Starting chemo January 2009?

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  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited July 2011

    Massengile????I will try it.  I have tried tomatoe juice, with dish soap , aromatic shampoo and white vinegar. It worked well on our lab, but she sat still the whole time.  Stray Dog would not sit still whenever the water hit her.  I had DD help out, but Stray Dog would not let us wash her thoroughly....KMMD- I will try the Massengile douche and let you know. 

  • BerkeleyKim
    BerkeleyKim Member Posts: 390
    edited July 2011

    Hi Jewels! I take the quiet thread to be a good sign that everyone's doing well!

    I had MRI and blood tests last week in prep to see my onc on thurs which they cancelled and rescheduled for Monday. I just wanted to get my 3-month worry over. I've had some new aches and pains. Funny I didn't feel a thing in Maui for the 17 days we were there.Maybe the cold fog here is making me feel like 90 yrs old.

    I sure need the vacation. Taking one class in S.F., but the Professor is great and it's good to do while I"m not teaching. Don't know who will be my new co-teacher next fall. I'm already anxious about that.

    Happy summer, Jewels!

  • ktym
    ktym Member Posts: 2,637
    edited July 2011

    Quiet is good isn't it.

    Happy Summer to you too BerkeleyKim

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited July 2011
    Yes, very quiet!  I look forward to a train trip to Montana with dd.  Of course North Dakota has had lots of rain and flooding and so I am checking to see if we will be stopped along the way!  I am so excited about the trip.  I even reserved a room to stay in on the way out.  Then we will check out the very first school I taught at and the college I attended there.  Do you think the buildings will look smaller, like lockers do when you return to your elementary building?  Wink After the memory tour, we head down to Mt Rushmore and then to Colorado.If we get slowed down by flooding, we will head out to Whitefish, Montana.  Either way, we can't lose!  I am not sure how to get around the flooding in North Dakota, but I have been checking and AMtrak hasn't cancelled any of the routes I will be on.....fingers crossed!
  • ktym
    ktym Member Posts: 2,637
    edited July 2011

    Jess, that sounds like a wonderful trip.  Have fun.

  • Renrel
    Renrel Member Posts: 497
    edited July 2011

    Hey all, yes, quiet is good.  We are planning a staycation in a few weeks as a family and want to do a romantic couples vacation end of the summer for 3-4 to celebrate our 10 year anniversary. Unfortunately we are finding it hard to find something that works without a passport, for only 3-4 days, that is not outragously expensive. All the places we are interested in are too hot and muggy in August.  We were getting exctied about the Virgin islands but it looks like the timing for flights would make it so we would only really have 2 days of relaxing.  We may just end up doing something closer to home and doing it up big- fancy smansshi hotels and such, but I really wanted a beach with water water and palm trees and morning yoga and frufru drinks brought to your lounge chair.  One other possiblity is doing some national park stuff in the midwest as I have never done that. 

    Tomorrow I am using a vacation day to have sometime to get caught up at work without getting any new work to put me behind.  But at least I can come in late, take a long lunch and leave when I want and dress fairly casual.  Of course, the less time I am in the office, the less I will get done.

     I was pretty pooped today as I found my 7 y/o up watching TV at 2am.  When I asked what he was doing he, with a straight face told me the best shows are on at this hour.  Took me an hour to get him back to sleep.  Then I had to get myself to sleep.  Luckily I only had a half day of work due to a dentist appointment.  Unfortunately my dentist thinks I may need a root canal, one of my teeth may be dissolving itself from the inside and/or forming a cyst or something based on an x-ray.  One more medical appointment for September, along wtih my 6mth and seeing the Thyroid doctor.  As if September is not busy enough with Jewish holidays and school starting and hard enough with it being when I was diagnosised/ 

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited July 2011

    Hi everyone. Tomorrow I leave on the train....I will try to post photos at some point.  I hope all of you are well.  Hugs and kisses.

    Jess

  • BerkeleyKim
    BerkeleyKim Member Posts: 390
    edited August 2011

    Jess--have a great trip. Glad you can spend some time and have some adventures with dd!

