How long were you off work after treatment?

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Cat123
Cat123 Member Posts: 296
edited June 2014 in Stage III Breast Cancer

Hi all,

I just finished my radiation in July.  I had a left mx last November, chemo, the start of reconstructive surgery in April then rads starting in June.  I tolerated chemo pretty well but the rads got to me and I was nauseous and not feeling well and am still sore, not feeling great, fatigued and with extreme anxiety and stress.  I have an upcoming MRI and mammo on my other breast.  My oncs said I would be on disability for awhile so that I could recover.  About two weeks after I finished rads, my insurance company called me to let me know they closed my file and would send the last cheque.  They had not asked for any medical documentation, nothing.  Just a phone call to say that the 'norm' according to their 'table' is that I should be fine.  I am a hard worker and have had a great career but I don't feel ready to work.  Were any of you off for awhile after treatment or did the insurance company not find out how you were doing and just tossed you aside like me?

Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2011

    I was only off work about 6 weeks after bilat mastectomies.  But I am part-time and wasn't getting paid while being off, by anyone.  So I guess I can't really tell you how insurance would have treated me.  I thank God for the insurance coverage we have, but then of course, we all pay quite a big amount each year for it.  Best regards --

  • diana50
    diana50 Member Posts: 2,134
    edited August 2011

    i was diagnosed in feb and off work the rest of the year.  i returned january of the following year.

  • Celtic_Spirit
    Celtic_Spirit Member Posts: 748
    edited August 2011

    I was off for 2 wks. after my bmx. Took my chemo days off and an occasional extra day. Took an extra week off at Christmas following rads (which ended at Thanksgiving). Otherwise, I worked throughout.

  • Cat123
    Cat123 Member Posts: 296
    edited August 2011
  • Outfield
    Outfield Member Posts: 1,109
    edited August 2011

    I was working 1/2 time and taking care of my little kids before my diagnosis.  I was off work for a week and a half after my BMX, then during chemo I worked one 1/2 day every two weeks, really light stuff.  My counts were too bad to do my usual job even if I'd felt better, but I felt awful.  Two weeks after chemo ended, I went back to my 1/2 time work and 1/2 time kids, except that I missed basically 1/2 hour every morning for radiation.  As soon as radiation was over, I was doing all of my 1/2 time job again.  Now it's really clear to me that I did not realize quite how bad I felt during treatment and how hard it was to do my job well.  I finished radiation last December and didn't really feel good until maybe 2-3 months ago.  I know someone who had a lumpectomy, but otherwise similar treatment to what I had, and missed something like three days of work total throughout the whole thing, never felt bad at all.  Certainly seems like there's a wide range.

  • Cat123
    Cat123 Member Posts: 296
    edited August 2011

    There certainly is a wide range!  I live in Canada so the insurance is different.  Plus, I was laid off just a couple weeks before diagnosis but my insurance had to still kick in.  I think they kicked me off early because  I don't have a job to go back to even though my oncs wanted me off for a few months.  I hate insurance companies....you pay them money for years and they are not there for you.

  • suebak
    suebak Member Posts: 199
    edited August 2011

    I am not stage III, but I have to comment on this post.  I can not believe the insurance company is just cutting you off.  Please tell me how an insurance company can decide if you are healthy enough to return to work.  You have no idea how this infuriates me.  Insurance companies run the medical field, they determine what tests are necessary, how long you stay in the hospital, etc, and apparently now they determine when you are cured.  Sorry for the rant, this type of crap drives me crazy.

     By the way, guess what I do for a living.  I am an insurance agent (lol).  Only write home, auto, business and life.  I would not sell medical insurance if I was starving.  I don't agree with the way this country allows insurance companies to dictate what procedures are medically necessary. Five minutes before I was wheeled into surgery, my BS asked me if I wanted him to remove tissue from my left breast, so that they would match after the lumpectomy.  He said the right would be significantly smaller when he removed the cancer and surrounding tissue.  Of course, I said yes.  I have since gotten a bill from the hospital, the insurance company denied payment, "not medical necessary"

  • Fighter_34
    Fighter_34 Member Posts: 834
    edited August 2011

    I worked through the whole ordeal. Life had to move on :((((

    -Took 3 1/2 weeks off for the BLMX

    -I work a compressed schedule so I arranged TX during those times.

