Still Uncomfortable with Implants

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  • beacher4209
    beacher4209 Member Posts: 540
    edited August 2011

    i guess im the only one still having pain?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2011

    beacher- I couldn't find your photos.  Do you have the same screen name on there?  What is the name of your thread on there?

  • beacher4209
    beacher4209 Member Posts: 540
    edited August 2011

    its beacher, in the  "under construction" area :)

  • leeinfl
    leeinfl Member Posts: 317
    edited August 2011

    beacher - I'm sorry you're having pain.  I do have to agree with you and you aren't crazy!  Your one side does look like it's too big and too low.  It's your body and if you don't like what you see and how you feel, demand to have it done until you are.  It's so frustrating and depressing, but soldier on!  Find a PS who can help, don't give up.  Hugs.....

  • Faithroad
    Faithroad Member Posts: 432
    edited August 2011

    beacher,

    I'm sorry you in pain.  My implants were also two different sizes (C and D) and I found them very uncomfortable. My PS wouldn't do anything and didn't want to even address the two different sizes. I had them removed July 5, 2011.  I'm getting used to the new feel and look, but overall I feel much, much better.  Very comfortable physically.  I'm not saying you should get yours removed too.  I just want to let you know, you are not alone.  There are many of us who have not had good luck with implants.  I'm sorry to hear about your experience.  I hope things will resolve in a way that you are comfortable with.  Hang in there.

    Hugs to you.

  • beacher4209
    beacher4209 Member Posts: 540
    edited August 2011

     leinfl, thanks for your input! i am getting diffrent ps's opinion before i go back to mine on sept 12th anxious to hear what he thinks about this job of his! That r one althoughtoo large and too low is completely pain free,so im just a liitle worried i might get into trouble if i mess with it the other side mx is so tight and uncomfortable and i got axillary web syndrome in that armpit so gonna deallwith those pain issues first,then fix the cosmetics after ...maybe??? but pain is my main concern right now again thanks so good to know you care....

  • beacher4209
    beacher4209 Member Posts: 540
    edited August 2011

     Faithroad,im in total agreement with leaving it in the hands of God. I try to stay strong while uncmfortable knowing he has a plan and i just gotta keep on doing what im doing.

    glad you made your decision to deconstruct and are happy now.no more pain that is wonderful :)thankyou for your input it mean alot to me!!!

  • mlp730
    mlp730 Member Posts: 89
    edited August 2011

    Hi Beacher,

    Totally agree to deal with pain issue first. Comfort is most important!

    Since my deconstruction on 7/28, I've started seeing a LE therapist. Like you, I've had the same type of issues with the tightness and right armpit issue. I have a very tight swollen feeling under my right arm which seems to get worse as the day goes on. It is a very full feeling, like I'm carrying something under my arm. The therapist seems very confident that she can help me get some relief! Thinking positive thoughts!

    Hope you feel better soon....hang in there! 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2011

    Beacher- I found your thread and absolutely agree that you have reasons to want to move forward.  I'd address the pain issues first, too, like you're thinking but you also deserve to get the results you want.  Here's what the Cancer Act states:

    The Federal Women's Health and Cancer Rights Act of 1998

    The Women's Health and Cancer Rights Act (WHCRA) contains important protections for women with breast cancer who choose to have breast reconstruction after a mastectomy. It was signed into law on October 21, 1998. The US Departments of Labor and Health and Human Services have oversight of this law. WHCRA: applies to group health plans for plan years starting on or after October 1, 1998 applies to group health plans, health insurance companies and HMOs, if the plans or coverage provide medical and surgical benefits for a mastectomy

    Under WHCRA, mastectomy benefits must include coverage for:

    Reconstruction of the breast on which the mastectomy was performed.

    Surgery and reconstruction of the other breast to produce a symmetrical or balanced appearance.

    The prostheses (or breast implant).

    Any physical complications at all stages of mastectomy, including lymphedema.

    I hardly think your PS could describe your appearance as symmetrical or balanced.  They should be doing everything possible to correct this.  Sorry you are having to deal with this and pain on top of it all.  I think far too many women are having to do revisions. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2011

    BTW, everyone, I sent a story idea into 60 Minutes and just got an email back from their Director of Audience Services.  I had requested they do a story on the whole breast reconstruction thing.  They're requesting that I send more information to their story editor.  They said if I don't hear back within 4-5 weeks that means they aren't doing the story.  Wonder if they can get this done by Pinktober?  Anyway, my points will be that women are not being told (a) about all of their options, (b) that 1 out of 3 will have short term complications from their reconstruction, (c) 1 out of 5 who have implants after reconstruction will need to have a revision.  Guess we'll see what happens!