    Renrel--that's too funny about your son! You must have cable--wonder what his idea of "best shows" is?

    My MRI a couple of weeks ago was fine, as was my blood work at onc visit. She's referring me to a gyn onc because I told her about my co-teacher being misdiagnosed with her ovarian cancer . She said just talking to him will put my mind at ease about me getting it.

    Had my 1st colonoscopy, which wasn't bad at all, and neither was the prep. Not as bad as the stomach flu I had last winter! Found one small polyp, benign but the kind that can turn into ca so I go again in 5 years. Funny that I'm almost thinking that far ahead in my life! I'm trying not to think ahead more than a few days--my summer break is almost over. Glad we spent so much time in Maui, and I'll be finishing my class, visiting my mom and sibs in so cal, out of town visitors have come and gone and will come some more, and I hope a few more trips for me before the school bells ring.

    Hope all the jewels are having a good summer.

  • Renrel
    Renrel Member Posts: 497
    edited August 2011

    Jess- have a great time.  Would love to see some photos.

    Kim - Glad the tests went well. Enjoy the rest of your summer.

    An aquaintance of mine past away from ovarian cancer a few weeks ago.  She was a very sweet woman I would see at another friends parties.  Her husband came to a bbq I was at on Sunday and was told he had to take to me before he left.  DH told me that he seemed to be fine until he spoke to me and either my hug or just being around a woman who survived seemed to crack his mask of doing fine.  She was his life and he is really struggling.  It was a bit unnerving to think that could have been and might still one day be my DH.  But then again it could be me or anyone we know.  Life doesn't come with cliff notes so you can predict the story line without living through it.  

    We are enjoying our staycation.  We have been to the beach, canueing, a movie, a BBQ, art musuem (for a kids party), an arcade, fireworks and to visit Old Ironsides and her museum, as well has having lots of meal out.  tomorrow we plan to do a city tour in a amphibious vehicle, go saling with friends, and if we have energy in the evening go to an large amusement park.  Thursday  we wnat to hike a place called purgatory chasem which DS should love,  lots of scrabbling and caves.  

    Hope everyone else is having a good summer.

    Renrel

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited August 2011

    I am back!  I had a fantastic time.  I will post those photos!!!  ( self encouragement talk- I just discovered how to do it on Facebook!)  I talked to one of my very first students and had a great time touring the school.  Later, dd and I went to Mount Rushmore and Devils Tower/ Battle at Wounded Knee/ Charles Russell Museum.  The highlights were great photos taken by dd of wild horses and a herd of Buffalo.  Gosh, how I realized what I loved about Montana, Wyoming and South Dakota.  We had a long trip home, but am now so glad to be back.  I will fill you all in later....

  • Renrel
    Renrel Member Posts: 497
    edited August 2011

    DH and I just booked a flight to Puerto Rico end of the summer for 5 days.  Going to celebrate 10 years of marrage plus my birthday.  We will get back home very late, around midnight and my 6mth check up is the next morning.  Is this going to an extreme to distract myself or better yet to stretch my vacation one more day with a medical appointment?  (The timing was actually completely accidental).  I am getting excited about the trip though.  Haven't taken a grown up vacation in 8 years.  One reason for the staycation was to save money for this trip and to go to disney around Thanksgiving. 

  • BerkeleyKim
    BerkeleyKim Member Posts: 390
    edited August 2011

    Jess--Glad you had a great time traveling with your daughter. Wow--to see an ex-student. I won't ask how old the student is! Funny I saw a little one I had 2 years ago at Norstrom Rack this wkend. He ran up and hugged me--wouldn't have done that in class. I spent a couple days last week in Monterey with my college grad daughter, and it was great. I tired HER out!!

     Renrel--how sad about the acquaintance with Ovarian cancer passing, and her poor husband. Maybe he figured you could relate to the difficulties of going through cancer. Have a GREAT trip! I'm ready already to head back to an island. I followed our Hawaii trip with MRI 3 days later--and I think being relaxed from the trip helped. You're fine.

