-I can't help but laugh imaging all the tables in the old people home set with martini glasses.lol.

    al-I am so sorry that you are having all this pain.  I hope you don't need any more surgery, less major surgery, to resolve it.  but I will encourage you with I am thrilled with my lat flap.  and stregth is not an issue for me at all.  I was worried, I admit it, but I know I am stronger than ever.  You will be fine and you will look fantastic.  We will get you there.  (((hugs)))

    hello to all!

    Cori 

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  • jc3win
    jc3win Member Posts: 61
    edited August 2011

    Wow - you ladies are prolific writers! I neglected logging on for a few days and missed several pages. I will pop over to the FB page and post a link to this thread every so often so folks can come and join us.

    Here is my downer for the day... As I was walking out of my office today I was approached by a lady from another office and she told me that she was diagnosed Friday. She is not a close friend but we have worked in the same building for many years. Of course I had a lot of questions for her but tried to slow myself down and remember how I felt in those first few days when you really do not know shit except that your life has just been turned upside down. It is so weird..it has been 2 years since diagnosis for me and I am trying to think of anything I can to help this lady but all I can remember is that in those first few weeks, I really did not want to talk to anyone. I guess I will give her some space and touch base with her in a few days. Any other suggestions? 

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  • ratbait
    ratbait Member Posts: 141
    edited August 2011

    Jennifer, I'm sorry some e you know is joining the club. I always recommend Dr. Susan Love's Breast Book. It is informative without being scary, and you can read just the chapters you need.

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  • ringosmommy
    ringosmommy Member Posts: 91
    edited August 2011

    jennifer-I am so sorry about the lady from work.  is she in our age group?  wondering if she would benefit from our online support?

    cori

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  • ICanDoThis
    ICanDoThis Member Posts: 1,473
    edited August 2011

    Hey, Beth

    Gotten your test results back yet?

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  • mimivac
    mimivac Member Posts: 14
    edited August 2011

    I'm still on page 5 of this thread, so this may be answered, or maybe we don't want to re-visit this topic here, but, Francesca, yes, who are/were the trolls on Facebook?? Just wondering. Don't mean to start a flame war, please. We came here to get way from that, right? LOL.

    Mimi

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  • amidala
    amidala Member Posts: 30
    edited August 2011

    Jennifer,

    I know what you mean.  A co-worker of mine, slightly older, was just diagnosed a few weeks ago and is already off work doing neo-adjuvent chemo (I did the BMX first).  I've left her a voice message and sent her a card letting her know I was here if she needed to talk, vent, ask questions, whatever but I haven't heard anything back. 

    I know that I was in a weird sort of numb daze for at least a month after diagnosis.  I never even cried until almost three weeks after diagnosis when I had my first consult with the plastic surgeon and he told me that because of my vertical c-section scar (thanks to my lovely, big, breech twins who wouldn't turn around-they've always been stubborn I guess) I wasn't a candidate for DIEP because too many nerves were already cut.  I barely made it out into the parking lot and sat in my car and cried for almost an hour.  That flatter tummy was my silver lining and it was gone.  That afternoon is my first actual 'memory' of this whole ordeal, odd as that is.

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  • mimivac
    mimivac Member Posts: 14
    edited August 2011

    I also had a latent reaction to my diagnosis. Didn't cry for weeks. Didn't realize what was going on for weeks. It was too overwhelming. I would say to give your co-worker space, but to also make it known that you are there to talk. Some people may want to have a shoulder to lean on right away, or need to get into research mode and talk about all the technical aspects but not the emotional stuff.

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