  • dancetrancer
    dancetrancer Member Posts: 4,039
    edited August 2011

    Wow Kate, that would be so awesome!!!  Keeping my fingers crossed - way to go! 

  • beacher4209
    beacher4209 Member Posts: 540
    edited August 2011

    kate, Yes this has to be on 60 minutes, 20/20, dateline ect... we have to advocate and really get the true stories" breast cancer survivior" out there ! keep me posted, when  or if im ever good again that is my plan, get the word out for the women behind us cause sad but true there will be many.....

  • justagirl
    justagirl Member Posts: 730
    edited August 2011

    Kate,

    This would be perfect for Pink-October and you have so much knowledge, so go for it.  I want to see you interviewed on TV!

    As a RN, I never knew all I know now about BC, mastectomies and reconstruction.  People I have talked to know if you have breast cancer you get part of you chopped off, have chemo and radiation and they think that's it.

    I thought I asked all the right questions before my DMX, yet right before surgery I was told it was not a good idea to try and save my nipples.  It would of been a horrible shock but I understood only due to my medical background.  I never thought I would need a revision surgery, which is coming up next month, and then another surgery for fipples after that.

    Women need to know the most important thing is a self-exam every month! Mammograms every 2 years, or sooner with family history.  Testing if someone in your family has had BC>

    This is such a good idea you have had.

    As you said, I've learned more here than from the general internet or my PS or BS.

  • CRR
    CRR Member Posts: 9
    edited August 2011

    I'm in your shoes and trying to make that call now, I am considering having reconstruction in October. I finished my radiation in December. Everyone I talk to with implants love them but I have very sensitive breasts and wonder if they will hurt after. I survived the lumpectomy and have 25 cents where 50 used to be but I have never been large chested and am comfortable with my size but think there has to be a silver lining to bc.  Should I or shouldn't I?

  • beacher4209
    beacher4209 Member Posts: 540
    edited August 2011

    no do not! not unless its lifesaving.... foobs suck , maybe if u did not have radiation BUT radiation is a whole different situation for implants, REALLY look into it!!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2011

    CRR- As someone who has implants I would have to second what beacher said.  If you can avoid them do so at all costs.  While it will be a little better in your case since you didn't have MX, and still have some breast tissue, there are still issues.  Implants can cause numbness (even in augmentation), they are heavier than natural breast tissue and they don't last forever.  Which means you are going to have to go through another surgery down the road to replace them.  Being small breasted my whole life I also thought implants would be my silver lining but nothing is farther from the truth.  Please do lots of research to truly decide if this is right for you.  And definitely check out micro fat grafting.  They can transfer fat from elsewhere on your body to fill in lumpectomy defects.  This is completely natural and even repairs radiated skin.  And there's nothing to replace later.  Good luck.

  • leeinfl
    leeinfl Member Posts: 317
    edited August 2011

    CRR - Been there, done that!  Please do more research into ALL forms of reconstruction.  Kate and I had the same revision surgery, replacing larger implants with smaller ones plus fat grafting.  What I wouldn't give to go back in time and never have TEs and implants placed.  The fat grafting has made a huge difference, but wish I would have known about it sooner.

    Kate - I had sent emails to Dr. Oz, the Today Show, my local newspaper and more.  Since we are close to Pinktober, I will try again.  Glad you got a response from 20/20.  Hope they do the story.  I agree, ALL forms of breast reconstruction should be shown and analyzed in detail.  We need to know what our options are and what the pros and cons of each are. 

  • EileenKaye1
    EileenKaye1 Member Posts: 469
    edited August 2011

    The more breast reconstruction information is in the news--the better

    advancements we will have in the future.

    That's my take.

    Eileen

  • Erica3681
    Erica3681 Member Posts: 1,916
    edited August 2011

    CRR,

    Did the people you know who love their implants have radiation like you? Implants and radiation often don't mix. The failure rate is high and some plastic surgeons won't even do implants if you've had radiation.