    Saw my primary care today for a physical. He said I could live a long time--breast cancer is unpredictable. Thanks, doc (actually he meant well).

    Hugs to all Jewels as summer is winding down (for me...kids on 8-29).

  • Renrel
    Renrel Member Posts: 497
    edited August 2011

    Have minor cancerversary issues.  Nothing overwhelming, but getting flashes of that feeling like you are living on borrowed time.  Sure it has to do with my 3 yr cancerversary coming up and my onc check up in two weeks.  All the testing stuff was in September for me.  Trying to sit wtih feelings while reminding myself that everyone is living on borrowed time.  Not like any of us had some guarentee as to how many years we had coming prior to our diagnosis.  But I guess having a b-day and my parents 50th anniversary and my 80+ father in law having some health problem all sort of make the passage of time more real. 

  • ladyjane54
    ladyjane54 Member Posts: 192
    edited August 2011

    Hi Everyone:  Can hardly believe that summer is coming to an end. Since my husband always says  "Boo Hoo! not everyone has had the summer off"  I will not ask for your sympathies, only a wish and a pray for a good class and a good year. 

    I have had the most amazing summer.  Had two new grandsons added to the family - one in June and one in July.  I got to witness the birth of the July one and wow what an awesome experience.  Did alot of travelling with my youngest DS who marched drum corp for the first time and had a wonderful time following him around on tour and helping out in the big mobile kitchen that also followed them around.  I will never complain about making lunches for my kids again after making 150 P&J sandwishes at one time. Had a family reunion at my sister's house and it was so fun seeing all the neices and nephews who are now all grown up.

    Came across a great idea for raising $ for cancer research.  Check out my link if you have a chance.

    http.//wishes.causes.com/wishes/355910

    Glad to hear everyone that checked in is doing well.  Got the card saying time to make the appointment for 6 month check.  Always makes me nervous.  I will be three years out this November.

  • ladyjane54
    ladyjane54 Member Posts: 192
    edited August 2011

    Hi Everyone:  Can hardly believe that summer is coming to an end. Since my husband always says  "Boo Hoo! not everyone has had the summer off"  I will not ask for your sympathies, only a wish and a pray for a good class and a good year. 

    I have had the most amazing summer.  Had two new grandsons added to the family - one in June and one in July.  I got to witness the birth of the July one and wow what an awesome experience.  Did alot of travelling with my youngest DS who marched drum corp for the first time and had a wonderful time following him around on tour and helping out in the big mobile kitchen that also followed them around.  I will never complain about making lunches for my kids again after making 150 P&J sandwishes at one time. Had a family reunion at my sister's house and it was so fun seeing all the neices and nephews who are now all grown up.

    Came across a great idea for raising $ for cancer research.  Check out my link if you have a chance.

    wishes.causes.com/wishes/355910

    Glad to hear everyone that checked in is doing well.  Got the card saying time to make the appointment for 6 month check.  Always makes me nervous.  I will be three years out this November.

  • ladyjane54
    ladyjane54 Member Posts: 192
    edited August 2011

    Hi Everyone:  Can hardly believe that summer is coming to an end. Since my husband always says  "Boo Hoo! not everyone has had the summer off"  I will not ask for your sympathies, only a wish and a pray for a good class and a good year. 

    I have had the most amazing summer.  Had two new grandsons added to the family - one in June and one in July.  I got to witness the birth of the July one and wow what an awesome experience.  Did alot of travelling with my youngest DS who marched drum corp for the first time and had a wonderful time following him around on tour and helping out in the big mobile kitchen that also followed them around.  I will never complain about making lunches for my kids again after making 150 P&J sandwishes at one time. Had a family reunion at my sister's house and it was so fun seeing all the neices and nephews who are now all grown up.

    Came across a great idea for raising $ for cancer research.  Check out my link if you have a chance.

    http://wishes.causes.com/wishes/355910

    Glad to hear everyone that checked in is doing well.  Got the card saying time to make the appointment for 6 month check.  Always makes me nervous.  I will be three years out this November.

