HELP ME UNDERSTAND??
If I am Stage 1 and ER/PR+ FSH - IDC Right breast, having a masectomy to remove it. MRI nodes free.. Why would you have chemo? I see many ladies on here with similar and having chemo? Please help me understand. I am told that it is a choice at this stage not a must.
Comments
-
Hello,
There is a lot that goes into it, it is based on the tumor size, grade, etc, but many fall right on the line and can choose to have chemo or not.
I didn't have a choice, but still would have done it, because I wanted to hit it as hard as I could, and because it travels through the bloodstream and not just the nodes. If it's a personal choice, do what you feel is right for you, based on your tumor's personality.
I hope this helps a bit.
((Hugs))
Sue
-
What is your her2 status? This is a very aggressive cancer and can sneak past lymph nodes via blood and lymph vessels. Do you have lvi (lymph vascular invasion)? This means that the cancer has crossed into the vessels that carry blood and lymph all over your body. If you are her2 + then chemo is a must. If not than it's a gamble-you benefit from chemo because if there are any cancer cells outside the breast they could get destroyed yet the side effects -long term are dangerous. Thinks like MDS can develop down the road. I have constant bone and muscle pain that won't stop. I was stage I her2+++ so didn't have a choice.
-
Just a heads up that things can change after the final pathology from surgery.
Pre surgery it looked like no chemo -- biopsy had shown 100% ER/PR + and negative HER2
My pre-surgery MRI showed no node involvement. The post surgery pathology report changed my treatment plan. Postive node and lymphatic vascular invasion --- the cancer cells had started to move out of the breast.
As others have noted, there a number of different factors to look at - a lot of them aren't known until post surgery. The size, personality(hormone markers, grade,) node and vascular involvement.
The main portion of the site has some great information for understanding what all this means. a good place to start is the "your diagnosis" page
http://www.breastcancer.org/symptoms/diagnosis/
A big portion of it is how comfortable you are with risk and your personal medical history that lets you with the trade-offs with the various treatment options open to you.
I hope this helps.
It's challenging journey but there a lots of folks who've travelled the path here to help.
Meg
-
It doesn't just depend on the stage of the tumor, but also the grade. Chemo is not very effective with grade 1, because the cells act a lot like "normal" cells and aren't dividing quickly enough for chemo to kill them. Most oncologists use the oncotype score to provide some guidance on whether chemo is likely to be of benefit (or enough benefit to outweigh the risks).
-
Age is a big factor too. Younger women benefit more from chemo.
You may also benefit from an Oncotype test which will tell you your recurrence score and how much or how little chemo could help you.
-
Gals. Any thoughts in this...4 senitnel nodes clear but one "lymph node" didn't "feel right" so we'll know,in a week,if you will have radiation and chemo". How could a lymph node that is not the sentinel be the problem? Thoughts? Hugs to all. Heidi
LCiS; mucinous carcinoma stage 1 -
Thanks all for the input, I am Stage 1 ER/PR+ and HER-2 Grade 2, cribiform IDC with DCIS. My report from the U/S said Lymphovascular invasion present on one sight. The tumor is 1.7, I am told by my surgeon and onc that no lymph nodes are involved per MRI and that it shows to be moving toward the nipple area only, via traveling ducts. So far chemo is my choice, not a must. Im very worried that it will be worse then it is, but the nurse in charge keeps telling me there is no reason to suggest that and not to worry.
-
I am also told that this is a very well behaved tumor.. if that means anything.
-
Yes I heard this too. Why does the whacky diagnosis survey on this site not allow you to enter your real diagnosis? I actually have LCIS, DCIS and mucinous carcinoma all in one breast. I know. I'm not the only one out there. I. Tried to buy the app for is site and again you only get to pick one type. Any ideas on how to trick it? Xo
-
Heidenia, there can be more than 1 sentinel node so it is possible for 1 to be affected and not the others
-
I'd suggest that you get the oncotype test done. That can help you determine your path better. I had two lymph nodes involved, and had a "modified" radical mastectomy, but the oncotype was only 14. With that my oncologist recommended no chemo, no radiation, 2.5 years of tamoxifen (which is kicking my butt bad enough) and 2.5 years of a (yet to be disclosed) aromitase inhibitor.
-
Im so happy for you that you had no chemo no rad! Im sorry the Tamoxifen is not cooperating with you though, I hear some saying that, and others are fine with it. I think I would rather deal with that then Chemo though. My ER/PR+ is greater then 90%, does that matter in the ocotype score? I am DCIS IDC 1.7cm BRCA Neg Grade 2-3 and they say it is only in the breast.
-
Chemo is very do-able. There are bad days, side effects, and some tears, but on the whole it's worth it and there are more good days than bad. Most of us can continue to work full time and take care of all of our responsibilities during it.
If it helps, according to the NCCN (National Comprehensive Cancer Network) hormone responsive tumors larger than 1 cm should receive chemo and hormone therapy, especially if it is an aggressive grade and or is a mixed tumor.
Cancer travels through the blood system, node involvement or not. With LVI even if only on one side, I would think long and hard, not just about what I feel like doing, but what is best for my long term survival. Always remember, your medical team is there to help you, but they can go home at the end of the day and not give it another thought, so this is all about you.
((Hugs))
Sue
-
Yes true. BS said 4 sentinel nodes clear and pme other node didn't feel right touch."
And LCIS grade 2 and mucinous carcinoma stage 1 grade 2
-
There are so many things to consider and it really depends on complete pathology. I was stage 1, ER/PR+ and Her2-. My oncotype was 17 but I had angiolymphatic invasion (meaning there was a potential pathway established for the cancer to spread by blood) but had clear nodes. I am 45 and have a young son. I had two opinions...one said chemo and the other said no chemo. I want to do everything I can to beat this especially for my son. I knew if it came back and I had not done chemo I would have regret. I am also pre-menopausal.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team