    -My exchange surgery was pretty pleasant only took two weeks off, and went on vacay the latter part of recovery.

    6 cycles of TC; it was brutual on my muscles!!!!! My co-pay for the BLMX was only $220.00, for the exchange $175.00, and Chemo TXs were $35.00 a piece. I keep waiting for someone to pinch me and let me it's over with and done.

  • americanpinay
    americanpinay Member Posts: 338
    edited August 2011
    I worked full time through active treatment except for two days (plus weekend) after surgery. At the time, I thought I'd be more stressed if I make too many changes. So except for doctor appointments, I had my normal routine. Thinking back, I should have taken a couple of more days off just to relax and goof off.  Laughing Listen to your body.  Do what's right for you. Take care.
  • Ca1Ripken
    Ca1Ripken Member Posts: 1,254
    edited August 2011

    I stopped working after I started chemo and my ANC went too low to be around a lot of germs... went through chemo, mx, and rads... off almost 6 months.

    And, suebak... making the non-cancer side match, is absolutely medically necessary, and I do not believe they can deny that claim... not now, not for life!  I would be raising hell with a manager at that company! 

  • DAnne01
    DAnne01 Member Posts: 31
    edited August 2011

    I was off six weeks post-treatment.  Insurance sent me a form and my GP filled in stating I was recovering from SEs of chemo and radiation and would be fit to go back in six weeks.  Try calling the insurance company and asking for a similar form as they all have them.  I am with Great West Life. 

  • singlemom1
    singlemom1 Member Posts: 434
    edited August 2011

    I am trying to also figure out my work schedule so I hope it is okay that I post here even though I am not stage 3. I just finished chemo a couple of weeks ago. I had a very hard time during chemo and was sick throughout most of it.  I only worked a few days between each each infusion. I am also a single mother of a 5 year old that I am raising on my own.  I work over an hour away and am very nervous about returning to work.  I had a very hard time managing my schedule before my diagnosis because of the long commute. Sometimes I am in the car 3 hours a day total if there is heavy traffic or bad wheather. I do not know how I am going to go back to what I was doing before when I feel so much worse now. I am due to start radiation in another week or two. I do not know how the radiation is going to be for me.  Any suggestions or thoughts on what type of work schedule I should request?  I still have time under FMLA and my co-workers have donated almost 8 months of sick time to me! I work for a very large company and have been there for 24 years.Does radiaton really wipe you out? Just trying to figure out what is the best. I don't want to take advantage of my work but just trying to figure out what is best for my health and my daughter. Any thoughts?????

  • KSteve
    KSteve Member Posts: 486
    edited August 2011

    singlemom1 - I worked throughout radiation.  I didn't have lots of energy, but made it through the day ok.  But I have a desk job.  Some days I would leave after 5-6 hours instead of 8.  Just listened to my body each day.  Since you have a long commute and a great employer, I would plan on a reduced day at least one-two weeks in.  That way you won't have to drive home once you're already super tired.  And I have two older kids, so you still have to enjoy your evenings with your 5 year old.  If you can swing it, maybe consider half days, so you won't be wiped out at night with your child.  Just something to consider!  Good luck to you with your radiation.  It's very doable.

    Kathy

  • Cat123
    Cat123 Member Posts: 296
    edited September 2011

    Suebak,  I can't believe you were treated like that before and after surgery....disgusting.  How can an insurance company say not medically necessary?  Makes me so angry.  With my situation, again, how can an insurance company say that I am okay and cut me off?  I am not looking for handouts....my whole life I have only ever called in sick maybe one or two days a year.  But I have not been well after surgery, chemo, surgery, radiation.  I thought i would be.  And to call me and say....we closed your file yesterday....two weeks after radiation?!  This is the time that I haven't felt well.  I really feel like  I need some time to recover and be able to work at 100%

  • LindaKR
    LindaKR Member Posts: 1,577
    edited September 2011

    I finished chemo a year ago and radiation 11/10 and I'm still on long term disability.  They just ask for my medical records about every 3 months.  Even this far out I'm not able to go back to work because of residual pain and fatigue, that are not resolving. 

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