  • Renrel
    Renrel Member Posts: 497
    edited August 2011

    Ladyjane - That does sound like a great summer.  congrats on the additions to your famiyl. Enjoy them.  Interesting website.

  • momand2kids
    momand2kids Member Posts: 1,508
    edited August 2011

    Hi all

    glad to hear everyone was having a good summer.... spent some good beach time, but now back at work, getting kids ready for school, etc.  Have been off my schedule so not feeling great (bad eating and lack of exercise) and have had  a headache on and off for the last couple of days--- which I think may be related to grinding my teeth at night-I do have a night guard but I keep forgetting to put it in-then I have the headache then I worry that it is something related to bc....sigh.....

    Just a little overwhelmed about the start of the academic year (I work in higher ed) and it is always such chaos at the beginning, no matter how you plan...sigh..... 

    lady jane, I was in drum corps as a kid--it was great fun--- but does require a lot of parental patience!!!!

    hugs to all

  • Renrel
    Renrel Member Posts: 497
    edited August 2011

    errrrrr.  It looks like my vacation plans are quashed!  Irene has passed through Puerto Rico but her damage remains.  The hotel on Viequies says we should postpone since even though the have energy water on site the near by resturant do not and the beaches, the main reason for going, are a mess.  The San Juan hotel says everything is fine by them, but we only wanted to spend a day or so there.  The beach was the main attraction.  We can not come up with an alternate destination on short notice.  Still no passports so can't travel out of the country, the east coast is out due to Irene.  Las Vagus and Texas are too hot.  The West coast is too far a flight for a 4 night vacation.  Staying home means risking being in the hurricane as well.  PooPooPooPoo!  Sigh.  I am trying to go with the flow but I have to feel my disappointment first.

    Thanks for leting me rant and vent.

    Renrel 

  • brendafromflorida
    brendafromflorida Member Posts: 90
    edited September 2011

    It has been a long time since I have been here, but that doesn't mean I haven't thought about each of you.  It seems like everyone is doing well.  I have had an eventful year.  I finally retired and am enjoying a life free of the stress of the ratrace.  I wasn't really ready to retire but due to changes within the upper management team, I found it impossible to stay.  It's all good though.  I am so happy with my new life.  The beach is my new office.  Doing whatever I want to whenever I want to is absolutely a new and very welcome change.  Cool  I am trying to figure what I can do in the line of volunteer work.  Anyone have any ideas?  

    My next 6 mth onc visit is next month and hoping again that all is well.  Reconstruction is complete.  Didn't go quite as well as we had hoped due to a severe infection after the first surgery, but I do have a boob and that is so nice.    

    Hope everyone continues to receive good reports and enjoy life.   Much love, Brenda

  • Renrel
    Renrel Member Posts: 497
    edited September 2011

    Brenda - Congrats on retirement and the new boob. So glad life is going well.  As far as volunteer work think about what makes you happy and then explore a way to share that.  Like to cook - look at a soup kitchen kind of thing.  Like to work with kids, volunteer in a school or be a scout leader or read to kids at a library.  LIke the reading and or teaching, look into a English as a second lanugauge program, maybe through a library. Like the arts, be a dosen at a museum or a usher at a theater.  If there isn't a group that need what you want to offer, start your own. 

    We ended up going to Puerto Rico anyway, just changing where we went.  Had the most wonderful time.  Stayed two nights on a fancy resort and 2 nights at a very special inn in old San Juan.  We were upgraded in both places and as we were just not very hungry or that into drinking we got very good value for our dollar.  Which is not to say we did not have a few mojitos and some very yummy food, just did not feel the need to drink at every meal or order two full entrees at every meal.  If anyone is looking for a weekend away and willing to pay airfare I can not say enough about The Gallery Inn, assuming you like unique and can climb stairs and handle uneven floors since the place is full of brick floors and stairs, but they lead to the most facinating courtyards and sitting rooms and terraces. Filled with art and live birds and interesting people.  

