Lymph Node involvement

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Nicole4
Nicole4 Member Posts: 104
edited February 2015 in IDC (Invasive Ductal Carcinoma)

just curious if any of you are long term survivors with lymph node involvement. if there are i need to read some replies to help me get through this.  I had 9 out 18.

thanks :)

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  • kmur
    kmur Member Posts: 912
    edited August 2011

      Hi Nicole,

        Just wanted to pop on here to say YES.....many many women here with many more nodes...please look at the thread stage 3 Five years out ( I think that is how it is worded) you will see lots of ladies there many years out..

    Hope this is helpful...I'm sure others will be along to share with you..but wanted to at least answer your question.

     There are lots of helpful women here and the posts you will see in that thread have really helped me keep my head in the right place.

    Thinking of you,

    Kim

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  • peggy_j
    peggy_j Member Posts: 1,700
    edited August 2011

    One of my friends is a 10+ yr survivor. I believe she had 5 or 7 nodes. She did chemo, rads, 5 yrs of tamox and then 2 yrs of AIs.

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  • KakaCathFreeSpirit
    KakaCathFreeSpirit Member Posts: 100
    edited September 2011
    Thanks peggy_j Its nice to see some encouraging words, I was in such a morbid  zone in the last few month of thinking that I probably have between one and ten years left in the life box, then it turns me around and I zone into doing as much as I can to stop myself from falling in to that box, ThanksSmile
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  • sewingnut
    sewingnut Member Posts: 1,129
    edited September 2011

    Hi Nicole,

    Just wanted to let you know my Aunt had 13 of 16 positive nodes. Did AC treatment 18 years ago and is doing well. The Drs called her cancer a "wildfire" cancer. She had MX, no reconstruction and is now enjoying 6 grandchildren :)

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  • Nicole4
    Nicole4 Member Posts: 104
    edited February 2015

    thank you for your note, I don't know where I would be without this board...

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  • KakaCathFreeSpirit
    KakaCathFreeSpirit Member Posts: 100
    edited October 2011
    Yeah same here, love the good news stories, it keeps you positive and give us hope that every treatment we endure is not always in vein, Thanks sewingnut
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  • etherize
    etherize Member Posts: 423
    edited October 2011

    Nicole and KakaCath, there's a whole thread on here for IDC with lymph node involvement, in case you haven't seen it -- you'll find lots of people in the same boat!

    I've only had 2 removed but now have to get a bunch more removed .... I hope the rest are clear, but if not, I'm in good company. :-)

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  • KakaCathFreeSpirit
    KakaCathFreeSpirit Member Posts: 100
    edited October 2011
    Thanks etherize which one do you recommend ? I am involved with the forum Neratinb & HER2+ any one ten years out, also a few others ! ThankYou, I will have another lookSmile
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2011

    Sewingnut:  Great story about your aunt.  Keeps us positive --thanks

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  • Nicole4
    Nicole4 Member Posts: 104
    edited February 2015

    I have a question, does it mean that my cancer is metastatic if it was found in the lymph nodes?  I have had clear full body and bone scans since, this is not clear to me.

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  • christine47
    christine47 Member Posts: 1,454
    edited November 2011

    Nicole4, cancer just in nodes does not mean that it is metastatic.  For cancer to be metastatic it needs to be in bone, brain, or other organs.  If your full body scan (pet or ct) and bone scans are clear, you are not considered to have mets.

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  • christine47
    christine47 Member Posts: 1,454
    edited November 2011

    nicole, also mets automatically make you stage 4, some ladies who are stage 4 did NOT have lymph node involvement.  so crazy.

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  • Nicole4
    Nicole4 Member Posts: 104
    edited February 2015

    thanks Christine, that is what I thought

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  • KakaCathFreeSpirit
    KakaCathFreeSpirit Member Posts: 100
    edited November 2011
    Hi ladies, I also thought the same initially, that the higher amount of lymph involvement the more advanced the disease, but for women that jump to sage IV with no lymph involvement may mean that the ''nasty-beast'' took another direction rather than typically downwards along the lymph canal. I think after looking into my own size tumor and comparing it to others, I tryed to unravel this mystery. Conclusions where, as my Onco once said early into my treatment that I was simply unlucky due to the position of the tumors in reference to my ductal pathway ''express-lane'' others travel upwards, others inwards. Its very difficult not to compare your-self to others, as it is a natural thing to do, at the end of the day, you are an unique individual, with individual needs, listen to your gut feeling when it speaks to you, take-care on your journey,Smile
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