    I considered various forms of reconstruction (I had radiation on one side, so I didn't consider implants an option), but ultimately decided against reconstruction. However, I do think Dr. Khouri's technique may be the wave of the future (I actually met with him and even tried out the Brava). One thing to consider is what size reconstructed breasts you want. It's my understanding that attaining a larger size with micro fat grafting alone may be difficult, though perhaps it's a question of how much extra fat you have to be lipo-suctioned. Lee, Kate and the other experts here can probably answer that better than me.

    Barbara

  • leeinfl
    leeinfl Member Posts: 317
    edited August 2011

    The size of the reconstructed breast using Brava and fat grafting depends on how many sessions a woman decides to do.  Finding fat usually isn't a problem, even with leaner women.  As long as someone is willing to wear the Brava, then subsequent sessions will result in larger breasts.

  • suze1229
    suze1229 Member Posts: 13
    edited August 2011

    I had an SGAP flap in July 2008, and it is still great!  Dr. Marga Massey did the surgery in Charleston, SC.  I have been so happy with my decision to proceed in that direction.  And Dr. Massey is an amazing woman....  Just a suggestion as an alternative to implants....

  • beacher4209
    beacher4209 Member Posts: 540
    edited August 2011

    suze1229,what is sgap?  thanks :)

  • mlp730
    mlp730 Member Posts: 89
    edited August 2011

    CRR - totally agree - really do your homework and research implants! This is my biggest regret but as I've said before, when you get that dreaded diagnosis, I think we tend to surround ourselves with people who have had positive outcomes, take the words of plastic surgeons (this IS their business) and think that this is just how it has to be for us. I have a friend who has also had a BMX with reconstruction and doesn't even know she implants, I think most on this forum agree that we are just not informed of all the options and definitely not about what complications we may encounter,

    Good luck with your decision!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2011

    Dr. Massey rocks, and I don't use that expression lightly! In my case, she took me out of my implant misery and helped avoid aggravating my lymphedema in the process. She is an amazing woman - highly skilled, compassionate and kind. I thought implant recon would be the silver lining to BC. I used that exact expression. In my experience, it couldn't be further from the truth. I urge you to research the various forms of fat and tissue transfer surgeries as well as fat grafting if you are seeking a long-term silver lining minus the complications. It's a difficult decision during a very trying time. Just remember that you don't have to make a choice now. You can always wait, do some research, and when you feel sure of your decision, the option is always there for you. I agree you should check the risks associated with implants and radiated tissue.

  • beacher4209
    beacher4209 Member Posts: 540
    edited August 2011

    tina 337 .... nothing but an Amen!

  • beacher4209
    beacher4209 Member Posts: 540
    edited September 2011

     I am in the process of researching ps's that are knowledgeable about fat grafting and tissue transferring and i just realized nobody has spoken of the area the tissue /fat is taken from.How does that surgery sight heal? abs,glutes,back, thighs? anyone that has had this type of reconstruction tell me is there ant problem with recovery in those area's?  Thanks!!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2011

    Beacher- I've just done the fat transfer. The PS took fat from my stomach, hips and thighs. I had pretty severe bruising that lasted about 2-3 weeks with some mild pain. I had my surgery mid May and have scarring from the lipo. Each scar is about the size of a freckle. The deepest ones seem to be on the thighs so am guessing those will take the longest to fade. I have a small amount of numbness on the inner thighs but that is fading more every day.

  • leeinfl
    leeinfl Member Posts: 317
    edited September 2011
    Beacher - I've had 3 rounds of fat grafting.  Like Kate said, 2-3 weeks of bruising and mild pain.  First couple of days are the worst, of course, and I would compare it to the muscle soreness after a super intense workout.  It also depends on the area the fat is taken from.  In my experience, thighs were the least painful and lower back (muffin top) was the most painful and also took longer to heal.  Be prepared to be in a compression garment for several weeks.  Dr. Khouri's rule of thumb is 1 week per decade of age (and he rounded up!  Frown)  Numbness can take a while to resolve, but again...patience.  It goes away with time.
  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2011
    Lee- I was never told the 1 decade = 1 week!  I only stayed in mine long enough for a 30 year old!  Think I missed a few decades there!Surprised
  • leeinfl
    leeinfl Member Posts: 317
    edited September 2011

    Wink What? You're NOT 30-something?  Not sure why he let you off so easy.....I know most of us were told 1 week per decade.....

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