    Took Gabe rollerblading again yesterday. He has not been out since Father's day when he tried it for the first time.  He is doing great, though he still needs to hold on to us.  The three of us must make quite a picture, hand in hand rolling and losing balance and regaining it.

     I had my 4 mth check up.  Went well.  I am going to have a bone scan to see if we can find out why my hip/groin is hurting.  We don't suspect disease but maybe a stress fracture.  Just would be good to know what it is so I can know what if anything to do to make it better.  In two weeks I have an appointment with a thyroid doctor to see what he thinks of the very small nodules they notice on my last scan.  

    Gabe starts school tomorrow and life will get very busy again.  He has after school activities on two days and soccer on Saturdays and Sunday school and theater group on Sundays.  I was hoping to get him started on an instrument this year but I don't want to add any more to the mix.  Maybe in the winter when soccer is over, but I want to get him ice skating lessons and maybe cross country skiing as well (we have a new outdoor skating rink in our neighborhood and there is a cross country ski place with a trail that goes right behind our house.)

  • ktym
    ktym Member Posts: 2,637
    edited September 2011

    Brenda, congratulations, that sounds wonderful.  DH would love me to retire, I'm just not near ready yet.  However, I do totally get the point about new managemen t, if we had a big shake up and things changed much I wouldn't start over somewhere else and move etc, I will retire.  One of the things I had to give up when I went back to school years ago was the time I spent volunteering in DS's school library.  I so loved doing that.  It wasn't anything exciting.  Stamping books in or out  and filing and stacking.  But, they could rely on me to do it correctly and I love books so much I was in heaven.  Hearning the kids stories and seeing them happy with their books was one of the most fun things I've ever done.  If I could get that experience back it would be great.  So, I think Renrel is right.  What do you enjoy?  Books, typing, cooking?  What do you find so fun that doing repetitive meanial aspects of it means it is still fun? 

    Good luck on the bone scan and thyroid work up Renrel and please keep us posted.  Your vacation sounds awesome and I love the description of the Inn.  I do so love hearing your stories of DS and how he's doing.  Kept me smiling many days on chem when I wouldn't have otherwise. 

    Well, my outside of work time right now is being taken up by therapy visits.  The LE is so bad right now.  Very discouraging actually.  DS's wedding is less than a month away.  I called and rescheduled all my follow up visits for this month until later next month.  I'm not doing cancer related things until after the wedding.  If the LE will allow me I'm going to forget I ever had it until then.  

    Don't stop in as much, but, think of all of you often.  So, if I missed a posting from earlier please forgive me. I'm finding that staying off the boards except for quick trips in, and doing even that much less often is healthier.  Seems like a lot of us in our chemo group are doing that. I don't think it is good to let BC take over a portion of your every day, and the computer and the  boards make it a little too easy for me to do that.  I try to look and take a turn at helping newbies sometime, but, otherwise breaking that habit has been good for me.  If I come in,  I check in here and with the thread about exercise and reading--then close out the page for a time. Well, do get a lot of help on the LE thread still, but, I am so trying hard to keep my focus on enjoying today and making BC a past event that is only that--the past.

  • brendafromflorida
    brendafromflorida Member Posts: 90
    edited September 2011

    Renrel and Kate, thanks so much for your suggestions.  The LE is my most disturbing side effect of this disease.  I lost 22 lymph nodes and it has been a struggle.  I was lucky enough to change therapists who suggested a new pump made by Flexitouch.  Most therapists are not really positive regarding any type of pump but this one is a bit different.  Thank God I still had very good insurance at the time and I was able to get the machine without a dime out of pocket.  It is one hour a day of massage and movement of fluid.  It keeps it pretty controlled.  I also have a Reid sleeve which I wear at night.  Please check it out.  While it doesn't completely remove all fluid and the arm and hand are still oversized, it absolutely does keep the swelling down from what it was before I had this daily therapy. 

    I agree that trying not to focus on the boards is a good idea.  I still think of this every day, but try my best not to focus on it. 

    Enjoy every day.   Hugs, Brenda

  • ktym
    ktym Member Posts: 2,637
    edited September 2011

    Thanks Brenad, I will check it out.

  • Renrel
    Renrel Member Posts: 497
    edited September 2011

    Had my thyroid visit yesterday. So far looks good. Nodulal is too small to feel and I have no systems other than brittle nails.  Don't have blood work back yet and in a few weeks they want me to have a sonogram to take a better picture of the bump.  So are does not seem to anything to worry about.  Most people have nodules as they get older, I just happened to have a scan that brought awareness to mine.

     Meanwhile my ovaries don't seem to want to give up the ghost.  Last time I had my period was, I believe February, just before my 4mth onc appointment.  Was telling the doc yesterday that I must be in menopause for real this time, so today I am spotting.  Of course I guess I have to worry if the tamoxaphine is causing uterius problems.  How do you determine if you have unusally bleeding if you are in peri-menapause.  

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited September 2011

    Hi all.  I have a sonogram every six months on my thyroid.  I have hashimotos and it is a lumpy bumpy thyroid.  I am hoarse from it, I think.  I hope that it isn't something else......

    I have been very busy and have missed everyone on the our thread.  I hope all is well with you and yours.  My life will settle down after the 29th of September, when our recall drive is completed.  Fingers crossed!!! 

    Hugs and kisses!

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited September 2011

    Hi everyone.HOw are you all ????

  • BerkeleyKim
    BerkeleyKim Member Posts: 390
    edited September 2011

    Jess--still here. Get too lazy to log in and write, It's always so good to hear from Jewels who still check in!

     Been back at work since last week of Aug. Have an interesting group of 7 kids with special needs in the K class--27 total. New co-teacher is young but smart and friendly. I'm still missing my co-teacher who died of ovarian cancer so much. I hate cancer.

    Sept. 18 was 3 years from diagnosis. Had some friends over to appreciate (not celebrate--don't want to jinx). They saved me through the whole ordeal. We ate brunch and went for a long walk. My daughter is writing one of her college  app essays on how the cancer affected her--i just started crying!! 

     My hip has been hurting terribly, so of course I'm thinking the worse. But taking 2 advil in am and pm really helps so maybe it's something else. I had hip pain on the same side years before bc. My Lymphedema is acting up. I bumped my elbow in Aug while helping my mom and I think that's why it's swollen. Finally got in to the LE clinic. Was told that the only way  to get it to look like other arm is to wrap 24/7. I'm going for it but have to wait til end of Oct. I go in everyday  for 2 weeks to get it unwrapped, messaged, and wrapped. By then it will be colder and I won't miss my 3 day/wk swims, pllus I'll tell the kids I'm turning into a mummy for Halloween.

     love to all JJs!

  • Renrel
    Renrel Member Posts: 497
    edited October 2011

    So today is 3 years since I was diagnoised and I did not even think about it till I went online and glanced at this site.  So I am moving forward.  I was supposed to have a bone scan of my hip/groin on Monday and completely forgot to go, which turned out to be good since the hospital sent me a card for the scan, which had been rescheduled from the 15th, but never actually rescheduled the appointment.  So I go this Thursday instead. 

    I am feeliing well.  Had a nice Rosh HaShona with family.  Took 2 days but then snuck in to work the second day to get rid of some of my backlog. DS's best friends is sleeping over tonight (good distraction for me from reminising) and he has been anxiously awaiting it all week.  He insisted on taking a bath every day and even vacuumed his room without protest.  We should have these more often.

     Thats it, I need to go clean a bit before we take the boys out.

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited October 2011

    I am two weeks away from the dx, though the suspicious mammo had already come back.  I was so in denial; I remember getting steamed at the surgeon who runs a breast clinic for mammograms because she made me wait in the waiting room.  I almost walked out during the initial appointment to plan for a digital mammogram.  The original mammo and the ultrasound picked up NOTHING for my right breast and a funny shadow on the left breast.  Hm........my surgery took out a mess of cancer in the Right breast.  Iguess I am thankful for the "shadow" on the mammo of the left breast, cause if not, I 'd probably still be sitting here with cancer in my breast.

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